The Power of Story

Stories are important.

At some level, we all know this. It's proven in historical records, ancient paintings on cave walls, handwritten books, and the fact that everyone likes a good movie.

The Bible is one large story told through many stories. Our lives are stories—full of “inciting events,” struggles to return to “normal world,” “turning points,” “all is lost” moments, plot twists, climaxes, and resolutions, all which lead to character development.

Our stories are particularly important, especially the stories which tell of our encounters with God. Revelation 12:11 tells us that we overcome by the blood of the Lamb and by the word of our testimony—the adventure romance/buddy story starring us and Jesus.

The world needs our stories. Eric Johnson of Bethel Church said in a recent sermon that he believes storytellers are the most powerful people in the world. Why? Because they have the power to shape the future by preserving the past.

I'm still amazed by the impact of my own story and by what God continues to do with it. And I love to hear the stories of others.

Today, I'm spreading the love. 

Meet my friend Marsha Carson.

I met Marsha online a little over a year ago. She was in the mast cell group on Facebook where I posted the story of my healing. While that blog post garnered a way bigger reaction than I'd anticipated (back then I had no idea how uncomfortable and angry people could become over the issue of healing...I know better now), it gave some people hope. Real hope.

Marsha was one of those people. This is her story.

I first met Jesus as a little girl.  I loved Him, but in my teen years, I began to question God. I turned my back on God and started experimenting with the occult.  By the time I graduated from college, I believed there was a force sort of like Star Wars. However, I never knew what to do about Jesus.

I began to have dreams at night in which I was worshiping God and praising Him like I did when I was a little girl. It took nine months of these glorious dreams before I finally thought, "I think I might be a Christian!" I immediately gave my life back to Jesus. I felt so loved that God would woo me back to Him in spite of my hardness of heart. He bypassed my conscious mind and went straight to my spirit. Thank you, Jesus!

I became ill in May 2011. I was living my dream of working with wildlife at a wildlife rehabilitation clinic. I loved it. But in May, I had a routine sore throat and cough that would not go away even with powerful antibiotics. 

By August, I was no longer able to work. Every breath was labored. Just walking across the room left me exhausted and gasping for air. I ended up on oxygen 24/7 and by the end of December, I was hospitalized, hooked to a ventilator, and placed in a medically-induced coma for 11 days. Twice, I thought I was dying.

I was unconscious and could only see blackness. I was scared, but Jesus appeared to me both times. I put my hand in His and said, "Jesus, I am with You wherever You want to take me, Heaven, hell, or alive."

I was filled with such peace both times. Then I woke up alive! I knew I was alive because Jesus wanted me to be alive! It never occurred to me to be upset about the fact that I couldn't move. I was too happy to be alive. 

After months of physical and occupational therapy, I learned to use my body again.

Marsha holding an owl right after leaving the hospital.

I was breathing well when I left the hospital, but soon after coming home, I was back to needing oxygen 24/7. None of the doctors knew why I couldn't breathe. In fact, my pulmonologist told me he did not know why I nearly died or why I was alive. I told him I knew why I was alive. I was given a miracle by Jesus. People I had never met had been praying for me.

It was during one of my follow-up visits after leaving the hospital that I realized I was highly allergic to environmental irritants. Car exhaust made my airways close. Over time, I discovered more and more triggers that made my airways close, including all kinds of smoke, fragrances, freshly mowed lawns, and my Great Dane.

I had asthma prior to this illness but never to this extent. My life suddenly became very small, scary, and filled with unease. I began to see cars as sleeping dragons that could wake up at any moment and threaten my ability to breathe. I avoided going anywhere unless absolutely necessary and tried to never leave my house alone. I never knew when my airways would start closing. I had to wear a mask just to walk outside and eventually had to carry EpiPens with me.

I was eventually diagnosed with severe GERD, which was causing lung damage. I also had a lung fungus cryptococcosis, most likely from working with one particular goose at the wildlife clinic. His name was Monty, and I loved him.  

As to what caused the severe reactions to everything around me, I was never diagnosed. No one knew what to do to help me.

During this time, I clung to God as never before. My mother had died from very similar symptoms just a few years prior. I began making "My Thankful Posts" on Facebook. Most days, I found something for which to give God praise.

God showed me things in my life that could no longer be a part of my life. He began a cleansing in me and purged things that hindered my walk with Him. One very simple thing God told me to give up was a TV show called Supernatural. I never watched it again. But that is just the surface of the things that God changed in me. He changed my desires and began a process of growing me in Him. I spent more time in prayer and yearned for more of God.

In February 2016, I found Melissa's blog and read how severe her illness was and how her very life was in danger constantly. As I read about her struggles, her dependence on God, and ultimate healing, I just knew that God was going to heal me. Her illness was far worse than mine. If God could and would heal her, I knew He could and would heal me as well. I wasn't sure when He would do it, but my faith was built up through her story.

In May of 2016, a pastor from Peru came to our church and preached. He made the statement that someone was thinking they could not go on a mission trip due to their health. That was exactly what I was thinking! The moment he said that, I knew God was going to heal me that very day.

I could hardly wait for the pastor to give the call for me to come down and be prayed for! As soon as he did, I practically ran down the aisle. I had read Melissa's blog not long before and was so ready to be healed! When they anointed me with oil and prayed over me, I knew I was going to walk out of the church with no mask on and never have to wear it again. And that is exactly what happened.

God also delivered me from fear. I did not realize how much fear I was carrying until God healed me and the fear went away.

Now I go outside without ever even thinking about a mask. I leave my car running when I go through a drive through. I have even walked right up to a fire barrel and put something in the fire with absolutely no breathing problems. I can be outside when the grass is being mowed and never even think about it. I live my life breathing well outside completely mask free and even more importantly, free of fear.

Jesus was there at my darkest hour and gave me peace. The fact that I am alive today is an absolute miracle. God just topped it off by healing me so I can go outside without a mask and without fear. One of my prayers right now is for God to fill me to overflowing with the love of Jesus so that everyone I come in contact with is touched by the love of Jesus. It's a journey, but it's truly my desire. 

What a wonderful reminder of God's presence and care in every moment of our lives! What a picture of grace! Thank you Marsha for sharing your powerful story with us!

If you have been touched by Marsha's story and would like to leave her a message, leave a comment below.

Musical Healing-Part 1

When I was a kid, my favorite game to play was "Teacher." Guess who always played the teacher.

*grin*

I took things pretty seriously. So seriously, in fact, the other kids stopped wanting to play with me. I may or may not have wanted them to do actual school work and pay attention to my lectures.

I also loved music. Listening, singing, performing. I played the piano for years. So even though I'd fallen in love with writing in high school and even declared English as my original university major, it was no surprise to anyone when I switched my focus to music education.

Not long after changing my major, I took a piano pedagogy class and established my own private studio. I began with six little girls and big dreams.

Around the same time, the leadership of our small Baptist church in Marion, Louisiana asked me to begin a children's choir. They wanted the kids to perform a musical at Christmas. The project wasn't my idea, but I threw all I had into it. We not only performed. I wrote my own productions. Plural. As in one at Christmas, another at Easter, and another at the beginning of summer.

 My first children's choir.

 Here, I'm modeling three of the props used in my original (and hilarious) children's production of Joshua and the Jericho Thugs—gold chains, plastic crowbars and kazoos. That's right. Kazoos.

After three productions, I decided I wanted the kids to learn to read music, so we worked during the summer using recorders. Because—obviously—I’m a glutton for punishment, but also because I didn't know a better way.

My students loved me, shortcomings and all. (I was pretty fond of them, too.) Most of my private students caught my passion for singing and acting. Carson Richman, the tall girl standing at my right in the photo below, has been involved in choir and theater since she was in my studio. She joined the LSU theater program this fall. Sarah Katherine McCallum, the little brunette on my left has also stayed involved in music and theater. She now takes lessons from one of my vocal instructors, Dr. Claire Vangelisti at ULM, is involved in the Strauss Youth Academy for the Arts in Monroe, and was the fourth runner up at the Miss America Outstanding Teen pageant this year. I can't take credit for how incredible she is now, but I can take credit for the seed. Almost all of the students who came through my studio still actively enjoy music. Which was half my goal.

Part of me knew there was more to give them, but I lacked the skill set to give it, I didn't know how to acquire the skill set, and I ran out of time to figure it out. I became happily distracted with the joys of motherhood in 2009 and scraped by until I became not so happily distracted with the grim realities of chronic disease in 2011. 

I kept hoping to get my disease under enough control to teach again, but after two years of frequent anaphylactic reactions, arthritis, carpal tunnel, fibromyalgia, brain fog, and necessary isolation followed by a diagnosis of Mast Cell Activation Syndrome—which is incurable—my hopes died and my inner music teacher with them. Like died died.

I laid her to rest in a locked box, buried her, mourned at the funeral, threw a few flowers on the grave and moved on. It hurt too much to dwell on the loss. Apparently, God wanted me to write. I wasn't supposed to teach music. I was never that great at it anyway, I told myself. So it was just as well. 

Meanwhile, my friend Jarrod Richey was doing some exciting things with music education. I met Jarrod in music school at Louisiana Tech. We sang in choir together and both earned our degrees in Music Education. 

He went on to earn his Master's in Choral Conducting at ULM and later his complete certification in Kodály methodology. A few years ago, he was hired as the music teacher at Geneva Christian Academy, a small Classical Christian school in Monroe, Louisiana.

Jarrod had been preaching the advantages of Classical Christian education since before Micah was born, so I became interested in the school. When the time came to make a decision about Micah's kindergarten year, I was too sick to investigate the school in person, so I sent my mom.

She reported the school would be an excellent choice based upon the educational approach alone. But when she observed Jarrod teach music to the little ones, she knew it was the right school. "I wept," she said. 

The summer before Micah started school, Jarrod put together a Christian music camp called Jubilate Deo. Excited about the opportunity, I enrolled Micah...who came down with viral tonsillitis the second day of camp and couldn't continue. But I heard great things. 

Micah began school at Geneva that fall. He would come home and absently sing the folk songs he learned in music class. I loved it. Because my Music Methods college professor was Kodály trained, I understood and appreciated what Jarrod was aiming to accomplish. Over the course of the year, Micah became a tuneful singer. I'd get papers every once in a while of dictated rhythms he'd copied down. Keep in mind—he was in kindergarten. 

Every now and then, I would run into Jarrod at the school. "When God heals you, you've got to come help me up here," he would say. 

I'd smile and think to myself, "That would be nice." 

The following summer, I sat in the back row of the Jubilate Deo Music Camp concert, my mask veiling my slack-jawed expression. I couldn't believe my ears. In five days—five days—Jarrod and his staff had put together an outstanding program. 

I, too, wept. 

And then about three months later, God began to heal my body. 

First, reactions to things I touched disappeared. Then my outdoor temperature reactions. Then my airborne triggers. Then my food reactions. Then my pain and arthritis. Then my energy returned. As much energy as can be expected of a 30-something mom of young kids, anyway. By April 2016, I lived like everyone else. Contrary to scientific explanation and medical prognosis. A miracle had taken place. 

God began bringing all of me back to life. I enjoyed renewed intimacy with Him. I was the healthiest I'd ever been. Everything that had died—my personality, my gifts, motherhood, friendship, community, ministry—wasn’t only coming back. It was coming back better.

Except for music. I was done with all of that. You can't be away from music for five years and expect to be any good at it. I didn't even know if I would like teaching music again. Besides, I was going to be a writer.

Sometimes, I think God gets his kicks by proving me wrong. 

This past spring, I was blindsided one night by an intense longing to lead others in worship. I'd never felt that before. What did it mean? 

My classically-trained, non-belting voice doesn't fit the current worship style of the Church. I sound more like a retro Disney princess than a pop star. Most worship choruses aren't even in a singable range for me. And I've always thought strong singers should be dispersed throughout the congregation to encourage and serve weaker singers. Because the congregation was never meant to be a crowd of spectators, but an army of worshipers. 

My call wasn't to the stage. I knew that much. But I couldn't make sense of it. 

Around the same time, I was wrestling with my future. I was well. There were expectations. What should I be doing? Writing, obviously. But I wasn't writing! Not anything that would make money anyway. And I was thinking more and more about music and what I was supposed to do with my gifting and education. A lot had been invested there.

One day, we were driving home from church and Brandon said something like, "Why don't you talk to Jarrod about the tuition discount for Geneva teachers and see what kind of deal they might make us?"

I'm embarrassed to admit this, but...I wigged. I totally wigged. 

"What are you talking about? I can't teach! I've been away from music for five years. Five YEARS!!!  I don't even like it anymore. I'm a writer. If you need me to work, I'll write!"

I was terrified. Terrified to give up my writing dream. Terrified of trying to resuscitate something that was long dead. Terrified I wouldn't love teaching or music or the classroom anymore. Terrified to fail. Terrified that working would pull me away from the ministries I was involved in and had grown to love. Terrified, I tell you.

Despite my overreaction, Brandon remained calm. "Well...if you plan to make money by writing...you probably need to actually...write."

*a series of tiny explosions in my brain*

*eye twitches*

I'm not going to admit my response to that. But in summary, the truth hurts and pain makes me angry. 

Even though our conversation didn't end well that day, I continued to wrestle privately. Because here's the thing—God often speaks through my husband, and I never want to tell God "no" again. Not about anything. Not even the small things only He and I know about. All I want to say for the rest of eternity is "Yes...yes...yes."

Here's what I knew—Brandon would like me to work part time to help pay for the kids' tuition. I needed an occupation while the kids were in school. I felt an inexplicable draw toward music and leading worship. But I wanted to write, and teaching would interfere with writing. And who knew if Jarrod had been serious anyway?

"Lord," I remember saying, "I don't know what to do or what you're doing. But I trust you. I'll do whatever you say. Just make things as clear as I need them so I can obey."

And you know...He did. 

To be continued...

The Island: The Return

My first trip to Little Gasparilla Island was in 2010. We went with one of my besties, Danielle Dorey, who I'd met during my Frontliners internship the summer of 2003.

 Baby faces.

Micah was a baby, and I was a happily married stay-at-home mom/part-time private piano and voice teacher. And I'd just scored a lead role in the community theater's Fall musical-comedy. Life was pretty good. And the trip? A-maz-ing. I'd fallen in love with that little slip of sandy earth and planned to return as soon as I could.

What I didn't realize then was the bit of heaven we'd enjoyed there was the calm before the storm. There was crazy theater drama for the next two months. (Not all the good kind.) A miscarriage. A major onslaught against my health in January 2011 followed by a difficult pregnancy and a semi-traumatic labor and delivery.

