Food--The Struggle (It's Been Real, Folks)

 

Original image via Flickr Creative Commons courtesy of Michael Stern

 

It Begins

My first systemic reaction to a food happened right after Christmas in 2004. Brandon, my family, and I were vacationing in Branson and were watching a movie. Along with everyone else, I was popping pistachios.

Then something odd...my ears swelled, grew hot, and began itching. My throat followed suit. I put the pistachios away, popped a Benadryl, and didn't think about the experience again for over a year.

Over the course of 2005, I  sometimes felt unwell after I ate--weirdly sleepy, grumpy, bleh--so I began The Maker's Diet with my parents to clean up my eating. That seemed to help. For a while.

Discovery

Then in early 2006 (a particularly stressful time in my life), itching, hives, swelling, shortness of breath, etc. became common during and after meals. I don't know why it took so long for me to stop living in denial, but eventually I was able to associate the way I felt with food.

Within a few weeks, I eliminated wheat, dairy, corn, soy, and tree nuts from my diet, and I stabilized. For a while.

Spring came with a case of hay fever from HELL. I went about either drunk, sneezy, coughy, sleepy, and sensitive to light and noise or knocked out cold by Benadryl. I wish I were kidding.

Original image via Flickr Creative Commons courtesy of NIAID

The Allergy Shots Experiment

So I saw an allergist. He prescribed daily Claritin, Singulair, and an inhaler along with weekly injections to treat my environmental allergies. (He didn't want to touch my food allergies. They scared him.) I improved. For a while.

A few months into treatment, my allergies worsened. I became increasingly sensitive to the foods I knew I was allergic to. New foods piled onto the "no-no" list. If I had to walk across campus while staff was mowing grass? Asthma attack guaranteed. And then I began reacting to the allergy shots themselves.

At first, it was just localized swelling and itching at the site of injection. No big deal. Normal, even. Later, I had systemic itching. Oh well. Pop a Benadryl. Whatever. After that, full body rashes. Not pretty, but not life-threatening. Go back to the office. Get a steroid shot. Go home.

The day my tongue and throat swelled was a different matter. After an in-office dose of Benadryl failed to bring my symptoms under control, I was given an injection of Epi. The nurse told me this was normal. That some people need Epi every week after injections.

Uh...no thank you.

When I became pregnant with Micah, I used my pregnancy as an excuse to stop treatment, and I never went back. And I got better. For a while.

Original image via Flickr Creative Commons courtesy of Greg Friese

 

The Descent

After pregnancy, things went back to normal...but worse. In June 2009 when Micah was three months old, a few soggy chow mein noodles hidden in a sub par chicken salad sent me to the ER. That episode ended with two Epi injections and a frustrating 10 days of steroids during which this breastfeeding mama had to pump and dump several times a day. Good times.

The next eventful moment happened in January 2011. Brookshire's began carrying pre-made gluten free muffins in the bakery, so Brandon brought some home as a treat. Which they were...until two hours later.

Guys, I'm not a puker. I have a gag reflex of iron. I once went 10 years without a good purge. Even now, I have to be pretty sick to toss my cookies, but that day...I tossed my muffins. Again and again and again and again.

In two hours I puked 11 times. That may be more times than I've puked in my life outside of that day. Each heave was so forceful I was sure something would hemorrhage. Every time it ended, I collapsed onto the floor beside the toilet unable to move.

I don't know how to describe that level of misery except to tell you that I wanted to die. I prayed the Lord would take me. No other pain, no other emergency has ever caused me to pray that prayer.

There was no relief. I couldn't pick myself off the cold bathroom tile. I think Brandon eventually did it himself after he jumped a few flaming hoops to get me the anti-nausea medicine I needed.

Unfortunately, I believed my little puke-a-thon was the stomach virus of the apocalypse. My mistake.

As my friend Tim said the other night, "What you believe matters."

Once recovered, I ate another muffin. Two hours later, I start puking again. As if the first mistake wasn't enough, I used the anti-nausea medicine too soon, thereby trapping the offending substance (teff flour) inside my body, which forced it to run its course.

Take my word when I tell you this was a bad decision.

A few days after this, I caught an actual stomach virus, then another virus, then the flu. Then I got pregnant. Oh boy.

I stayed sick until week 26 of my pregnancy (which amounts to six months of constant illness), at which point I perked up. Until I had Sara.

During labor, I had a systemic reaction to the epidural, which didn't even work in the end. Man, oh man, was she worth it, but dude...

 

The Plummet

After her birth, I wasn't the same. I knew something was wrong. Suddenly, it wasn't just what I ate. It was what I touched. What I breathed. But I couldn't think about me. I had a sick baby to take care of.

Things spun out of control. I couldn't safely administer Sara's medicine because I reacted to it upon skin contact. I lost several more foods. Anaphylaxsis became a common occurrence. I lived off Benadryl. And I bought a medical alert bracelet because I never knew what would happen, when, where, how, or why.

When God healed Sara of RSV and her chronic ear infections, I snapped. Like a twig.

One afternoon, I ate a coconut macaroon for a snack and immediately had an anaphylactic reaction. The next morning, I awoke to pain. Tissue pain. Muscle pain. Bone pain. All of it. Pain which never left. Which I still have to this day, to a lesser degree.

I began to reject all food. Even water made me ill. After several days of being unable to eat and too slow to drink, I dehydrated and had to be given IV fluids.

Elders from our church prayed for me. Within a couple of days, I was able to eat again, but everything gave me trouble. I might eat one thing one day and reject it the next.

We struggled for months to figure out what to do. We tried fasting, supplements, liquid nutrition, amino acid powder. I dropped a lot of weight very quickly. I remember wondering if I would die of starvation.

In September 2012, we learned of the GAPS diet, which is a gut-healing diet. I followed it to perfection, practically living off broths and soups. And it was enough. For a while.

