I Am The Hippopotamus

Have you read But Not the Hippopotamus by Sandra Boynton?  I had not until last night, and my eyes unexpectedly filled with tears as I read it to the kids. Micah is a sensitive guy. He is always disturbed when I cry while reading, so I tried to hide my red eyes and swallow the lump in my throat.


Basically, all the animals are busy--having fun, doing life--"but not the hippopotamus." He is always observing, never participating. This hippo is living my life! Or I'm living his. Whichever.

Currently, being the observer is not my choice. Well, maybe it is my choice. I suppose I could choose to continually risk my life, feel horribly ill, impede my healing and burden my family, but I am fairly certain that would be a poor choice. Regardless, my separateness is necessary for my safety and well-being.

Having to stand on the outside looking in has been quite the refining fire for me. For starters, I've had to overcome jealousy. Yes--I get jealous.

I have struggled with jealousy since childhood. Of all the feelings I've ever felt, jealousy is the absolute worst. It eats the soul alive. I know it's wrong. I am aware of its ugliness. I hate it. I hate myself for feeling it. Jealousy is so bad we treat it with the same taboo we reserve for "the big ones" like adultery, thieving and murder. If we talk about it at all, we are usually referencing someone else's jealousy and never our own. It's embarrassing!

While my shame is yet incomplete, I will admit to being jealous over the stupidest things. I've been jealous of people who can eat pizza, of people who don't have to cook every night, of people who have all kinds of conveniences they take for granted, of people who can see movies at the theater, of people who can go to church, of people who can wear makeup, of people who have energy to clean the entire house in a day, of people who can take their kids to the zoo, of people who can go on vacation, of people who can pop a pill to get pain relief, of people who seem to have as many babies as they want while I dream of a house full and will not be able to have another.

Thankfully, jealousy has not beaten me. Some time ago, I discovered the cure! His name is Jesus.

Instead of merely willing myself to wish the object of my jealousy well and scolding myself upon every failure to do so, I look at Jesus and rest in His presence. I gaze upon His beauty, dwell upon His goodness to me, worship His person, speak aloud His Word, and am thereby made entirely content. I cannot help but wish the whole world well!

You with the Facebook photo of your steaming hot Johnny's pizza? Enjoy that cheesy goodness! God bless you!

You who just posted that you picked up curbside because you were too tired to cook? I am so thankful you had that option.

You who took that selfie, dressed to the nines for your hot date? You look gorgeous! Have fun!

You with the eight kids who just announced your next pregnancy? Praise God! Babies are glorious!

Other challenges of separateness include--
  • learning to be alone without feeling lonely, learning that because I walk with Christ, I am never alone
  • working through the frustration of not feeling useful
  • feeling sad and guilty for not being able to "show up" for the important people in my life

I missed my sister's birthday party last Saturday, which disappointed us both. Jenny called me yesterday, and asked me to be a bridesmaid in her wedding. She and her husband never had a wedding before, and they want to have one now. I think it's a glorious idea! I want to be there more than I want an entire Johnny's Sweep the Kitchen pizza to myself! I am asking God to make a way if He wills it. As of now, I cannot see one. And then the holidays are rapidly approaching. We will celebrate, but it will not be the same. Family gatherings and nostalgia are hard things for me to give up.

One might think that missing everything would get easier, that I would become accustomed to it and accept it as my norm. The hard truth is that though I do accept it and I can be happy in spite of it, it grows more painful with each missed event like a wound that opens again and again, never healing.

Living this life, it's easy to focus upon all the things I cannot do. There is an overwhelming number of them! But this negative focus impedes my walk with Christ, fills me with discontent and shrinks my ministry further. Discouragement is a cloud which affects everyone.

Of all the things I can't do, I must remember the most vital of them all--I cannot have my children growing up in a dreary, bleak environment. As wife, mother and homemaker, I set the tone of my home. I have a responsibility to myself and my family to be a person who takes joy in what I can do, surrendering all the "can'ts" to the authority and goodness of Christ.

I can read my Bible and memorize scripture. I can pray--for myself, my family, for friends, for people I have never met. I can be happy in the Lord. I can cook, wash dishes, clean and fold laundry. I can smile at my babies, kissing them as often as I like. I can listen to and answer the unending questions of a four year old and anticipate his desires--happy faces in his food, for instance.




I can sing hymns and songs for an audience of three (Micah, Sara and Jesus). On days when I am unable to put one foot in front of the other, I can read books until I lose my voice. On days when I do not struggle quite as much, I can scrub a bathtub or sweep the floor. I can read. I can write. I can hide love haikus in my husband's lunch, and greet him with a smile when he comes in from work. I can talk to my friends on the phone. I can help and encourage others who share similar health problems. Because I cannot expend any energy outside of the home, I can expend all of my energy inside it! What a blessing!

There is much for which to be thankful. I was starving to death in June, and look at me now! I'm scrubbing a toilet here and there. On Saturday, I vacuumed for the first time since March. I survived it, too. I need less help from others, which is also a significant improvement.






I am the hippopotamus. I have yet to join the world......but one day I will. Meanwhile, if I keep "looking unto Jesus" I can reflect His light into the hearts of my people. I can make this single-wide trailer the warmest, happiest place on the planet for them. 

My life is different but valuable, slow but effective, separate but full. And truly--I am very happy.


A FEW CLOSING TIDBITS:

Recommended reading: The Hidden Art of Homemaking: Creative Ideas for Enriching Everyday Life
by Edith Schaeffer

Admittedly, the title makes it sound like the target audience is Mennonites and old biddies, but this book is for everyone from the retired adventurer to the young mother to the career-driven bachelor. I have Brandon reading it, and he's not even human! The book is about discovering and cultivating one's creative talents in order to honor Christ, enrich one's own life and bless others.

A Fun Fact:

I had planned a version of this post yesterday afternoon before reading But Not The Hippopotamus, but as I read it, I knew I would include it in the post. I did not know it would make the title until I finished the rough draft.

Prayer requests:

  • My allergies have my body on edge right now. Serious reactions are popping up here and there. This creates more stress for Brandon and more difficulty for me.
  •  I get a weekly treatment on Tuesdays. As a result, I am sick on Wednesdays. If I come to mind on any given Wednesday, give me a shout out in your prayer time. 

  • The kids are struggling with their allergies as well, Sara more so than Micah. It's difficult keeping up with everyone's individual sensitivities and needs!

A Fun Update:

I continue to work on my novel, and am having a wonderful time! Work is kind of slow, which can be frustrating, but I recently received the following word from the Lord:

"I am your life. Marriage and motherhood is your career. Healing is of utmost importance. Writing is your hobby."

I think that is a pretty clear outline of my priorities!

Thanks for reading! God bless!


The Three Little Sinners: A Tale

Once upon a time, three little sinners lived in a small house in the country. The three sinners were often able to mask their bad behavior with good manners, keen wit and the gift of being easily satisfied with life. Sometimes, they were so good at it that they almost forgot they were sinners. However, particular sets of circumstances had a way of faithfully drawing out the bad behavior and parading it about with all the delicacy of an wild elephant. Such was the case upon the day our story begins.

On this day, all three sinners awoke irritable, ill and out of sorts. The smallest little sinner was provoked by a runny nose, headache, stifling congestion and disturbed sleep. She was the least practiced at ignoring her discomfort and hiding her sin so it was no wonder at all that she cried and cried all the day long, refusing to be consoled. She was perfectly determined to be unhappy, and--as I'm sure you well know--anyone who is perfectly determined to be unhappy will be perfectly successful.

The second little sinner woke up with an astonishing case of "The Naughties." Like a moth to a flame, he was drawn to every scrap of naughtiness to be found lying about the small house. And apparently, there were many. He began the morning by lying to his mother (who also happens to be our third, largest and most extravagant sinner) whilst looking her squarely in the eye. His indiscretion was discovered easily enough. When his mother corrected him, he took hold of another shred of naughtiness--

"Mamma?" the little sinner said, "I didn't even cry." Because the day was yet young, her patience still mostly untried and her last conversation with the Lord fairly recent, his Mamma calmly replied, "Son, I am not trying to make you cry; I am trying to teach you to obey God."

Awhile later, the second sinner discovered another bit of naughtiness hidden in a pile of wooden blocks on the floor. The smallest sinner was playing with the blocks, enjoying a brief window of contentment. The second sinner must have missed her unusually powerful cry. Abandoning all manner of self control, he grabbed a block and threw it with enthusiasm toward the head of the smallest little sinner who released a wail so profound the walls creaked and the tin roof clattered in response.

At this, the third sinner (who is said to be an adult) lost. her. mind. She did not yell (upon this instance), but delivered deadly looks to the second sinner as she attempted to console the smallest sinner without success. After the worst of the screeching subsided, the largest sinner grabbed the second sinner by the wrist, fixed him in her fiery gaze and proceeded to shame him. The second sinner was corrected once again, but there was no one to correct the largest sinner except the Holy Spirit, who delivers the most memorable corrections of anyone. The largest sinner was reminded that shame is the devil's game and has never led anyone to repentance. Only love can do that. (It's always rewarding to be compared with the devil.)

And so the largest sinner was driven to tears and apology. The second sinner received her apology with grace, and draped his arms about her shoulders in a forgiving embrace.

It would seem that all should be right with the world after such a moment, but that was not the case. The smallest sinner bawled and brayed until the mother realized an early nap was in order. The second sinner continued his naughty ways, making unnecessary noise while the smallest sinner slept, disobeying direct orders and sassing his Mamma (a serious offense in that part of the world). The smallest sinner was howling again within five minutes of being up from her nap. Physical discomfort, fatigue and frustration nipped and gnawed at the largest sinner who eventually released a cry of her own--"Aaaaaahhhhhhhhhhhhhhh!"

Of course, this did nothing to help matters in any way. The smallest sinner only cried louder, the second sinner was thoroughly amused, and the largest sinner who was already spent had expended unnecessary energy. 

Bedtime was met with relief by the largest sinner. She hurt all over and was dragging her limbs about as if they were burdened by heavy weights. She was sullen and withdrawn, disappointed with the day and her performance. She felt utterly defeated and was certain every word spoken, decision made and action carried out was the wrong one. She would ruin her children entirely!

As the largest sinner laid her head upon her pillow, the Holy Spirit reminded her, "Little sinner, I love you. I see into your very core. I know the depths of your wickedness, but you cannot guess the heights of my love. My blood was spilled for this day and the one tomorrow. You can neither parent so well that you will ensure the salvation of your children nor so poorly that you alone would be responsible for their damnation. Let go of your guilt. Your performance won't save you anyway. Only my love can do that."

And so the largest little sinner believed the Holy Spirit. She quieted her mind and eventually fell into an exhausted slumber, and there she stayed until the smallest sinner woke her at 4:15am howling like a banshee once again.

The largest sinner winced and quailed as she sat up, already guessing at the difficulty of the day. She was angry when her husband left early for the woods. She grew angrier when it became obvious she would not get anymore sleep. She felt overwhelmed when the second sinner woke at 6:45am demanding breakfast and asking many questions, which required her to speak before her preferred hour of 9:00am. Then, she remembered the Source of her help, spoke the word "grace,"and set about her duties and delight.


To be continued, I'm sure.....

Necessary things, updates....

Composing a blog post wasn't my first choice for today's morning activities, but my conscience tells me that an update is overdue. And it's right. So many of you pray for me with diligence. Like me, you like to pray current, specific prayers for those God places upon your hearts. Furthermore, updates are reports of God's accomplishments and foreshadows of accomplishments to come. Updates are fodder for our souls. They serve as proof that God cares about our tiny troubles, listens to our humble words and stoops Himself to our lowly planes to bind up our wounds and heal our diseases.

Good and necessary things, updates--even when something else competes for our time, attention and passions. Besides the adorable red-heads dancing about my living room, that is.

Do not think for a moment that I am not grateful and still in need of prayer. Some days, I am certain that the prayers of others are the difference between grit and cowardice, joy and despair, even life and death. It's just that I--

Tell you what: I will let you know what I am up to at the end of the post. To business!

As I look back on the last few years, I clearly see juxtaposed intervals of time owning unique sets of weather conditions, slants of light and challenges thereof. Seasons.

Sometime during our stay with my parents, I entered into a new season. I was eating well and having fewer reactions, but I began having trouble napping. My insomnia worsened. I would wake feeling as if I had not slept at all. Fatigue was suddenly my greatest foe. I became even more sensitive to cold, and wore a sweater about the house much of the time. Brown and bumpy patches formed on my skin. I put on several pounds with incredible speed. Not long after we returned home, I noticed I became hoarse after reading to my children. I felt a constriction in my throat upon swallowing. The shape of my neck was different. These and other symptoms alarmed me to the fact that something new was amiss.

After researching and consulting with my doctor, I realized that my hypothyroidism had worsened. She told me the adrenal and thyroid glands share a symbiotic relationship. When one suffers, the other does as well. I have this horrible suspicion that the decision to use my Epi Pen the day of the ant bite is largely to blame. Epinephrine can do nasty things to the adrenal glands. My adrenals were already in a sad state, and did not need the hit they took that day.

In addition to adrenal exhaustion, I am suffering from an iodine deficiency. I no longer use iodized salt, and I did not replace the iodine as I should. So now I have a goiter. Lovely.

Hypothyroidism tends to be degenerative; therefore, I couldn't ignore the problem. I knew I was unlikely to tolerate the leading thyroid replacements on the market. Thankfully, my doctor is extremely resourceful. She found tablets and homeopathics to support both my adrenals and my thyroid, and I tolerate them! Praise the Lord! I am also adding minerals to my drinking water and taking a high dose of iodine daily. After taking my "meds" for a couple of weeks, I no longer feel like I'm getting worse every day.

Endocrine system malfunctions are not my only battle, for we have come to that time of year--the time during which my entire life becomes one big allergic reaction. I have reacted to cinnamon, goat milk and butter just in the last four days, and had an anaphylactic reaction to a balloon that found its way into my house on Saturday. I stupidly picked it up to throw it outside, and promptly broke out in hives on my palm, wrist and neck. Breathing troubles followed. You know--the norm.