My health continued to deteriorate, but I never let go of the dream of returning. I felt God had given it as a promise to go with my healing. I would say to Brandon, "When I get well, we're going back, you know."

And when I was lying on what could've been my death bed, he'd say, "Don't forget. When you get well, we're going back to the island." To remind me I couldn't die yet. We had plans.

When my healing began, we mentioned a return trip, but as time came to make preparations I realized we were too short on cash to press the issue. Besides, I was going to Brazil in September.

But my Superman is one sly guy and he's earned his nickname many times over.

As we drove home from the Ozarks on my birthday, my phone rang. It was Danielle. Because it was my birthday, I expected nothing more than a wish. Which I received. Then she said, "Brandon, God and I have a surprise for you."

My thought bubble: Brandon...God...Danielle...can't be a baby...hmmm....

"How would you like to come down to the island next month?"

After a momentary lapse of cognition, I flipped.

I laughed. I cried. I bounced up and down in my seat. I couldn't believe it. And yet I could. Brandon has always been too good to me.

I sneaked a glance at him. Tears shimmered in his eyes. Softy. He knew what this meant to me.

I thanked Danielle. I thanked B. I thanked God. I was so stoked. Only a few days before I'd asked Sara, "If we could go anywhere in the world together, where would you want to go?"

"Da beach," she'd said with a grin. She'd never been and it had been so long since our last beach trip, Micah didn't remember. They were so excited when I told them.

Brandon explained we would drive to Georgia first to see our friends James and Erica Kordsmeier, then drive down to Tampa and leave from there for the island with the Doreys. We'd be gone 11 days.

The drive to Georgia was smooth and pleasant. God placed two people in my path to pray for along the way, which was fun. Our time with the Kordsmeiers was too short but very sweet.

Then came our reunion with the Doreys. It had been six years since I'd seen my friend face to face and yet--because of phone calls, texts, Facebook and the goodness of God--it was as if no time had passed. Except for the three extra kiddos, dark circles under our eyes and a few gray hairs. But whatevs.

The next day, we made our way south along Florida's west coast. I was antsy to get to the island, but also a bit fearful. Would it be as incredible as I remembered? Or had I blown a nice experience out of proportion in my mind?

I stepped out of the truck and smelled bay water. A hot breeze ruffled my unruly hair. I smiled and forgot all fear of disappointment.

Samantha, Danielle's sister gave some of us a boat ride from the marina to the island.

Weston and Sara ready to go "motor speed."

Before I knew it, we were there. And yes--the magic I remembered still hovered over the island. Not quite ripe sea grapes and coconuts graced the trees. Birds called out to one another. A dog barked in the distance. The kids played in the sand and I enjoyed the quiet rush of the breeze through the foliage while we waited for the luggage to be unloaded onto the golf cart.

Then it was a race to get to the beach.

One of the things I love about Little Gasparilla is the low population. There are no condominiums. Just beach houses. There's no fighting for chair space. You don't have to watch your stuff. You can leave it out all day if you want. No one will bother it. And your kids are easy to spot. Behold...

The kids enjoyed the beach as much as they thought they would. They enjoyed each other more than I thought they would.

Here we have a Weston...the cutest fish you'll ever meet.

FYI: You can't keep this 4-year-old out of the water. 

Micah was afraid of the water, but enjoyed the beach. 

I taught Sara to body board...kind of. 

 Instead of a vanilla latte made by Kurt Pendergrass, Kurt Pendergrass taught me to make my own. Turns out, I'm not a bad barista.

Kurt also took B fishing again...

and on our first evening, took us all out on a dolphin cruise.

The kids enjoyed the local wildlife. 

One morning, I woke early to pray and enjoy the sunrise, which was pretty glorious. The sunsets were as spectacular as I remembered.

 Check out that green ray!

But nothing could beat the company.

This trip to the island was a lot more work than the last. That's what happens when you add three littles to the mix. Especially when the party includes a high-adventure, adrenaline junkie, perpetually ravenous two year old. 

Meet Titus. Chances are, he's "hungee." 

Kudos to Danielle and Ryan who somehow keep him fed.

I didn't have a lot of alone time with Jesus while we were gone, but the constant prayer of my heart was, "Thank you...thank you...thank you...thank you..."

I was overwhelmed by generosity. Of my husband, who sacrificed vacation days usually set aside for hunting. By my friends who offered us a free place to stay and great company. Of the Pendergrasses and Danielle's sister, Samantha, who came down both Sunday and Wednesday to make coming and going fun, easy and inexpensive. Of the Lord. 

Wow...just wow. 

I'd done nothing to deserve such a gift. Yet it was freely given. Grace, grace...marvelous grace. 

Grace was the golden thread running through every detail. From the ability to even go to the hospitality of friends. Down even to the storm patterns. Each day, storms threatened to come down upon us, but danced around instead. On the day we left, all the Floridians agreed, we'd get wet on the boat ride back to shore. But no. The clouds parted. We sat on damp towels and enjoyed the cool air in our faces...

...and on the drive back to Tampa, a reminder that God always...always...keeps His promises.

Baptized in the Buffalo River

For nearly 20 years, I canoed the Buffalo River almost every May/early June--usually the week after Memorial Day--until my illness made an apparent end of the tradition. My last trip was in 2011. That year a long-time family friend died on the river--an event which hurt me in a way I can't quite explain.

The Vision

My family and I made plans to float last year. That trip was supposed to be a sort of redemption, and I was looking forward to it, sick and all.

A few days before we left, the Lord gave me a vision during my time with him. I saw myself baptized in the Buffalo River. By Brandon.

I knew the vision wasn't purely symbolic. It was something God wanted me to do. But in typical Melissa fashion, I argued with him.

"That's crazy. I'm not doing that."
*Nudge*
"Why? I've already been baptized. Twice."
*Nudge*
"It's weird. It doesn't make sense."
*Nudge*
"That water's cold, God. And you know how I react to the cold."
*A warm flood of peace*

Then I recalled Namaan. The leper who was healed by dipping in the Jordan seven times. Who wouldn't do it at first because it seemed too strange. And then like Peter I exclaimed, "Okay! I'll do it! Feet, hands, head and all!"

But the rains didn't stop last year and the river "came a flood." No one was allowed on. Basically, last year's trip was the story of the previous four years. I remember my disappointment. Another to add to the pile.

"Next year," I said to comfort myself.

Little did I know I'd experience radical, miraculous healing in every part of my being a few months later.

Making Sense of What I Saw

I have this insatiable drive to understand things. Even things I know are mystery.

Since the vision came, I've been trying to reason out why God would want me to be baptized again. Why, God? Why now? Why here? Why this way?

I mean, I've always been a believer. I can't remember a time in which I didn't love God or believe in Jesus. Belief has been a constant in my life.

That being said, there has been a seismic shift in my faith in the past few years. No one who knows me well could miss it. The entire landscape has changed. Everything looks different because of what's happened underneath the surface. But isn't that what's supposed to happen in times of intense sanctification?

Is the baptism some kind of symbol of redemption? To wash away the rubble of the last few years? Why be baptized in the Buffalo River by Brandon with only a handful of witnesses as opposed to in a church before a congregation by a pastor? I have several pastors in my life. Why not have one of them do it?

Washed in the Water of the Word

In search of answers, I plunged into the Word and early Church history. What I found is that the early Church treats baptism very differently than people of my church tradition.

Throughout the years, I've heard the metaphor that baptism is like a wedding ring. "The ring doesn't make you married. It's just a symbol of the marriage that's already happened."

After my research, I find the explanation a little...insipid.

Keeping within the marriage metaphor, I would like to submit the idea that baptism is less like a wedding ring, which is a mere symbol of marriage, and more like the marriage ceremony itself, which is more like a sign. A sign defined as a visible expression of a spiritual reality. Something to help we humans understand something important is happening in the spiritual realm.

A ceremony doesn't make you married any more than baptism makes you a Christian, but it's definitely something more than a symbolic bauble. In a marriage ceremony, something real happens. Vows--whether verbal or non-verbal--are exchanged between husband and wife, the couple and God, and the couple and the community. The action seals the reality.

The way I see it, baptism isn't a wedding ring. It's the wedding itself.

Why I Believe This Way:

1) Old Testament law presents us with ceremonies which point to ultimate salvation in Jesus Christ. These ceremonies include ritual washing in order to be "clean." Proselytes were initiated into the Jewish people by baptism as a symbol of "cleanness." Ezekiel  mentions a washing for cleansing which God performs as a sign of His covenant with his people (16:6-14). As part of the law, symbols are important. God gave them to us to help us recognize the Christ. But in Matthew 15, Jesus clearly states what goes on in the heart is far more important than the outward symbol.

(Unfortunately), we all know people who have run around on their spouses with their wedding rings on. That's what the Pharisees in Jesus' day were trying to do. They looked married but didn't act like it, which is why John the Baptist threw a hissy fit when the Pharisees came to be baptized in Matthew 3. They wanted to wear the ring without making the commitment.

2) Scripture is clear that believer's baptism is categorically different from Old Testament symbols. For example, the flood in Noah's day is the accompanying antitype to baptism (1 Peter 3:18-22). Noah and his family were "saved through water."

We know from Romans 10 that baptism isn't a prerequisite for salvation, but it has to be more than a simple symbol. 1 Peter 3:21 says, "There is also an antitype [of Noah's ark] which now saves us--baptism (not the removal of the filth of the flesh, but the answer of a good conscience toward God), through the resurrection of Jesus Christ..."

According to scripture, baptism isn't the means of salvation, and yet it saves us by answer of a good conscience toward God--a mysterious paradox which kind of makes my brain explode.

3) Baptism wasn't considered optional in the early Church. You don't see believers professing without baptism. It goes hand in hand.

4) In early Church tradition, baptism was a very big deal. New believers weren't immediately baptized. Baptism was an initiation into the Church which took place some time after the believer professed faith in Christ. For Romans, to be baptized was treason. The act was a statement that they were willing to die for their faith.

Before believers were baptized, they were educated in the Christian faith and received deliverance ministry. Time tested their commitment. The primary reason this practice was lost is due to infant baptism, which I don't care to argue for or against here. (For more information, read McDonnell and Montague's Christian Initiation and Baptism in the Holy Spirit: Evidence from the First Eight Centuries.)

5) John the Baptist described his baptism as a baptism of repentance--the action of turning from sin toward God, resulting in forgiveness. Baptism for the forgiveness of sins is already something more than Old Testament washing, and John says, "I indeed baptize you with water unto repentance, but [Jesus] who is coming after me is mightier than I, whose sandals I am not worthy to carry. He will baptize you with the Holy Spirit and fire" (Matthew 3:11).

I believe this verse indicates something major is happening at the moment of baptism. Something invisible to us and very visible in the spiritual realm.

My Conclusions

 

I concluded from my research that my baptism was about something more than redemption. I believed something would happen at the moment of my baptism. I wasn't sure what. I'm still not entirely sure. But here are a few of my thoughts:

1) It was about redemption.

In the years since my last trip, I went through fire and water, but God brought me out to rich fulfillment (Ps. 66:12).

If you look at the background in the photo, you see signs of a flood. The flood that kept me from being baptized last year. Devastation that swept away everything which wasn't firmly rooted in the soil.

When we came to this place on the river, the Holy Spirit leapt inside of me. I knew it. I'd seen it. Had there been no flood, this picture would be the exact match of what I saw in the vision last year.

In my life, had there been no flood, there would've been no baptism. Because there would've been no death. And without death, there's no resurrection.

2) In that moment, I fully identified with Christ.

I identified with him in a way I couldn't at ages 6 and 10. I took on his name. I took on his person. I made a cosmic declaration--"For better or worse, for richer or poorer, in sickness and in health, forsaking all others. Even unto death."

In short, I got married.

3) He laid me low and raised me up something new (2 Cor. 5:17).

Y'all, I'm different. I'm alive in a way I've never been. Let the whole world know. I. am. new.

4) When my Superman baptized me, I received his blessing upon my ministry. 

When I first told Brandon he was going to baptize me--see how I did that?--he looked at me as if I'd lost my mind. "Me? Baptize you?" he asked.

Silly boy. He still has no idea how powerful his spiritual authority is. He has no idea how his words sink into my skin. How his gospel love saves me every day. How his prayers change the whole atmosphere of our home. How when he prays for me and the kids, things happen.

God is calling me to things bigger than either of us. If I'm going to do them, I need more than Brandon's reluctant approval. I need his blessing. It isn't optional.

 (Don't you just love Sara's enthusiasm in the background? So sweet!)

Here's the bottom line--I believe God led me to do this in this way, and I obeyed. Period. The end. At the end of the day, I can only guess at the reasons he wanted it done. 

I felt his approval as I rose up out of that icy water, and I now feel ready for this next season of my life. Whatever it looks like. 

P.S. The trip was loads of fun, by the way. Truly, the Lord is restoring the years the locusts have eaten (Joel 2:25). 

My little handsome.

"Dis is da best day eva!"

"I'm bow-wed." (I'm bored.)

It had been too long. Major thanks to Superman who let me fish all day while he paddled. 

I caught a good one, y'all. And I'm not talking about the fish. 

Brandon taught me to always give the first fish of the day a smooch. 

That day I caught 5 smallmouth and 3 sunfish. Fun day!

Just a Spoonful of Peanut Butter

Original Image by Daniella Segura via Flickr Creative Commons

These little buggers may look like benign legumes to you, but something inside me twinges when I look at this picture. Even now. 

I stopped eating peanut products in April 2012 when my health was spiraling out of control. Back then, everything I ate brought on an allergic-type reaction. These reactions were growing stronger and stronger, and peanuts carried a reputation. Instinct told me to stay away. 

Peanut butter remained a staple in our home until April 2013. I was on a “make aaaaaaall the things” kick and decided to try my hand at making peanut butter—trans-fat and corn syrup free. 

I soaked my peanuts for the recommended 12 or so hours. Then I slow-roasted them in the oven for 24 more hours. Once they were thoroughly dried, I threw them into the Ninja with coconut oil, salt, and honey and let her whirl. But something happened.

The notch at the top of the blade didn’t center the lid. The force with which the blade was spinning caused the notch to cut into the lid and throw hot bits of plastic into the peanut butter. By the time I realized what was happening, so much plastic had mingled in, there was nothing to do but throw it all out. 

I cried.

As 36 hours of work and roughly $20 of product went into the trash, I noticed my ears were itching. I scratched them as well as I could and went about my business. 

Later that evening, I opened the trash can to throw something away. I pressed down, smelling peanuts. The reaction was instantaneous. 