 

Floxed

I won't go into the details of how it happened--you can read the story here--but after being poisoned by a fluoroquinolone drug, my issues worsened. This is when I had to stop drinking coffee and wearing make-up. I lost a ton of foods at once and had to begin wearing a mask every time I ventured into public. Even normal, natural scents like lavender essential oil sent me into respiratory distress. Anaphylaxsis became even more common. As in "three to five times a week" common.

I remember at least two instances during that time in which my spirit separated from my body, allowing me to see everything outside of myself. I remember deciding at least three times to live rather than depart to my Lord for the sake of Superman at my bedside.

In early June 2013, I found myself in another crisis. I again ended up in the ER. This time, we all wondered whether or not I would survive.

My family called a prayer meeting on my behalf, which resulted in God saving my life in a really cool way. For the summer, I was able to eat anything that grew in our garden. Even watermelon, which I hadn't been able to eat in years.

(Note: Prayer changes things. Every time.)

When the summer ended, so did my freedom. I lost all the foods I had enjoyed over the summer and several more, and had one final crisis in December. Fortunately, I was able to stay out of the hospital that time.

Nutritional Therapy

 

I enlisted the help of my friend Jennifer Nervo of 20 Something Allergies in February 2014. She had just become a licensed nutritional therapist. With her help, I gained stability in my diet by following a low-histamine Autoimmune Paleo plan on a four day rotation, which is every bit as complicated as it sounds. I couldn't eat a wide variety of foods, but for the first time since I became ill, I was eating enough.

Even still, my "safe foods" list dwindled.

In summary, food has been a struggle, and the struggle's been real. 

I always knew God would heal me, but part of me doubted my food allergies would be included in that healing. I mean, they've been around for a decade.

When I imagined being well, I imagined going around mask-free and fearless. Having my old energy back. An absence of pain. Even the ability to eat the things I could before I was really sick.

But then Jesus showed up, and all this impossible stuff started happening. First my hands. Then the way I tolerated cold temperatures. Then no more mask because fragrances no longer affected me as they once did.

I couldn't help myself. I asked, "Why not my food allergies?" If Jesus could heal all the other symptoms, he could heal those too.

One day, I tried a bite of a gluten-free cookie. Just to see what would happen. Nothing happened. Then I tried goat milk. Again, nothing. Then eggs. Nothing.

Bulletproof

 

When I no longer required a mask, I told Brandon I wanted to attend the Project 41 White As Snow gala on January 22. (Project 41 is a ministry for sex-trafficking victims and prostitutes in Ouachita Parish. The gala is their big fundraising event each year. Contact me if you're interested in joining the prayer team.)

One morning not long after buying the tickets, I was praying through the Lord's Prayer. (I often use it as a guideline and personalize it to fit the needs of the day. Martin Luther style.) When I got to "give us this day our daily bread," I felt the Holy Spirit say, "You have not because you ask not." And I knew in some mysterious way He wanted me to ask for permission to eat the food at the gala and if I did, He would allow it.

I began telling people--Mom, Brandon, my prayer group--"Just you watch. I'm gonna eat that food and be fine. No matter what it is."

Sure enough, I enjoyed grilled chicken, candied carrots, seasoned green beans, twice-baked potatoes (with cheese and pseudo bacon bits), and two bites of cheesecake (no crust) that I didn't have to cook. Without issue.

As Brandon so eloquently put it, I was bulletproof.

The Big Leagues

 

My stomach wasn't too happy the week following the gala. I had a fair amount of GI inflammation, nausea, intestinal pain, and bloating. Which--granted--isn't all that bad considering what I've been through, but still...

I figured God had given me a free pass for that one night and I'd have to wait a bit longer for complete healing. No big deal. I can be patient.

My prayer group met on Friday night. They asked for testimonies of miraculous healings, which we've been seeing in a steady stream since December. I shared my story again for those who hadn't heard it and for those who wanted to hear it again, during which I mentioned I was believing God for complete healing of my food allergies.

When I got home that night, the Holy Spirit whispered to my spirit, "You haven't asked to be able to eat the food tomorrow."

I'd planned to attend a bridal luncheon in honor of my cousin's fiance the next day. A meal would be served. Honestly, partaking hadn't even occurred to me. Neither had requesting permission to do so.

"Okay, Lord. I would love to eat the food tomorrow. If it would please you, will you allow me to enjoy it?"

I lacked the assurance I felt before the gala, but was content to leave the matter in the Lord's hands. I knew I would know whether or not the food was for me when I saw it. No matter what, I was thrilled just to attend. I hadn't seen my Chapman cousins in years.

 The menu.

Long story short(er): I. ate. it. all. (Minus the orzo and cheesecake crust.)

I knew the moment that fabulous salad was placed before me, it was meant for me and I would be fine.

I even took a bite of the orzo pasta, mistaking it for rice. (I didn't read the menu carefully.) That mistake might have killed me three years ago and would've required Epi and an ER visit in 2009 and 50-100mg of Benadryl as far back as 2007.

But that day my face swelled a little bit. Basically, the equivalent of a sneeze. I didn't even flush.

Mom and I laughed and laughed and laughed throughout the entire meal, which may have been slightly inappropriate, but we couldn't help it. We were absolutely drunk on the joy of the Spirit. (We may have cried a little, too.)

What happened was impossible. The food was delicious. And that cheesecake? The best thing I can remember eating in 10 years. Hands down.

"Thank you, Jesus. Thank you, Jesus. Thank you, Jesus," was the song of my heart which accompanied each bite.

The End

 

The night after the luncheon, I renewed the habit of praying over each meal (in addition to Sara's sweet blessing), thanking God and praying it would heal and nourish my body and the bodies of my family.