I'm not the only one having problems. Sara has an allergic rash that flares any time she is exposed to an allergen. The skin under Micah's eyes has turned dark and puffy. Dad is having trouble with a few foods as well. So yeah--that time of year.

But you know what? It's just a season. This one, too, shall pass.

In the meantime, I covet your prayers. With reactions, comes pain. Pain makes fatigue more difficult. Fatigue makes food restrictions more frustrating. Food restrictions make me irritable, and I don't need to be irritable because I have two sweet babies who are in need of extra empathy as they face their own discomfort.

Yet, in all these things, I am not only more than a conqueror. I am also having the time of my life! On August 9 as I read Jesus Calling, the Lord gave me a mental image. From there, the image exploded into an idea, which gave way to a plot and characters. And just like that, I am writing a book. (!!!!!)

Not only am I writing a book, I am writing within a genre I have always enjoyed--fantasy. I never intended to write a fantasy because it always seemed too complicated and daunting. But maybe it's not a fantasy because it doesn't have elves, dwarves, dragons or wizards. Or maybe it is because it does include magic, prophecies and a make-believe land. I have even drawn a map! The story is going to be allegorical for sure. And it's a romance. And it's an adventure.

I am basically writing my favorite kind of book. As a matter of fact, I feel antsy to get it done so I can read it! The inspiration was so beautiful and cool, but what is even cooler is that God is giving me clear directives to follow as I work. Writing this book is actually drawing me closer to the Lord. Now that's cool.

Thank you for continuing in your prayers for me and my family! Please keep it up! And I would be so honored if you would pray for me as I write this story. I know God has plans for it, and will use it to build and strengthen His church. In the end, it will be His masterpiece. I'm just the lucky duck that gets to be the vessel.

Okay, okay.....let me get on with my day so I can get on with my fun!

The Coward vs. The Fear

We returned to our trailer on Jubilee Farm two weeks ago today. After 27 days of being away from home, I drove northward from the city of West Monroe in a state of ecstasy. There were many comforts I enjoyed while staying with my parents--a large kitchen, a jacuzzi bathtub, live-in help, and delightful company--but truly, there is no place like my place.

I nearly skipped through the doorway of my little house, laughing in delight. Then I cried. I attempted a needed afternoon nap, but I couldn't control the tears. Sleep eluded me. After the unexpected tsunami of happiness receded, I found an old enemy lurking on the shore. As I relished my soft bed and searched for drowsiness, The Fear reached into my chest and took hold of my heart. The very part of me which had been pounding with hot joy only moments before found itself suddenly frozen and bound in place by black, winding tentacles.

The presence of The Fear made no sense at all. God had crowned the day with goodness. I was resting my tired, aching body in a room bathed in brilliant afternoon sun. I was breathing in familiar, safe scents I had missed for well nigh a month. And yet, there he was haunting me. Alone, he whispered. You are home, but now you are alone.

It was an absurd lie. Brandon was sitting in the living room with Sara even as he hissed.

He persisted. Your mother will begin teaching soon. Hunting season is on the horizon. Your well of helpers is about to dry up, and you will have to navigate your life alone feeling as you do.

Well, sleep was out of the question, thank you very much. My first tactic against The Fear was the least effective. Distraction. I turned on the television. The Fear continued to whisper, but he had to compete with my favorite digitally recorded programs.

Inevitably, the time to prepare dinner arrived. I sighed, turning off the TV. The Fear still had my heart in its icy hold. Alone, alone..... It would have been nice if he had left me alone. I was going to have to fight.

I began with my favorite weapon. "The Lord is my light and my salvation. Whom shall I fear? The Lord is the strength of my life. Of whom shall I be afraid?" I recited Psalm 27:1 silently.

You know you aren't ready to parent your children and manage your home when you can't even manage yourself.

"Fear not for I am with you. Be not dismayed, for I am your God. I will strengthen you. Yes, I will help you, I will uphold you with my righteous right hand (Isaiah 41:10)," I countered, again in my mind. "God will grant me either strength or help. So there." I almost stuck out my tongue.

The Fear was quiet for awhile, but he would not release me, and I could not wriggle out of his grasp. I prepared and ate dinner his prisoner, alternately praying and reminding myself of things that are true and real. By the time I began working on the dishes, I was growing tired of the struggle. I doubled my efforts by preaching to myself aloud.

"Why are you cast down, O my soul? And why are you disquieted within me? Hope in God, for I shall yet praise Him for the help of His presence (Psalm 42:5). Grace, grace. Sufficient grace. Your grace is sufficient for me (2 Corinthians 12:9)."

Brandon raised his eyebrows, but otherwise did not respond. The man is difficult to weird out these days. He has seen and heard too much. I remembered the promise of James 5:16 ("Confess your trespasses to one another, and pray for one another, that you may be healed."), and offered him context.

As I told him of The Fear and how he had presented himself after a high moment and proceeded to attack immediately without a scrap of reverence for my joy, I realized something: this always happens. Any time I am allowed even a moment of celebration--a good day, an answered prayer, a marked improvement, a memory made, a personal victory....especially if I share that celebration with others--rain is sure to flood my parade. For every happiness, there is an equivalent assault. Such an observation is sufficient to make anyone afraid. Sometimes, the rain comes in the form of a setback. Other times, it presents itself as an emergency. That day, The Fear came to call. I loathe that guy, but I can always choose whether or not I will play host to him. Because I'm sick, it's easy to make a pet of him--feed him, shelter him, excuse his mess--but I must turn him away every time he comes to my door. A moment of fear is only a weakness. Granting it entry is sin.

The Fear's tentacles slipped a bit when I shared my plight with Brandon. I continued to preach from the pulpit of my kitchen sink. I could breathe again. I recounted truths about God's abiding presence. My soul remembered it was never alone. I declared that I would be bold and courageous because God is always with me. I almost felt brave. I listened to my Worship Mix playlist on shuffle and sang the lyrics like a battle cry. It wasn't pretty, but it was effective. The Fear eventually fled as quickly as he had appeared.

The Fear will come looking for me again because he knows me. He is aware of my weakness. I am The Coward. I am afraid of many things--setbacks, wasps, spiders, fire ants, needles, clowns, balloons, peanuts, perfume....I'm afraid of being sick because being sick is hard. I'm afraid of dying because I don't want to abandon my people. I'm afraid of getting well because I will have to become something new, and change may be the scariest thing of all. But I am a child of The True King, and victory is already mine. My destiny is secure. God knows what I need, and He delights to give to me. He is perfect love; perfect love casts out fear.

When I bathe in truth and bask in the presence of The King, I am brave. I am strong. Yes, fear is a weakness. But as with all weaknesses, it is also an opportunity to lean into Christ and draw from His endless stores of strength, courage and joy.









Ants in My Pants

Non-southerners, meet the fire ant:

If you live in a white state, you just. don't. know.
(Photo credit: http://www.fireant.tv/)
 
The ants featured in Pixar's A Bug's Life? NOT fire ants. Had they been, those grasshoppers would have been running for their lives....assuming they survived the initial encounter.


Non-southerners, these are the ants you call "pests."
 (Photo credit: Edge Pest Control)
Compared to a fire ant, these guys are pets. Here in north central Louisiana, we call them "piss aints." You could cuddle them. And if you didn't want to, they are very easy to kill. All of those cute little natural poisons on Pinterest would work on a piss aint. Not so with the fire ant. Go ahead, hose him with vinegar. The fire ant will swim through it, and keep on trucking. Soap? Nope. And if you aren't unlucky enough to be allergic to essential oils, chalk, and other home remedies, you will do little more than make the fire ant unhappy anyway.

This is an unhappy fire ant.....
right before he latches onto your flesh with his creepy mandibles and begins stinging you repeatedly.

For the largest portion of the population, a fire ant sting hurts and forms a pustule.
(Photo credit: MSU Cares)
Others, like my sister, experience localized swelling. For example, she was stung on the hand, and her entire hand swelled. And then there is the estimated 0.5% to 5% (of which my son is a former member and I am a current member) who experience anaphylaxsis. (Source: ACAAI)

On Friday, June 28, we woke to a fire ant invasion in our little trailer on Jubilee Farm.
Brandon killed several before he left for work, but they just kept coming. I attempted battle. I tried vinegar. Then I tried dish soap and vinegar together. Then I called Brandon (because he knows everything), and he told me to use my homemade shampoo/conditioner/body wash/shaving cream concoction. It worked, but only on contact. And there were just too many.

I should have given up, and fled the house. But I am a stubborn woman, and I did not want to be supplanted by measly little ants.

Stupid, stupid, stupid.....

I'm not sure where I picked it up, but when I sat down in the rocking chair to read to Sara, I felt a familiar pain on my right side right above my hip. I killed it before it stung me again. Good thing, too. Within two minutes, I had broken out in hives.

The poor photo resolution makes it difficult to see, but the area around the bite turned red and raised into welts. Every welt hurt like the dickens, so I lost track of where I had been bitten. No pustule was left behind.

I managed to call my dad for help before my thinking went fuzzy. I began to wheeze and cough before he arrived, so I took my Acute Rescue knowing that the preservative alcohol would be a small problem in comparison to the one I faced. As soon Dad stepped through the door, I had him perform BioSet on me twice, which relaxed my swollen airways for a few minutes. I am unsure of how much time passed before I began hacking again, feeling dizzy and confused. When I felt my face begin to swell like a balloon, I kind of freaked out. I made the (arguably hasty) decision to use my Epi Pen because my normal reaction regimen wasn't working. I was getting worse. For the third time in my life, I stabbed myself in the leg with a needle.

I say the decision to use Epi was arguably hasty because A) I am allergic to sulfites which preserve the epinephrine and B) I had little intention of actually going to the ER. The protocol for anaphylaxsis is not very flexible in my area. If I were to go to the ER, they would only offer a steroid shot, which would be life threatening for me. If I were to refuse the steroid, they would ask why I bothered to come at all. So it was decided by five people (three of which are medical professionals) that I should skip the garbage, the skeptical looks and the ginormous co-pay, remain under Brandon's vigilant eye, and let my natural doctor tend to me.
This is me post-reaction. You may be able to tell that the right side of my face is significantly swollen.

After my reaction, the war against the ants continued to wage. On Saturday morning, it was decided that I needed to be removed from the house. A dear friend, Eddie Davis, helped Brandon move our necessities to my parents' home in West Monroe and spray for the ants. We attempted to move back home the night of July 4, but our stay was short lived. We were there maybe 12 hours before Sara was stung while sitting in my lap. Upon further inspection, I found the ants spread around the house. Their numbers were greatly reduced, but as it only takes one, I could not safely stay. Brandon's grandmother helped me and the kids pack up a second time. We have been at my parents' house since.

The fire ant problem at Jubilee Farm is severe. We theorize that they have tunnels underneath the ground rather than mounds, which is why there are so many crawling around everywhere out there. After much debate, we have decided to have a professional come spray. The decision was difficult because we have no way of knowing how long it will be before I can safely return home. The poison is potentially as big of a problem as the ants. We are unsure if we are looking at days, weeks or months before I can be in my place again. We hope to spray early this week.

We have a method of determining when it is safe for me to go back home. I refer to it as "setting out the fleece." Basically, we will set out open baby food jars containing pure water in each room every few days. The water will "catch" whatever impurities are in the air. Brandon will bring  the jars to me, and I will muscle test each one for safety. When each water jar is "safe," I can return home.

This newest trial hasn't been easy. My home had become my safe haven. I love it out there. I hate not knowing when I can get back. My kids are homesick. Brandon has to drive that much further to work, and tend to our home before coming home to us. We see less of him. And while they aren't as bad, there are fire ants here, too. They even found their way into the house on Sunday. I think they must smell me or something.

However.......

There is so much for which to be thankful.

1) I have a place of refuge. My parents have been trying to sell their house for almost a year now, and they haven't had a single bite. If they were living on the farm already, I would have had no safe place to go. It's a super nice, spacious home to boot.

2) I have live-in help, which is very nice.

3) I am rooming with my favorite people and best friends. No one gets me like my mom. I have so enjoyed spending time with her. My dad is funny, caring and easy going. If you have to take refuge somewhere, these are the people to take refuge with.

4) The reaction to the ant sting did not set me back in my food tolerance at all. Praise the Lord!

5) God is teaching me important spiritual lessons in this as well. His methods are not always gentle, but His purposes are always good.

I do not like being uprooted by ants, but I can't stay where they are so active and prevalent. These guys are serious....
 (Photo credit: 6LEGS2MANY)
What other insect knows how to make a flotation device out of  its own body to ensure survival during flooding? These crazy things are a plague upon the earth.



How you can pray for us:

1) Patience and contentment for all of us. We are itching to return home, but we may have to wait awhile yet. There is no sense in being upset about it.

2) A swift return. Mom and dad need their space. They need to sell their house. And we need to be home. My prayer is that the poison will dissipate quickly. We do not plan to spray indoors, so rain will help.

3) Brandon's strength and sanity. The man lives a hard life. Pray for him.

4) My safety. I do not need to get stung by an ant or a wasp or a bee or anything like that anytime soon. My hope is that I will be protected supernaturally until my body can better handle insect venom.

5) My continued improvement. My eating is still going very well. I have been able to add magnesium powder to my diet which has allowed me to discontinue my enemas. I am glad to have that hour back every day, and after having a rough experience a couple of weeks ago where I was unable to expel the enema water for several days, I am thankful to not have to risk repeating the experience.

Once again, thank you for your concern, well-wishes and prayers for us, especially those of you who have not given up on us after all this time. We feel incredibly blessed to know you and be loved by you. God bless you all!