My throat swelled. I began wheezing and coughing. I couldn’t think or see straight. I don’t remember getting into the bed.

In the flashes of memory I do recall, I’m lying in bed in our dark bedroom. My throat feels thick and hot. It’s hard to breathe. Brandon holds my hand murmuring pleas. I know I may not live, but I’m peaceful. If I die in that dark room, I’ll wake in a sea of Light. 

There’s a thermometer. Brandon takes my temperature and tells me my body temp is 94 degrees. He warns me if I lose consciousness, he’ll give me Epi and take me to the hospital. He knows I hate Epi. And hospitals. 

He makes me talk to him. I want him to leave me alone. Let me drift. But he’s so scared. The fear in his voice pulls me back. I return to myself. 

Not for me. Not for the kids. For him. 

I don’t remember rallying. I have no recollection of what else transpired that night. I only remember how awful I felt the days after. Like I’d been hit by a truck. 

After that, peanuts were banned from the house.

A year later, I had another near-fatal reaction after an accidental exposure to trace peanut particles. I wanted to treat the kids to frozen custard. We went through the Eskamoe's drive-thru. I was in the passenger seat. The reaction wasn’t as fast this time. 

We drove home. When I stepped out of the car, my legs didn’t feel right. My heart was working too hard. My head went fuzzy. And then my throat tightened. I almost fainted before I made it to the bed. 

This time, Brandon performed our at-home rescue treatment (EDT) Dr. Carolyne Yakaboski had discovered and taught us the previous summer. I didn’t get quite as bad this time around, but was down nearly a week afterward. 

What was alarming was the infinitesimal amount of peanut that had triggered such a strong response. 

We became super cautious. Whenever the kids came home with candy, B searched them with TSA standard scrutiny. Micah’s teachers probably thought we were half-mad with some of our requests. But I assumed a c’est la vie attitude about it all because—what else was there to do? 

I had one other reaction to trace peanut particles in May 2015. That was my last anaphylactic reaction ever. 

God began healing me in November 2015 after a miraculous moment in a prayer session. Over the next few weeks, I tested one trigger after another. 

In early January, I had a mild reaction after breathing in peanut particles. B brought the reaction under control with minimal effort and miraculous speed, but the old trauma was relived. Even after I had successfully tested all the old foods that were once dangerous to me, I continued to avoid peanuts.  

Enter Sara, my four-year-old daughter. 

A couple of weeks ago, I had a new friend over. I told the story of how God miraculously healed me, finishing with, “I can go wherever I want now. I eat just about everything. Except for peanuts. I’m still a little scared of peanuts.”

Sara dropped her crayon and turned to face me. 

“Why are you scared of peanuts, Mama? Der just peanuts, and Jesus healed you. You should just go over to Grandma and Pops’ and eat some. I don’t understand why you’re scared. You’re not scared of anything.”

I blinked. 

The kids had been coloring. I had no idea they were even listening, much less attentively. But let me tell you something—I had no. doubt. the Holy Spirit had spoken to me through my child. 

When I picked my jaw off the floor, I said, “Well…maybe I will.”

But see…there was still the trauma to deal with. Fortunately, I had the tools. Ever since my prayer session last November, I've implemented the techniques to address issues of forgiveness and emotional trauma whenever they arise.

Two days later, I recalled the night I lay dying in my dark bedroom. I asked Jesus to show me where he was. He appeared at Brandon’s side. Jesus knelt with him, a hand on his shoulder. 

I smiled. I knew he’d been there. 

I asked Jesus for the lie I believed about that situation. He said nothing.
I asked for the truth. Silence.
“So what do you want me to do?”

Jesus hands me a jar of Peter Pan peanut butter. Red label.

Okay, then. 

As instructed, I walk over to “Grandma and Pops’.” What do they have in their pantry? Red-labeled Peter Pan peanut butter. Enough for one spoonful.

The kids weren’t around, which was good. If something went wrong, I didn’t want them to know. Especially little Sara. But I had enough faith to walk across the yard without rescue medication and to ask Mom to video my little experiment. 

I opened the peanut butter jar and sniffed. Nothing happened. Good sign.
I scooped a generous helping into the spoon, scraping the sides.
Go big or go home, right?

I silently freaked as I drew the spoon up to my mouth, then opened wide. 

This is what happened:

So yeah...I eat peanut products now. The thing that almost killed me--more than once--I eat.

Someone recently asked me how I had the courage to do it. I wouldn't have without the encouragement of the Holy Spirit through my daughter combined with the encouragement of Jesus.

Without God's help, it would've been too scary. While my daughter may have delusions of grandeur about my supposed fearlessness, I can assure you--I feel fear just like everyone else. Lots of it. It just doesn't control me anymore.

I ate a peanut butter and jelly sandwich for dinner this week. It was delicious. 

Jesus still heals, y'all. Never doubt it. 

Uncaged

"He placed me in a little cage,

Away from gardens fair;

But I must sing the sweetest song,

Because He placed me there.

Not beat my wings against the cage,

If it's my Maker's will;

But raise my voice to heaven's gates,

and sing the louder still."

Last Christmas, Mom gave me this beautiful image, painted by our talented cousin Lisa Wilkes. I was still a shut-in when Lisa finished it, but she refused to paint the bird in a cage. She wanted me free. What a lovely, prophetic gift.

Today, this little bird is free indeed, which was her Maker's will all along. Mysteriously...paradoxically, my cage was the key to my freedom. (Think Hosea 2.)

Therefore, behold,
I will hedge up your way with thorns,
And wall her in,
So that she cannot find her paths.

She will chase her lovers,
But not overtake them;
Yes, she will seek them, but not find them.
Then she will say,
‘I will go and return to my first husband,
For then it was better for me than now.'

My heart was a harlot if there ever was one. But--thanks be--God is a determined lover. And His crazy, stubborn love is freedom. 

Hessed love taught me to fly. 

So, if you were wondering--no, I wasn't frightened away. You don't survive what I have to turn tail and hide in a corner when people don't like what you say. I've just been...busy.

Busy living life. 

Having fun. 

Eating in restaurants. 

That's right. I'm eating corn chips. 

With high-histamine, nightshady salsa.

Vacationing with the fam.

 

 We saw Moses at the Sight and Sound Theater. Great show!

I ate the roasted almonds. Mostly because I could. 

But also because of the smell. Mmmmm.....

Shopping. Check my $2.40 find from Banana Republic. That's right--two dollars and forty cents. *drops mic*

(That duck head sticking out of mine...*snort*)

*picks mic back up*

Dating my Superman. 

Doing fun stuff with the kids and crying like a baby because I can. 

Girls' night. (Who am I?)

Prayer group. 

Daily adventures with Jesus. 

I'll share one of my recent favorites. But first, a little backstory...

During my illness, pain was a significant problem for me. I had arthritis, fibromyalgia, and carpal tunnel, which stole any joy I took in playing the piano. So I stopped. My piano has stood mostly silent for the past few years, serving as little more than a fixture to remind me of times gone by.

Lately, quiet calls summon me back to music, most of which I've been able to muffle with practiced excuses--

"That's something I used to do."

"That was my old life."

"It's been four years, and I wasn't all that great to begin with."

"I've lost my dexterity."

"I want to focus on writing now." 

Which, of course, translates into, "I'm scared to death I'll fail." 

But when Mom came to me on behalf of a friend whose mother had just died, a friend who'd prayed for me over the years, my excuses didn't matter. Besides, if I didn't step in, my sick dad and has-never-sung-for-a-crowd-in-her-life mother would be left to sing a duet to canned music, and I couldn't have that. 

So I dusted off the keys. Opened a hymnal. And lo and behold, my brain recalled the old language. My hands remembered what to do. What's more, I managed to sing and play at the same time. 

Miracles happen every day, folks.

On the ride to Winnsboro, I tried not to think of past funeral performance debacles. The words of a former professor echoed in my mind--"Music is a service profession."  

This is service, not performance. It's an expression of love, not a reflection on myself.

We arrived 15 minutes before go time, which in music world is the same thing as arriving late, and were ushered into a small, enclosed room, invisible to the attendees. I sighed relief. 

Two reasons:

1) Singing in the face of grief is hard for me. I just...can't. I'm too empathetic to keep it together.

2) I prefer invisible service. Nothing says, "I love you" quite like doing something for someone that no one else knows about. Which I suppose I'm ruining now...

Oh, well. I have a point.

We all served above our abilities. I hadn't accompanied anyone since 2011 and I played...well. Not perfect, but well. Mom has never sung so beautifully in her life. Dad's cold? Helped him sing the strongest bass line he's managed since his neck surgery several years ago. And God surprised us with a gift. The funeral director who oversaw the music is an outstanding tenor. He sang along with us.

Y'all, God isn't looking for professionals; He's looking for people to say "yes." In our weakness, He shows Himself strong.

On the way home, I felt God smile, pat my head, and say, "Good job, Baby Girl." 

I live for that, just so you know.

An update:

 

These days I eat what I want and do what I want. I'm medication free. My pain's gone. My energy's back. Most nights, I sleep like a baby. And I *ahem* use the bathroom like a normal person now.  

Brandon's in a fun season. I love watching him grow and exercise his faith. Second to being God's child, being Brandon's wife is the highest honor I enjoy on earth. 

I plan to get back to writing--the dollar-earning variety--soon. I'm still trying to figure out where it fits with the rest of my responsibilities. But I'm determined to give this writing career thing a real shot before I agree to head back to the classroom. Which means I have to sell a few books by this time next year. So yeah...feel free to peer pressure me back into the habit. I'm still debating whether I should work on my short story collection or my novel. I don't feel there's a wrong choice, but there might be a more strategic one.

Pretty soon, I'll move my blog to my own domain. You can support me by subscribing and sharing when I do. 

For the month of April, I'm teaching a journaling class for Project 41's Esther's Academy. Enjoying that. Love the awesome women in the program. After the class ends, I'll focus on developing the prayer ministry for P41 and nurturing my friendships with the women. 

I fall more in love with my new family all the time. When I think of the gift God has given me in them, I get weepy. Every time. Two of the women have become good friends of mine. I'll travel to Brazil with one of them in September. The Lord has called me to short term international mission work for the first time in 16 years. I'm thrilled and terrified. 

But ya know...that's life with Jesus. In or out of the cage.

 

Here for the Comments--My Response to the Response to My Food Journey Miracle Post

My recent post about my struggle with food received an overwhelming response. Not all of it positive.

I posted my story in the mast cell groups on Facebook. While most who took the time to read were encouraged and/or happy for me, some just weren't.

I don't blame them. Not at all.

Mastocytosis/Mast Cell Activation Disease affects every aspect of human life. There's no square inch it doesn't attempt to claim. To make matters worse, there's no cure, so it's a disease without much hope. Outside of Jesus, anyway.

And let's face it, Jesus causes trouble wherever he goes.

I thought I'd address a few of the comments made, not because I believe the people who made them will read my response but because you may need to. Some of the questions the comments imply may resonate with you. 

And deep down, who doesn't love a good Facebook debate?

The Comments

"I can't believe I wasted time reading this"


As someone who has battled MCAD, this comment translated as, "I came here looking for real hope, and you gave me a fairy tale." Do you feel the despair in that? Doesn't your heart break just a little? Mine does. 

To this commenter, I would offer this quote by G. K. Chesterton: "Fairy tales are more than true; not because they tell us that dragons exist, but because they tell us dragons can be beaten." 

Jesus slayed the ultimate dragon when he gave his life on the cross. His life was for us, and His life makes us whole. In mind, body, and spirit. God is on mission to redeem it all.

"Unless you have a disease that can be cured by...science...we are all stuck with mast cell. Some people needs their meds to live. This gives false and dangerous hope to people. Unbelievable... I have seen firsthand what a supposed cure can do folks. Putting the word cure on an illness known to be incurable except for periods of remissions can and does cause false hope. Wording is everything. There was no disclaimer...only stating cure. If anyone and I include myself in this.. Wants to say what is helping them as far as diet, supplements Et al then cool, but, unless it has been medically verified as a cure with accompanying information this becomes another blog with the supposed miracle cure. As a scientist, I aware people for reasons still poorly understood can heal. Hope is good. Proclaiming you have a cure without science not so much"


I agree--"wording is everything"--though even the best of us get it wrong from time to time. But the careful reader will notice I never used the word "cure" in my story. Rather, I spoke of healing. Why? Because I want to be clear. While medication, diet, and lifestyle modifications helped, these things did not end my disease. Jesus did. He healed me.


"I'd like to give my view on this as an atheist (and I know a lot of you are already placing labels on me for using that word, but please do not prejudge). I do not believe in prayer or a supreme deity that has the ability to heal us....but...I do believe that prayer can certainly be viewed as a form of meditation and there has been verifiable scientific study done on the effects that meditation has on the body. The most recent National Geographic has an article on the mind body effects of being in nature...scientific data. Including changes in EEG brain waves and drastic reduction in cortisol levels in the body. Doctors are actually writing "prescriptions" to patients to spend time in a natural setting for healing purposes. From my own personal experience, I can slow my heart rate purely by relaxing my body (I suffer from SVTs) and to some extent slow the progression of Mast Cell attacks the same way. This has been seen by multiple ER docs while I was hooked up to monitors. Then there is the whole epigenetics issue. Scientists have shown that these switches can flip back and forth quickly to stimuli and rapidly affect how our body reacts...or over reacts. She is not claiming to have been healed overnight. Nor did she do nothing but pray, she also modified her diet and tried other avenues of improving her symptoms. I believe placing this is the realm of religion is what is bothering some of you, but if you look deeper and place what she is saying in a more scientific framework, maybe you can understand better..."

I appreciate this person for coming to my defense. Truly. She was kind when others were not. Elsewhere, she chastened those who left--in her words--"incredibly rude comments," some of which were deleted by the moderator. That being said, we aren't on the same page. 

2015 was a rough year for me. Though I continued to lean into the Lord day after day, my thoughts weren't always positive. During the weeks before I was healed, I struggled with restlessness, guilt, anxiety, and shame. I was tired, beaten to a pulp by this monster of a disease. My mind did not heal itself. Jesus healed me.

"I always have to wonder, if you are "cured", perhaps the diagnosis was incorrect all along."


I expected this one from the beginning. Before Jesus healed me, I told Brandon and my mom that when He did it, people will say I never had the disease. People tend to reject what they don't understand.

But MCAD isn't a diagnosis doctors toss to the masses like beads and candy at a Mardi Gras parade. It's difficult to obtain, which is why I had to travel all the way to Minnesota to get it. 

