A Breakup Letter to Fear

 

Original Image by Meagan via Flickr Creative Commons

This month, I taught a journaling class to the women of Project 41's Esther's Academy. I'm unlikely to forget the experience.

These girls are amazing--a visible testimony of the power of Jesus Christ to transform a life.

In the brief time I've known them, they've become my heroes. Though aware they're still deep in process, they continue to lean into Jesus day after day. In the face of failure, discouragement, and fear of the unknown, they continue to walk in victory.

You don't often encounter courage like theirs.

Almost from Day One, they allowed me to participate in their struggles, hangups, and hardships. Who does that?

Their vulnerability inspired my own. I committed myself to complete each assignment along with them and share a little of what I'd written at each class.

Two weeks ago, I asked them to write a letter. For therapeutic purposes.

They chose the recipient. The letter could be addressed to a friend or enemy--living or deceased. It could be to God or to a part of themselves--past, present, or future.

The chief requirement was honesty. Grit.

I think I struggled with my letter more than they did. I couldn't decide on who to write it to. Who I needed to write it to.

So I asked the Lord about it.

Over the course of the week, through various circumstances, He revealed a part of myself I thought we'd handled.

In a way, we had handled it. It no longer mastered me, but it was still there.

Fear. 

A year ago, I physically trembled every time I stepped outside. Back then, the whole world seemed out to get me. And it kind of was. Wasps, ants, heat, cold, random crop dusters loosing herbicides over nearby fields. So many things...

My case of "the shakes" ended several months ago. Then the Lord further dealt with my fear during my prayer session. But apparently, it left behind a few personal belongings in the nightstand drawer so we'd have an excuse to see each other again.

So I wrote Fear a breakup letter the morning before class. I'm good at breakup letters.

(Fun fact: I once wrote a breakup letter for a friend of mine. The recipient was my husband. We started dating six months later.)



Dear To Fear:

We've been together a long time, but you haven't been a very good friend. You've bullied me until I'm afraid of everything. Even things I used to enjoy.

I still can't relax when I go outside. I'm too busy thinking about where the wasps are. I want to go outside and not think about blankety-blank wasps!

I want to write without neurosis. To imagine teaching again without feeling nauseated. To speak when the Spirit leads without fear of being wrong. To obey God about leading worship without flashbacks to every musical mistake I've ever made. Without worrying that people won't like my voice because it's different than the current preferred style.

Thanks to you, I'm afraid to fail, afraid to succeed, afraid to be noticed, and afraid to be ignored. I am a hot, crazy mess.

I'm tired of trying to please you. You set impossible standards and never stop raising the bar. In short--you're a bitch, and I don't like you.

So go. We're done. I'm pretty committed to this whole God thing, in case you haven't noticed. I love Him. I'm in love. And He loves me--succeed or fail. He fulfilled every standard you've set. Neither performance nor popularity define me. I'm His. His is who I am.

Consider this my resistance. I'm already submitted to God. All that's left is for you to flee. I command you to go in Jesus' name.

Sincerely,
Melissa K.



Now, you may write this off as a silly exercise. But let me tell you what's happened since I wrote this thang:

• I'm writing again. Not my novel, but I'm writing.
• I've talked to my small group leader about leading worship. 
• I've reached out to a friend who's willing to teach me how to accompany praise and worship choruses. I hope to meet with her next week and start leading worship this summer.
• I feel easier about the idea of teaching music again if that's where God leads me.
• I'm not constantly looking for wasps when I go outside. Sometimes, I don't think of them at all.
• The chronic cold and sinus issues I've had for two months dried up the day I wrote that letter. 

Coincidence? Make of it what you will. In the meantime, I'm enjoying the extra drawer space. 

Adjustments

Original image via Flickr Creative Commons courtesy of Vincent van der Pas

My parents' friend Gary Bulloch says this true thing--"Life is a series of adjustments."

We adjust from childhood to puberty, from young adulthood to marriage, from marriage to parenthood, from parenthood to empty nesting, and from empty nesting to the winter years of life with lots of adjusting in between. It seems like the moment we find our groove, the music changes and we have to adjust again. 