Happy Birthday To Me--Part 2

Although I cannot be certain what caused my abrupt decline during the first week of June, I have my suspicions. I blame it mostly on my being an insufferable rule follower. While this quality made me a model student in school, it has proven to be a problem in other areas of my life. Model students don't make many friends, but they do draw negativity in the forms of disdain and jealousy with impeccable magnetism. Excellence to the letter can be crippling for the Christian, making one highly susceptible to legalism. Fortunately for my soul, the Lord showed me a long time ago that being a goody-two-shoes doesn't earn me any marks in His Book. Where my health is concerned, rule following hasn't done me many favors either.

I have followed every doctor's protocol with precision. Each time, I have suffered for doing so. I can trace this pattern back to the spring of 2006 when I first began seeking relief from my allergies. I never missed my allergy shots. I hated needles, but I was there each week believing, hoping I would get better. I got worse. A lot worse. When I would develop the inevitable sinus infection during stressful times in college, I took the medications and steroid shots prescribed by my primary physician. Which also made me worse. I did everything my OBGYN suggested without question. Bad idea. After my health collapse in 2012, I followed the advice of the immunologist, gastroenterologist, and rheumatologist, undergoing their tests, taking their medications and paying their outrageous bills. To my detriment, of course.  When Dr. Cave sent me home with an overwhelming amount of drugs, supplements and homeopathics in November, I made a chart, methodically taking the right thing at the right time. One by one, I grew intolerant to them all until I had a severe reaction to the methylation supplements in early March. And then there is the incident involving the Cipro. My BioSet practitioner was helpful overall, but I responded poorly to several of her suggestions as well. Dr. Yakaboski has been the exception. She alone has done no harm. While her treatments cannot heal me, they make my life liveable and grant me much relief.

In addition to seeing doctors, I have remade myself time and again in a desperate search for safe nutrition. After attempting several difficult diets and being met with failure upon failure, I finally stumbled upon the GAPS diet, which I began last September. I followed the diet and lifestyle protocol as rigidly as my resources would allow. GAPS was instrumental in improving my health knowledge and practices, but because I am an extreme case, several of the diet's major tenets not only failed to help me but have caused more problems. I do not tolerate bone broths, and I have recently learned the probiotics and ferments which are so wonderful for everyone else have actually increased my hyper-immunity. In the past few months, I have altered my diet several more times, trying out juicing, raw greens, a low-sulfur diet, a vegetarian diet and others. Nothing has helped. Upon another doctor's recommendation, I added ground flax and chia seeds to my diet to help build a mucous layer in my gut. Flax and chia are great for most people. Though I knew deep down they would not be good for me, I followed the instructions with perfect obedience anyway because I simply cannot help myself. It took about two weeks for my body to rebel. And I am here to tell you, I am full of sass, even at the cellular level.

God allowed me to enjoy my birthday party on June 1, a kindness for which I am very grateful. On the night of June 2, I had an allergic reaction to Brandon's toothpaste....from kissing him.....after he had swished and gargled water to protect me from the smell. On the morning of June 3 (my birthday), I forgot to check my tolerance to my daily dose of ground flax seeds, and had a severe reaction to them. I was teeter-tottering by Tuesday morning when I reacted to the ghee I had come to enjoy in my rice cereal. After that, I couldn't eat anything at all without extreme nausea, gastrointestinal pain, systemic inflammation and swelling in my throat. I was struck with a strong sense of déjà vu when it became impossible to sip water without burning and nausea. I sipped anyway, but without food it just wasn't enough. We began working on getting home health out to the house on Wednesday in order to avoid the hospital. By Thursday afternoon, it was obvious that home health services were not going to work out, and I was too dehydrated to go any longer without fluids. Without any remaining options, we headed to the ER.

Hospital emergency rooms are full of dangers for people like me, which is why people like me tend to avoid them. The combination of people, chemicals and medical professionals who just don't understand make for a highly unstable and unsafe environment. The evening was difficult, but God manifested Himself in several different ways. He blessed my double mask. I reacted to several environmental triggers, but none of the reactions were severe. One of mom's former laboratory students popped in, and spoke an encouraging word from the Lord. A very nice, conscientious male nurse took charge, and started my IV. Without him, I'm not sure I would have been given any care at all. Overall, I was neglected by the on-duty nurse practitioner (who I apparently offended when I declined x-rays), and left the hospital still dehydrated because I was cut off after only half a bag of fluids. (Dude--that was an expensive--not to mention risky--half bag of saline.) Thanks to a passionate, hard-working doctor and an extraordinary, dear friend who also happens to be a nurse practitioner, I was set up with another IV Friday night (June 7)--this time at home. 



Upon returning from the ER Thursday night (not desiring to repeat the experience any time soon), I began trying to take some food. I remembered reading in Gut and Psychology Syndrome by Dr. Natasha Campbell-McBride that raw eggs are well-rounded, easily absorbed nutrition which put little to no stress on the digestive system. I was feeling too nauseated to attempt cold, raw eggs, so I scrambled, salted and warmed them in a pan before drinking them. They were a bit slimy going down, but they settled perfectly.

If you are unfamiliar with food allergies, you may not know what a miracle it is that I could eat eggs when I could eat nothing else. My tolerance to them is actually quite shocking as eggs are extremely allergenic. I have come to think of eggs as my "manna"--a provision no less miraculous than wafers falling from the heavens.

The ways of God are ever beyond me. 

The Saturday following my birthday (June 8), another small group gathered in my parents' home on my behalf. We left the guest list in the Lord's hands this time, and He put together a small, fascinatingly eclectic group to pray together. I sat in a chair, double masked and hooked up to an IV, as people asked the Lord to heal me and grant me clear direction on my healing journey. The men blessed me by praying with authority and power. The women plead my case before the Lord. An elder and dear friend from my church anointed me with oil. The meeting was both remarkable and not. Clouds did not part, I was not made well with a sudden touch, nor did we hear a distinct, booming voice telling us that everything was going to be okay, but God was present. He honored the gathering He had ordained, and He has answered the prayers of His people. 

Following the prayer meeting, I had some decisions to make about new doctors and treatments. I decided against them for two reasons--

1) A lack of clarity. I just wasn't sure. At the meeting, we all asked the Lord for clear direction. I felt confused, not certain at all, so I chose not to move forward. That being said, if I receive clear direction at any time regarding any doctor or treatment, I will do exactly as God suggests.

2) The story of the woman with the bleeding issue (Mark 5).  God kept bringing her story to my attention because it contained a message for me--"No more doctors." Like the woman in the story, I have suffered much in the hands of physicians, and funds are running low. In the end, the woman wasn't healed until she ran to Jesus, all out of alternate options. God wants to work a miracle here, and I aim to let Him.


And God has worked a miracle already. Within three weeks, I went from being unable to drink water, to eating raw eggs and boiled squash, to pureed vegetables and soups, to well-cooked and carefully prepared meat and vegetables, to things I have been allergic to for months....and in some cases, years.



Boiled zucchini and ground beef purée. I ate baby food for a little over a week.

Broccoli and squash purée (it tasted a lot better than it looks) with lightly cooked scrambled eggs.

Eggplant lasagna made on 6/22 with fried eggplant, fresh tomatoes, bell pepper and fresh herbs from the garden with homemade juice from beets (also from the garden), carrots and apples. In my opinion, this is the best meal I've made in the last year. I'm not only saying that because I have been deprived.



After reading that jalapeños help to reduce inflammation of the GI tract, I decided to make poppers on 6/23. These are fresh Jubilee Farm peppers, sliced in half, seeded, stuffed with fresh goat cheese, wrapped in Applegate bacon (to which I had been allergic since January) and drizzled with raw, local honey. They were heavenly, and I felt great after eating them.

On Sunday night, I made and enjoyed fried green tomatoes. Yesterday, I ate fresh watermelon for the first time in years without Benadryl!!!

Something has changed. I have changed. I have been remade. And truly, it cannot be explained apart from Jesus Christ. 

I am not supposed to be able to eat bacon and chicken and peppers and goat cheese and watermelon.

I should be having allergic reactions every day, as I have for about as long as I can remember, but I'm not.

I eat the food grown from the earth of Jubilee Farm, and I feel good. I get a little burst of energy after each meal, which may not seem like a big deal to you, but I cannot recall a time in my entire life when I felt good after eating. I think what I am feeling is....healing. I still occasionally have pain after I eat, but the pain is nothing compared to what I was experiencing before. (TMI warning!) I have also been to the bathroom twice without the assistance of an enema in the last two weeks, an event that had not occurred since April.

Granted, I have a long way to go without any idea of how long full recovery will take. I have completely released my healing timeline to the Lord. He can and will (with or without my permission) do whatever He wants. And whatever it is He wants, He is doing it now.

Things feel different upon this restart. My journey for the past seven years has been two steps forward, three steps back. Today, I feel like an infant taking slow, faltering steps, but I believe that those steps will grow steadier. Rather than regressing, I will gain momentum. I will eventually run, leap, skip, play and all the things that someone as sick as I have been should never be able to do again.

I will.....because though I am not yet well, I am already healed. It's already been done. Remember, God isn't bound by human limitations. He works outside of time. From His perspective, His work is complete. The promise has been made, the fulfillment set in motion. My job is to believe my God, to think and act as though my healing is as good as accomplished. Of course I must continue to accept my current limitations. I will do all I can to avoid environmental triggers, take naps, guard against overexertion, eat good food, take detox baths, and give myself enemas as necessary, but now I possess the freedom to do these things with the end in mind, something I find to be equally terrifying and beautiful.

In the end, being good at following the rules failed me. Miserably. God has none too gently pried my fingers loose from my beloved little book of shalls and shall nots, completely bankrupt of power to save--another kind of healing entirely. Today, I watch that book smoke in a fire I lit. And I know: I will never be the same again.

To all who have prayed anywhere at any time---thank you. God has heard your prayers! He is answering them at this very moment.

"In fact, [I] expected to die. But as a result, [I] stopped relying on [myself] and learned to rely only on God, who raises the dead. And He did rescue [me] from mortal danger, and He will rescue [me] again. We have placed our confidence in Him, and He will continue to rescue [me]. And you are helping us by praying for us. Then many people will give thanks because God has graciously answered so many prayers for [my] safety." (2 Corinthians 1:9-11 NLT)

Let us praise Him for what He is already doing!


My birthday week may have been slightly disappointing, but the month of June has proven to be one of the most exceptional months of my life.

I may just take up the habit of having a birthday month after all.



It Had to be Blood

 I can't shake her from my mind--the woman with the bleeding issue. Over the past several days, I've read and reread the accounts given in Matthew 9, Mark 5 and Luke 9. I weep every time. This woman and I share a lot of common ground. We've both been sick a very long time. (My allergies have been out of control for almost a decade.) Doctors and treatments fail again and again, and sometimes bring more suffering. We're lonely, not actively a part of the world in which we live. And we're desperate for a healing a touch.

Oh, how my heart resonates with this woman's song. Though she bore sorrows I do not--my friends and family have rallied around me with encouragement and prayer, and I have one very good doctor--I've felt many of her feelings and have thought several of her thoughts.

Today, I sat with pen and paper, determined to get into her mind, and bled onto the page--


"It Had To Be Blood"


Twelve years.
Twelve long years.
Will it ever end?
The weakness,
the pain,
the loneliness that swallows like a pit?
One by one, dreams turn to ash,
disappointments mount,
hopes sicken and die.
I no longer search for doctors.
There have been so many.
So many.
And I confound them all.
After giving them everything I had,
the treatments failed
and made me worse.
My people disowned me long ago,
cast me off--
illegitimate and unwanted.
No one looks me in the eye
as if my shame is catching.
Blood.
Why did it have to be blood?
Why did it have to be me?
My bone and soul grow weary
of the never-ending flow.
Death would be a welcome friend,
but as with all my friends,
I'm utterly forgotten,
left alone to bleed.

There's a whisper on the street--
Jesus is coming!
The One who heals!
I peer outside.
The crowd is thick.
Jairus is with Him;
He's busy with important matters
with clean and lofty folk.
He won't stop for me....
unless I run to Him.
My feet move out my door.
My heart and head pound
to a rhythm I've never heard
and have always known:
If only I could touch Him--
I would be made well! 
If only I could touch Him--
I would be made well!
The noise in the street falls silent on my ears.
I only hear the music that carries me along:
If only I could touch Him--
I would be made well!
Today, my shame is my friend.
Bodies make way to avoid my touch.
Unclean.
My blood makes me dirty.
It can make them dirty, too.

I find myself at His back.
I long to see His face,
yet I know I cannot bear His eyes
beholding my disgrace.
If only I could touch Him--
I would be made well!
The home of Jairus now in sight,
what dignity remains is gone.
And reaching out with expectation,
my fingers brush my Savior's hem. 
I'm met with a jolt,
a surge I can't explain.
I'm well.
I stop and marvel.
I mean to disappear,
but cannot move.
He stops, too.
"Who touched Me?"
His voice rises above the clamor.
My breath catches.
Caught.
I who am unclean have touched a rabbi!
Trembling with fear,
I try to hide among the bodies,
but they don't let me in.
I turn to run, but I'm trapped
in His gaze
where I stand.
So I fall
at His feet.
My story pours from my mouth,
a hemorrhage of the soul.
In His sights, I know--
though I'm well, I'm not.
Dirty.
I'm still dirty.

There's nothing to left to say.
I feel impatience from the throng.
The Man must have a mission
of tremendous importance.
I stare at His feet, which do not turn.
"Daughter," He calls me.
In all my words did I tell Him
my father rejected me long ago?
That I belong to no one?
Surely, I hadn't exposed
so old and deep a wound!
Yet in His address, I know He knows,
and He claims me as His own.
"Daughter..."
Amongst stamping feet and furrowed brows,
there's no hurry in His voice.
I look into His eyes and see my need--
Him!
I need Him!
"Your faith has made you well.
Go in peace.
Your suffering is over."