While I'm sure God had more purposes for my Mayo Clinic adventure than I can imagine, I understand at least two--Gastrocrom (a medication which allowed me to eat without absolute misery) and that diagnosis. He wants the world to know no disease is incurable when it comes to Him. 


"I'm happy for you Melissa. It seems like your body has calmed down by making nutritional changes. The jury is still out on mast cell disorders, so thinking positive is a good thing. My fear however would be that your overzealous claiming of healing might turn around and bite you - should you regress, relapse, get triggered again etc. I've seen many women in this group already speak of going years "ok" than not ok. For me, EVERYTIME I have gone there - psychologically, emotionally etc and believed "I'm completely better now!" Or "I'm finally coming out of this!" --WHAM. I've been sent back to reality. So I learned to be "cautiously optimistic" and to speak about "improvement" and not black or white declarations that only kick my ass later. Just my share/2 cents. Mast cell (so far) keeps me humble."


I totally understand the warning. I've been in remission. And yes--I thought I was better, then BAM! But this isn't remission. I'm healed. Thank you, Jesus! 

"I am taking this with a grain of salt..be careful with the word "cure." Glad you feel better..please be respectful of all here. Religion, politics cross over many people's comfort level. And seems to imply we are all in the same boat and all able to pray our way to wellness. That is simply not the case. And can lead to blaming those who don't believe to the degree you do or in your religion. Makes me squirm a bit...got my armor on for the replies with this one..I will remove this post if the comments become attacks or too controversial."


Writers, to publish is to give readers permission to quote things you never said and infer meaning you never intended. 

Now let's discuss the idea of "pray(ing) our way to wellness..."

If anyone could've earned healing by faith, prayer, or specialness, it would've been Jenny. 

Before her, I'd never encountered such indomitable faith. Oh, how she loved our Lord! How she sought Him! She was humble enough to seek prayer wherever she went. Churches, communities, and even Dodie Osteen prayed for her healing. Until a few weeks before her death, Jenny believed she would live. Not hoped. Believed.

The woman was so magnetic that people sense her pull in photos. People who didn't want to like her couldn't help themselves. Few love others like she did. She was often the sickest person in the waiting room at MD Anderson, yet she stopped and prayed for people every visit. People who got to live. Before she let hospice put her into an induced coma, she prayed for and blessed everyone at her bedside. She sent me a goodbye text telling me how much she loved me. Jenny went out thinking of and serving others.

If we could achieve our own wellness, Jenny would've been here to celebrate her daughter's fourth birthday four days ago. But after two years of intense suffering, she died. 

Did I survive because I'm so much better than her? Because my faith is stronger? Absolutely not. And if my prayers achieved all that, Jenny would still be here.

This commenter didn't need her armor. She got no argument from me. 

Healing can't be earned. It can only be received.

"I am glad you are doing better, but to claim that God healed you leaves a lot of Christian people who are dealing with the same thing out. I find it distasteful that God would pick and choose you and leave everyone else to suffer. I think there are are too many variables to leave it to "God fixing everything".... Could have been shots finally registered in your system after all that time, anxiety dying down after postpartum time frames end, allowing you belly time to heal after a severe infection.... Ect.... Too many variables to leave it at "God chose to heal me over everyone else."


This commenter doesn't understand my God. And frankly, I don't either.

Human inclination is to fear what we can't control and to dismiss what we don't understand. 

We can't control God, nor can we understand him. So we fear and dismiss him. We explain him away.

And guess what--I've done it, too. 

I have no idea why I lived and Jenny died. I have no idea why some are healed and others suffer all their lives. But that doesn't mean God didn't heal me. And it doesn't mean He doesn't want to heal others. 

Truth be told, these thoughts aren't all that unrelated to some of my own, which have led to questions. Lots and lots of questions:

1. Did Jesus ever turn anyone away in the gospels? Did He ever say, "No, I'm not going to heal you. It's my will for you to be sick. Your illness brings me glory?"
2. Does illness bring glory to God? OR is it possible to suffer with something that doesn't glorify God in such a way that God is glorified anyway? Isn't that kind of the spirit of Romans 8:37?
3. Does God send illness? Is sickness of God? Or does the enemy send sickness and then God uses it for His own purposes with the intention of drawing us to Himself and with a heart to deliver us from it and all lesser loves? 
4. Does God want us to cuddle our sickness and hold onto suffering because He worked it for good in our lives? Do we need sickness to maintain our sanctification? Should we? Or do we just need Jesus? 
5. Is sickness the best way to experience the nearness of God? If so, what does that say about the saints in the Bible? They weren't sick. Are sickness and pain the only ways to cultivate humility and dependence?
6. Can we best fulfill the Great Commission when we ourselves are sick?
7. If it was God's will for people to be sick, wouldn't Jesus have been going against God's will by healing them? Wouldn't we be going against God's will every time we prayed for healing?
8. In Scripture, Jesus doesn't only heal believers. Many he healed weren't believers when he healed them. Some left him, healing in hand, without a thank you. So what does it mean that He didn't do many mighty works in Nazareth because of their unbelief (Matt. 13:58; Mark 6:5,6)? What role does faith play?
9. The mission stated over and over again in the Gospels is to preach the gospel and heal the sick. Preach the gospel and heal the sick. Preach the gospel and heal the sick. When Jesus sent out the twelve, he told them, "Heal the sick, cleanse the lepers, raise the dead, cast out demons. Freely you have received, freely give" (Matt. 10:8). This doesn't sound like a pick and choose kind of God. So what's the deal?
10. Could the gap between what we see in Scripture and our experience be our fault? As in the fault of the Church? If so, what does this say about our will versus God's will? If not, does the God who is the same yesterday, today, and forever carry out his will differently now than he did in the first century?

In Summary:

Notice I have all these fabulous questions and no easy answers. I can't offer a satisfactory response to any of them because God is mystery. But here's what I make of my experience with the information I have at this time:

God did not send my sickness. Neither did He waste it. God used my physical sickness to rescue me from sickness of mind, body, and spirit. My sickness was the fastest, most efficient way for God to do this and make me usable. My sickness did not glorify God; I glorified God by leaning into Him through it. God never smiled at my pain; He smiled at what I did with it.

The enemy sent my illness and used it to try and kill me. Again and again and again. He did this because I'm dangerous. He failed because God didn't allow it. God is sovereign.

And yet other dangerous, usable people die. I don't know what this means. But I do know God is sovereign. He is the head of all principality and power (Col. 2:10). Not a moment of this storm was outside of his perfect control, and his character and attributes do not change with circumstance.

God healed me. God used prayer to heal me. My healing would not have happened outside of persistent, fervent, expectant prayer. My prayers. Prayers of family, friends, and elders. The prayers of many.

These prayers kept me alive, kept me close to Jesus, and helped me navigate the path laid out for me. The path led me to a group of people who operate in the Spirit of God. They saw my plight, had compassion, and rescued me through more fervent prayer. They had faith for me when I didn't have it for myself. Enough faith for me to expect something to happen.

My healing was intrinsically tied to deliverance, which was brought about in a personal prayer session (Sozo), a ministry of the group mentioned above.

My healing glorified God. My liberation unleashed more of the Holy Spirit into the world. Now whole and operating in the power of the Holy Spirit, I can better fulfill the mission--preach the gospel, heal the sick and brokenhearted, proclaim liberty to the captives, help the blind to see, liberate the oppressed, cast out demons, raise the dead. Make disciples. Make disciple-making disciples. 

I'm called to give as freely as it has been given to me. Which, you gotta admit, has been pretty freely, so I best be serious about this, yo. 

The miraculous bolsters faith in the miraculous. My prayers are not what they once were because I now believe in the impossible. I ask for impossible things. I believe for impossible things. The impossible has become my new normal.

I know that not everyone I pray for will be healed and delivered, but what do I lose by praying? What do I lose? Time? Energy? Who cares? I get God! Even when the miracle doesn't come. And now that I know it might, by the grace of God I'll never stop asking.

I want to do this thing in such a way that if I'm wrong I'll be the most pitiful fool who ever walked the earth and when I see my Jesus face to face I'll have nothing to regret. And who knows? Maybe one day I'll get to see God do something REALLY cool like raise somebody from the dead!


So yeah...that's where I stand. At the moment, anyway.

Now that I've closed my most recent Facebook debate, let a new one begin. And in the spirit of full disclosure, if you comment, especially if that comment is nasty or despondent, you'll be put on a list and prayed for. You've been warned.

Food--The Struggle (It's Been Real, Folks)

 

Original image via Flickr Creative Commons courtesy of Michael Stern

 

It Begins

My first systemic reaction to a food happened right after Christmas in 2004. Brandon, my family, and I were vacationing in Branson and were watching a movie. Along with everyone else, I was popping pistachios.

Then something odd...my ears swelled, grew hot, and began itching. My throat followed suit. I put the pistachios away, popped a Benadryl, and didn't think about the experience again for over a year.

Over the course of 2005, I  sometimes felt unwell after I ate--weirdly sleepy, grumpy, bleh--so I began The Maker's Diet with my parents to clean up my eating. That seemed to help. For a while.

Discovery

Then in early 2006 (a particularly stressful time in my life), itching, hives, swelling, shortness of breath, etc. became common during and after meals. I don't know why it took so long for me to stop living in denial, but eventually I was able to associate the way I felt with food.

Within a few weeks, I eliminated wheat, dairy, corn, soy, and tree nuts from my diet, and I stabilized. For a while.

Spring came with a case of hay fever from HELL. I went about either drunk, sneezy, coughy, sleepy, and sensitive to light and noise or knocked out cold by Benadryl. I wish I were kidding.

Original image via Flickr Creative Commons courtesy of NIAID

The Allergy Shots Experiment

So I saw an allergist. He prescribed daily Claritin, Singulair, and an inhaler along with weekly injections to treat my environmental allergies. (He didn't want to touch my food allergies. They scared him.) I improved. For a while.

A few months into treatment, my allergies worsened. I became increasingly sensitive to the foods I knew I was allergic to. New foods piled onto the "no-no" list. If I had to walk across campus while staff was mowing grass? Asthma attack guaranteed. And then I began reacting to the allergy shots themselves.

At first, it was just localized swelling and itching at the site of injection. No big deal. Normal, even. Later, I had systemic itching. Oh well. Pop a Benadryl. Whatever. After that, full body rashes. Not pretty, but not life-threatening. Go back to the office. Get a steroid shot. Go home.

The day my tongue and throat swelled was a different matter. After an in-office dose of Benadryl failed to bring my symptoms under control, I was given an injection of Epi. The nurse told me this was normal. That some people need Epi every week after injections.

Uh...no thank you.

When I became pregnant with Micah, I used my pregnancy as an excuse to stop treatment, and I never went back. And I got better. For a while.

Original image via Flickr Creative Commons courtesy of Greg Friese

 

The Descent

After pregnancy, things went back to normal...but worse. In June 2009 when Micah was three months old, a few soggy chow mein noodles hidden in a sub par chicken salad sent me to the ER. That episode ended with two Epi injections and a frustrating 10 days of steroids during which this breastfeeding mama had to pump and dump several times a day. Good times.

The next eventful moment happened in January 2011. Brookshire's began carrying pre-made gluten free muffins in the bakery, so Brandon brought some home as a treat. Which they were...until two hours later.

Guys, I'm not a puker. I have a gag reflex of iron. I once went 10 years without a good purge. Even now, I have to be pretty sick to toss my cookies, but that day...I tossed my muffins. Again and again and again and again.

In two hours I puked 11 times. That may be more times than I've puked in my life outside of that day. Each heave was so forceful I was sure something would hemorrhage. Every time it ended, I collapsed onto the floor beside the toilet unable to move.

I don't know how to describe that level of misery except to tell you that I wanted to die. I prayed the Lord would take me. No other pain, no other emergency has ever caused me to pray that prayer.

There was no relief. I couldn't pick myself off the cold bathroom tile. I think Brandon eventually did it himself after he jumped a few flaming hoops to get me the anti-nausea medicine I needed.

Unfortunately, I believed my little puke-a-thon was the stomach virus of the apocalypse. My mistake.

As my friend Tim said the other night, "What you believe matters."

Once recovered, I ate another muffin. Two hours later, I start puking again. As if the first mistake wasn't enough, I used the anti-nausea medicine too soon, thereby trapping the offending substance (teff flour) inside my body, which forced it to run its course.

Take my word when I tell you this was a bad decision.

A few days after this, I caught an actual stomach virus, then another virus, then the flu. Then I got pregnant. Oh boy.

I stayed sick until week 26 of my pregnancy (which amounts to six months of constant illness), at which point I perked up. Until I had Sara.

During labor, I had a systemic reaction to the epidural, which didn't even work in the end. Man, oh man, was she worth it, but dude...

 

The Plummet

After her birth, I wasn't the same. I knew something was wrong. Suddenly, it wasn't just what I ate. It was what I touched. What I breathed. But I couldn't think about me. I had a sick baby to take care of.

Things spun out of control. I couldn't safely administer Sara's medicine because I reacted to it upon skin contact. I lost several more foods. Anaphylaxsis became a common occurrence. I lived off Benadryl. And I bought a medical alert bracelet because I never knew what would happen, when, where, how, or why.

When God healed Sara of RSV and her chronic ear infections, I snapped. Like a twig.

One afternoon, I ate a coconut macaroon for a snack and immediately had an anaphylactic reaction. The next morning, I awoke to pain. Tissue pain. Muscle pain. Bone pain. All of it. Pain which never left. Which I still have to this day, to a lesser degree.

I began to reject all food. Even water made me ill. After several days of being unable to eat and too slow to drink, I dehydrated and had to be given IV fluids.

Elders from our church prayed for me. Within a couple of days, I was able to eat again, but everything gave me trouble. I might eat one thing one day and reject it the next.

We struggled for months to figure out what to do. We tried fasting, supplements, liquid nutrition, amino acid powder. I dropped a lot of weight very quickly. I remember wondering if I would die of starvation.

In September 2012, we learned of the GAPS diet, which is a gut-healing diet. I followed it to perfection, practically living off broths and soups. And it was enough. For a while.

 

Floxed

I won't go into the details of how it happened--you can read the story here--but after being poisoned by a fluoroquinolone drug, my issues worsened. This is when I had to stop drinking coffee and wearing make-up. I lost a ton of foods at once and had to begin wearing a mask every time I ventured into public. Even normal, natural scents like lavender essential oil sent me into respiratory distress. Anaphylaxsis became even more common. As in "three to five times a week" common.