I hesitate to say I'd become comfortable with illness. (It's difficult to become comfortable with a disease which tries to kill you on a regular basis.) But being sick was my normal. 

A few weeks ago when I began to heal, Tim, a new friend of mine told me I wouldn't heal all at once because everyone around me had to adjust to the fact that their wife/daughter/mother/friend was getting better. And he's right. But they're not the only ones.

I'm adjusting, too.

It's kind of surreal that three months ago I was a shut in and now I'm going to events. 

Note: Project 41's White As Snow gala went very well, the most successful gala to date. We learned a lot, raised support for the ministry, and yes--I ate the food (!!!!!) Side effects were extremely mild. The night was a personal celebration for my family and me. 

Remember this poem I wrote a year ago?:

Some diseases are a death sentence.
Some are a life sentence.
Which is easier to bear?
A small cell or the chair?
A cage or a casket?
No one knows
and both are hard
on the sick one and the watchers.
Some of us die in here,
but I believe
there is a key
for me,
an early release.
Or so I've been told
by the Prison Ward
who is kind and good and wise and hard.
The door will open
when the cell has done its work
and the bars have made me free.
Or so I believe.
But all I see
are steel and concrete.
Spare walls and a lonely lock
mock my faith.
I smell sky and pine.
Sun shafts through the window.
Voices chuckle and cluck,
a murmur through stone,
a reminder of what I'm missing,
a promise of what's to come.
But the Warden visits me--
and this place has be-come
Home.
"For a while," He corrects.
So I believe.  

Well, the cell has done its work, apparently. The bars have made me free. The Warden has thrown open the prison gates, and while He hasn't exactly tossed me out, it's very clear He doesn't expect me to stay inside. Nor do I want to. I'm ready to bust outta here, yo!

But there's this very real rehabilitation period to contend with. 

I'm learning to live in the world again. (There are people out here!) I'm asking big questions. (i.e. "What now?") I'm doing things. Going places. It's weird.

And my body hasn't quite caught up with my to-do list. 

 

Original image via Flickr Creative Commons courtesy of Alan Bloom

These days I'm either enjoying my freedom or recovering from it.

Chronic fatigue, pain, and food sensitivities are still things as I pick up Micah from school, take Sara to her dance lesson, undertake my own housework, shop, go to church, visit with friends I haven't seen in forever, attend prayer meetings and events, and accept ministry opportunities. All in addition to what I was already doing.

Except I don't have much time to write. Not fiction anyway. My journal, however, sees lots of action. 

 I filled up this guy in two months!

Thus, my writing goals for the year may not be possible. 

I'm not complaining. I'm adjusting. 

It's difficult transitioning from a slow waltz (not that I've ever been that graceful) to a cha-cha. Even if the change is a blast. 

Moms, you know what I'm talking about. How great is it when your youngest transitions from two naps to one? But that free hour you had in the morning to drink coffee while it was still warm? Gone. Vamoose.

Or that moment you're done with diapers, but then you have to ask the kid whether or not she needs to pee every 15 minutes and haul her to the bathroom umpteen times a day whereas before you could change a diaper every three to four hours and you were good. (Yeah, I cried, too.)

C'est la vie. 

I LOVE the season I'm in, but it isn't easy. 

 

What do people expect of me now that I'm out and about? What does Brandon expect? What do the kids expect? What do I expect?

Does a writing career still fit into my life? I hope so. I want it to. But for now I feel that living real life is more important than writing made up life, and I don't have energy to do both. 

Most importantly, what does God expect of me? 

The Lord hasn't given me a copy of A Former Shut-In's Guide to Engaged Living in 5 Easy Steps. For now, I have only three hints to go on, and none of them are cut and dried:

1) "And she served them" (Mark 1:31). When Jesus healed Peter's mother-in-law, she didn't stay in bed. She got up and served Him. 

This is the word the Lord gave me in 2012 not long after my illness began to really present itself. This last chapter of my story was always going to end with my healing. I was given my marching orders three years before it happened. Service, not ease, is God's expectation of me. Of course, service can wear many hats. 