Twelve years.
Twelve long years.
Twelve years of terrible suffering--
ended.
Weakness, pain, and loneliness--
gone.
Dreams fulfilled.
Disappointment dead.
Hope restored.
Healed, accepted, wanted.
Loved.
Alive!
Alive for the first time!
"Your daughter is dead,"
the servant said.
And I remember--
the daughter of Jairus is sick.
Dead.
Twelve years.
Twelve brief years.
It's no time at all.
A hush falls upon the crowd,
and we hear Him say,
"Do not be afraid. Only believe."
He turns to go and somehow I know
because He's with her,
she will be well.
Because He's with us,
all will be well.

I couldn't know then,
but the day was coming
upon which I'd better understand
the design in my disease.
My blood made me dirty,
unfit for the house of God.
He dried up my fountain,
bound up my wounds,
and made me clean--
ceremonially.
But real cleansing was coming
for all sin-stained robes
upon Calvary
where the world healed by His wounds.
Clean in the Fount
of His Blood.
It had to be blood.

(6/12/13)

I'm still in the midst of my "twelve years." I no longer believe in a cure for my disease, whatever it is. All out of options, I am going to Jesus for help. I am reaching for His hem. As Timothy Keller points out in the chapter entitled "The Waiting" in King's Cross, "When you go to Jesus for help, you get from him far more than you had in mind. But when you go to Jesus for help, you also end up giving to him far more than you expected to give."

 I don't know what more He is going to ask, but for now He is looking into my eyes saying, "Trust Me." I don't understand the delay, but I do trust His heart. Whatever He asks, the reward far outweighs the cost. And maybe one day soon, I, too, will better understand the design in my disease.


Happy Birthday To Me--Part 1

Women know how to get the most out of their birthdays. Only men have birthdays. We ladies get a birthday weekend, a birthday week, or (if you really know how to play your cards right) a birthday month. I have decided I don't want to celebrate for an entire month. I think I'll take my birthday week and move right along.

I'm honestly not sure how to describe my 29th celebration. It was bookended by two precious gatherings for my sake, but the days in between were hard. Very hard. However, I think I shall begin my recount with the actual celebration, which was highlighted by getting out of the house, good food and sweet people who love me.


 Sara called me "Mama" for the first time ever at my party on June 1! What a great gift!

 Micah and Samantha Davis both made me cards! They were perfect!
 The man in the corner gave me four dark chocolate bars and a $25 gift card to iTunes.
 One never errs with chocolate and music.
 We all ate up some baby love. Mr. Will Davis is a sweetheart!


Brandon grilled steaks for everyone while I cooked mine safely on Mom's stovetop. I also made my own me-friendly (at the time) birthday cake. Dark chocolate lovers, rejoice! I'm going to share the recipe. Everyone else can skip the next couple of paragraphs:

Dark Chocolate Zucchini Cake

Cake:
1/2 cup coconut oil
2 cups organic, sprouted rice flour
1/2 cup cocoa powder
1 1/2 teaspoons baking soda
1/2 teaspoon coarse sea salt
1 cup Grade B organic maple syrup
1 teaspoon vanilla extract
3 large eggs
2 cups grated zucchini, packed
1 8 oz. organic, dark chocolate bar, chopped

Line the bottom of a 10" springform pan with unbleached parchment paper, and grease the sides with coconut oil. Preheat oven to 350 degrees. Combine dry ingredients in a medium sized bowl. Scoop out one cup of mix and set aside. In a separate, larger bowl, cream the coconut oil and maple syrup. Add vanilla and eggs. Keeping the cup of flour mixture set aside, add the bowl of  dry ingredients to the wet, and beat until well combined. Place the 2 cups of zucchini in the bowl the dry ingredients were in, add the cup of flour and the dark chocolate pieces, and toss to coat. Then add the zucchini to the rest of the cake mixture, and stir until just combined. Spread the batter into the springform pan and bake 50-60 minutes.

Dark Chocolate Ganache

1 cup full fat organic coconut milk 
8 oz. unsweetened Baker's chocolate, chopped
maple syrup to taste

While the cake is cooling, chop the Baker's chocolate. Bring the coconut milk to almost boiling, and remove from heat. Place the chopped chocolate into the hot milk, and stir until smooth. Add maple syrup to taste. You will use less for a darker chocolate flavor, and more if you prefer a sweeter frosting. 

I poured my ganache over the cake immediately, and set the entire thing into the fridge to cool. If you don't have a ton of allergies, you may want to garnish the cake with chopped pecans or fresh fruit. Strawberries would have been divine on this cake! Maybe next year!

(This recipe was adapted from the blog Sweet Sugar Bean. I'm not good enough to come up with 100% original recipes quite yet.)

After the dinner, per my request, we took communion. I don't get to go to church anymore, and this is the one gaping hole I can't fill from home. I know that communion may be a strange way to end a birthday party, but it was my favorite part of the night. Remembering my Lord in that way at that time was an all important breath before taking the plunge that was the week to follow.

To be continued.....

What Nine Years Have Wrought (A Health Update)

Nine years ago, I was beautiful, vibrant, healthy, relatively allergy-free, and making peace with every foreseeable outcome of my upcoming marriage. I wore the ring of a man whose body was at war with him. Brandon was pale, thin and soon to undergo a bowel resection. I understood that marrying a man with Crohn's disease may bring about a future full of all night vigils by hospital beds and years of nursing at home. I determined to earn my degree before we had children to serve as a fallback in case he ever became too sick to work. It even occurred to me that I could be widowed in the prime of life, and would somehow have to raise and provide for a family alone. To these possible futures, I agreed.

Over a year into this debilitating illness, the shock has not worn off. I had planned to be Wonder Woman, yet I find myself less capable than Lois Lane. While I manage to cook a meal most nights and tend to my children's basic needs in the morning, I am largely dependent on the help of others. I spend a significant portion of the day in bed although I would much rather be with my kids and busy about my home. In my wildest daydreams, I did not imagine this life.

I did not imagine the dulling of my mind either. My mind used to work like this:
I had an amazing memory. Several things could be rolling around in my brain at once. Connections were contsantly being made. One by one, those 2,000 something tabs have closed down until I am doing well to remain on a single train of thought for any length of time. Sometimes, my brain goes into "sleep mode," an odd phenomenon. I can be lost in thought one moment and lost in oblivion the next. This problem has made everything from prayer to getting dressed challenging. Writing is miraculous. Brain farting is humbling.

When I consider how my situation continues to deteriorate, I am tempted to feel a little frightened. I am afraid to lose any more of my mind. My mind has always been a comforting retreat for me, full of stories, big thoughts and possibilities. I don't want to lose any more weight or hair or strength. I am afraid of becoming an invalid.

On my hardest days, I am tempted to fear the future. The prognosis for flouroquinolone toxicity is dismal. Patients who have an instant reaction to the drug are usually ill 6-7 years. Patients, like me, who slowly decline over a period of weeks and/or months are said to never recover.

I grieve the enormous difficulty that has befallen my family and myself. I daily wrestle to make peace with my reality as I did with the various futures I envisioned nine years ago. I present my health to the Lord, an offering to Him to bring Him glory. I fight the fear and lean hard into Jesus, trusting Him implicitly knowing full well He allowed this catastrophe--for good, always for good. And yet....

I CANNOT AND DO NOT ACCEPT MY PROGNOSIS.

I absolutely need a miracle, and I absolutely believe I am going to get one. One day on this side of eternity, I believe I will be well. On that day, I will have many people to thank--doctors, family members, friends who have labored in prayer, commiserated with us, and shown us generosity--but it will be God who does the healing because He is the only One who can. All of you precious people who invest yourselves in our family by reading, praying, encouraging and serving will get to witness a miracle. I am not supposed to get better, but I will. By stating this, I'm not trying to inspire others with positive thinking propaganda. Positive thinking has its place, but I honestly couldn't care less about giving people the warm fuzzies. The weight of this trial is far too heavy to be limited to doling out warm fuzzies. But if witnessing a true blue miracle strengthens your faith and causes you to more earnestly seek the Lord Jesus, well then--hallelujah!

In the meantime, I continue to seek treatment as the Lord directs. Neither my doctors nor my most devoted prayer warriors were comfortable with the experimental NAD IV treatments. Dr. Yakaboski (my local natural doctor) along with Dr. Kuplesky (Dr. Yakaboski's M.D. partner), Dr. Armine (MTHFR specialist), Dr. Mestayer (the psychiatrist who performs the NAD treatments) and a compounding pharmacist in South Louisiana are working to get it in an encapsulated form for me to take under Dr. Yakaboski's strict supervision. It could be ready as early as the beginning of next week. The idea is to start small and observe my response. My future with the treatment completely depends upon how I respond to the capsules. Dr. Yakaboski has also been busy conferring with two other doctors and the author of the blog Surviving Cipro in order to open up treatment options for me. One of the doctors is a specialist who will help me with my IgE, IgG and leaky gut issues. The other is a doctor who specializes in homeopathics. This doctor believes her sulfur homeopathic will help my body open up my transulfuration pathways (methylation). I have successfully used homeopathics in the past, and feel hopeful that this one will help me.

However, I have to approach homeopathics with a little caution now. I had an anaphylactic reaction to preservative alcohol last week. Preservative alcohol (usually derived from grains) is found in many things (including homeopathics) given to sensitive patients. Grain alcohol also preserves my Acute Rescue drops (my preferred rescue remedy for anaphylactic reactions) and the B12 (dibencozide) drops I need to treat my methylation issues. Dr. Yakaboski made a special house call on Saturday to clear my alcohol allergy. The clearing held, but I will continue to avoid preservative alcohols when possible so I can use the Acute Rescue drops when needed. Cleared allergies occasionally resurface after awhile. To be safe, I evaporate the alcohol out of the B12 every night before taking it. I plan to do the same with the sulfur homeopathic.

I have explored and muscle tested the safety of several possible "quick healing" treatments said to help floxy patients. I am not currently a candidate for any of them because of my extreme sensitivities. I don't really know what we are going to do or how long recovery will take. I don't know if it will be a treatment, a combination of treatments, time, an instantaneous touch from the Lord or all of the above that will cure me. So for now, we pray. We listen. We wait. And I protect my psyche.

I avoid negative information concerning floxy patients. It isn't helpful, and I don't think it applies. I avoid the news, and rely on my Facebook friends to let me know when something major happens. I avoid Facebook when it stresses me out although it makes up almost all of my social interaction outside of the immediate family members who help me. I distract myself, and work hard to "find my happy." I began a gratitude list in late March, which now has 122 items. I copy them in my journal, thanking God for each gift from His hand. The photos below represent a few.

 Micah is cooking a squash he helped plant, watched grow, and harvested. I did the knife work, but he seasoned and stirred until it was perfectly golden brown. We had so much fun!
 He was proud of himself. He even ate the squash--no coaxing required!
 One morning's haul...
 A dance party with baby girl. She likes to shake that booty!
 Clothing....it's overrated.
 Is there anything cuter than a naked baby in the garden?
 I'm thankful for those thighs, too. Scrumptious!
I joined Eric Whitacre's Virtual Choir 4.0. I'm still learning my part. I hope to record my video soon. The piece will be premiered for the Queen at Buckinham Palace in July. It will be my first chance to be part of a worldwide musical event. I am very excited!

Distraction is like cheap numbing medication. It shields me from some of the pain for short intervals, while gratitude provides little sunbursts throughout the day. Gratitude reminds me that God still loves me and life is still worth living. 

To further help me along, I have been reminded of Jenny's words--"God has been too good to me for me to play the victim anymore." God does all things well. My illness is not an exception. My illness is a mercy. It's a severe mercy (as Jonathan Edwards would say), but a mercy nonetheless, for it is bringing not only me but my entire family into deeper relationship and greater conformity with Christ. Too many days, I have dwelled on the length of time I spend in the bed when I would rather be doing things. Too often, I have focused on the bad, missing the good. To counteract my Polly Pessimist tendencies, I am training myself to respond to those who ask about my day with a list of my victories rather than my struggles. 

Allow me to practice: 

Yesterday, I enjoyed a quiet morning with Sara. We cuddled, watched Mickey Mouse and read nursery rhymes. I washed dishes, and listened to a Timothy Keller sermon. Thanks to my grandmother, I was able to rest in a quiet house all afternoon. When I woke, I cooked a simple dinner and had a phone conversation with a friend. I was able to eat three meals! I kissed my boy's freckled nose, and rocked my baby to sleep as I sang hymns. I ended my day with a long, relaxing bath and a special word from the Lord. It was a good day.

While reciting my victories is all well and good, it will only carry me so far. We frail humans are tempted to measure all things by the measure of ourselves. I cannot afford this mindset. For the average person, measuring life in such a way cheapens it, reducing it to a feeble shadow of what life should be. For me, making myself the measure of anything is suicidal. My victories will not sustain my hope, even on the good days. And the days when victories are few or obsolete? I shudder at the thought.

Thus, I must look outside of myself--to my God, to His victories. 

"Great is the Lord, and greatly to be praised;
And His greatness is unsearchable.
One generation shall praise Your works to another,
And shall declare Your mightly acts.
I will meditate on the glorious spendor of your majesty,
And on Your wondrous works.
Men shall speak of the might of Your awesome acts,
And I will declare Your greatness."
-Psalm 145:3-6

When I consider the God who created the heavens and the earth in a day, the God who conceptualized everything from Mount Everest to the butterfly, the God who calmed the wind and waves with a word, the God who had the power to lay down His life and take it up again, the God who formed me in my inmost being--faulty mitochondria, poor methylation, quirky personality, brown eyes, crazy hair and all--living through these difficult days with my faith, hope, joy and peace intact doesn't seem so impossible. And neither does a miracle.

Nine years ago, I never considered that I would be the one critically ill while Brandon bore the burden of a sick mate. We are mercifully spared from knowing what is coming for us around the corner. Nine years ago, I knew so little of the God who so loved me. In spite of the difficulty, I cannot regret what these nine years have wrought. Knowing God is worth it all.

Who knows what the next nine years may hold? A miracle, certainly. 

As for the rest, only time will tell.