I remember at least two instances during that time in which my spirit separated from my body, allowing me to see everything outside of myself. I remember deciding at least three times to live rather than depart to my Lord for the sake of Superman at my bedside.

In early June 2013, I found myself in another crisis. I again ended up in the ER. This time, we all wondered whether or not I would survive.

My family called a prayer meeting on my behalf, which resulted in God saving my life in a really cool way. For the summer, I was able to eat anything that grew in our garden. Even watermelon, which I hadn't been able to eat in years.

(Note: Prayer changes things. Every time.)

When the summer ended, so did my freedom. I lost all the foods I had enjoyed over the summer and several more, and had one final crisis in December. Fortunately, I was able to stay out of the hospital that time.

Nutritional Therapy

 

I enlisted the help of my friend Jennifer Nervo of 20 Something Allergies in February 2014. She had just become a licensed nutritional therapist. With her help, I gained stability in my diet by following a low-histamine Autoimmune Paleo plan on a four day rotation, which is every bit as complicated as it sounds. I couldn't eat a wide variety of foods, but for the first time since I became ill, I was eating enough.

Even still, my "safe foods" list dwindled.

In summary, food has been a struggle, and the struggle's been real. 

I always knew God would heal me, but part of me doubted my food allergies would be included in that healing. I mean, they've been around for a decade.

When I imagined being well, I imagined going around mask-free and fearless. Having my old energy back. An absence of pain. Even the ability to eat the things I could before I was really sick.

But then Jesus showed up, and all this impossible stuff started happening. First my hands. Then the way I tolerated cold temperatures. Then no more mask because fragrances no longer affected me as they once did.

I couldn't help myself. I asked, "Why not my food allergies?" If Jesus could heal all the other symptoms, he could heal those too.

One day, I tried a bite of a gluten-free cookie. Just to see what would happen. Nothing happened. Then I tried goat milk. Again, nothing. Then eggs. Nothing.

Bulletproof

 

When I no longer required a mask, I told Brandon I wanted to attend the Project 41 White As Snow gala on January 22. (Project 41 is a ministry for sex-trafficking victims and prostitutes in Ouachita Parish. The gala is their big fundraising event each year. Contact me if you're interested in joining the prayer team.)

One morning not long after buying the tickets, I was praying through the Lord's Prayer. (I often use it as a guideline and personalize it to fit the needs of the day. Martin Luther style.) When I got to "give us this day our daily bread," I felt the Holy Spirit say, "You have not because you ask not." And I knew in some mysterious way He wanted me to ask for permission to eat the food at the gala and if I did, He would allow it.

I began telling people--Mom, Brandon, my prayer group--"Just you watch. I'm gonna eat that food and be fine. No matter what it is."

Sure enough, I enjoyed grilled chicken, candied carrots, seasoned green beans, twice-baked potatoes (with cheese and pseudo bacon bits), and two bites of cheesecake (no crust) that I didn't have to cook. Without issue.

As Brandon so eloquently put it, I was bulletproof.

The Big Leagues

 

My stomach wasn't too happy the week following the gala. I had a fair amount of GI inflammation, nausea, intestinal pain, and bloating. Which--granted--isn't all that bad considering what I've been through, but still...

I figured God had given me a free pass for that one night and I'd have to wait a bit longer for complete healing. No big deal. I can be patient.

My prayer group met on Friday night. They asked for testimonies of miraculous healings, which we've been seeing in a steady stream since December. I shared my story again for those who hadn't heard it and for those who wanted to hear it again, during which I mentioned I was believing God for complete healing of my food allergies.

When I got home that night, the Holy Spirit whispered to my spirit, "You haven't asked to be able to eat the food tomorrow."

I'd planned to attend a bridal luncheon in honor of my cousin's fiance the next day. A meal would be served. Honestly, partaking hadn't even occurred to me. Neither had requesting permission to do so.

"Okay, Lord. I would love to eat the food tomorrow. If it would please you, will you allow me to enjoy it?"

I lacked the assurance I felt before the gala, but was content to leave the matter in the Lord's hands. I knew I would know whether or not the food was for me when I saw it. No matter what, I was thrilled just to attend. I hadn't seen my Chapman cousins in years.

 The menu.

Long story short(er): I. ate. it. all. (Minus the orzo and cheesecake crust.)

I knew the moment that fabulous salad was placed before me, it was meant for me and I would be fine.

I even took a bite of the orzo pasta, mistaking it for rice. (I didn't read the menu carefully.) That mistake might have killed me three years ago and would've required Epi and an ER visit in 2009 and 50-100mg of Benadryl as far back as 2007.

But that day my face swelled a little bit. Basically, the equivalent of a sneeze. I didn't even flush.

Mom and I laughed and laughed and laughed throughout the entire meal, which may have been slightly inappropriate, but we couldn't help it. We were absolutely drunk on the joy of the Spirit. (We may have cried a little, too.)

What happened was impossible. The food was delicious. And that cheesecake? The best thing I can remember eating in 10 years. Hands down.

"Thank you, Jesus. Thank you, Jesus. Thank you, Jesus," was the song of my heart which accompanied each bite.

The End

 

The night after the luncheon, I renewed the habit of praying over each meal (in addition to Sara's sweet blessing), thanking God and praying it would heal and nourish my body and the bodies of my family.

This habit accomplishes several important things at once:

1. It reminds me food is a gift, not a right.
2. It reminds me of the Giver.
3. It's a declaration of dependence upon Father for all sustenance. 
4. It forces me to be a good steward of what I put into my body, which is the temple of the Holy Spirit (1 Corinthians 6:19), and reminds me that "all things are lawful for me, but not all things are helpful" (1 Corinthians 6:12).
5. Each bite becomes joyful worship (1 Corinthians 10:31).  

Here's what has happened since:

 

 Oatmeal and goat milk for breakfast yesterday morning. 

I hadn't eaten oatmeal in four years. Brandon left

some in the pot, and I just knew it was for me!

A little coffee to go with my Jesus time this morning. 

First time in three years.

Lawful, not helpful, but oh so yummy.

Omelet with farm fresh eggs, onion, bell pepper, spinach, and goat cheese.

Not low histamine and definitely not AIP approved.

Should've made me flush, sneeze, and itch for the rest of the day, but I'm good.

After my bowl of oatmeal yesterday morning, I said it out loud and posted it to Facebook: I don't have Mast Cell Activation Disease anymore. I'm healed.
 
What a delight eating has become! I can sit before my plate with gratitude, joy, and confidence. No fear. I've been eating foods I haven't enjoyed in years without a hint of discomfort, even when I kind of expect it.

For so long, food was an enemy. No more.

I've been healed of an "incurable disease" by my Lord and Savior, Jesus Christ. I no longer claim MCAD. All my online biographies have been changed (see below). I humbly and enthusiastically accept the gift the Lord is pleased to give--healing of body, mind, and spirit.

Just one month and a couple of days into 2016, the Lord has proven His word to me. This is the Year of Abundance, indeed.

Adjustments

Original image via Flickr Creative Commons courtesy of Vincent van der Pas

My parents' friend Gary Bulloch says this true thing--"Life is a series of adjustments."

We adjust from childhood to puberty, from young adulthood to marriage, from marriage to parenthood, from parenthood to empty nesting, and from empty nesting to the winter years of life with lots of adjusting in between. It seems like the moment we find our groove, the music changes and we have to adjust again. 

I hesitate to say I'd become comfortable with illness. (It's difficult to become comfortable with a disease which tries to kill you on a regular basis.) But being sick was my normal. 

A few weeks ago when I began to heal, Tim, a new friend of mine told me I wouldn't heal all at once because everyone around me had to adjust to the fact that their wife/daughter/mother/friend was getting better. And he's right. But they're not the only ones.

I'm adjusting, too.

It's kind of surreal that three months ago I was a shut in and now I'm going to events. 

Note: Project 41's White As Snow gala went very well, the most successful gala to date. We learned a lot, raised support for the ministry, and yes--I ate the food (!!!!!) Side effects were extremely mild. The night was a personal celebration for my family and me. 

Remember this poem I wrote a year ago?:

Some diseases are a death sentence.
Some are a life sentence.
Which is easier to bear?
A small cell or the chair?
A cage or a casket?
No one knows
and both are hard
on the sick one and the watchers.
Some of us die in here,
but I believe
there is a key
for me,
an early release.
Or so I've been told
by the Prison Ward
who is kind and good and wise and hard.
The door will open
when the cell has done its work
and the bars have made me free.
Or so I believe.
But all I see
are steel and concrete.
Spare walls and a lonely lock
mock my faith.
I smell sky and pine.
Sun shafts through the window.
Voices chuckle and cluck,
a murmur through stone,
a reminder of what I'm missing,
a promise of what's to come.
But the Warden visits me--
and this place has be-come
Home.
"For a while," He corrects.
So I believe.  

Well, the cell has done its work, apparently. The bars have made me free. The Warden has thrown open the prison gates, and while He hasn't exactly tossed me out, it's very clear He doesn't expect me to stay inside. Nor do I want to. I'm ready to bust outta here, yo!

But there's this very real rehabilitation period to contend with. 

I'm learning to live in the world again. (There are people out here!) I'm asking big questions. (i.e. "What now?") I'm doing things. Going places. It's weird.

And my body hasn't quite caught up with my to-do list. 

 

Original image via Flickr Creative Commons courtesy of Alan Bloom

These days I'm either enjoying my freedom or recovering from it.

Chronic fatigue, pain, and food sensitivities are still things as I pick up Micah from school, take Sara to her dance lesson, undertake my own housework, shop, go to church, visit with friends I haven't seen in forever, attend prayer meetings and events, and accept ministry opportunities. All in addition to what I was already doing.

Except I don't have much time to write. Not fiction anyway. My journal, however, sees lots of action. 

 I filled up this guy in two months!

Thus, my writing goals for the year may not be possible. 

I'm not complaining. I'm adjusting. 

It's difficult transitioning from a slow waltz (not that I've ever been that graceful) to a cha-cha. Even if the change is a blast. 

Moms, you know what I'm talking about. How great is it when your youngest transitions from two naps to one? But that free hour you had in the morning to drink coffee while it was still warm? Gone. Vamoose.

Or that moment you're done with diapers, but then you have to ask the kid whether or not she needs to pee every 15 minutes and haul her to the bathroom umpteen times a day whereas before you could change a diaper every three to four hours and you were good. (Yeah, I cried, too.)

C'est la vie. 

I LOVE the season I'm in, but it isn't easy. 

 

What do people expect of me now that I'm out and about? What does Brandon expect? What do the kids expect? What do I expect?

Does a writing career still fit into my life? I hope so. I want it to. But for now I feel that living real life is more important than writing made up life, and I don't have energy to do both. 

Most importantly, what does God expect of me? 

The Lord hasn't given me a copy of A Former Shut-In's Guide to Engaged Living in 5 Easy Steps. For now, I have only three hints to go on, and none of them are cut and dried:

1) "And she served them" (Mark 1:31). When Jesus healed Peter's mother-in-law, she didn't stay in bed. She got up and served Him. 

This is the word the Lord gave me in 2012 not long after my illness began to really present itself. This last chapter of my story was always going to end with my healing. I was given my marching orders three years before it happened. Service, not ease, is God's expectation of me. Of course, service can wear many hats. 

My family is the most important recipient. It's time to seize the things sickness stole from me. It's time to show up, take some of the enormous burden Superman has carried on his shoulders these long years, and clean my own bathrooms for goodness' sake. (God bless my mother in law for keeping my house from falling to chaos. Debbie Keaster, you are THE BEST.)

2) Limits. Everybody loves boundaries. Even kids. We think we don't, but we do. Limits make us feel safe. 

God has flung open the doors of my cage, and I'm so thankful. There's also a part of me that's glad I still have to count spoons. Because it reminds me--"I can do anything, but not everything."

When I was a prisoner, I talked about all the things I wanted to do when I was free. I wanted to sing in a choir again. I wanted to join that Flannery O'Conner short story class at Auburn Avenue. I wanted to be involved with this ministry and that ministry. Oh! And that one! I wanted to take Brazilian Jiu-Jitsu with Micah. I wanted to teach music lessons, offer cooking classes, and write novels. 

Yeah, right. 

I'm pretty sure the limits of 24 hours in a day and I don't know...SLEEP may disallow all that nonsense. Not that any of those things would be a bad way to spend time...unless I tried to do it all. 

Most days, I manage the things I was doing before I was better (child-rearing, cooking, dishes, laundry, homework, baths, bedtime routine, etc.), a little exercise, and maybe one outing before I'm ready to crash. 

Mondays are my rest days. On Monday, I. just. can't. (See monkey picture above.) I'm done. Stick a fork in me, and whatever you do, don't ask me to do anything extra.

3) A magic thread. In George MacDonald's fantasy for children, The Princess and the Goblin, Princess Irene is given a ring by her fairy godmother. Attached is a magic thread which is promised to always lead her safely back to her fairy godmother. 

One night, goblins enter little Irene's bedroom. She puts on the ring and follows the thread outside into the mountain wilderness, trusting it to guide her into the arms of her godmother. When it leads her into the dark caves, which are home to the goblins, she doubts and tries to feel her way backward. But behind her, the thread disappears. She can only go forward.

So onward she goes--through darkness, danger, and even a wall of rock--until she finds her friend Curdie who is held prisoner by the goblins. Irene rescues Curdie, and leads him out of the caves. At the end of her thread, she finds her godmother, as promised. 

God has given a magic thread to every believer. His name is the Holy Spirit.

The Spirit knows the mind of the Father, who has written my story. He leads me where I should go. Many times, I don't understand where He leads, but if I will hang on and press on, I'll find my way. And maybe, just maybe, I'll be able to lead a Curdie or two to the safety of God's arms along the way.

I appreciate your prayers as I adjust. 

I'm so happy right now. It may seem I don't need prayer. That assumption is incorrect.

I have so many questions. I don't know where the thread is taking me, and my feet are dragging half the time. I long to write, but can't manage it, which is kind of frustrating. As I'm able to focus less on myself, my eyes open to the devastation around me. While the miracle does my family good, the last four years have also left a mark. We're all kind of damaged, and now it's time to pick up the pieces and rebuild. Reconstruction is hard work.

So yeah...keep praying! And thank you for all the prayers that have come before. I hope you, too, are reveling in the miracle God has performed. You're part of it, after all. I hope it reveals an attribute of God you never noticed before, and leads you to marvel before His throne.

As I said to a friend this morning, prayer is never wasted time. And it's the perfect answer to every adjustment life throws at us.