My family is the most important recipient. It's time to seize the things sickness stole from me. It's time to show up, take some of the enormous burden Superman has carried on his shoulders these long years, and clean my own bathrooms for goodness' sake. (God bless my mother in law for keeping my house from falling to chaos. Debbie Keaster, you are THE BEST.)

2) Limits. Everybody loves boundaries. Even kids. We think we don't, but we do. Limits make us feel safe. 

God has flung open the doors of my cage, and I'm so thankful. There's also a part of me that's glad I still have to count spoons. Because it reminds me--"I can do anything, but not everything."

When I was a prisoner, I talked about all the things I wanted to do when I was free. I wanted to sing in a choir again. I wanted to join that Flannery O'Conner short story class at Auburn Avenue. I wanted to be involved with this ministry and that ministry. Oh! And that one! I wanted to take Brazilian Jiu-Jitsu with Micah. I wanted to teach music lessons, offer cooking classes, and write novels. 

Yeah, right. 

I'm pretty sure the limits of 24 hours in a day and I don't know...SLEEP may disallow all that nonsense. Not that any of those things would be a bad way to spend time...unless I tried to do it all. 

Most days, I manage the things I was doing before I was better (child-rearing, cooking, dishes, laundry, homework, baths, bedtime routine, etc.), a little exercise, and maybe one outing before I'm ready to crash. 

Mondays are my rest days. On Monday, I. just. can't. (See monkey picture above.) I'm done. Stick a fork in me, and whatever you do, don't ask me to do anything extra.

3) A magic thread. In George MacDonald's fantasy for children, The Princess and the Goblin, Princess Irene is given a ring by her fairy godmother. Attached is a magic thread which is promised to always lead her safely back to her fairy godmother. 

One night, goblins enter little Irene's bedroom. She puts on the ring and follows the thread outside into the mountain wilderness, trusting it to guide her into the arms of her godmother. When it leads her into the dark caves, which are home to the goblins, she doubts and tries to feel her way backward. But behind her, the thread disappears. She can only go forward.

So onward she goes--through darkness, danger, and even a wall of rock--until she finds her friend Curdie who is held prisoner by the goblins. Irene rescues Curdie, and leads him out of the caves. At the end of her thread, she finds her godmother, as promised. 

God has given a magic thread to every believer. His name is the Holy Spirit.

The Spirit knows the mind of the Father, who has written my story. He leads me where I should go. Many times, I don't understand where He leads, but if I will hang on and press on, I'll find my way. And maybe, just maybe, I'll be able to lead a Curdie or two to the safety of God's arms along the way.

I appreciate your prayers as I adjust. 

I'm so happy right now. It may seem I don't need prayer. That assumption is incorrect.

I have so many questions. I don't know where the thread is taking me, and my feet are dragging half the time. I long to write, but can't manage it, which is kind of frustrating. As I'm able to focus less on myself, my eyes open to the devastation around me. While the miracle does my family good, the last four years have also left a mark. We're all kind of damaged, and now it's time to pick up the pieces and rebuild. Reconstruction is hard work.

So yeah...keep praying! And thank you for all the prayers that have come before. I hope you, too, are reveling in the miracle God has performed. You're part of it, after all. I hope it reveals an attribute of God you never noticed before, and leads you to marvel before His throne.

As I said to a friend this morning, prayer is never wasted time. And it's the perfect answer to every adjustment life throws at us.

Why I Journal: 21 Reasons

Journaling is often described as a lost or dying art. Maybe it is. I lack necessary statistics to prove or disprove that hypothesis, but I don't know many people who do it. My mom. My mentor. A couple of my friends.

The reason for this, I think, is that journaling is a discipline before it's an art, and discipline is dying.

It's understandable, if you think about it. There are countless demands on our time and energy. It's kind of a miracle you're even reading this post right now. The mere act of reading demands your time and mental real estate, and what you're reading is about yet another discipline in addition to the ones already on your plate. Not to mention, this particular discipline reeks with the odor of your middle school classroom and all its unpleasantness.

I mean, what adult wants to assign themselves homework, right? (Besides me.) Who has time to doodle in a notebook for 20 minutes several days a week--or ever--when they're already trying to exercise, eat healthy, pray, read more books, and organize their homes while working, parenting, and sleeping enough to stay alive? Not to mention keeping up with The Voice and scrolling the Facebook newsfeed...