This habit accomplishes several important things at once:

1. It reminds me food is a gift, not a right.
2. It reminds me of the Giver.
3. It's a declaration of dependence upon Father for all sustenance. 
4. It forces me to be a good steward of what I put into my body, which is the temple of the Holy Spirit (1 Corinthians 6:19), and reminds me that "all things are lawful for me, but not all things are helpful" (1 Corinthians 6:12).
5. Each bite becomes joyful worship (1 Corinthians 10:31).  

Here's what has happened since:

 

 Oatmeal and goat milk for breakfast yesterday morning. 

I hadn't eaten oatmeal in four years. Brandon left

some in the pot, and I just knew it was for me!

A little coffee to go with my Jesus time this morning. 

First time in three years.

Lawful, not helpful, but oh so yummy.

Omelet with farm fresh eggs, onion, bell pepper, spinach, and goat cheese.

Not low histamine and definitely not AIP approved.

Should've made me flush, sneeze, and itch for the rest of the day, but I'm good.

After my bowl of oatmeal yesterday morning, I said it out loud and posted it to Facebook: I don't have Mast Cell Activation Disease anymore. I'm healed.
 
What a delight eating has become! I can sit before my plate with gratitude, joy, and confidence. No fear. I've been eating foods I haven't enjoyed in years without a hint of discomfort, even when I kind of expect it.

For so long, food was an enemy. No more.

I've been healed of an "incurable disease" by my Lord and Savior, Jesus Christ. I no longer claim MCAD. All my online biographies have been changed (see below). I humbly and enthusiastically accept the gift the Lord is pleased to give--healing of body, mind, and spirit.

Just one month and a couple of days into 2016, the Lord has proven His word to me. This is the Year of Abundance, indeed.

A Year of Wait, A Year of Peace

 "When Heaven is going to give a great responsibility to someone, it first makes his mind endure suffering. It makes his sinews and bones experience toil, and his body suffer hunger. It inflicts him with poverty and knocks down everything he tries to build. In this way Heaven stimulates his mind, stabilizes his temper, and develops his weak points." 

 --The Book of Mencius (Chinese, 300 BC)

quoted in Timothy Keller's Walking with God through Pain and Suffering

January is always hard for me. I've tried to like this lackluster, step cousin of a month all my life, and just can't quite manage it. I think I shall give up the endeavor entirely, and attempt to peacefully coexist with the grey, cold, hard month of January, accepting her just as she is because she has much to teach me.

As the first month of the year, January offers an opportunity to reflect upon the year now gone and the new one to come. For the last three years, I have kept a regular journal which I like to review as a part of my new year contemplations. Upon the pages recorded in 2013, I find assurance of God's faithfulness, a reminder that January passes and clear evidence of quiet, mysterious growth over time. I rediscover surprises--both good and bad--and find how wrong my guesses concerning the future often are. The latter discovery has so humbled me, in fact, that I have resolved to make no resolutions this year, for a staggering amount of my good intentions and serious efforts crumble to dust. No worries though--dust has its place. And I do not have to dig deep to discover treasures hidden in the rubble.


1) Mom's jubilee birthday celebration. Though jubilee often manifested itself in perplexing ways, I don't think a one of us would fail to recognize its presence in 2013.

2) Brandon's personal and spiritual growth. A stronger marriage for the struggle. I so respect and admire this man.

3) God planted in my heart a desire to adopt. I expect a significant passage of time before this desire comes to fruition, but I am excited and expectant.

4) My Papaw, Jenny and myself looked death in the eye (almost simultaneously), and were granted more time.

5) Jubilee's first summer garden. I consider that first garden to be the miracle prayed for on my behalf on the 8th of June.

 

6) New friends. Meetings and reconnections with old friends.

7) The time spent in my parents' home this summer. A renewed closeness with each of my parents.

8) The inception of the novel I am writing.
 
 9) Jenny's wedding.

10) Richard Morrison becoming a part of our lives through his marriage to Hannah. This man is a blessing to us all. We are thrilled to have him in the family. P.S. The wedding was beautiful, and I was able to attend.

All wedding photos taken by Jolly Tucker Photography.

11) Growth in the children: Micah has overcome fear and awkwardness. Therapy has helped him become who he really is--outgoing, friendly, hilarious and unafraid. He is learning with every question he asks, and like any four year old, he asks a ton! Best of all, I see the seeds of the gospel taking root in his little soul, and it thrills this mama to no end.

 

Sara has responded well to changes in her diet. Her cognitive development and emotional control have improved tremendously. I thought she might be a slower learner than Micah, but it turns out that I was wrong. Now that the allergy-induced brain fog has cleared, she is incredibly observant, soaks in information like a sponge and makes impressive connections between concepts, events and persons.

 

It comforts my sore heart to know they are blossoming in spite of the limitations my illness creates. (Thanks to the family members who help me water my little flowers.)
 

12) My own growth. I don't say this with any pride in myself for I know the achievement belongs to the Lord alone, but I am a better person for living through 2013--January and all. I know and love my Jesus better, and that one fact makes me better in every way a person can be better. There are many "miles to go before I sleep," but growth is the thing.

The lesson of 2013 was "wait." I asked the Lord to show me what it means to wait upon Him years ago, and He answered. Not as gently as I had in mind, but He answered. Though I am still very much in a waiting period and still learning to wait well, God has revealed that 2014 has a new theme--"peace." Peace in knowing what is wrong with me and understanding my prognosis, peace in not knowing the future. Peace in fear, peace in loss, peace in heartbreak, peace in grief. Peace, peace, peace. Pure, perfect peace transcending all we comprehend of life and death.

While I have resolved not to make resolutions (as it seems I am powerless to make anything happen regardless of the strength of my will), I have in mind a collection of challenges for myself. Some matter more than others. God is my peace in success or failure.