Promises and Chocolate Chip Pancakes

Original image via Flickr Creative Commons courtesy of EffingFoodie

Afternoon sun poured through the window, warming and brightening our white cotton sheets. I nestled against him and looked into his soft, brown eyes. Lacing my fingers through his, I asked the question I'd wanted to ask since it became clear God was healing me.

"Why did you stay?"

He blinked at me.

"I want you to be honest," I said. "I won't be offended. Was it for the kids? Because divorce would've been too expensive? Because it was the right thing to do?"

He tucked a wayward strand behind my ear and looked past me, lost in thought. "Leaving never crossed my mind. Preparing for your death--that was the hard part."

A shadow passed through his eyes. I knew the time he referenced. I didn't want to think about those days.

"But why?" I pressed.

His eyes locked with mine. "Well, I made promises in front of a room full of people. To you. To God. That's kind of a big deal. And besides"--the corner of his mouth twitched--"I like you a little bit."

Ladies and gentlemen, the man I married. 

 

Brandon Keaster, I don't tell you often enough how wonderful you are. So let me tell you now--you are wonderful. 

And clever! Clever enough to trick me into asking you on a date 13 years ago.

Thank you for the chocolate chip pancakes that night and for loving, honoring, and protecting me every day since. Thank you for keeping your promises when it's hard. My heart is yours forever.

Happy anniversary of the night I decided to be your wife, Superman. 

I like you a little bit, too. 

P.S. Give up already. I'm never gonna find a better man than you.

 

This Little Light of Mine

Original image via Flickr Creative Commons courtesy of Herr Olsen

"No one, when he has lit a lamp, puts it in a secret place or under a basket, but on a lampstand, that those who come in may see the light." ~ Luke 11:33

Last week was a big week for me, and I wasn't quiet about it. Almost every day, I posted (to Facebook) some major event, a mile marker on my road to recovery.

On Tuesday, I took a walk in the cold with my little man while Sara was in her dance lesson. Within 25 minutes, I developed a headache and felt I was on the verge of a "crash." I hadn't really planned on a crash or what I would do in the event of one. It was just me and the kids a full half hour from home. But as I warmed up in the car, I said a quick prayer. The headache cleared. I could move my arms again with ease. As a bonus, on that same trip I was exposed to Lysol, and didn't have a major reaction. Believe me when I say this is BIG.

On Wednesday, I pumped gas. I couldn't remember the last time I'd done such a thing. Nor could I remember which side of the car the gas tank was on. Nor how to operate the credit card machine at the pump. But I figured it out. Brandon had admonished me to wear my mask and gloves. I did and had no problems. It made me feel like a grown up again.

On Thursday, this happened...

Nope. Not kidding.

The last movie I had seen in a theater was Les Miserables in December 2012, and I left that feature violently ill. Fast forward to January 7, 2016. We see STAR WARS, and I leave the theater in perfect health! I wore my mask on the way in and out of the theater and during the first half hour or so while people were eating. The theater wasn't crowded, it being the first showing of the day during the middle of the week three weeks after the movie's release. With plenty of space between me and my fellow movie goers, I was able able to enjoy most of the film mask free.

Only a few months ago, I doubted I would ever enjoy another movie in the theater. Which was a shame because before I got sick, movie dates were "our thing."

What I didn't post to Facebook is what happened after the movie...

Original image via Flickr Creative Commons courtesy of Daniella Segura

An Encounter with my Arch Nemesis

 

Several triggers have tried to kill me over the years, but nothing has come as close to success as "The Peanut." 

Back in 2013, I tried to make a healthy peanut butter for the kids. Big mistake. That little experiment sent me to the brink of death. I struggled to breathe, my blood pressure dropped, I couldn't think or communicate, and my body temperature plummeted to 94.1 degrees. I thought I would meet Jesus that day. 

Since then, I've had a couple of freak reactions to peanuts. Once, when I went through a frozen custard drive-thru. Another time when I kissed the kids after they'd eaten frozen custard. (Custard became a cuss word in this house, as you can imagine.)

Peanuts don't mess around. They carry a fine dust which easily disperses in the air and settles on things like napkins, custard cups, and hard surfaces. Trace amounts are enough to trigger the sensitive and allergic, and the reaction can be severe. Bad stuff goes down when peanuts and I are in the same room.

When it became clear that God was healing me, Brandon and I agreed we wouldn't experiment with triggers which have caused shock reactions. Secretly, I asked God to allow an accident to occur with each shock trigger, but only when my body was ready for it. 

God answered my prayer sooner than expected. 

After the movie on Thursday, B went into the hardware store where we buy local honey. At the entrance is a massive drum of peanuts in the shell. The honey shelf is right next to it. As are the paper bags.

Brandon returned to the car and placed our paper bag of honey in the backseat. Five minutes later, my face and tongue began to swell and my thinking went all...swimmy. 

I swore. Because I knew what it was and I thought it was going to be bad and we had just been on our first date in three years and it was going to end in an emergency. Or so I thought.

Brandon pulled over. I took my rescue meds. Brandon treated me. And I was fine. 

Usually, peanut reactions continue to worsen over the course of a half hour, and it takes me a week to recover. Brandon skipped hunting that evening to keep watch over me. I kept smiling at him, assuring him I was okay. I told him about my secret prayer. 

God wouldn't have let that happen before I was ready. He doesn't give good gifts just to yank them out of our hands.

The timing of this little accident was so perfect. It happened before I shared a meal with my prayer group last Friday, which gave me extra confidence even though they were careful to accommodate me. More importantly, it happened before the White As Snow Gala for Project 41, which I will attend on the 22nd.

 (Purchase your tickets here.)

Now we know--even if the worst case scenario happens I'm not going to die. Brandon will be able to relax and enjoy instead of worrying about me the whole time. To an extent. And I'll be brave enough to try the food after all these weeks of asking God to allow me to eat it without issue. 

(I'll let you know how that goes.)

Sharing the Light

 

I realize my constant praise reports may annoy some of my FB friends. I get it. Ecstatically happy people can be irritating. My sick friends may think to themselves, "What about me?" Been there, done that. I know exactly how you feel. 

But after carefully cataloging the descent, it would be seriously neglectful not to document the rise. Don't you think?

My heart is to encourage. For four years, I've been a walking reminder that life can go terribly wrong. That joy can be found in the midst heartache when you lean into Jesus. Now I'd like to be a walking reminder that God hears and answers prayer. I want to be a parable of resurrection. So I continue to display my candle on a lampstand that others may see the light. I pray others will join me with their own healing stories.

Original image via Flickr Creative Commons courtesy of Esteban Chiner

Healing is Contagious

The people who have walked with me through the darkness are the most affected by the light. Maybe more so than me. When you've watched your wife/child/mother/friend fighting for her life against a supposedly incurable, progressive disease, it does something to you when the tragedy is rewritten with hope.

My doctor and friend, Carolyne Yakaboski, often shakes her head in wonder. My parents grin over my latest experiments. Fear loosens its grip on my Superman as he learns to trust and believe. Sara asks me to take her to Sonic so she can play on the playground. 

"Soon," I say. 

But Micah...oh, man. 

Micah is a sensitive kid. He doesn't always show his emotions (as opposed to Sara who wears her heart on her sleeve and wants everyone to participate in whatever she's feeling at the moment). But he feels deeply. Mom reminded me the other day that Micah was adjusting to a baby sister when I got sick. That's a lot of life change for a sensitive little guy. 

Micah has only a couple of memories of me when I was well. He has lots of memories of me in bed. Of being passed around from caretaker to caretaker. Of my absence. He'll be seven next month. I've been sick for over half his life. 

The other day when I told him I would start picking him up from school some days, a gap-toothed smile spread across his face. Tears filled his eyes until one slipped out and ran down the side of his freckled nose. "You made me cry, Mama."

"Does that make you happy?" I clarified. 

He nodded, and I kissed that little nose.

Not long ago, he told my mom with wide, serious eyes, "God has finally heard our prayers."

Lately, he's been praying for other sick people we know with confidence. He believes. And he's been...I don't know. Happier. Almost as happy as when he was a baby.

Mom and I talked as we watched the kids play one day last week. "This is going to stay with him his whole life," she said. "He'll never forget what God did for you. It will shape his relationship with Him forever."

My story probably won't have the same impact on you as it does on my husband and son. But because there's a chance it will shape your view of our good, good Father...

This little light of mine

I'm gonna let it shine

"Nor do they light a lamp and put it under a basket, but on a lampstand, and it gives light to all who are in the house." (Matthew 5:15)

The Extra Bowl of Ice Cream

 

Original image via Flickr Creative Commons via Nathan Cooke

Some rights reserved.

Last spring, I wrote this scene in which Declan (a healer) entices Mara (an ex-prostitute and recovering alcoholic) to eat by making ice cream, a rare treat in my medieval-esque world. The ice cream is shared six ways among the three women and the three men of the household, so everyone gets just enough. But when Mara finishes her portion, Declan quietly takes her empty bowl and replaces it with his full one.

After I wrote this, I asked the Lord, bold as brass, "Will you give me an extra bowl of ice cream?"

It wasn't that I didn't have enough. I had Him. But in the midst of sickness, injustice, grief, and loneliness, I wanted assurance that God was kind.

Now, I know "kind" doesn't always mean "nice." God isn't nice. Or safe.

But as Mr. Beaver will tell you, He is good, and that's sort of the same thing.

via The Hamby Home

Rather than immediately serve up my request, God opened my eyes to the ice cream I already had--

a healthy marriage

two sweet ginger kids

toys on the floor

enough to eat

a warm house

hot detox baths

joy in writing

daily grappling matches with an almighty Sovereign

long naps and angel's food in the shade of a broom tree

But just because God didn't immediately answer my prayer the way I wanted Him to doesn't mean He said, "No."

Fast forward seven months...

He places lonely little me in a family of believers, the kind of Christian fellowship I've craved all my life. This family accepts me. God burdens their hearts for my sake, and they, in turn, plead my case before Him. I learn about their personal prayer ministry. I apply. I become their first recipient, and God uses that experience to free me from spiritual bondage I thought I'd never be rid of, to heal me of the emotional damage of the past, and to unravel this crazy illness one symptom at a time. 

I've written about how God healed my hands. Only two weeks later, there's more to report!

On December 3, it was 37 degrees. I experimented with my tolerance to outdoor temps. Here's a summary of how that went:

The video I took this morning...mainly for the entertainment of Madonna Gil and Torey Pop Morgan. You're welcome. ;)
Posted by Melissa Chapman Keaster on Thursday, December 3, 2015

(Hope you enjoyed the up close shot of my nostrils...*face palm*)

Now, 37 degrees is a far cry from 20 degrees, which was the temp the day I first reacted to the cold, but I fully expect to be fine when it gets that cold again. It seems to be what God is doing.

Last week, I woke up at 6am (or earlier) four days in a row and saw Micah off to school each day. Last year, that wouldn't have been physically possible. Even with naps. 

I also ate half a cookie *gasp* from a package. Granted, it was gluten-free and processed in a peanut-free facility, but I'm still calling it a win because my tongue didn't swell, I didn't cough, and my mouth didn't immediately fill with tiny sores. That being said, my original chocolate chip cookie recipe tastes better for anyone who wants to know.

Even with all this momentum, I didn't expect what happened this past Saturday. God's faithfulness was on full display. 

Some of you may know Stan and Stacey Thomason. Brandon and I met them not long after we began going to Crossroads in January 2008. Stacey and I bonded over our love for Jesus and real food, and though circumstances have kept us apart for the past several years, we've stayed in touch. One of the reasons for this is that back in 2009 the Lord gave me a word for her at a Beth Moore conference. 

During worship, God impressed upon my heart that Stacey would one day be a mother and that I needed to tell her. I did not want to do this. For several reasons. 

A) It was the first time God had ever given me a word to tell someone. New territory=lots of doubt and fear.

B) I was unworthy. Back then, I was in the early stages of recovery from a 5 year rebellion against God. Who was I to deliver any kind of message from Him?

C) I knew Stacey's deep desire for a child. I also knew her difficulties in having one. God in heaven, what if I was wrong? 

But somehow, I knew I must speak, as terrified as I was. I turned to her, touched her shoulder, and swallowed. "Stacey, I don't know how or when, but you will be a mother. God wanted me to tell you that."

(For the record: If I'd known then what I know now, I probably would've stated that differently. But there's grace for the young and stupid.)

We waited almost six years. Each time hope glimmered, I rejoiced. With each hope deferred, I grieved. I prayed. And, of course, I wondered if I'd spoken out of turn. What if my words had been for harm?

And then last year about this time, Stacey texted me a photo of an ultrasound. There she was--Miss Rinnah Nalon--growing in her brave birth mother's belly, awaiting the arms of a woman who would love her more than life.

Saturday was the celebration of Rinnah's official adoption.

And as if that wasn't good enough...

We arrived at the start of things. On the way inside, I noticed it was just us and one other family. I looked at the mask in my hand, then up at Brandon. "Mind if I try to go without it?"

He agreed after I promised to put it on the moment I felt myself getting sick. 

That moment never came.

I don't understand. There were candles burning. The scent of perfume wafted to my nose now and again. Two weeks ago, candles and perfume still bothered me. Even when the place began to fill up, I was fine. 

Before we left, I stole Stacey away into a corner where she and I marveled over God's incredible faithfulness. Brandon captured the moment for me.

How's that for an extra bowl of ice cream?

On the way home from the celebration, I asked Brandon, "Can I try church tomorrow?"

His hand went straight for his heart. 

"Please?"

He agreed. 

The next day, I enjoyed an entire church service MASK-FREE. Nearly three years have passed since the last time that happened. I alternated between tears of joy and ecstatic squeals in Brandon's ear--"I'm doing greeeaat!"

At the end of the service, we took a selfie to commemorate the extra extra bowl of ice cream: 

Superman,

You are so brave and awesome to put up with my experiments after the horrors you've lived. Thank you, thank you for believing with me. Most men would've left long ago, but you've stayed. Enjoy God's reward, my love, as He restores to us the years the locusts have eaten.

Brandon and I agree. I won't experiment with triggers that have caused shock reactions. That means no pesticides, no peanuts, and no latex. If I'm accidentally exposed to one of these triggers and I'm fine, PRAISE THE LORD, but I won't go looking for trouble.

I'm not completely mask-free yet. I dropped off Sara at dance yesterday without my mask and regretted it. Something (Lysol maybe?) had been recently sprayed in the area. Not fun, but I didn't react as I once would have. Also, freshly mowed grass and gasoline are apparently still problematic. 

But dude! I can go to church without wearing a mask!!!! And I'm going to try Christmas gatherings this year!