Adulting is hard. 

But you know what I've learned about myself? I have time to do the things I want to do. I always have. When I was a full time music student, a part time piano and voice teacher, a children's minister, and had a 30 minute commute (minimum) everywhere I had to go. When I was a working mom. When I was so sick I could barely pick up a pen.

I want to journal, so I do.

But WHY do it?

 

Throughout the centuries, people have journaled for many reasons. To preserve history, for one. For entertainment. For posterity. The written word is longer-lasting than the human body, so people write what they want to be remembered.

Today, psychologists tell us that journaling is good for our health. It relieves stress and depression, and strengthens immune cells. Some research indicates journaling actually relieves the symptoms of asthma and rheumatoid arthritis.

But I don't journal for those reasons. As a believer in Christ, I don't feel pressure to be remembered. And I don't write as a perk to my health.

I write because I must. I need to write like I need to eat. Well...almost.

(I realize I am not the norm.)

That being said, I do have reasons to journal in addition to blogging, Facebooking, tweeting, texting, emailing, and novel...ing.

My Journaling History

 

I began to write poems, short vignettes, and various tidbits as soon as I could write. My parents kept some of them.

I began a formal journal in the 5th grade. Mrs. Pilgreen assigned a writing prompt each day, and required us to write a three to five sentence paragraph in our speckled notebooks. (To this day, I still love speckled notebooks.) Overachiever that I was, I often filled the page.

Mostly, I wrote lies I wished were true fiction, but my 5th grade classroom is where I learned the basics of journaling. Which is to record important events, thoughts, and feelings.

Since then, I've tried various forms of journaling--scrapbooking, blogging, Facebook, even food journaling. Art journaling was a FAIL. For obvious reasons.

But I always come home to the old school long-hand journal.

When I Write

 

I write when I have something to write about. But not always.

I could write every day. Inspiration is everywhere. In God. In Superman. In my little gingers. In nature. In the things I read. In what people say. In how people are. I'm always watching, observing. It's what writers do.

Just kidding. Sort of.

However, I don't hold myself down to a schedule. I don't journal every day. Unless I want to. Which sometimes I do. But other times, I go weeks or even months between journal entries. 

What I Write

 

There are all kinds of things in my journal. A record of events and how I feel about them. Random thoughts. Quotes. Bible verses. Meditations. Prayers. Dreams. Visions. Prayer lists. Gratitude lists. Cute things my kids say. Goals. Proudest moments. Darkest secrets.

My journal is my confessional and my trophy room.

Which brings me to...

Why I Write

 

I'm a pretty open book. Chances are, if you ask me something point blank, I'll tell you the truth and probably more of it than you want to know

BUT any time I present a part of myself to the public, whether that public consists of one person or a thousand, I edit. At least a little. (You do it, too, even if you're unaware of the fact.)

You'll find the fluffiest, most cuddly version of Melissa Keaster on Facebook and Twitter. Or in a scrapbook. You'll get a peek beneath my skin on my blog and in my fiction. But my journal? That's where you'll see the good, the bad, and the ugly of my soul. Which is why some of my journals have warnings in the front (i.e. "Do not read without my permission unless I am dead"). I do the least amount of editing there, which makes for interesting (and sometimes entertaining) material.

Journaling is where I get to be as honest as I know how to be, but that's only the foundational reason I do it. Here's an arbitrary list of other reasons off the top of my head:

1. To process life with integrity
2. To remember God's faithfulness
3. To help others remember God's faithfulness
4. To record prayers and answers
5. To record prophecies and their fulfillment
6. To record goals and progress
7. To collect favorite quotes
8. To capture my wrestling matches with God
9. To find out what I think about things; sometimes I don't know until I write
10. To contemplate Scripture
11. To get my words out (I have a lot of them.)
12. To have a safe place for my wildest, weirdest thoughts
13. To write the things people may not have time, interest, or patience to hear
14. To tattle on people to God (Yes, really...though you should know--any time you tattle to God, he always turns it around on you.)
15. To remember cute things my kids say
16. Blog fodder
17. Novel fodder
18. Because sometimes people can't handle my joy, sorrow, grief, or passion, but God and blank pages can (Tip: Keep a tissue or handkerchief handy; you don't want to blot the pages with tears.)
19. To leave something of myself for my kids and grandkids to enjoy
20. To show my descendants how God loves us from birth to old age and beyond

So yeah...I've got reasons. And maybe among my reasons, you'll find reasons of your own.