2014 Challenges:

1) Know Christ more fully.
2) Seek diagnosis and greater understanding of my disease at Mayo Clinic in May.
3) Potty train my girl.
4) Send my boy to school. Those of you who know me know I wanted to homeschool my children before I had children. However, I believe that for homeschool to be successful, a mother must be able to get her children out of the home regularly for cooperative learning and socialization experiences. I am unable to do that, so I believe it is in Micah's best interests to attend school. Thankfully, we have found a school which matches our educational philosophy and goals.
5) Love my family and friends in creative and meaningful ways; freely accept the love they are able to give; forgive disbelief and misunderstanding.
6) Be "joyful in hope, patient under trial and faithful in prayer."
7) Work on the novel.
8) Read more; Facebook less.
9) Stop trying to predict or control the future.
10) Dance during hard moments. Literally--dance.
11) Laugh upon every opportunity.
12) Stop waiting to feel better to live. Weigh the risk and reward. Pray for wisdom. Live.

While January 2014 seems to be no different than the Januarys which have come before and though I have not had a truly "good day" yet this year, I am brimming with anticipation. My girl will be potty trained soon. No more diapers! My boy will turn 5 and go to kindergarten. I will go to Mayo and turn 30 soon after. Brandon and I will celebrate 10 years of marriage. And then there are many surprises which will come our way. Some surprises will be welcome, some will be unpleasant, but all will be for our good. I can rest in the face of the unknown because "the Dayspring from on high has visited us to give light to those who sit in darkness and the shadow of death, to guide our feet into the way of peace" (Luke 1:79).

Peace--a beautiful word.

May 2014 be a year of peace for you, too.

Jubilee Farm

Thanksgiving is my favorite holiday. I so enjoy gathering with family over a delicious, bountiful meal, looking into the faces of those I love. It causes me to ponder Heaven--an eternal feast with our Savior and the family of God. My heart flies with joy in the day and hope for the future. Christmas is great, but we have brought much "doing" into it. Thanksgiving still allows me to "just be" with beloved souls as I contemplate the goodness of God.

For as long as I can remember, my mother's family has gathered in my grandparents' living room on Thanksgiving night. Before the feast, we bless the meal and share one thing for which we are grateful. We have so many blessings from which to choose. The room which once seemed spacious is now quite snug due to the marriages and babies of my generation. There is food enough to fill us all. We have been redeemed by the blood of the Lamb. Our answers range from "toilet paper" to "Jesus Christ" with many things in between. There is always laughter. There is always at least one "amen."

Due to my extreme sensitivities, I will not be able to join them this year. The thought saddens me, but I don't see why I have to break from all tradition. If I could be with them tonight, upon my turn to give thanks, I would answer, "Jubilee Farm."

To truly appreciate my answer, a story must be told.

Early in 2012, my dad had a difficult decision to make. He could retire at the end of the school year, or continue a job he no longer enjoyed in order to secure a more comfortable retirement. Dad's health was deteriorating, but if he resigned my parents would no longer be able to afford their house. Mom encouraged him to retire anyway.

My parents brainstormed about possible jobs my dad could do. A bad back is a bigger obstacle than one might think when considering a career change at the age of 60. They asked the Lord to guide them, and waited with eyes wide open.

One day, Mom came upon Proverbs 27:27--"There will be enough goats' milk for your food, for the food of your household and maintenance for your girls." (ESV)

She shared the scripture with Dad. "Maybe you could farm," Mom suggested. "You can grow our food, and maybe even make a little money." Dad once wanted to farm for a living, but his grandparents discouraged him so he went to college instead. Mom has always dreamed of a Little House on the Prairie lifestyle. It was a crazy idea, but my parents are just the right kind of crazy for this brand of adventure. 

If my parents were to become farmers, they needed to sell their house and find some land. They discussed moving closer to Farmerville to be nearer to Mom's parents and my family. Mom asked her dad to look for property outside of Farmerville. In no time at all, he secured the twelve acres which would become Jubilee Farm.

But there was one small problem: to buy a farm you need money, and money was something my parents did not have. Mom's parents agreed to help. They covered the cost of the land with Mom's inheritance and a promissory note which Mom and Dad would pay within a year upon the sale of their house. It didn't quite work out that way. Eighteen months later, they still haven't sold their house. Instead, they paid the difference with Dad's inheritance, which came in only a few weeks ago. Talk about a leap of faith....

After Brandon took a walk on the new property and had a talk with my dad about the merits of reducing and eliminating debt, Brandon came home to me one May afternoon with the looney notion of selling our house, buying a trailer and forming a commune with my parents and sister on the farm-to-be. My health was tanking at the time. "It would be nice to have your parents close by," he said. I thought he had lost his mind. But eventually, I lost mine, too, and we became the first family to take up residence on Jubilee Farm. 

The land here--it isn't prime property. This place used to be a dump. Literally. There is a lifetime's worth of glass shards in our front yard. Three pipelines run through it, and there isn't a lot of marketable timber. It's rutted, weedy and wild. It isn't pretty. The soil is acidic and rock hard, which is the opposite of good farmland. However, it's lack of apparent potential made it affordable, which is what we needed. And we know that the Lord does not see as man sees. Man looks at the outward appearance, but the Lord sees deeper and farther (1 Samuel 16:7). He saw potential and beauty, and helped us see it, too. Even Jenny, who visited before many improvements were made, declared the property possessed "a blessed quality."

In January, I shared the story of how Jubilee Farm earned her name. What I didn't share is the passage the Lord used to speak a blessing over our little farm. I read it in January, just before Mom's Jubilee Birthday celebration, and inscribed it in her birthday journal.

"You visit the earth and water it,

You greatly enrich it;

The river of God is full of water; 

You provide their grain,

for so You have prepared it.

You water its ridges abundantly,

You settle its furrows;

You make it soft with showers, 

You bless its growth.

You crown the year with Your goodness,

and Your paths drip with abundance.

They drop on the pastures of the wilderness,

and the little hills rejoice on every side.

The pastures are clothed with flocks;

The valleys also are covered with grain;

They shout for joy, they also sing."