"Frankly, My Dear, You Have Been Floxed"

When I heard the words, "you have been floxed," spoken by Dr. Jess Armine during Friday afternoon's consult, I did not understand what they meant or even know if they were true. After some detective work, which required a long string of phone calls, I was left with the feeling that the breath had been knocked out of my lungs. Crushed. Bruised. Betrayed by the God I love. I took the kids outside to distract myself so I could gather some control. Only a few steps out my door, I fell to my knees in my sister's gravel driveway sobbing so forcefully I thought I might vomit. My kids saw, but took it in stride. The children of sick mothers are like lion cubs, unaware they are too small and dependent to be so brave.

The last couple of weeks have conditioned my babies into a c'est la vie mindset. On Sunday, May 5, I was exposed to a pesticide that sent me into toxic shock and put me in bed for a week. On Mother's Day, I finally emerged from my sickbed only to quickly return when my children arrived home from church smelling strongly of perfume. I was unable to hold my children at all that day. Eight baths and four days later, I could still smell the perfume at the nap of Sara's neck. For the first time ever, I was forced to wear my mask in my own home. Sara hates my mask.

Mealtime has also been strange and sketchy. Although I have been following gut-healing protocol religiously for over 7 months, my digestive health has been declining rapidly. Old allergies have reemerged. New ones have developed, seemingly for no reason. Since Wednesday, most of my diet has consisted of eggs, rice cereal and boiled squash and broccoli, and no two meals are exactly the same. I may be able to tolerate eggs at breakfast, but that doesn't make them safe for lunch. I now have to muscle test everything before I put it into or onto my body, or risk an anaphylactic reaction that will put me back in bed. Regardless of how gentle the meal, I experience digestive pain after eating. I also grow very lethargic, as if all the resources of my body are expended upon digesting my food. For the last several days, someone (sometimes me) has made a meal for Brandon and the kids. While they are eating, I proceed to muscle test several foods to see what my body will accept. I make my meal, and sit down to eat as the family finishes. Mealtimes have been our main family time until recently, which makes this small upset feel bigger than it is.

With the exception of Tuesday night of last week, I have not been well enough to bathe my children for over two weeks. Everyone misses me bathing the kids, especially me! I love bath time! When bathed by someone other than Brandon or me, they often cry and throw angry tantrums. The night I bathed them, they smiled, played and laughed heartily.

 I asked Micah, "Did you miss Mommy giving you a bath?"

He nodded his sweet, red head.

"What did you miss?" I asked, fishing for a compliment. I was rewarded.

"I miss the way you wash my hair," he said quietly.

My little guy is particular, and he likes that I anticipate his wishes. I warm a towel for him in the dryer. I give him a large washcloth with which he covers his eyes while I pour water over his head, carefully avoiding his eyes and ears. He expects cuddles once he is out of the tub and wrapped in his warm towel, and likes to be dressed in the bathroom with the door closed. Sara likes routine, too, and feels her life is ruined when I am not around to meet her every desire. But they accept their lots and manage, as must everyone who lives under this small roof.

I have been struggling to understand my lot. I was doing everything I knew to do, and I knew a lot. I was eating perfectly. I was making my own hygiene and household products. I was getting sunshine, fresh air and light exercise. I was often upbeat and positive despite my circumstances. I was praying for healing, fully believing it would come. Yet I was getting sicker, which is a terrifying thing. After consults with Sterling Hill (an expert in epigenetics) and Dr. Jess Armine (a methylation specialist), I now understand. Understanding has been soul-rending.

As soon as my DNA results from 23andme arrived, Dr. Yakaboski contacted Sterling, who quickly began translating my results using her fabulous genetic charting system. On Tuesday, she explained the chart and gave me an overview of my results. While Dr. Yakaboski was on vacation, she arranged a consult with Dr. Jess even before the blood work he had requested had been sent off. He was kind enough to agree.

At the beginning of the consult, Dr. Jess was careful to explain that I am not the sum of my genetic abnormalities, which is a relief because I have a ton of them. My DNA may predispose me to certain conditions, but the presence of an abnormal gene does automatically indicate the abnormality is expressing. However, many of my less savory genes are expressing. To make matters worse, I possess combinations of genetic abnormalities that are particularly unhelpful when they are present together. My problems extend beyond what I will discuss in this post, but I will cover the issues we are addressing at the moment.

Dr. Jess is unsure of the order in which my problems began. I am genetically predisposed to have leaky gut syndrome, IgE elevation (allergic response), DAO enzyme deficiency (DAO breaks down histamine), IgA deficiency (contributes to inflammation and slow healing), etc. From what I understand, as my gut continues to leak food molecules and toxins into my blood, my body recognizes these "bad guys" as antigens. Antibodies form to attack the antigens, and memory cells are created. When the same antigen presents again my antibodies remember it, and my reaction worsens, raising histamine levels (which I am unable to break down) and causing anaphylaxsis. My leaky gut has exacerbated my inflammation problem to the point that I am now in an autoimmune state. My body is attacking itself, causing Hashimoto's hypothyroidism and adrenal exhaustion among other problems.

Furthermore, I do not methylate properly. The A1298c mutation Dr. Cave discovered was just the tip of the iceberg. My methylation processes are in sad, sad shape. Methylation is an essential biological process. If the body is not methylating well, the body is not operating well. My body is not metabolizing folate or detoxing properly, contributing to my steady descent. I also have a gene (VDR--Vitamin D Receptor) which will make it difficult to donate methyl groups to my cells, so I'm going to be tricky to treat.....as if my insane allergies and leaky gut make it easy in the first place.

Now for the part that is so very difficult for me to comprehend--My mitochondria (power houses of the cells) are genetically predisposed to dysfunction. They probably have not been working properly for quite some time. In November, I put something in my body that--as Dr. Jess explained--was "equivalent to dropping an A-bomb on my mitochondria." If you have have been following my blog for awhile, you may remember from this post that my doctor in Baton Rouge found the bacteria Pseudomonas aeruginosa imbedded in the lining of my gut. To effectively kill this bacteria, I was prescribed Cipro, an antibiotic from the fluoroquinolone drug family. Due to a genetic predisposition and very bad luck, I am now a victim of fluoroquinolone antibiotic toxicity, meaning my already fragile mitochondria have been devastated. Thus, my body is currently unable to heal. So no matter how perfectly I follow GAPS or a natural lifestyle, without intervention, I cannot get better. 

The severe effects of this toxicity (burning pain, shooting pain, numbness, tingling, dizziness, dyspraxia, insomnia, agitation, anxiety, memory loss, extreme chemical sensitivity, impaired concentration, joint pain, tendon ruptures, nausea, constipation, diarrhea, abdominal pain, vomiting, fatigue, hallucinations, dementia, schizophrenia, muscle deterioration, and weight loss to name a few) are not the most crushing aspect of this diagnosis. Last summer, my family prayed so intensely for healing. We are sure God led us to Dr. Cave in answer to those prayers, which means one of two things--either we do not know our Shepherd's voice or.......this is His doing. I reject the first option. It's unbiblical. I know my Shepherd's voice, and I follow. Within seconds I landed here--God led me to this crucible.

The feeling of cosmic betrayal is very real. I cannot approach the question of "why" without heartbroken tears. With the psalmist, I cry, "My God, My God, why have You forsaken me?" (Psalm 22:1). Never before have I experienced a pain so severe.

Because He is my lifelong Lover and Friend, I went to Him, asking Him why He would let this happen to me. He gave answer thus:

"Be glad and rejoice in My mercy. I have considered your trouble. I have known your soul in adversities. I have not shut you up into the hand of the enemy. I have set your feet in a wide place." (Psalm 31:7-8)

"I have not hidden my face from you, My afflicted one. I have heard your cries." (Psalm 22:24)

"My thoughts are not your thoughts, nor are your ways My ways. For as the heavens are higher than the earth, so are My ways higher than your ways, and my thoughts than your thoughts." (Isaiah 55:8-9)

"Do not worry, my child. No weapon formed against you shall prosper." (Isaiah 54:17)

"I AM for you. Who can be against you? I did not spare My own Son. No good thing will I withhold from you. In all these things, you will be more than a conqueror through My Son's love. You will overcome by the blood of the Lamb." (Romans 8:31, 32, 37, and Revelation 12:11)

"Do not fear. You are Mine. I have brought you to this crucible, but I will not abandon you to it. As you walk through this fire, I will be with you. You will not be burned. I am with you." (Isaiah 43:1-2)

"You are hard pressed on every side, yet not crushed; persecuted, but not forsaken; struck down, but not destroyed. I was crushed, forsaken and destroyed for you." (2 Corinthians 4:8-9)

He will not give me a reason, you see, though I have searched and listened intently. I am only given a promise--I do not walk alone. I would love a little insight, a straight answer, but I know from experience His promise is enough. He always makes good on His Word.

Neither God nor Dr. Jess left me without hope of healing. I have been given three assignments:

1) Attempt to rebuild a digestive mucous layer by eating up to 2 tablespoons of mucilaginous fiber per day, rotating the fibers. These fibers include ground flax seeds, ground chia seeds, ground slippery elm, ground marshmallow root, and okra pepsin. The hope is that rotation will prevent me from forming an allergy to any of them.

2) Find a form of dibencozide (B-12) that can bypass the gut. I found some drops that I will try to take through my nasal cavity. If that doesn't work, there are other (less savory) ways.

3) Research NAD (nicotinamide adenine dinucleotide) therapy, and consider joining a clinical trial offered to floxy patients in which NAD is given intravaneously for 4-6 days. The trial will take place in Springfield, LA. As a trial patient, I would only be responsible for the cost of the drug.

Brandon and I have been researching NAD. I will likely participate in the trial. The NAD should be able to "reboot" my mitochondria with little to no side effects, assuming I will tolerate the IV tubing and treatment environment. I am not looking forward to the challenges the trial will present to my family and me, and the treatment will have to be affordable. However, I do believe that God will make a way if it is right for me.

Fluoroquinolone toxicity is a very serious condition. Some people never recover. Some people lose their minds. Some people die. But I do not believe that will be my story. I definitely need a miracle, and I believe I'm going to get one. I believe I can be healthier than I have ever been, but I'm not putting my hope in clinical trials or doctors (as wonderful and generous as they are) or even healing. I'm putting my hope in Christ. It may seem a crazy move to place my trust in the One who put me in this awful place. But I owe Him everything. There is nothing He could ask that He doesn't deserve. He experienced far worse than the hell I'm in when He was hanging on the cross to make good on my sin. He stayed there though it was within His power to call the whole thing off so that one day I would be safe and whole with Him eternally, when none of this, however long and hard it proves to be, will matter. He has been in my place and worse to save something more important than my body--my soul--so that even if I depart this life under the worst of circumstances, who I really am will not come to an end.

I am not my diagnosis. I am not the sum of my DNA. I am not this sickness. I am something more, something of infinite value, something Jesus Christ gave everything He had to salvage. That is what truly matters. That is what will last. Not this nightmare. And maybe, through these trials, my brave, little cubs may catch a glimpse of their own infinite value, and get a foretaste of the surpassing worth of Jesus Christ. It will all be worth it. And it will all work for good.


PRAYER ANSWERED BY CROSSES

I asked the Lord that I might grow
In faith, in love, and every grace;
Might more of His salvation know,
And seek more earnestly His face.

'Twas He who taught me thus to pray,
And He, I trust, has answered prayer;
But it has been in such a way 
As almost drove me to despair.

I hoped that in some favoured hour,
At once He'd answer my request;
And by His love's constraining power,
Subdue my sins, and give me rest.

Instead of this, He made me feel
The hidden evils of my heart,
And let the angry powers of hell
Assault my soul in every part.

Yea, more with His own hand He seemed
Intent to aggravate my woe;
Crossed all the fair designs I schemed,
Blasted my gourds, and laid me low.

"Lord, why is this?" I trembling cried;
"Wilt Thou pursue Thy worm to death?"
"Tis in this way," the Lord replied,
"I answer prayer for grace and faith."

"These inward trials I employ
From self and pride to set thee free;
And break thy schemes of earthly joy,
That thou mayst seek thy all in Me."

--John Newton
(1725-1807)


Disclaimer: I do not hold Dr. Cave responsible for the damaging effects of fluoroquinolone antibiotic toxicity. She simply did what she knew to do. Fluoroquinolone drugs are prescribed widely throughout the world, and there is no way to predict when or to whom this toxicity may occur.

The Rough Landing and a Journey


On this day a year ago, I crash landed into the world of chronic illness. I had been sick for a long time prior, but the anaphylactic reaction that took place on May 2, 2012 flipped my world upside down entirely, and I haven’t been able to right it since. I easily recall the emotional trauma of those early days. I remember thinking my life was over, that if I didn’t die I might want to. Today, I smile wisely and compassionately at the scared, broken young woman I was a year ago because the woman I am today knows the girl’s life was far from over. Rather, she was standing at the threshold of something new entirely, something the girl had secretly longed for her entire life--adventure. 

I have always been a girl with a plan. Those plans usually involve safety and comfort, so I was an unlikely, ill-prepared candidate for an adventure as adventures are never safe or comfortable. My first steps were as awkward and faltering as those of a newborn fawn. Every time I finally found my stride, the terrain would inevitably change, forcing me to adjust. Again. At times, I have forgotten my destination. When I manage to remember my heading, I forget to enjoy the journey. I am fairly certain even the pre-There and Back Again Bilbo Baggins would have been a more promising candidate for this sort of thing than me, but alas--this is my road to haul......minus the cool factor of elves, dwarves, hobbits and Gandalf.

Slowly, I am learning that "promising" isn't on the list of prerequisites for the reluctant adventurer. As a matter of fact, the only thing necessary on an unexpected journey is the decision to take a step. And then another. After that, it is all about a metamorphosis over which the adventurer has little to no control.

Truly, everything has changed. From my appearance to my diet to my habits to my home (we bought a farm!), I am not who I once was.


 June 2012
 August 2012
 January 2013
April 2013
(A mask is now a necessary accessory for all public outings.)