"Trust in the Lord and do good. Dwell in the land and feed on His faithfulness." (Psalm 37:3)

I hope you'll feast with me this Christmas. There's plenty of "ice cream" to go around, even in the darkness of this world. Turn off the news for half a second. Leave the fate of humanity in the hands of our able and almighty God.

Here's a spoon. Dig in!

The Power of Worship

Worship changes things.

The posture of a soul. The climate of a household. The complaints of the body. There's all kinds of healing to be found in turning from ourselves and the concerns of the moment to behold the beauty of God.

I used to have episodes. Spells, I called them. In the evenings, when I was tired, drained, and weary of discomfort, I'd still have to cook. Cooking seemed a monumental task in those moments. Impossible. Living felt impossible.

Arthritis made it difficult to peel vegetables. Phantom stakes drove into the fibromyalgia points in my neck and shoulders. Heat radiated from my skin, tender to the touch. A tension headache would form, unable to be helped by medication or essential oils. I was too sensitive. Still am. And the worst part was the dark cloud which hung over my head, weighing me down.

Either the pain isn't as bad now or I'm used to it. Maybe both. The cloud still visits me sometimes. 

But God (a lovely pair of words, don't you think?) is faithful. He speaks into the cloud. Through the storm of pain and discouragement, I feel Him. Nudging me, reminding me. I'm here. Reach for me.

I always begin with prayer. I ask for help with plain words, sometimes gasped, depending on the level of discomfort. But help doesn't always immediately come.

I move on to gratitude. I reflect on God's kindnesses. They're always there, even in the midst of the ashes. Eventually, with eyes to see and practice, you don't have to look very hard.

A couple of years ago, I thanked God for the strength to stand at the kitchen counter. Back then, I didn't take that strength for granted. Then, maybe I thanked Him for the squash in my hands, which would bring nourishment to me and my family. The infant clinging to my ankles. The little boy bouncing off the furniture. The husband on his way home from work. The messy house.

Gratitude penetrates the cloud, but it doesn't always chase it away.

So then I preach to my soul. Words hidden in my heart find their way to my tongue, sounding from my pulpit at the kitchen sink.

"Why are you cast down, O my soul? Why are you disquieted within me? Hope in God, for I shall yet praise Him for the help of His countenance." (Psalm 42:5)

"...If God is for us, who can be against us? He who did not spare His own Son, but delivered Him up for us all, how shall He not with Him also freely give us all things?" (Romans 8:31-32)

 Be bold. Be strong. The Lord your God is with you.

The cloud begins to lift.

But worship is the ace in the hole. It not only dissipates the cloud; it often relieves my physical discomfort. Or at least makes it less important.

Saturday night, I had a bad case of the ickies. You know what I'm talking about. I was all out of sorts, self-conscious about stupid things, and grumpy about having to figure out what to do with the pound of bison I'd thawed. My family was in a funk, too, and not the fun kind.

I remembered my ace, and decided to make it my first play.

Everyone was watching TV, so I grabbed my iPod, stuffed in my earbuds, and turned up a favorite worship album. I sang softly as I cooked and folded laundry, and you know what? I wasn't the only one helped. The atmosphere of our home shifted.

I've learned to expect that. Which is why worship has become my go to remedy for maladies of all kinds.

One night last week, Sara threw a major hissy fit right before bedtime. Girl's got a temper.

  I know you wouldn't believe it looking at this precious face.

But yeah...

I'm a firm believer in not going to bed angry, so I asked God how to help her. Silent prayers in the rocking chair weren't doing the trick, and she was too hysterical to pray herself. I sang a few of her favorite hymns. It helped, but she continued to thrash and cry, inconsolable.

I asked her to sing with me. We sang her current favorite, "At the Name of Jesus." Then she calmed enough to look up at me and say, "I wanna sing 'Jesus on da Cross.'"

I combed my fingers through her downy curls. "I don't know that one, Love. Will you teach it to me?"

Sara sang the following words to a simple melody which made the former music teacher in me proud. She made me repeat the phrases, which helped me to remember the lyrics long enough to copy them down in my journal:

Jesus on da cross...
His name is glorious...
He won da victory for us...
He died on da cross...
So He could save us...

Not a bad little song. And in the process of singing it, her anger evaporated. I tucked her into bed peaceful and content.

Now I wonder how many of my own passions I can reprocess into worship. Fan of experiments that I am, I'll be trying it out in the weeks to come.

In the meantime, what about you? Have you experienced the healing power of worship? Post your story in the comments below so we can all marvel at the healing weapon God has given us.

"Make a joyful shout to God, all the earth!
Sing out the honor of His name;
Make His praise glorious.
Say to God,
'How awesome are Your works!..."
(Psalm 66:1-3)

 

Emergency Desensitization Technique

If you've followed my health journey over the past couple of years, you may recall me mentioning a mysterious "treatment" used during my mast cell episodes. It's my secret weapon against those angry little buggers.

Time-lapsed mast cell degranulation. Cool to watch. Not so cool to experience.

The treatment now has a name--Emergency Desensitization Technique (EDT).

 Me at Dr. Carolyne's office receiving a lymphatic treatment in 2013.

My friend, Dr. Carolyne Yakaboski of Natural Wellness Center in West Monroe, Louisiana discovered EDT in an effort to save my life. She called upon the most effective protocols she'd learned throughout her experience in natural medicine, and spliced them together in a specific sequence.

And. It. Is. Amazing.

Family and friends have performed EDT on me countless times with nearly perfect success. Only once did I use Epi in addition to the treatment. My kids, family members, and friends have experienced the wonders of EDT as well.

I've seen EDT relieve symptoms* such as:

• sneezing
• coughing
• wheezing
• itching
• headache
• insomnia
• anxiety
• difficulty breathing
• dizziness
• fainting
• brain fog
• nausea
• sciatic pain

Over time, it also may decrease sensitivity to particular allergens and triggers. It certainly has for me.

I believe EDT is a significant factor in my improvement over the past two years. Improvement which shouldn't be possible considering that Mast Cell Activation Syndrome is a progressive disease.

What IS EDT?

EDT is based upon modern allergy relief techniques and the ancient principles of acupressure and deep breathing which trigger the body's natural healing response. It's simple to perform and requires no special skill. All you need is a pen, paper, a few cotton swabs, and an accessible way to learn it.

I've longed to share the technique with fellow floxies, masties, and allergy-sufferers for as long as I've used it, but I have friends all over the world who suffer like me. They can't all fly to West Monroe to learn from Master Carolyne in person. (Though I would love that. Party, anyone?)

SO, during my social media hiatus, Dr. Carolyne and I filmed a video tutorial which demonstrates how to perform this simple technique from the safety and convenience of your own home. Dr. Carolyne provides instruction while I serve as her willing prop.

I loved practice sessions for this video. I received two or more treatments a week while we worked on it, and felt great by the time we were done.

This two minute clip features my personal testimonial. (Please forgive my awkward camera presence and southern drawl.)

If you are interested in learning more about EDT, contact Dr. Carolyne Yakaboski at http://dryakaboski.com/ or call her office at 318-387-3000. 

(Note: By promoting this video/technique, I do not gain financially in any way. I simply want to share information that has improved my quality of life in hopes that it will do the same for others.)

*EDT is not intended to diagnose illness or to be used as a substitute for medical advice. Please consult a physician in matters relating to serious illness and medical emergencies.

There's a Place for Us

There are many facets of illness I find difficult. The loneliness. The uncertainty. My food sensitivities are always changing and growing in number. What will I eat tomorrow? A year from now? What if a wasp stings me while I'm alone with the kids? Would I survive the flu? Winter is coming, so freedom will be going. How bad will the depression be this time?

But nothing presses me quite like the question...

Where do I belong?

Before I was sick, I was a mom who did stuff with her kids. Brandon and I taught first graders at church. I sang for area congregations when asked. I gave music lessons to children. I traveled to Ruston once a week for one-on-one discipleship, and was part of a community group. I met one friend for playdates and another for prayer. I led a couple of choir things for our church. I had a place.

When I became ill, it all burned to the ground. Nothing survived, and nothing has revived. But my soul-razing has proven to be a very good thing.

My activity was aimless. 

 

Just because I did a lot of stuff, doesn't mean I was functioning as part of an organic whole. There's much more to life than just being busy. 

"A spiritual gift is given to each of us so we can help each other...It is the one and only Spirit who distributes all these gifts. He alone decides which gift each person should have. The human body has many parts, but the many parts make up one whole body. So it is with the body of Christ..and God has put each part just where he wants it."-1 Corinthians 12:7,11,12,18

I have friends who strongly disagree with me about this, but I believe God brought illness into my life. (Maybe that's not the best way to say it. Maybe I should say that when Satan asked to bring this illness to me, God agreed because He knew best.) I see it as mercy. Severe mercy, I grant you, but mercy nonetheless.

I'm where God wants me. Most days, I'm okay with that.

Based upon what I understand of my spiritual gifts now, I can say with 99.9% certainty I wasn't using them much prior to 2012. I may have had a place, but I had no function.

But how does one cut off from the body function as PART of the body?

 

This has been a question with which I've wrestled throughout. I still wrestle. Here are three ways God has answered it:

• A church outside of church. We live 45 minutes away from where we attend church. For a while, a few people helped us, but there was no way to sustain it. We were too needy and lived too far away. Besides that, we were absent. So my family became my church. Brandon, Mom, Dad, sister, brother-in-law, grandparents, and in-laws rallied around me. Not only did they offer Christian support, but it was within this tiny church that I discovered and began to exercise my true gifting.

• Christian friendships. I have several friends who live out of state. Others an hour away or a few miles down the road. By God's grace, we haven't lost touch. The encouragement these ladies have offered over the years has been essential to my spiritual health. They're champions to hang with me through all this craziness. I hope I've been half as good a friend to them.

• The invisible ministry of prayer. When I couldn't attend church myself, I prayed for the churches my people attended. For a while, Brandon and the kids went to church with my parents. So I prayed for Cedar Crest Baptist Church. My in-laws still attend the church Brandon and I married in. So I prayed for FBC Marion. My son attends Wednesday night services at my grandparents' church. I so I prayed for Faith Baptist Church. And God never released me from claiming The Bridge Community Church as my home. Through prayer, I went from feeling church-homeless to feeling like I had four churches. 

A word about invisible ministry...

I think we're all a little afraid of being invisible. But let me assure you, as someone who has been invisible for four years, it ain't so bad when you understand: The only Eyes that matter see you.

When Hagar was alone in the desert, the Angel of the Lord found her. He spoke to her. And then she called His name--You-Are-The-God-Who-Sees. That understanding was her lifeline.

And just because you aren't seen, doesn't mean you don't matter.

"In fact, some parts of the body that seem weakest and least important are actually the most necessary. And the parts we regard as less honorable are those we clothe with the greatest care. So we carefully protect those parts that should not be seen, while the more honorable parts do not require this special care. So God has put the body together such that extra honor and care are given to those parts that have less dignity. This makes for harmony among the members, so that all the members care for each other. If one part suffers, all the parts suffer with it, and if one part is honored, all the parts are glad."--1 Corinthians 12:22-26

Paul says here that though I seem weak and unimportant, I'm actually pretty necessary. I may be hidden, but I'm vital. I require special care, but I'm part of what makes the body tick. I may have less dignity than others, but I'm not all that interested in dignity and frankly, I don't think God is either. If my ministry nosedives, people who will never meet me will feel it. And if God heals me or prospers me in any way, the entire body benefits.

Widows, young moms need your wisdom and helping hands. Come be a part of our families.

Young moms, your job is the most important in the world. God sees your sacrifice when no one else does.

Invalids, the way you worship God in suffering inspires us all. You are living proof of God's sustaining grace. We need that.

Shut-ins, maybe God sequestered you to be an intercessor, or a writer, or a messenger. Ask for grace to get past the self-pity and embrace your calling. It's necessary.

Waking Up

For the better part of this year, I've lived in isolation.

A large part of that is necessary for my health. If I leave my house, I can bank on returning at least a little bit sick.

By "a little bit sick," I mean I have to crawl into bed for a while, my energy is zapped, and I experience a variety of discomforts, which may include swelling, asthma, severe headache, joint and tissue pain, dizziness, loss of balance, blood pressure drops, fainting, insomnia, and/or fever.

And then, there's always the risk of returning home "very sick," which means death and I brushed shoulders along the way. I'm happy to report that hasn't happened in a while, but there's always the risk.

You see why I don't get out much.

Another part of my isolation was self-imposed. I withdrew from social media because I felt doing so was in the interests of myself and my family.

I was right.

January, February, and March leeched the life out of me. It was a difficult time for all of us, and the scant energy I had needed to go to Brandon and my kids.

My memory blocks seasons of extreme difficulty. All I remember from that time is anger, hollowness, and a weariness so deep death sounded good.

Also, God. The grappling, the crying, the fight for grateful living. Exhilarating answers to prayer. Growth. Painful, excruciating growth.

Oh! And Gilmore Girls. God bless Gilmore Girls.

The final part of the isolation was inevitable. God gave me a book to write, and guess what--you have to write in isolation. There's no other way. Without going bonkers, anyway.

Those lonely months with nothing but God, my family, my characters and their story restored my strength. Solitude was just what I needed. Funny, isn't it, how the Great Physician never gets the prescription wrong?

On July 15, I completed a typed draft of my novel. Woohoo!

I frolicked about in post-writing afterglow for a week or two. I traveled to Baton Rouge to see my friend/mentor. I watched television. I read Blake Snyder's Save the Cat!, grinning like a Cheshire cat each time I realized I had followed pro-writer advice without even knowing it. Cha-ching! I basked in having written something Mom and Brandon really liked. I took naps. 

And then I woke up. 

If you ever have the misfortune of running out of water in the middle of the desert, you will begin to feel sleepy after a time. You will sleep, and for the length of that sleep, you will feel nothing as you edge closer and closer to death. 

But when you wake, you'll experience a thirst unlike anything you can imagine. You'll be mad with it. You'll drink anything--urine, antifreeze, bleach.

Waking up to isolation was a bit like that. A bit.

For months, I slept through the pain of loneliness. To heal. To write. It was good and it was necessary and I don't regret it. 

But now...

Facebook would've been an easy fix, but I know enough of myself to realize that going to Facebook with a need like that would've been the soul equivalent to drinking antifreeze. So I waited...

In the meantime, what was I supposed to do with this desire and no clear way to quench it?

The purpose of desire, I believe, is to keep us alive and point us to God. Granted, we can warp desires into bad things when we fashion them into idols, but for the most part, God gives us desires to meet them. He's good like that, yo.