-Psalm 65:9-13

Brandon tilled the ground. Dad put his Master Gardener's knowledge to use, and balanced the pH of the soil. In March, we planted the gorgeous baby plants the Yakaboskis sold to us, and watched them grow. The work suited Dad, even with his bad back. It actually made him feel better.

 

Unfortunately, some mistakes were made. Overwhelmed by the bug population trying to eat our lovely little plants, Dad used a mild pesticide early in the season. In his defense, almost no one around here has much success at organic gardening. He simply gave in to what the Master Gardener class taught him, and what other gardeners do themselves. But it didn't kill the bugs, and I couldn't eat the first of the produce as a result. Later, he tried a more potent pesticide. I didn't know he was spraying again, and walked outside with the kids about 20 minutes after everything had been doused. The poison, which is a neurotoxin, almost killed me. I do not exaggerate.

The initial exposure is the worst reaction I have had to date, and there were long term effects. It put me in the bed for weeks, and set my health on a steep decline. I made some mistakes of my own, and found myself unable to eat or drink again during the first week of June. I was watching all of that gorgeous food come into my kitchen, and couldn't eat a bite of it. I struggled to believe God's promise to me that I would live because I felt like I was dying. I will not rewrite what has already been written, but it is important to note that a prayer meeting took place on my behalf and things drastically changed afterward. 

Yes, mistakes were made, but God trumped them all. Within a few days, I was eating again. Granted, it was only raw eggs and cream of rice cereal at first, but when I began to eat "real food," I could suddenly eat from the garden. Zucchini, squash, tomatoes, tomatillos, eggplant, peppers, onions, cabbage, all of it! I could even eat watermelon to which I have been allergic for years. I could eat foods then that I cannot eat today. And best of all--the food was healing my body. As I ate, I could feel a gentle tingle throughout, almost as if I was feeling the healing taking place at a cellular level. I will never forget the sensation.

When I finally climbed out of survival mode, I realized how well our garden was doing. Others gardeners would comment that their gardens weren't doing as well, and they had years of experience. Rains came regularly and at the right times, nourishing the plants and washing away the poison. Dad, determined to never use pesticides again, began to pick off the potato bugs and tomato eating worms by hand. The Louisiana summer was not overly hot. We grew enough safe, beautiful food to feed our families, to share with our friends and to sell at nearby markets well into the month of July.

The excitement we experienced in the summer is mostly over now. We have greens to look forward to, but a recent frost killed our squashes and only a few green tomatoes remain to be fried. But when I look back at what came to pass, I tear up a little. 

God used the garden to save my life. The thought leaves me speechless. 

It overwhelms me that as early as the spring of 2012, God was actively answering the prayers offered for me in June 2013. Think about this--as you make your requests before God today, His answer is already in the works. He resides in our past, present and future, and is not bound by time or money or our limitations or our mistakes. He reigns over all. And He is building with us a rapport of faithfulness so when the next trial comes, we can say with greater assurance, "God, You are faithful, and You are good. I trust you."


I am thankful for Jubilee Farm. I am thankful for what she says about my God. He is the ultimate Gardener, enriching the soil and the soul, bringing the rain and sunshine as needed for growth. He crowns the year with goodness. He makes our paths drip with abundance.

Happy Thanksgiving.

Thoughts on Jubilee

Maintaining a state of jubilee has been harder than I had imagined. It is difficult to live in mental, emotional and spiritual freedom when the walls of my world are continually closing in. It isn't easy to not think of myself as a sick and struggling mother when that is my reality on most days. It is almost impossible not to fixate on my symptoms when they are constantly changing, surprising me and even sometimes making me laugh at the strangeness of it all. On the other hand, it is an effortless thing to allow my mind to wander to the things I would like to be doing that I cannot do, to my disappointment that I am not the mother I desire to be and to my growing realization that getting better is going to be far more complicated than loosely following a diet for a couple of years.

When I first began the GAPS diet last September, I envisioned a slow and steady journey toward healing. I saw myself getting better and better until--voila! While I rejoice to report that my digestive symptoms have improved significantly during the last 7 months, the ground has unexpectedly crumbled beneath my feet in other ways. My environmental sensitivities continue to worsen. In addition to toxins, fragrances and latex, I have become violently allergic to peanuts. I came very close to going into anaphylactic shock on Sunday evening after attempting to make peanut butter for Micah. I simply breathed in peanut particles released from the garbage can and within a few minutes my body temperature dropped, my sinuses swelled shut and I was struggling for breath. Now, peanuts are banned from the house indefinitely, and life has become even smaller. Weirder, too--I have ordered a good-quality cotton mask to wear in public as a safety precaution. If you ever need a giggle, just imagine the thoughts of my fellow grocery shoppers. On the bright side, a mask may make occasional church attendance possible again.

If the only opposition to my efforts to live in liberty were physical, it is possible that I would be having more success. But we are whole people whose bodies, souls and spirits are all intricately intertwined. When one part of our make up is assaulted, the other areas suffer. If our entire composition is assaulted at once, it is only by the grace of God we stand.....or at least get back up again.

Jenny received disheartening news at her last two doctor's appointments. I know she is going to hate reading this, which is why I feel it necessary to remind her that I love her as my own soul. I can't separate the two anymore so it is impossible for me not to take her hard news personally. (So there! You can't be mad at me.) A couple of weeks ago, she was told that the chemo was no longer working. The liver tumors were larger. The cancer in her esophagus had returned, and it had spread to her lungs and stomach lining. Experimental medicine was considered, but last week she was released from the trial because they had run out of the smaller sized pills and Jenny could not swallow the larger ones. I will not for a moment pretend that the difficulty of the past few weeks has nothing to do with her circumstances. Jenny continues to amaze me by her capabilities in spite of constant pain and a grim prognosis. As she often reminds me, she still has today and God will provide her with breath until He is ready to call her home. I'm just afraid He's going to call her before I am ready to let her go. I know it won't be a goodbye--rather more like a "Bon voyage!" and an "I'll be along soon"--but I tremble when I anticipate the pain I fear is coming.