What about you? Do you journal? What are your reasons? If you don't, do ya wanna start? Need tips? Encouragement? Accountability? I'll be happy to help you along.

I love, love, love comments, so feel free to drop me a line and ask for my help. I'm supposed to teach a journaling class soon, and it would be great to get in some practice beforehand!

The Secret of the Cosmic Scales

I have been on quite the journey since Thanksgiving. My latest little crisis forced me to face some harsh realities--physically, emotionally and spiritually--and though I am a bit bruised with all the jolting around, I am in a better place for it. The Lord's leading isn't always gentle, but hallelujah!--He never lets go of the hand that reaches for Him.

As our burdens press us, weighing us down, He is present in equal measure, holding us up with His mercies (Psalm 94:18). In Morning by Morning, Charles Spurgeon writes about what I call "The Secret of the Cosmic Scales," based on 2 Corinthians 1:5--"Here is a blessed proportion. The Ruler of providence bears a pair of scales--in this side He puts His people's trials, and in that He puts their consolations. When the scale of trial is nearly empty, you will always find the scale of consolation in nearly the same condition. When the scale of trial is full, you will find the scale of consolation just as heavy. When the black clouds gather most, the light is more brightly revealed to us...." (from February 12).

Sometimes the light brings warmth and clarity. Sometimes it exposes the darkest corners of the heart. I have experienced both as you will see in my journal entries. (These entries have been edited for the sake of space, grammar, flow and a small measure of privacy.)

_________________________________________________________________________________

11/29/13

"I think it's time to look into a major research hospital like John Hopkins or Mayo," Mom said. Her thoughts were echoed by my prayerful grandmother later in the day.

Miserable and confused though I am in the wake of my latest reaction and resulting flare, I am not so sure. The words resonate in the deep places, but I am afraid. I fear the danger, the expense, the difficulty, the time away from my kids, the hardship on my family, but most of all I fear the possibility of being disappointed--again. I'm not sure I could take it. If I go, I must know beyond all question God wills it.

Brandon and I are against this, God. So if it is Your will, change our minds.

11/30/13

I talked to Mom on the phone this morning. She has been researching. She believes I have a type of "mast cell activation disease." If so, Mayo is the place to go.

After reading several medical articles about the disease, I am almost certain she is correct. While there is no way to be sure without proper testing, it is the only disease we know of which covers all of my symptoms, and indeed, I have almost all of them. It explains not only everything I am experiencing in this moment, but also what I have experienced throughout my life. I am both thrilled to have answers and saddened to discover there is no cure. Mast cell disease is usually managed by a mountain of medication (which I am unwilling to take) and avoidance of triggers (which I am already doing to the best of my ability).

So, what can they do for me at Mayo? I have already proven that I do not tolerate antihistamines or steroids. I see little point in the exercise. Why go if I cannot tolerate treatment? I can change my diet and continue my routine here.

From Jesus Calling: "Talk with Me about whatever is on your mind, seeking my perspective on the situation. Rather than trying to fix everything that comes to your attention, ask Me to show you what is truly important. Remember that you are en route to heaven, and let your problems fade in the Light of eternity."

"I will instruct you and teach you in the way you should go;

I will guide you with My eye." --Psalm 32:8

Lord, I give you my problems. Please show me what is important to You.

12/3/13

I suppose there is no harm in running a couple of preliminary tests locally. As clear as a whisper in my ear, God spoke the name, "Dr.__________," which is interesting because of all the doctors I have seen, he may be my least favorite. Sigh. I will call his office.

12/4/13

"Be humble and pretend to be unintelligent," I was advised prior to today's appointment with Dr. ________, but I had already ruined the appointment before I arrived at the office. I was unaware I was speaking with the nurse when I scheduled the appointment the day before. My words were pretty snarky and sarcastic, which alerted me to something rotten within myself. I said stupid things stupidly. From the moment the nurse attached my face to my name and voice, she was cold. As was Dr.___________. He was obviously warned of me. He probably remembered me, too, which couldn't help.