Much of my outward beauty has faded over the past year, but that just happens on adventures. For awhile, you care and then you realize that other things are more important--like putting your energy into taking care of sick babies, cooking dinner for hungry co-adventurers, or foraging for healing herbs down by the creek.





As I am an Hermione at heart, I have done a ton of reading and research to plot my best course. Along the way, I have picked up a lot of tools to add to my arsenal. Many of you probably consider my ways very quacky. That's okay. Thank God we are all different! But don't knock it because it's weird. Remember that all adventurers possess a certain amount insanity! Also remember that life has a way of making you eat your words.....and thoughts. I may or may not be speaking from personal experience.

I have acquired new skills, and continue to acquire them all the time. I can cook! I can ferment! I can make my own hygiene products! My co-adventurer husband (aka Superman) is learning to farm! This summer, I will have to learn to harvest, can, preserve, blanch and freeze. Bring it!

A year ago, I was afraid all of the time.....of everything. Those days are over. I still feel fear, but usually only when wasps are involved. And even I have recently stood my ground with a wasp, armed with nothing but a flimsy fly-swat and poor coordination. Months ago, the pain and fatigue (which I have fondly named Mildred and Gertrude) I live with every day kept me from doing things I wanted to do. No more. Hunger continues to be a formidable foe. I still become quite grumpy when hungry, but I have learned to live without monster cookies and gluten-free donuts, which is something. I don't even miss them anymore. Give me carrot "fries," chicken soup and chocolate pudding made with avocados and dates any day of the week! Herbal teas are also becoming a favorite of this former coffee drinker.

Several years ago, I would have scorned the life I live today. If someone had told me that I would become a raging hippy (minus the LSD and free love) who did little else besides stay home, cook, watch plants grow and take care of children, I would have laughed. Or cried. I used to think people like me were very "woo-woo" and boring. And maybe we are. But the point is that I had dreams of being accepted, loved and known for something, and I am none of these things. I fit in with very few people. While I am loved deeply, it is only by a few and many of these are scattered here, there and yonder, hours away from my little life on Jubilee Farm. Because I have disappeared from all of my old social circles, I am largely forgotten outside of social media. At first, my new place in society made me sad, but then I thought of Bilbo. In the Shire, he fit in. He was known and even loved, but the moment he left with the dwarves he fit in nowhere, was known by few and was loved by even fewer. Yet what he did mattered. On this journey, I am learning to embrace the call of being vital to a few rather than optional to many.



The journey has not been easy. I have often despaired. The thrill of adventure has waned, and I feel myself lost in the dark, soaking wet by a never-ending downpour without necessary equipment or adequate rations. The words, "this is too much," have often come to mind recently.

I am not without good company. Many adventurers have despaired along the way. Actually, Good Company is what separates me from all of my favorite storybook travelers. A friend shared these words on Facebook the other day--

"When you say, 'I just can't handle______,' you're preaching to yourself an anti-gospel that forgets the presence and power of Jesus."--Paul David Tripp

Can I get an "ouch!?" Things have been hard. While I am better in some ways, I am sicker in others. I emotionally suffer as those I love dearly physically suffer. There have been disappointments and setbacks and sicknesses and near death experiences, but the last time I checked, Jesus Christ carries the heavy end of my cross. If a situation seems too hard,  I am likely trying to manage it rather than handing it over as I ought. I have forgotten the ultimate Co-Adventurer and the power He possesses. You see, when I'm walking with Him, nothing seems hard. Not really. 

"Therefore since we are surrounded by so great a cloud of witnesses, let us lay aside every weight and the sin which so easily ensnares us, and let us run with endurance the race set before us, looking unto Jesus, the author and perfecter of our faith, who for the joy set before Him [you and me] endured the cross." --Hebrews 12:1-2

I am a year into fairly extreme illness. Endurance is vital. The only way I am going to make it is if I look past the temporal mile marker of healing, straight into the eyes of Jesus which are blazing with unfathomable passion for me. He will go to all lengths necessary to get me into His arms, and He will receive me regardless of my lack of qualifications.

"[God] gives power to the weak, and to those who have no might He increases strength. Even the youths shall faint and be weary, and the young men shall utterly fall, but those who wait on the Lord shall renew their strength; They shall mount up with wings like eagles. They shall run and not be weary, they shall walk and not faint."--Isaiah 40:29-31
 
Sometimes, I am tempted to look back at the blissful ignorance and ease I once enjoyed, but looking back is worse than useless. It's crippling and sinful. 

"But I press on, that I may lay hold of that for which Christ laid hold of me....forgetting those things which are behind and reaching forward to those things which are ahead. I press toward the goal for the prize of the upward call of God in Christ Jesus."--Philippians 3:12-14

 Lot's wife looked back at the destruction of Sodom and Gomorrah, and was turned into a pillar of salt. Israel, while wandering in the desert, languished at the monotony of manna, and cried out for the comforts of her former slavery in Egypt. Looking back says, "God, I don't like where You are taking me. I don't trust You. I don't believe You." Looking forward says, "I believe in the Promised Land, and I trust You to take me there. I will gladly walk in this desert. It's hot and tiresome, but I will rest in the shadow of Your wings. I will joyfully eat this manna. It is enough because You are enough."

My journey is not haphazard. Every encounter, every bend in the road achieves some purpose unknown to me. It's all a part of my story, predestined by a Perfect Author. Knowing this gives me permission to enjoy meeting ogres along the way. The ogres shape my character, too.

"Rejoice in the process. Growth in grace is gradual over time."--Tim Lane

You know, it's okay if the heroine sheds a few tears along the way. It's okay if she pauses occasionally to ask, "Why?" That's just real life. We aren't called to stuff our emotions any more than we are called to wallow in self-pity. I believe we are instead called to invest our emotions, entrusting them to our Faithful Creator who sees the big picture while expectantly awaiting the return we will receive for doing so. 

While the plot twists before me are unknown and treacherous, my destination is sure.

"Therefore, I run thus: not with uncertainty."--1 Corinthians 9:16

My ultimate enemy--spiritual death--is already defeated. Nothing else truly threatens me. No matter what, I end up in the Everlasting Arms. 

While I am not where I had hoped I would be one full year into my adventure, I soldier on. The Lord has recently blessed me with a second wind, just as I desperately needed it. He does that whole "supplying all my needs" thing pretty well. With an Adventure Buddy like that, I think I'll be just fine. Ogres and all.

A Few More Pieces of the Puzzle

A couple of posts ago, I mentioned that the Lord was leading me to look deeper into the autoimmune nature and genetic origins of my illness. Well, I have been doing just that. My worsening symptoms are helping to spur me on in my quest for information. Thanks to the Lord's direction, what I'm learning and what my doctor is learning, I am beginning to understand why I have been feeling like death warmed over.

As I have mentioned before, I suffer from methyl cycle (MTHFR) genetic defects. While the abnormalities in these genes do not gift a person with an undesirable disease from birth, they do predispose one to ill health. Based on what I am learning in Dr. Connor's book, Help, My Body Is Killing Me, these defects are basically latent genes that can be "turned on" during the course of a person's life, causing a lot of trouble including autoimmune disease. After doing some research, I conclude that I have suffered from methyl cycle defects for most of my life, but I feel I can pinpoint the specific events that fully awoke these sleeping little monsters--allergy shots (and corresponding steroid treatment) and my pregnancies. Dr. Connors explains that once the genes are turned on, they cannot be turned off. However, they can be managed by diet, supplementation and lifestyle alterations. I have a loooooooong way to go before I get to the management state, so for now I am one super-dysfunctional, toxic, autoimmune mess.

On Wednesday of this week, I met with Dr. Yakaboski for a consultation concerning what she learned at the MTHFR genetic conference last weekend. We have not yet received my highly detailed saliva test results via 23andme.com (due within 3 weeks), but based upon the case studies at the conference, she has a few good guesses about which defects I have. We already know that I have the homozygous A1298c defect from the blood tests Dr. Cave ordered back in October. Dr. Yakaboski suspects further defects including CBS and COMT. After two days of intense research, I am certain I have the CBS defect. I could be the poster child for this mutation!

CBS (cystathionine beta-synthase) initiates the trans-sulfuration pathway of the methylation cycle. Its job is to convert homocysteine (an amino acid) into cystathionine (the middle man) and its metabolites down the way, which I assume are very important. Symptoms of a CBS defect include:

  • Elevated urine sulfate level (CHECK! At my last appointment with Dr. Yakaboski, my urine sulfate level was at the highest possible reading of 1600+)
  • Low/normal homocysteine level (CHECK! This was confirmed in the bloodwork ordered by Dr. Cave.)
  • High blood ammonia levels (This has not been confirmed by blood test, but I show physical symptoms of having high blood ammonia including a "fog-like" state of the brain and severe bloating of the lower abdomen.)
  • Intolerance to sulfur containing drugs, supplements and foods (DOUBLE CHECK! Does anyone remember my downward spiral at the beginning of 2012? It was highlighted by several near death experiences with sulfa/sulfur substances.)
  • Adrenal exhuastian (CHECK! The presence of sulfate stimulates the "fight or flight" response, releasing cortisol in the body. The cortisol stress response is a good thing when being chased by a bear. It is life-saving in those kind of situations, but let's face it--I'm not being chased by a bear. Dr. Cave, Dr. Kuehn and Dr. Yakaboski have all three found that my adrenals are exhausted.  Did you know that you can naturally heal adrenal exhaustion by modifying your diet and lifestyle? You can!)
  • Brain fog (CHECK! My brain is so foggy that real life often takes on the characteristics of a dream. It's weird and unhelpful when caring for children and managing a household.)
  • Abnormalities in sugar control (CHECK! I have had blood sugar problems all my life.)
  • Difficulty sleeping (CHECK! CHECK!)
The CBS defect causes methyl cycle "middle men" to be turned into ammonia, more ammonia than the body is prepared to handle. When an overabundance of ammonia is present, BH4 (an essential cofactor of amino acid hydroxlase enzymes) is depleted. For every one molecule of ammonia, it takes two molecules of BH4 to metabolize it. So individuals with the CBS defect are BH4 deficient. Now, BH4 is muy importante. It is responsible for making the neurotransmitters dopamine, serotonin and norepinephrine. A BH4 deficiency also prevents arginine (an amino acid) from converting into nitric oxide, which is essential for neurological, psychological and cardiovascular health. Instead, the arginine is converted into free radicals (superoxide and peroxynitrite) which cause immunodeficiency, toxicity, and cell death. Funny story--I just told Brandon a few days ago that I felt as though every cell in my body was slowly dying.

After learning all of this fascinating information, my first thought was, "Where can I find a BH4 supplement?" But it isn't that simple. Until the other methyl cycle pathways are working properly, one should not begin BH4 supplementation. If a long-closed pathway is suddenly opened, a bad detox reaction will result. Detox reactions can be severe, and should be avoided when possible. Healing methyl cycle pathways is a process and a slow one at that.

I can't change my DNA, but I can change what I feed it. Step 1 of the healing process will be to change my diet.....again. If you have known me for any length of time, you will hardly believe the next words you read--I am doing away with meat. For awhile, anyway. It turns out that by restricting my animal protein, I can reduce my ammonia burden, preserving BH4, which will in turn allow my amino acids to begin making neurotransmitters and nitric oxide properly again. Going (mostly) vegetarian will also help my body achieve a more alkaline state, which is important. My body's environment is currently very acidic, a state in which disease of all kinds thrives.

In addition to avoiding meat as much as possible, I will also begin eating a diet low in sulfur/free thiols. Until now, I have been eating mostly high sulfur foods. Until yesterday, I have eaten three or more eggs every morning for breakfast, meats and high sulfur veggies for lunch and dinner, chocolate almost every day and as much farm fresh goat milk as I pleased. All of those foods are on the "High in Free Thiols" list. My eating habits have a lot to do with my increasing fatigue, state of yuckiness, depression, and sensitivity to toxins, but I had no way of knowing that until Wednesday. Changing my diet so drastically requires baby steps. For now, I will eliminate garlic altogether and reduce the number of eggs and the amount of high sulfur vegetables I eat. These vegetables include garlic, onions, broccoli, leafy greens, cauliflower, etc. As far as fruits are concerned, I am allergic to the ones high in free thiols, so no worries there. I will continue drinking meat stock, and strive to stay within the confines of GAPS because gut healing is still a very important factor in my healing protocol.

While I am eliminating several foods from my diet, I will also be adding foods. During the last two weeks, I have felt the Lord prompting me to try ghee (clarified butter) again. He just keeps sending me signals and information about ghee. God often speaks to me through repetition, so He has my full attention. On Wednesday, Dr. Yakaboski told me that a big part of getting well will be healing the mucous layer of my gut. Until I heal the mucous layer, probiotics will do me little good. If the probiotics aren't doing their job, I can't kill off the candida albicans, which inhibit gut healing. Foods that heal the mucous layer include ghee (I'm making some now, and I'm sure I will tolerate it!), ground flax and hemp seed, colloidal silver, slippery elm, marshmallow root, okra (yuck!) and sunflower lecithin.The plan is to add these food into my diet one a time every 3-4 days to be sure I can tolerate them. I am now keeping a food journal so I can track exactly what I'm eating and any reactions I may have.

Supplementation is in my future, but drastic dietary changes are enough to tackle at the moment. I will likely wait for my results to arrive and my consultation with the MTHFR specialist before worrying too much about supplements. I have enough to learn, absorb and implement for now anyway. Wouldn't you agree?

I covet your prayers at this time, especially prayers for my "inner man" (Ephesians 3:16). Ask the Lord to help me be aware of my dependence upon Him at all times. Ask that I will open myself to Him fully that He might fill me with His sweet Spirit. Ask for my protection against the Evil One and a wariness toward the weakness of my own flesh. Ask that He might grant me JOY, the real kind, the kind that can only be found in Himself. Ask Him for His continued clear guidance for my doctors and me. And give Him thanks in all things.