I have been under considerable duress physically and emotionally, so it follows that I would be affected spiritually. And I have been. I have felt distant from the God I so need, the God I so depend upon for everything from what to put on my daily to-do list to the strength to pull it off. I haven't liked it. With no way to fix myself, I asked Him to fix me for me. I searched His Word for answers. I  prayed. I quieted my soul so I could hear Him. When He was ready, He spoke--

"Let go. Trust me. Give thanks."

The message came to me in no less than five books I was reading at the same time over the course of three days. It came to me in emails, in conversations.

"Let go. Trust me. Give thanks."

I heard it in a podcasted interview online. I saw it on Facebook. It was spoken in a sermon.

"Let go. Trust me. Give thanks."

After several days of being pummeled by these instructions, I received this helpful hint--

"P.S. It's all tied together."
  
It was during a conversation with Jenny that I realized what had happened and was able to verbalize it. "You know?" I said. "I think my problem is that I am suddenly doubting God's goodness."

Now, I know God is good. I have known that since I was three. I have memorized Scripture passages teaching the theology. The cross proves it. Without thinking, several examples of God's goodness to me in particular come to mind. The truth of God's goodness is a part of my spirit's bone structure, but my soul had lost touch with my spirit's conviction in the midst of the day to day struggle of being me. Because I had lost touch with this truth, I was suddenly trying to place the circumstances in my life in an order that made sense to me. It wasn't working. I was becoming frustrated, feeling overwhelmed and getting sick....er.

I had to let go. I needed to trust God. I was called to give thanks. The three instructions are pretty interconnected. To let go, I have to trust. When I give thanks, it's easy to let go. When I'm trusting, I can clearly see God's goodness, and gratitude is a natural by-product of the process. But I couldn't start with letting go or trusting because I can't will myself to do either. However, I could will myself to give thanks. I didn't have to look far to find things for which to be thankful.

1) Jubilee Farm coming to life

 Thanks for the photo, Ann Marie!

2) Baking with babies

3) Sara's first egg hunt

4) Meeting Mr. Clarence, the precious man who provided me with goat's milk last summer when I could eat little else.  Mr. Clarence belonged to my Uncle David's congregation at Good Hope Baptist Church. He gave to me because he loves my uncle and our Lord.

 

5) The first planting and planting party at Jubilee Farm

 Our beautiful plants purchased from Yak's Farm on Hwy. 33

 Enjoying a tomato just a few minutes before getting stung by a wasp. Poor baby!

 Meet Rich who might as well already be a part of the family as Micah now asks for Auntie and Richie. :)

Only two and a half weeks after beginning my Gratitude List for 2013 (inspired by Ann Voskamp's book One Thousand Gifts) I have 45 gifts recorded in my journal. That's forty-five items that remind me that God is indeed very good and worthy of my trust. Forty-five items telling me I can let go.

Living in a state of jubilee is not pretending that life isn't hard or putting on a good face. Jubilee is saying, "God I trust You have our good at the center of Your plan" even when we can't make sense of things. It is looking at the world as a giant gift and life as a grand adventure. It is believing that life is still good even when it is painful. It is being able to say "thank you" when you are lying on a mattress only conscious enough to know that if you close your eyes for a moment you may wake up in Heaven. It is being able to pray as you are about to toss your cookies into the toilet. It is a peace that goes so deep that it doesn't matter if you never get well because healing isn't your real prize anyway. It is knowing that even if you lose a part of your soul, you'll get it back one day. Jubilee is Jesus, and that is something I always have and am never without.

Dreams of Jubilee

On October 1st, 2012, my parents drove me to Baton Rouge for my first appointment with Dr. Stephanie Cave. My appointment fell on a Monday following a very frightening Sunday--the Sunday Brandon frantically drove the two of us home from Houston in the pouring rain while I struggled for breath and gripped my EpiPen tightly. It was the Sunday I forgot or maybe momentarily disbelieved God's word to me that I would be healed. It was the Sunday I planned my funeral. My dietary health had bottomed out, and I was living in a constant state of emergency thanks to the severity of my newly discovered latex allergy. So, I was in a strange place emotionally and spiritually for that road trip, to say the least.

Many memorable things took place on the first October Monday of 2012, most of which were answers to prayers that had been prayed by many people for a long time, but looking back I believe the most important event which transpired that day was almost entirely overshadowed by my new, fabulous doctor and the much-needed confirmation that we were finally on the right path. The weightiest, most significant moment of the day was as quiet as a whisper and as soft as an afterthought.

It happened in the car. Mom asked me if I had given much thought to naming the farm. I told her I had not. She offered her suggestion--Jubilee Farm. She said the name came from two sources--Sara Groves' song, "Eyes on the Prize" and Leviticus 25. The Year of Jubilee was a Sabbath of Sabbaths for the ancient Jews. The Hebrew word translated into the English "Jubilee" means something closer to "a trumpet blast of liberty." Every 50 years, the celebration began with a blast of a ram's horn. During this year, the people rested from working the land, Israelite slaves were freed by their owners and lost property was restored to those who had fallen on hard times.

"And you shall consecrate the fiftieth year, and proclaim liberty throughout all the land to all its inhabitants. It shall be a Jubilee for you; and each of you shall return to his possession, and each of you shall return to his family. That fiftieth year shall be a Jubilee to you; in it you shall neither sow nor reap....You shall not oppress one another, but you shall fear your God; for I am the Lord your God."--Leviticus 25:10,17

Mom explained that she believed the upcoming year was going to be special. It was literally to be her "Year of Jubilee." She would turn 50 on January 21st, 2013. It was also likely to be the year she and Dad would join Brandon, my sister and me on the farm. She further explained how she saw Jubilee Farm as being a place of healing--for body and soul--for our family and others God would send our way. I readily agreed to the name for the farm, and carefully tucked away the tidbit about her birthday. I had no idea that my mother had spoken a specific prophecy over me.