I took the advice I was given. I was soft spoken. I put my inner Hermione Granger aside, and pretended to be clueless. But he called me out when he grew tired of listening to my long list of symptoms for the second time. "So what would you like me to do? Why are you here?" he asked. Because I had told the nurse which tests I wanted run when I scheduled the appointment, he already knew the answer to the question and was waiting for me to ask. The entire exercise was awkward and unpleasant, and it's all my fault. He softened just a bit at the end of the appointment when I said, "I appreciate all your help," but irrevocable damage has been done by my lack of discretion. The fact that he thinks I'm a hypochondriac doesn't help matters.

However, I have learned something about myself from the experience: I have been deeply hurt, and I blame medical doctors for my pain. But that isn't fair. First of all, no doctor goes about trying to hurt his patients. They may not always know how to help, but they never intentionally do harm. Also, Dr. ____________ tried to run these tests 18 months ago. I apparently refused them though I have no recollection of the term "tryptase" prior to last week, and if I did, I certainly wouldn't have understood the significance then. Doctors are only human. They have all been blinded until now. The doctors did not cause my suffering; God did. God blinded them.

For years, I have blamed doctors for their poor and inadequate treatment when the truth is that God could have turned on a light bulb for any one of them had He wanted to. Therefore, the only logical conclusion is that He didn't want to. He has me on a journey, and the destination is not all about physical healing. It may not be about that at all. He has a purpose in mind, and His purposes are all good whether or not they include diagnosis, treatment and healing. I have to let go of my pain which comes from the anger, defensiveness, and blame I feel toward the medical community, which I now need. Doctors are not my enemy. 

Here I am, Lord. I blame You. I blame You, and I thank you for my pain; not because pain is good, but because You are good and you mean this pain for my good. My pain, my deep hurt, is a mercy because it sends me to You. I acknowledge that you have darkened minds and will shine a light when and where and upon whom You will.

12/7/13

As I was crying moments ago over the life and death of David Brainerd as told in Piper's The Hidden Smile of God, the thought came to me--"How carelessly Brainerd and Jonathan Edwards regarded health." In answer, God replied, "And you hold it altogether too precious." Out of the exchange flowed a liquid revelation. I could only float along--

I must be careful to view my health, whether good or poor, as a tool for God to wield as He desires for His glory. It is better to hold it in mean esteem than to hold it too dear. Souls are at stake. My soul, Brandon's soul, the souls of my children and whoever else God places in the wake of this illness. Eternal souls are far more precious than mortal lives, than my mortal life. I must be careful of idolatry.

12/9/13

I don't know the correct course. Every time I think I know the next several steps to take, I encounter something which holds me back. I am still "The Planner." I want to know what's next and prepare myself, but God is asking me to trust, to wait, to obey. I remind myself my burden is light in comparison to the weight of glory (2 Corinthians 4:17).

12/11/13

Struck with insomnia once again, I spent some dark, quiet moments in prayer tonight before rising out of bed to write. At least insomnia can be useful. I was praying for ____________ and ______________, telling the Lord how hopeless their situations seemed to me. He spoke the word "seemed" back to me with emphasis. Because of Jesus, no situation is truly hopeless. Their is hope in life and in death "because we do not look at the things which are seen but the things which are unseen because the things which are seen are temporary [not real] and the things which are unseen are eternal [true, real] (2 Corinthians 4:18)." So I prayed for them and others and myself that we would all have eternal eyes, that we would know "the hope of [our] calling, the glorious riches of [our] inheritance in the saints and the exceeding greatness of His power toward us who believe (Ephesians 1:18-19)."

12/13/13

My test results all came back negative. All this means is that I am unlikely to have systemic mastocytosis, and I will receive no further help from Dr. _________ unless it's a psychiatric referral. I don't know what to do. A big part of me just wants to drop it, and continue as I am. I feel no inclination to pursue diagnosis or avoid it. I feel totally at peace. I will put this aside until after Hannah's wedding. I must concentrate on being well enough to attend.