"Oh, that men would give thanks to the Lord for His goodness,
and for His wonderful works to the children of men!"
Psalm 107:8

Sources:

Roberts, James C., M.D. "Methyl Cycle NutriGenomics"

Connors, Kevin, D.C. Help, My Body is Killing Me. AuthorHouse, 2010

Thoughts on Jubilee

Maintaining a state of jubilee has been harder than I had imagined. It is difficult to live in mental, emotional and spiritual freedom when the walls of my world are continually closing in. It isn't easy to not think of myself as a sick and struggling mother when that is my reality on most days. It is almost impossible not to fixate on my symptoms when they are constantly changing, surprising me and even sometimes making me laugh at the strangeness of it all. On the other hand, it is an effortless thing to allow my mind to wander to the things I would like to be doing that I cannot do, to my disappointment that I am not the mother I desire to be and to my growing realization that getting better is going to be far more complicated than loosely following a diet for a couple of years.

When I first began the GAPS diet last September, I envisioned a slow and steady journey toward healing. I saw myself getting better and better until--voila! While I rejoice to report that my digestive symptoms have improved significantly during the last 7 months, the ground has unexpectedly crumbled beneath my feet in other ways. My environmental sensitivities continue to worsen. In addition to toxins, fragrances and latex, I have become violently allergic to peanuts. I came very close to going into anaphylactic shock on Sunday evening after attempting to make peanut butter for Micah. I simply breathed in peanut particles released from the garbage can and within a few minutes my body temperature dropped, my sinuses swelled shut and I was struggling for breath. Now, peanuts are banned from the house indefinitely, and life has become even smaller. Weirder, too--I have ordered a good-quality cotton mask to wear in public as a safety precaution. If you ever need a giggle, just imagine the thoughts of my fellow grocery shoppers. On the bright side, a mask may make occasional church attendance possible again.

If the only opposition to my efforts to live in liberty were physical, it is possible that I would be having more success. But we are whole people whose bodies, souls and spirits are all intricately intertwined. When one part of our make up is assaulted, the other areas suffer. If our entire composition is assaulted at once, it is only by the grace of God we stand.....or at least get back up again.

Jenny received disheartening news at her last two doctor's appointments. I know she is going to hate reading this, which is why I feel it necessary to remind her that I love her as my own soul. I can't separate the two anymore so it is impossible for me not to take her hard news personally. (So there! You can't be mad at me.) A couple of weeks ago, she was told that the chemo was no longer working. The liver tumors were larger. The cancer in her esophagus had returned, and it had spread to her lungs and stomach lining. Experimental medicine was considered, but last week she was released from the trial because they had run out of the smaller sized pills and Jenny could not swallow the larger ones. I will not for a moment pretend that the difficulty of the past few weeks has nothing to do with her circumstances. Jenny continues to amaze me by her capabilities in spite of constant pain and a grim prognosis. As she often reminds me, she still has today and God will provide her with breath until He is ready to call her home. I'm just afraid He's going to call her before I am ready to let her go. I know it won't be a goodbye--rather more like a "Bon voyage!" and an "I'll be along soon"--but I tremble when I anticipate the pain I fear is coming.

I have been under considerable duress physically and emotionally, so it follows that I would be affected spiritually. And I have been. I have felt distant from the God I so need, the God I so depend upon for everything from what to put on my daily to-do list to the strength to pull it off. I haven't liked it. With no way to fix myself, I asked Him to fix me for me. I searched His Word for answers. I  prayed. I quieted my soul so I could hear Him. When He was ready, He spoke--

"Let go. Trust me. Give thanks."

The message came to me in no less than five books I was reading at the same time over the course of three days. It came to me in emails, in conversations.

"Let go. Trust me. Give thanks."

I heard it in a podcasted interview online. I saw it on Facebook. It was spoken in a sermon.

"Let go. Trust me. Give thanks."

After several days of being pummeled by these instructions, I received this helpful hint--

"P.S. It's all tied together."
  
It was during a conversation with Jenny that I realized what had happened and was able to verbalize it. "You know?" I said. "I think my problem is that I am suddenly doubting God's goodness."

Now, I know God is good. I have known that since I was three. I have memorized Scripture passages teaching the theology. The cross proves it. Without thinking, several examples of God's goodness to me in particular come to mind. The truth of God's goodness is a part of my spirit's bone structure, but my soul had lost touch with my spirit's conviction in the midst of the day to day struggle of being me. Because I had lost touch with this truth, I was suddenly trying to place the circumstances in my life in an order that made sense to me. It wasn't working. I was becoming frustrated, feeling overwhelmed and getting sick....er.

I had to let go. I needed to trust God. I was called to give thanks. The three instructions are pretty interconnected. To let go, I have to trust. When I give thanks, it's easy to let go. When I'm trusting, I can clearly see God's goodness, and gratitude is a natural by-product of the process. But I couldn't start with letting go or trusting because I can't will myself to do either. However, I could will myself to give thanks. I didn't have to look far to find things for which to be thankful.

1) Jubilee Farm coming to life


 Thanks for the photo, Ann Marie!




2) Baking with babies




3) Sara's first egg hunt




4) Meeting Mr. Clarence, the precious man who provided me with goat's milk last summer when I could eat little else.  Mr. Clarence belonged to my Uncle David's congregation at Good Hope Baptist Church. He gave to me because he loves my uncle and our Lord.


 

5) The first planting and planting party at Jubilee Farm
 Our beautiful plants purchased from Yak's Farm on Hwy. 33




 Enjoying a tomato just a few minutes before getting stung by a wasp. Poor baby!


 Meet Rich who might as well already be a part of the family as Micah now asks for Auntie and Richie. :)


Only two and a half weeks after beginning my Gratitude List for 2013 (inspired by Ann Voskamp's book One Thousand Gifts) I have 45 gifts recorded in my journal. That's forty-five items that remind me that God is indeed very good and worthy of my trust. Forty-five items telling me I can let go.

Living in a state of jubilee is not pretending that life isn't hard or putting on a good face. Jubilee is saying, "God I trust You have our good at the center of Your plan" even when we can't make sense of things. It is looking at the world as a giant gift and life as a grand adventure. It is believing that life is still good even when it is painful. It is being able to say "thank you" when you are lying on a mattress only conscious enough to know that if you close your eyes for a moment you may wake up in Heaven. It is being able to pray as you are about to toss your cookies into the toilet. It is a peace that goes so deep that it doesn't matter if you never get well because healing isn't your real prize anyway. It is knowing that even if you lose a part of your soul, you'll get it back one day. Jubilee is Jesus, and that is something I always have and am never without.

How to Muscle Test and Relieve Allergy Symptoms

I have been planning this video blog for awhile now. I actually intended to post it much earlier, but circumstances would not allow for it. So here we are at my blog's 100th post, and I am entirely veering away from my usual style. 

If you are new here, know that my blog is not a health blog. Usually, it resembles a diary. Lately, I write almost exclusively about my journey to healing and what God is teaching me along the way. If you are interested in learning more about my illness, I suggest reading here, here and here

Making the videos was not easy. When we first began, I had difficulty keeping myself from giggling idiotically. Then, I made several frustrating mistakes. In some cuts, I plague the camera with nervous tics and verbal dyslexia. It was a mess! My attempts to order my thoughts and overcome my nervousness make my manner come across as cold and aloof. Oh, well! These were the best takes recorded before I ran out of patience and energy. The first video covers the topic of muscle testing and the second covers BioSET treatments. I hope the information, if not my sparkling on-camera personality (HA!), helps and blesses you and your families.

Disclaimer: This information is not to be used as a substitute for professional medical care, especially during cases of emergency. Practitioners trained in the BioSET system can be located throughout the country. I highly recommend locating a practitioner near you!
  `
Acknowledgments: Dr. Ellen Cutler, Dr. Carolyne Yakaboski and Dr. Melisa Kuehn. Dr. Yakaboski of West Monroe, Louisiana will be teaching a BioSET class coming soon! Please comment if you would like to receive more information concerning the class!

Special thanks goes to my husband, Brandon Keaster (aka Superman), who filmed the video, held my notes and performed the muscle testing and BioSET treatments.



I Could Only Think of Eggs

I was unwell when I woke this morning. I had obviously caught my kids' cold, but I wasn't surprised. I catch every illness that enters our home these days. I moved slowly. I read Jesus Calling and pondered Psalm 90. At almost 11:00, I was ready for a light breakfast. I ate runny, scrambled eggs--organic, pastured eggs the Lord had so sweetly provided for me last week--and drank a cup of hot, rich chicken broth so my body could spend its energy on healing the cold rather than digesting the food. I took the supplements I continue to tolerate--cod liver oil, Vitamin D3 and my digestive enzyme. I scaled down my plans for the day, and decided to spend some time out in the sun. I was making good choices.....until I took a bite of the coconut-based brownie I made yesterday. 

I dressed Sara and the two of us joined the boys, both of whom were outside. Brandon was finishing his work on the porch he mostly built last weekend and Micah was "helping." I plopped down in the canvas chair almost doubling over from the stabbing pain directly below my sternum. I could tell that I would not get away with the slightest indiscretion on this day, a realization that should have directed me back indoors.

I tried to enjoy the breeze and the red glow the sun cast about my children's heads, but my intense stomach pain and discomfort from the cold prevented me. As the kids played and Brandon worked--measuring, sawing and drilling--an eerie feeling crept upon me. My head grew thick and my stomach tossed with nausea. My chest tightened and my limbs filled with lead. Drunk though I was, I saw the flecks of wood thrown by the saw and carried off by the wind, I remembered that the wood was treated (meaning the wood was toxic), and the Holy Spirit spoke within--Get inside.

Somehow, I managed to get myself and the kids in the house. I immediately turned on Mickey Mouse for the kiddos, and fell onto the couch. I felt so strange. I tried to monitor my own breathing, my only requirement was that it must continue. My body was just so heavy and wrong, and it almost seemed that my soul lifted out of it and hovered above the scene, waiting to see what would happen. I lost all sense of time. At one point, I thought, "Is this what dying feels like?" I never once thought I would actually die, but the question prompted me to croak to Micah--"Tell Daddy that I need his help."

Brandon made his way inside not knowing how poorly I was doing. I told him that I needed BioSet. He helped me up from the couch, and suddenly I was sputtering, choking and wheezing. I hobbled into the kitchen, leaning on him for support. Once there, he realized to make the BioSet treatment most effective, he needed to take a saliva sample with a cotton swab.....which we keep in the bathroom. He propped me upon the kitchen counter and walked away. My chest burned and ached. I struggled for breath, and was as drunk as a skunk from toxic exposure. My legs gave way. I hit the kitchen floor with a thud. I was only vaguely aware of the pain in my hip, shoulder and head from the fall. Brandon was suddenly by my side again with my inhaler. I cried involuntarily as I struggled to get a puff.

I never lost consciousness, but my awareness faded in and out. I heard words like "hospital," "Mama is sick, Baby," and "can you come over." I surrendered myself to whatever fate Brandon deemed necessary. I heard Sara crying, and knew she cried because she knew something was wrong with me. She always knows. I knew when he gave me the Acute Rescue (a.k.a. magic potion) drops. I was able to cooperate when he swabbed my mouth and rolled me over onto my stomach to perform BioSet. Otherwise, I could only lie there, sprawled out in the middle of my small kitchen floor, thinking of eggs--

Recently, my Papaw began bringing me some pastured eggs from a farmer friend of his. I have been eating eggs all along (except for those first few weeks when I couldn't eat anything), but these eggs are different. They taste better, are richer in color. I crave them at all meals and always feel better after eating them. So, I am eating a lot of them. I ran out while Papaw was in the hospital last week. His friend and supplier is a little odd and often drunk, so I couldn't just go get the eggs myself. Before leaving for Baton Rouge on Thursday, I packed a couple of empty egg cartons to take along. Dad asked me why I was bringing them. I told him that I was out of pastured eggs and if we saw some along the way, I would like to stop.

I have made the trip to Baton Rouge several times, and have never seen anyone selling eggs along the way, something I would have noticed because I look for such things. However, I knew that my body needed those eggs. I knew that God knew my body needed the eggs. Therefore, I believed it was quite possible, even likely, that I would find some.

I looked for a road sign the entire trip, and did not find one. After that, I honestly forgot about it. I went to my appointments, both of which were very beneficial. When I finished my massage, Dad was paying for something and a couple walked in carrying large grocery bags. Babette, my masseuse, swept back into the lobby. She greeted the couple and taking the bags from them, asked me if I would like to buy some eggs.

"They are fresh, organic and pastured and they come from happy chickens!" she smiled. My dad's face was priceless. He laughed out loud. I smiled and told her I had two empty cartons in the car and would love to buy some.

In childlike faith, I had packed those cartons, fully believing that God could provide the eggs my body so desired. And He did. It was as simple as that. And that was all I could think of as I drifted in and out of conscious thought.

But you must see that I wasn't really thinking of eggs. I was thinking of God's faithfulness. 

He has promised to supply all my needs in Christ Jesus (Phil. 4:19). On Thursday, He saw that I needed pastured eggs. He provided them. And He did it in a clever way so that His signature could clearly be seen. Many months ago, He gave me a much-needed promise that I would live through this hell so that I would continue to fight my way through it without giving up. Before I was born, he chose Brandon to be my husband because He knew I needed a Superman to save my sickly butt time and again, a man who had the strength to live this life without losing his mind or his love for me.

As Sara Groves sings in one of my favorite songs, "God has been faithful. He will be again."

After Acute Rescue drops, a couple of puffs on the inhaler and two rounds of BioSet, I dramatically improved. After a sinus rinse, a detox bath and fresh clothes, I stopped re-poisoning myself which is always a plus. I have improved a little more throughout the day. I am still occasionally wheezing and suffering from swelling and sinus pressure. I am hurt from my fall to the kitchen floor, and I feel toxic. But I am alive. Thanks to God and Superman.