In December, I began planning Mom's surprise Jubilee birthday party. I studied Leviticus 25 so I would have a firm grasp on the appropriate spirit for the celebration. I prayed for guidance about everything--the kind of party it should be, the decorations, the food, who to ask for help, the timing, the guest list. I prayed God would send the exact people He wanted to be in attendance. I invited Him to be present among us. I asked Him to prepare special blessings for my mother. He answered all of those requests, to be sure, but I had no idea He had something special for me in mind as well. To my surprise and inexplicable delight, God included Jenny on the guest list!

God didn't send Jenny just for me, but He did send her especially for me. She made the entire celebration sweeter and brighter with her presence, for the girl unabashedly spreads sunshine wherever she goes. She helped me prepare for the party, which turned out to be an absolute success--

 

 

After the festivities died down a bit, I stole Jenny away to my mother's sofa so we could talk privately. It was so good to talk with her face to face. I love watching her listen, think and process. I like watching her face when she laughs. I adore the radiance of Christ she carries. Just being with her was bliss.

And then she spoke into my life. She was actually talking about herself when she did it. I observed that she had lost weight. She confirmed my observation, and told me that she had bought new clothes recently. She explained that most of her old shirts were V-necks which exposed her chemo port. Upon her last shopping trip, she searched carefully for blouses that would hide it.

With a glowing smile and her quirky, lovely laugh, she began, "I used to want people to pity me....to feel sorry for me, but God has been too good to me for me to play the victim anymore. With buying new clothes, I am throwing off the sick rags!"

She had no clue, of course, but as she spoke, I felt the rod of the Lord give my soul a giant jab; or maybe what I felt were reverberations from the "trumpet blast of liberty." God's voice formed words in my soul which pierced my mind--"That's for you."

Jenny and I talked about all sorts of things after that, but it was those words that continued to resonate in my mind when she was gone. After she left, I shared them with the remaining party guests, Mrs. Dixie (my mentor) being one of them. Dixie threw her head back, sending a smile to the Lord, and said, "Isn't it beautiful how the Lord uses things like illness to humble us so that we disappear and He is glorified?"

With what was almost an electrical energy, the Holy Spirit made an important connection in my soul between what Jenny had said and what Dixie had said. As I have pondered and prayed over these words for the last two days, the Lord has fleshed out His message to me. I pray you are able to follow my thoughts.

God reminded me of the section in Embracing Obscurity in which the author reveals that we all possess subtitles by which we identify ourselves. For instance--Tom: The Adventurer or Stacy: The Creative Work-at-Home Mom or Charles: Youngest CEO in Corporation's History or Andrea: Pretty Girl. The subtitles aren't bad in and of themselves. They are only dangerous if we allow them to take precedence over our identity in Christ. When I read that chapter weeks ago, I didn't know my subtitle, but the Lord revealed it to me this weekend as I sought Him:

Melissa: Sick and Struggling Mother

How depressing is that?

Without realizing it, I have allowed my illness to become my identity. Facebook friends, think about it--how often do I air my woes for all of you to see? Pretty often, I'd say. Faithful readers, how many long lists of my various trials have you read on this blog? Too many. I have been "rehearsing [my] troubles [which] results in experiencing them many times....[This] multiplies [my] suffering!" (Sarah Young, Jesus Calling) While I'm being brutally and embarrassingly honest, I'll add that sometimes I'm more conservative about sharing God's goodness than I am my hardships because I can't let go of my new (though admittedly sad) identity. And I can't let go because....well, I have believed the lie that it's the only identity I have left. "Sick and Struggling Mother" is the only capacity in which I remain known in the world at all. I have been afraid to let this last thing go because if I do, I know I might disappear completely.

But the commandment is clear--I am to join my sweet friend, and throw off these sick rags! If my girl with Stage 4 cancer can do it, by golly--SO CAN I! Tossing these nasty things into the garbage is simultaneously an act of "embracing obscurity" and an act of jubilee! My sick rags have been wrapped around me like ancient grave cloths, holding me captive. Spiritually speaking, I probably resemble a bizarre mummy who isn't dead but dresses like she is. Jubilee is about freedom from oppression. Ironically, I have been oppressing myself! I have allowed my illness to take the spotlight. On Monday (the day Mom turned 50, beginning her Year of Jubilee), I vowed to the Lord that I was heading to the back of the stage, dragging my illness along with me. This whole thing isn't about my suffering or how well I carry it. It is about what the Lord wants to do with it and what He wants to reveal about Himself through it! My story is about displaying the spirit of this passage from Luke 4 in which Jesus reveals that He is the fulfillment of the Year of Jubilee--

"The Spirit of the Lord is upon Me,

Because He has annointed Me

To preach the gospel to the poor;

He has sent Me to heal the brokenhearted,

To proclaim liberty to the captives

And recovery of sight to the blind,

To set at liberty those who are oppressed;

To proclaim the acceptable year of the Lord."

Luke 4:18-19

Jesus Christ is Jubilee! Since offering my declarations to Him, I have felt so free, so light, but my work is not done here. Throwing off sick rags is a process. Thanks to Jenny, I have a good start by realizing that truly "God has been too good to me for me to play the victim anymore." At this time, I don't know fully what not playing the victim looks like all fleshed out. I do know that it doesn't mean being dishonest or arbitrary about my trials. I know that I will not wallow in them either. I am not a victim. I am not a victim. For now, only one thing is for certain--no more lists. (Your loud "amen" does not offend, my friend.)