________________________________________________________________________________

I was able to attend the wedding with very few complications. Praise the Lord! On Sunday, I wrestled as I rested and recovered. It was not a struggle of fear. I was simply asking as Abraham did in Genesis 15, "Oh Lord God, how shall I know?" I was back and forth on whether to pursue things further, feeling like I should but questioning my motives and weighing the cost.

I found a couple of mast cell disease groups on Facebook, and read several posts. As I read the stories and questions of others, I began to understand the value of a diagnosis. We must understand things in our minds at some level before our hearts can believe them. I needed to know the practical points of having a diagnosis before being convicted of its worth.

1) Without a diagnosis, I can get very little accomplished in the medical community. Running tests and getting at-home care have proven to be a bit of a nightmare. With a diagnosis, the specialists I encounter are less likely to think of me as a nutter and actually work with me.

2) If I ever have an accident or need surgery, I need a diagnosis in my records so the doctors/surgeons will know to be careful with me and be prepared for life threatening situations during and after surgery.

3) If something happens to Brandon and I am unable to work, I need to be able to apply for disability. I must have a diagnosis to do that.

4) Many conditions are genetic. It is important I know what is wrong with me so I can better care for my children. They already share several of my symptoms though theirs are not as severe at this time.

And there are other reasons. Shallow and stupid though it is, I want a name to give people when they ask me what is wrong with me. I don't care they won't understand the name or what it means; I just want to be able to give an explanation in five words or less. Knowing what is wrong will give me better insight in caring for myself. I will likely continue with natural medicine exclusively because antihistamines and steroids have turned on me in the past and because I have found mast cell disease patients who are doing quite well only using natural protocol, but it is never a bad thing to know the treatment options. Also, I have a rabid curiosity that needs to be put down. And I can trust that whatever it is that is wrong with me, whether it's mast cell disease or something else, Mayo will dig until they find it.

It was Monday morning before I officially decided I would pursue diagnosis with Mayo Clinic in Rochester, MN. I also decided I will wait until May. I will have to be away for a minimum of two weeks, so we will need all hands on deck. My mom finishes school in early May. She may actually be my travel companion due to the length of the stay and her background in medical laboratory science. Six months also gives me time to arrange my affairs. If we fly, I will have to arrange a private flight. Driving will require lots of planning. I need to find a suitable place to stay. Hotel rooms do atrocious things to my health. The kids will need looking after. And six months gives God time to redirect us if He wishes.

I have been consistently asking God for clarity, and He gave it to me Monday night. My sweet friend, Caroline, who is much like me in health and beliefs about healing, is also in the middle of a health crisis. In rare form, she visited the ER the other night and was referred to none other than Mayo Clinic in Rochester. She spent the day there today (Tuesday). We often find ourselves on similar wavelengths concerning our health. I was astounded that the day I made my decision, she was referred to the very hospital we have chosen. How very kind of God to confirm my decision in such a clear, personal way!

So you see, on one side of my "cosmic scales" sat a health crisis and all the grief that accompanies it, a big decision, revelation and repentance of hidden sin, and a major family event. On the other was God's exquisite nearness, loving rebuke, clear direction and extravagant goodness. I am still amazed that I am happiest when life gets hard, but that is the reality of life lived with Jesus Christ.

You may be struggling as I am to "get into the Christmas spirit" this year. I haven't been in the mood for festivities. I haven't had much patience for Christmas pop tunes. Give me Christmas worship! Worship is what the heavy-laden spirit needs. I invite you to experience with me the greatest gift of Christmas--Emmanuel, God with us. No matter the brand or weight of your suffering, God sees. He knows. He cares. Little or big. Sickness or grief. Draw near to Him this Christmas season. Rest your head upon His breast. Allow Him to fill your loneliness, provide balm to your wounds and bring joy to your sorrow. Blessed are you if you mourn. You will be comforted. Blessed are you if you hunger. You will be satisfied. (Matthew 5)

"Troubled believer, do not fret over your heavy troubles, for they are the heralds of weighty mercies."
--Charles Spurgeon, Morning by Morning, February 12.