C. S. Lewis puts it like this: 

A man's physical hunger does not prove that that man will get any bread; he may die of starvation on a raft in the Atlantic. But surely a man's hunger does prove that he comes of a race which repairs its body by eating and inhabits a world where eatable substances exist. In the same way, though I do not believe (I wish I did) that my desire for Paradise proves that I shall enjoy it, I think it a pretty good indication that such a thing exists and that some men will. A man may love a woman and not win her; but it would be very odd if the phenomenon called "falling in love" occurred in a sexless world.

Thus, I conclude that if I desire community, community exists. Even for shut-ins. Even for me. And based on what I know of God and the Bible, community is good and necessary. We are built to need each other. So I don't have to worry about whether or not the desire is right.

But what does community look like for someone like me?

I don't believe God would awaken me to thirst just to let me die. I'm thirsty so I'll drink.

So the question isn't "Can I attain community?" but "How will I attain community?"

Which is something I'm figuring out as I go.

Mayo Clinic Trip: Naked Edition

"Blessed is the man who trusts in the Lord,

and whose hope is the Lord.

For he shall be like a tree planted by the waters, 

which spreads out its roots by the river,

and will not fear when heat comes;

but its leaf will be green,

and will not be anxious in the year of drought,

nor will cease from yielding fruit.

The heart is deceitful above all things,

and desperately wicked;

who can know it?

I, the Lord, search the heart,

I test the mind,

even to give every man according to his ways,

according to the fruit of His doings."

-Jeremiah 17:7-10

"If I was a tree," I told Mom as I looked up at its crown, "I would want to be this one."

Our bench sat in its shade. The roots sank thick and sturdy into soft, lakeside soil. Its trunk stood fat and strong at the bottom, and reaching skyward, one became two, became three, became four. Supple boughs hung from brave limbs growing away from Mother, and came to life as the wind rushing off the water proposed a dance. We were mesmerized by the waltz. Sway, two, three. Sway, two, three. How many long seasons of nakedness, of bone-crushing winters she must have endured by the water waiting, waiting to achieve such poise and grace. 

Why must she be naked in winter? I want to know for it seems the Lord requires the same vulnerability from me, and the winter has been long. Ten years I have been sick, frightfully so for two. We began planning this trip six months ago, and here we are waiting, waiting over a long, holiday weekend for test results, for the next step. 

But I am like a tree in Louisiana, shedding its clothes in stages, hanging onto my last layers well into winter. I've been fearful to expose too much, afraid of being hurt. I did not know this about myself until last night when God showed me in the quiet and vulnerability of a bath. It has taken all this waiting to really see myself.

When friends asked why I was going to Minnesota, I would say, "Out of obedience to God," which was true. God made it plain I was to take this trip though I could not see the benefit. In my mind, diagnosis was unlikely and the odds of tolerable treatment options were dismal. I planned and prepared out of duty and love for God, but I dared not hope. Hope leads to disappointment, and disappointment after disappointment wears on a soul.

After the encounter with Arthur on Wednesday, I felt hopeful for the first time. The first time. I met with Dr. Park the next day, and left him feeling that maybe my new found hope was justified. He would check for systemic mastocytosis while doing some gentle "fishing."

And then Friday came along, and pressed the hope right out of me. 

The day was long. I woke before 5 with a twinge in my stomach telling me the day ahead would not be like the day before. I prayed, tried to push it aside, and left the hotel at 6 am. Six in the morning, y'all. The day began with blood work, a necessary photo, and "checking" in the dermatology department. An appointment could not be scheduled until June 23, so I was encouraged to wait to be fit in. I was seen quickly--probably because it was Friday.

Though the doctor was very kind and professional, the appointment was kind of degrading. The hospital gown--if one could call it that--was a joke. I was entirely unclothed and entirely unprepared for such a thorough exam which concluded with no clinical findings of cutaneous mastocytosis, a skin biopsy nonetheless, and a psych referral for anxiety. Apparently, my mask had raised a red flag.

After dropping off my 24 hour urine sample, Mom and I made our way to the psychology department. I had been warned by a friend ahead of time to not resist this appointment. It wasn't too bad. A nice lady asked me many, many questions, which led to the sharing of my story for the next hour. 

 

The "container of shame"

She peered at me keenly from behind her glasses. "This illness has left you disabled, hasn't it?"

I hadn't thought about it that way. "I suppose it has."

"Do you feel sad, depressed, or hopeless?"

I thought how to answer, and smiled when the words came. "You know, I used to, and I probably still would if it weren't for Jesus. But because of Him, I take joy in my life, and even though my life is small, I feel like it's valuable."

At the end of the appointment, the psychologist and a psychiatrist sat down with me. Were they concerned about anxiety? No. Depression? Nope. They wanted me to see a specialist of behavior modification for my migraines. Migraines. I was baffled. Yes, I have migraines. Yes, they persist, but they don't make the top 10 list of my most pressing complaints. Weird appointment. But they recommended Silver Lake Park to us, so it wasn't a completely wasted visit. 

Afterward, I was starving and on the brink of collapse. We ate lunch in "our" little courtyard, and made our way to The Quiet Room. The Quiet Room is this magical, sound-proofed space filled with hospital grade recliners and darkness. Mom and I both took an overdue nap. A half hour later, I woke with a start feeling strongly my next appointment would be the most discouraging of the day. I prayed and braced myself.

"Our" courtyard. So peaceful and empty. Mask not required.

We waited a long time to see the gastroenterologist, and when we were finally called back I was underwhelmed to say the least. The doctor did not listen to me. I don't think he read my chart. He recommended a gastric emptying test, an endoscopy and a colonoscopy. I asked if he would do a stain for mast cells. He gave me a blank look, and assured me he would biopsy anything which looked abnormal. He had no clue what I was talking about, and had already made up his mind I had Celiac sprue. He asked me for my departure date. I told him Friday the 30th. I left his office with test schedules and instructions for the gastric emptying test, which required me to eat bread, milk, and eggs and drink radioactive water. The scopes were scheduled for the 30th, which would require me to stay another weekend. 

I was so tired at this point, all I could do was let the information crush me. 

The doctor ordered immediate blood work to test for Celiac disease. As I trudged back to the Hilton Building, I was so defeated I knew the only solution was a song. Not really caring if anyone overheard, I sang softly:

Jesus, Jesus, how I trust Him,

how I've proved Him o'er and o'er.

Jesus, Jesus, precious Jesus,

O, for grace to trust Him more.

After labs, we were finally free to leave. While Mom and I waited for the shuttle back to the hotel, she put her remaining brain cells to good use. I could only nod in agreement. No gastric emptying test. Duh. And the scopes--if necessary--could be done at home. Genius! I high-fived Mom for still being able to think. By the time we returned to our room, it had been an 11 hour day at Mayo. I have no idea how I managed it. 

Grace, grace, God's grace. 

Over the weekend, test results trickled in, all coming back normal. I can see all results on Mayo's Portal application, which allows patients to see consult notes, test results, appointments, etc. online. I've trembled inwardly each time I've pulled up my information, feeling a mixture of relief and frustration with each normal lab. I couldn't help but wonder what those trembles meant. 

On Sunday, we went to Silver Lake. Our thoughts and hearts were still as we watched feathered mothers teach their tiny flocks self-sufficiency. 

I read Psalm 1 and Jeremiah 17 aloud to Mom as we gazed at the tree by the water. My tree. Softly, so softly, God began to speak. Through creation and His word, He whispered subtle truths and made connections in my mind. It wasn't until I was naked and alone that He grabbed me by the shoulders. 

I opened my records again on my iPod in the bath, heart beating fast. And suddenly, I knew. I had been lying to myself. The heart is deceitful above all things. We don't even know our own selves. Until God shows us. 

I have been telling everyone I don't know what I want to come of this trip and diagnosis doesn't matter. But if that were true, my heart wouldn't pound so every time I access my records. All along I've been saying, "I don't know what I hope for, so I will hope in God." But what does that mean, really? Here's the truth--I have not allowed myself to want anything too much because I'm afraid of disappointment. Disappointment hurts.

Stoicism may look like faith, but it's a fake. Faith requires risk. Stuffing desires is not risk; it's self protection. It's the very opposite of faith. 

Can I truly claim with Job, "Though You slay me, yet I will trust You" if I don't give God the opportunity to make me bleed, if I don't put my desires on the altar (Job 13:15)?

Here is my honest desire--I want answers, and I want them desperately. 

Suddenly, I was pouring out my heart to the Savior as I sat in the bath, physically and spiritually naked and vulnerable before Him. And it felt good. Nakedness felt wrong in the dermatologist's office where I was being meticulously examined for flaws by indifferent, clinical eyes. In that hotel bathroom, I was being looked upon with the greatest love of the universe by eyes which see me as perfect and radiant. The love made me bold.

For the first time in two years, I begged God for an answer. I pleaded that I would not return home empty-handed. I sobbed with the psalmist in desperation, "Let me not be ashamed!" (Psalm 25:20) For I would be ashamed if I have come up here for nothing, risking my small measure of health and abandoning my family for ten days on a fool's errand. I reminded Him I had prayed for Him to be glorified. "How can you be glorified unless I am given an answer?" I cried through tears. I know my sight is limited and my wisdom is small, but I just can't see it. 

I. am. terrified. It is so scary to make these admissions to myself, more so to make them public. I am standing stark before you, feeling all the cold of uncertainty in my own Winter of Wait. But here is what I know--God brought me up here. God has led me to this terrifying place of risk, trust, and honest faith, and God wants you to see it. There must be a purpose. There just has to be! I don't know what that purpose is exactly, but I know the purpose is good. I know it will showcase His Son.

God gave me these desires. I didn't go looking for them, so I believe He will answer me. I am so, so afraid. But I believe.

Lord, I believe! Help my unbelief! (Mark 9:24)

"Blessed is the man who trusts in the Lord, and whose hope is the Lord" (Jeremiah 17:7).

Maybe one day I'll attain to the strength and grace of that tree. For now, I'm going out on a limb. 

In Jesus' name, I believe.

Now let's see what He will do. 

A Legacy of Grace

Mother's Day is almost here. I've been gratefully thinking of my mother and wondering what kind of mother my children will remember when they are grown. It won't be Supermom. She died long ago. I no longer measure my worth by perfect birthday parties, trips to the zoo, little league, and ballet classes. (Not that I think there is anything wrong with these things. I just can't do them due to my health. If I could, I would!) I don't beat myself up over dirty bathrooms or piled high laundry. I know I don't have to follow the latest Pinterest trends to be a good mother. But last night as I lay wide-eyed in the dark listening to swirling wind and pelting rain batter our little tin roof, I wondered what legacy I am creating for my kids. What impression are my words and actions leaving upon the little souls I care for?

Though I'm glad I have learned not to hold myself to an impossible standard, I know I sometimes allow my illness to excuse bad behavior. I'm ashamed to admit it, but deep down I justify my sharp tone, exasperated sigh, and angry body language with the pain turning my stomach inside out and the fatigue transforming me into a useless rag doll. Extenuating circumstances permit me to withhold empathy from the small boy who late at night cries real tears over real fears which seem ridiculous to me, right?

Wrong. 

My illness does not entitle me to any free passes. I have one shot to make the most of this parenting thing. Disease has stolen so much from me. I cannot play the victim, and allow it to thieve away my best opportunity to make the love of God tangible to my precious ones.

But there is this very real problem of being a sinner. Trial is a wine press--it squeezes and applies pressure until juice is extracted from the fruit. What is inside is what comes out. I exude sin because I am full of sin, full of self. Despite my best efforts, I am unable to live up to even my reduced standards of "good motherhood." I will inevitably fail to be the woman I want to be.

It was with these thoughts anxiety began to use my insides as percussion instruments, almost drowning out the sound of the rain. I remembered how I had endlessly chided Sara for picking the pretty purple flower out of the butterfly garden with a disgusted tremble. I shuddered as I recalled my impatience with the kids as they noisily dragged up chairs to our too-small counter in our too-small kitchen, crowding me out of my workspace, asking to "help," which may be the most exhausting request of all. I saw in my mind's eye two sets of sweet brown eyes filled with confusion and hurt, and had a wild thought--I'm failing! I am ruining my children!

I suddenly realized I was trying on that old cape I thought I had put away two years ago. Supermom may be dead, but the woman left behind is still trying to save herself. She still believes her performance will determine how her kids turn out. Gently, tenderly, Truth sidled up beside her, and whispered to her in the dark--

Micah and Sara don't need another savior. They already have One.
They don't need a perfect mother. They need a penitent one.
They don't need to witness unflinching strength. They need to behold God's glory in human weakness.
They don't need a hero. They need a damsel running again and again to the ultimate Hero with all her inadequacies, failures, and sin.
They need "I'm sorry," "Please forgive me," "Mommy was wrong," and "This is why Jesus had to die--for mommies like me."
Micah and Sara need grace.

Grace doesn't give me permission to be the biggest brat in the house (Romans 6). Rather, it gives me the grit to keep aiming for God's smile in the face of failure. It assures me that He is somehow working good in, through, and in spite of my brokenness. He does that, you know.

Grace holds the balance--I can neither parent so poorly I ensure the destruction of my children nor perform so well that I ensure their success. Grace both covers my failures, and puts me in my place. It supplies a welcoming smile on my tired face when baby birds chirp--"Help! Help! Wanna help!" It provides binding when sharp eyes and words wound tender souls. It silences the broken record-like reproach, and finds a glass jar in which to showcase a purple flower freshly-picked by tiny, well-meaning fists. It calms the fears of a sick mother in the night, inspiring her to rise, lean on fresh mercies, and try again. It fills her with the Sweet Spirit who enables her to love in the little things until the little things make well-worn trails through the little ones' hearts, leading them home to Grace Personified.

The mom who burns her cape is the bravest mom of all. This mom courageously admits her limits, and waits with expectation upon the Lord to perform what she cannot. She plants the seed and pleads for it to be given growth. She knows how weak she is, and trusts in the infinite power of her God. She is a mother on her knees because she knows without her Savior neither she nor her little ones can stand. She knows God is after her dependence, not her capabilities.

I am not the mother the holiday cards talk about. I am the mother who yells and fails and falls flat on her face. But from the ground I call out to my God. My kids hear it. They see it. They drink of the wine pressed out by trial--fermented, aged, entirely transformed by glorious, glorious grace.

Grace, grace, God's grace......

Feet quick to run to Jesus and an extravagant expenditure of grace. This is my legacy. And I'm okay with that.

 

Happy Mother's Day! 

I have a cape to burn.