Jenny Arlene--my precious, covenant friend--thank you. God bless you, Beloved! In my mind's eye, I see two girls peeling away the ugly, rotting rags they have been carrying about them for too long. They are smiling and laughing as they pull away each piece from themselves and occasionally from one another, tossing them away forever. When the rags are gone, there is only a glow of Heavenly Light about them. The Light is so bright that it becomes difficult to see the girls plainly and impossible to see them apart from the Light. The girls join hands and grin conspiratorially at one another before taking an unbridled, running leap and plunging into the vast, deep waters of endless Jubilee. 

Last Week

Last week was eventful. On Monday, our trailer was moved out to the property.

 

Brandon finished his outdoor work on Saturday evening. In addition to his full-time job and taking care of me, he has been working extremely hard out there. He has done a ton of prep work for everyone, so my parents are paying him in land. I think that's a pretty sweet deal, and he does, too!

Before we are ready to move, we (and by we, I mean Brandon) must paint one hideously bright yellow room a tamer shade, put in a ceramic flat surface stove (I'm spoiled, what can I say?), put in a deeper sink (once again . . . . spoiled), install a pantry, rip out the carpet, lay laminate flooring, move our outdoor building from our current property to our future one, order another building which we will use for storage, and order a parking overhang. When the paperwork for the building permit goes through next week, we will have electricity. Eventually, we will have grass and a gravel drive. I have a lot of packing to do, so we may or may not be moving Labor Day weekend. Nonetheless, that weekend remains our target date.

Early last week, Micah had a couple of bad anxiety attacks. The poor guy has suffered a lot of upheaval over the last several months. I'm certain the two are related, which is concerning considering the fact that he is about to experience a move. We are praying for guidance, sensitivity and wisdom. We are also trying to do what we know to do. He has laid eyes on his home-to-be four times this week. The first time he saw it, I told him that we would be living there soon and that we would not be living in the home we live in now. He was incredulous. "We're gonna live in that box?" he asked. Brandon and I chuckled all the way home.

On Saturday evening, I took my mother-in-law and the kids to see the place, and observe the work Brandon had done. It had rained most of the day, so I decided to dress Micah in his rain boots. As I bent down, working Micah's feet into the boots, he reached over, patted my head and said in the high-pitched tone adults commonly use with animals and babies, "You're a good momma." Sweet, hilarious boy.

 

We met Grandma and Pops at the property this evening. We stomped around, explored and enjoyed the peace of the place. I am looking forward to calling it home.

On Tuesday, Brandon and I celebrated our 8th anniversary. I was relieved to reach this milestone. I don't know if it's the seventh year or year seven, but statistics show that the "Seven Year Itch" can be difficult, if not deadly, for marriage. Last year was difficult enough, but our marriage has been the sweetest and richest it has ever been. Most of that has to do with Brandon. Over the past year, I have witnessed him grow tremendously in his faith. Along with his growth in the Lord, he has grown in love for me. Without a hint of irony, I can tell you that this man loves me as he is called to love me. He loves me as every woman wants to be loved. He loves me fully, wholly and sacrificially. He loves me like Christ loves the Church, and that is a love from which I never want to part. I am deeply thankful to be his wife.

On Thursday, I had my endoscopy. I was nervous the night before the procedure. I prayed that the Lord would give me peace in the morning, and He was faithful to answer! Normally, I would have been a ball of nerves, but I was as placid as could be. When I was called to the procedure room, alone and without my Superman, I remained calm. As gloves were snapped on, oxygen tubes shoved into my nostrils and the impending threat of a large needle drew near, my heart beat steadily and I was able to control my breathing. I prayed and remembered Philippians 4:6-7. The needle was no big deal! Is God cool, or what?

 What was kind of a big deal is that I found out that I would not be able to have the nice "twilight" anesthesia that allows one to wake up quickly and dance out the door if so desired. The "twilight" stuff is soy and egg based, and therefore dangerous for me. I was tempted to tell them not to put me under, but the nurse told me that it is a difficult procedure to do while the patient is conscious. I hold to the fact that if I survived an induced 18 hour, practically natural childbirth, I could handle being conscious for a simple procedure. That option wasn't presented to me. They asked if I could take Fentanyl. Fentanyl was suspect because it was a part of the epidural cocktail (which failed me in the 11th hour) that caused me to have an allergic reaction. Finally, they decided upon Demerol. I had never had Demerol, so I didn't know to be less than thrilled.

The doctor walked in and said hello. I didn't understand why a simple greeting would make me feel warm and fuzzy until I realized that the warm fuzzies weren't natural. Valium. They could have amputated my arm, and I would have laughed. I heard his voice again. He was saying something about the number fifty--probably the measurement for the Demerol. The next thing I knew, I was in the car on the way home. I have no recollection whatsoever of leaving the Endoscopy Center.

Brandon tells me that I would wake, tell him that I had been given Demerol, pass out again, and repeat the cycle. He tells me I did this six times. Eventually, I was coherent enough to retain the findings from the procedure. The doctor had found a polyp and a bit of mild gastritis. Both were biopsied. He also found that my acid reflux was non-corrosive, which is great news for a singer. He did not find anything to explain my pain.

After sleeping off the drug for the entire afternoon, Brandon and I discussed the findings. We speculate that the pain I'm experiencing could be nerve pain. This explanation fits with my symptoms. My nerves are firing painful, false alarms throughout my body all the time. It makes sense that the stabbing pain I feel between my shoulder blades as I eat could be a nerve going haywire. It's always fun to pay out $900 to find that your body is crazier than you could believe, but at least we know.

There remains much to be said of last week, but the hour is late and I am emotionally spent. I have to get up early to get the kids and myself ready and out the door for my physical therapy appointment in Bossier. For now, know that God continues to work and prove Himself faithful and powerful all the time. Know that your prayers on Thursday were answered. Know that new blessings are coming. Know that God still provides. And know that my family continues to value your prayers.