This verse from Psalm 90 kept coming to me today--"Make us glad according to the days in which You have afflicted us; the years in which we have seen evil." (v. 15)

This life I currently live is a life of affliction, but God is going to do me one better than make me glad for as many days as I have suffered. One day, the breath I take will be my last. Even if I suffer every day until then, my suffering will all be swallowed up by never-ending gladness, by the joy of His abiding presence, never to be remembered again. Until then, I will feed on His faithfulness every moment, something I did quite literally this evening as I ate three of my delicious, nutritious, pastured eggs for dinner.



Tears in the Kitchen (A Health Update)

Something has felt "off" for the last several weeks, a fact to which I alluded in my last post. I did not know what was wrong, and I did not know why it went wrong so I chose to ignore it, hoping I was mistaken. As usual, ignoring what my body was saying was a dumb move. I forced it to take a firm tone. When I ignored the firm tone, my body decided to yell. On Monday, after weeks of little, daily reactions, I suffered a severe allergic reaction to the supplements recommended by Dr. Cave to treat my MTHFR gene--all of them. The folic acid, the methylating powder and the B vitamins have all been rejected entirely.

While I could allow myself to be discouraged by this seemingly unfortunate turn of events, I am actually encouraged. In this, God has offered me very clear redirection on my health journey. Clarity is a valuable gift to the foggy of brain.

 I have noticed during the past few months that while some of my symptoms have improved (i.e. I can eat more than three foods now), others have spiraled out of control. For example, I get sick every time I leave my home. And sometimes I get sick staying at home. The world in which I live is full of substances that pose a threat to me. That burning pile of yard trash you drive by probably doesn't bother you, but it leaves me feeling like someone has me in a choke-hold. Birthday parties and clothes shopping are about equally dangerous. Both have put me in respiratory distress. No more dry-cleaning clothes or Styrofoam cups for me. I can't even visit my sister in her new home because the new building materials emit strong toxins that make me wish for death....and probably have the power to deliver it. I wish I was being dramatic. A healthy body does not notice these things. My body wails, laments and gnashes its teeth at them. Every time I leave my home, I am taking a risk. The risk isn't a question of whether or not I will get sick. Rather, it is a question of how sick I will get. Most of the time, the risks aren't worth taking, and I am increasingly earning the title of "Stay at Home Mom."

Something isn't right. It doesn't only have to do with my supplements. I just look at my body's rejection of them as the tool the Lord used to reveal another bend in the road.


Last weekend, the Lord propelled me into action when He introduced me to a new friend.  Caroline and I met on Facebook. (You can meet Caroline here.) She lives in a different part of the country, and is almost a decade younger than myself, but our symptoms are very similar. The main difference is that hers are worse. She is completely homebound and is currently able to eat only three foods. Sound familiar? She began GAPS about three years ago. Soon after, she began having some problems very much like the ones I am experiencing now.

We both still believe the GAPS diet to be a great healing tool. I will continue to follow most of the tenants of the diet. However, we are fighting multiple battles, and GAPS alone cannot win the war.

After chatting with Caroline and discussing my supplement problem with my natural doctor (who is currently taking a class on MTHFR/DNA snips), I feel that the Lord is leading me to look deeper into both the autoimmune and genetic natures of my illness. I just received my new DNA test kit in the mail. This new test will offer me more comprehensive results than the blood test ordered by Dr. Cave in October. From there, Dr. Yakaboski and I will have a phone consult with a genetic specialist. The three of us will discuss my results and formulate a new treatment plan. The consult will take place in a few weeks after I have received the new DNA results. I have also downloaded a free ebook by Dr. Connors, Caroline's doctor. The book discusses types of autoimmune-based illness and how to treat them. Dr. Connors also offers phone consultations to people who cannot travel to his clinic in Minnesota.

In the meantime, I am recovering from poisoning myself and trying to limit further poison exposure. I have seen Dr. Yakaboski twice this week to get relief. I hope that after today's colonic, BioSet and BEST treatments, I will soon experience a change for the better. I have no idea how I will do without being able to address my methylation problems for several weeks, but I will leave that in the hands of my Faithful God.

This God of mine has thoroughly earned my trust by proving Himself ready and able to help time and time again. Yesterday, He provided a friend to help me with my children and chores. Last night, He was there for me again. I was in the recliner, feeling as if I weighed 500 pounds and had lived 100 years. I was unsure if I was even going to be able to peel myself away from the chair to get my baby out of her crib.

But He reminded me, "My grace is sufficient for you." I stood.

I had vegetables to prep, broth to jar and a chicken to debone. I could not do it. He whispered, "My grace is sufficient."I began to chop, jar and debone.

It was too hard. I hurt too much. "My grace is sufficient, My Child."

I cried. I cried because it was hard and because God enabled me to do it anyway. "Sufficient. I AM enough. I will help you. I promise."

Tears of grace fell in my kitchen last night, and I knew. No matter how hard the rest of this healing journey may be, there will be enough grace--enough GOD--to bring me through.




The Top Five Reasons I Love Being Sick

No, I have not become a masochist.

In most ways, I loathe being sick. I despise pain, discomforts, social alienation, fatigue, and dietary restrictions, but my sickness is so much more than the sum of my symptoms. I have been thrust into an alien world. Now that I am no longer suffocating in an atmosphere my fragile lungs are not accustomed to, I find that I don't mind this strange, sometimes desolate planet so much. In fact, I can find things that I truly like about it. While I will never stop looking for a way to get back home, I have found a way to be happy here. Much of my happiness comes from this little list of blessings I could have only received in a place of long-term suffering:

1) The People

The book, Embracing Obscurity, mentions a "secret society" of sufferers. Initiation is hell, but there is a hidden sweetness to be found in all the bitterness of membership. In my earliest days of suffering, this community enveloped me as if I had been there forever. These people know. They understand. They have held me up. They always know exactly what to say and not say. It is comforting to look into an eye and find the same altered light I feel in my own, to hear another voice with inflections of pain and peace trying to find the right balance. The people here have taught me how to give comfort and receive it, the latter actually being the harder of the two. There is much more to learn. In most of the cases I have encountered, the people of the Suffering Planet grieve with those who grieve and rejoice with those who overcome, a rare, precious commodity these days. Sufferers, who are usually social outcasts, have become some of my favorite people. I am proud to be counted among them.

Without being sick, this kind of sick, I never would have met my fabulous team of natural/integrative doctors--Dr. Stephanie Cave, Dr. Melisa Kuehn, and Dr. Carolyne Yakaboski--because I would still think alternative medicine is all very "woo-woo!"I adore each one, but my favorite (and I can write this because none of them read my blog) is my local Natural Doctor, Dr. Yakaboski. Each doctor has her own pool of knowledge, making each one valuable and necessary to me. What is special about Dr. Yakaboski is that she sees me regularly, listens carefully to me and is taking time to learn about my peculiarities. I'm not saying that I'm the reason she is taking a class on genetic mutations, but I know my case at least offered her a nudge. And I'm beginning to think the information she is currently learning is the key to my healing.

While my illness has created distance in most of my longer-established friendships (not because of any person's fault--that is just what chronic illness does), I have made new friendships, none of which would exist without this illness. Some of them like Jenny, Caroline and Jennifer are or have been sick themselves. Oddly, not one of these ladies lives close by. Others like Emily Wheat and Emilea Talton, God just ushered in to help me along.

2) Personal Growth

When I married 8 1/2 years ago, I was a terrible cook who had never shown much interest in the kitchen. I could scramble eggs, make awesome cinnamon toast and kill perfectly decent food on the George Foreman grill. (If you own this appliance, please do your part to stop the murder of innocent food. Divorce George. Fat is your friend.) While mistakes occasionally still happen, I consistently deliver a good meal made from scratch night after night, and most of the recipes are Melissa Keaster originals. When you can't eat out and people can't cook for you, your only choice is to cook or starve. Thereby, I get lots of practice, and practice has made me quite competent. I'm even tweaking an original "real food" cookie bar recipe.

 I get a huge kick out of making a pretty wide range of yummy food for my family. I am proud of the accomplishment that was born out of very real struggle. It is hard work--both the planning and the preparing! Cooking a different meal every night without a repeat over the course of the week using only 30ish foods while battling pain and fatigue is a real challenge! I suppose it's a good thing that I've always liked challenges.


In addition to learning to cook, I have learned to nourish. Many of my preconceived ideas about health food have been shattered, and I am watching my family benefit from what I have learned. I have discovered that I love feeding people good food. Right now, I have a very real ministry of feeding three eaters in addition to myself, but I dream of a quiet, thriving ministry of feeding and visiting sick people and shut-ins once I am well.

3) Helping Others

I have learned so much information since losing my health. I have an infinite amount more to learn, but I am helping family, friends and strangers alike with the little I already know. I have shown several people how to muscle test for allergies to foods before trying them. If my friends want a natural remedy for some kind of ailment, I either know the remedy or know how to find it. Brandon, the kids and other friends and family who haven't minded being my guinea pigs have benefited from BioSet treatments.

Mostly, I am thankful that I am able to help my immediate people. Brandon has Crohn's disease. While he complains of his weight loss from time to time, he looks great and feels even better. My children both struggle with my genetic mutation and Gut and Psychology Syndrome. I will even go as far as to say that I think I am going to save Sara from becoming autistic. Some of you may think I'm talking crazy, but I have been doing lots of reading and have personally witnessed or experienced the truth of the information. I love that I am in the unique position to see that my kids are sick and need my help while they are still young. Soon, I will be healthy enough to put the necessary energy into getting them better. What an undeniable gift!

4) Spiritual Growth

I have learned to view this new life as a grand adventure. I may rarely leave my home, but no two days are the same. Each one begins brimming with promise. I never know who will walk through my door, who will call, who I will meet, what my children and husband will need, or what God will speak to me on any given day.

I am finally learning a little about the ministry of intercessory prayer. It is truly a labor of the soul. As Christians, we are nourished by the Word of God and we sweat by the work of prayer. Sometimes, this ministry is painful for me because my suffering has made me more compassionate. Friend, if you share a burden of your soul with me, know that I feel a little of its weight. If something has wounded you, I bleed a little, too. I feel your injustice almost as if it were my own. Tears for your sorrow stain the side of my bed. I have been asking the Lord to teach me how to pray for years. It is harder than I had anticipated, but it is work worth doing.

I see people. I am finally looking others in the eye, observing either light or shadow. I want to know hearts. I have time for souls. I want to know how I can meet the needs of body, soul and spirit. This is especially true for my immediate people--Brandon, Micah and Sara. They are my focus now, as it should be.

The most important lesson I'm learning is contentment. Contentment is a difficult and victorious classroom. I can be happy when I'm hungry, when I'm tired, when I hurt, when I'm lonely, when I'm sick, when I'm scared and when my feelings have been hurt if I look to God for joy. I don't do this perfectly or anywhere close, but I am learning. If I live to old age, I hope to say with the Apostle Paul, "I have learned to be content in all things."

5) GOD

Spurgeon's Morning by Morning reads thus on February 12--

"Here is a blessed proportion. The Ruler of providence bears a pair of scales--in this side He puts His people's trials, and in that He puts their consolations. When the scale of trial is nearly empty, you will always find the scale of consolation in nearly the same condition. When the scale of trial is full, you will find the scale of consolation just as heavy. When the black clouds gather most, the light is more brightly revealed to us....Another reason why we are often most happy in our troubles is this--then we have the closest dealings with God. When the purse is bursting with gold, we try to do without so much prayer. But take our food away, and we want our God.....Troubled believer, do not fret over your heavy troubles, for they are the heralds of weighty mercies." [2 Corinthians 1:5]

Upon the stillness of my sickbed, I have often heard the voice of God. I feel His embrace when I ache. I know what the shadow of His wings is like. The sweetness there is so intense that sometimes I feel that I don't want to get well because I want to stay there forever. I have to shake myself, pry myself away, reminding myself that He is not calling me to enter into His rest just yet. I have to toil a little longer, and there is much joy to be found in my toil.

 More than anything, I love the nearness of Christ in my suffering. If you do not know Him today, Fellow or Future Sufferer, I hope you will. As John Piper writes at the end of His poem, "Job"--"Unkindly has He kindly shown me God." The price has been high, but seeing God is everything to me. It is the treasure for which I would sell everything I possess. Take my health, and give me Jesus!

I am certain that healing is in God's plan for me. He has told me over and over that I will get well. Currently, some of my symptoms are getting worse. Some days I feel that I am making a downward turn. But I trust His word to me. I believe Him. I will continue to believe Him if I temporarily take a turn for the worse. And I will never resent this place I'm in. I hate it, but I love it. Because God is with me, it is a fine place to be.

To My Little Man on His Fourth Birthday

Micah turned four years old yesterday. More than any other birthday thus far, this one left me reeling a bit. He's four. His baby years are over. I no longer have a toddler son. I have a child on my hands. In so many ways, he is more man than infant. The baby fat has been replaced by lean muscle. He speaks with startling sage wisdom tempered only by the speech struggles of a young one. He throws fewer tantrums and instead finds quiet mischief to occupy the wildness of his spirit. His future self now holds a shape in my mind. I see who he is becoming. I like him.

I know this is crazy talk for you mammas out there who are eking out the final senior days of high school with your baby boys. It's just that somehow this fourth birthday made me realize how soon I will be in your shoes. My realization doesn't make me sad or overly sentimental. Rather, it makes me missional. I have an important job to do here--to raise a godly man, not a good kid.

 I was feeling so many feelings, and there simply wasn't enough chocolate in the house. So, I wrote a letter which I have a wild hair to share. Enjoy.



My Dearest Micah,


You turned four years old today. Those four years went by as quickly as a breath. Impossibly fast. As the days pass away, I understand increasingly that I am doing more than raising a child. I am preparing a man to walk with the Lord. And it is an impossible job. 


The job is impossible because I am broken and flawed. I am physically weak, more so than other mommies we know. It's also impossible because I can model and share with you the Gospel of Jesus Christ, but I can’t make you believe it. I can’t open your spiritual eyes or bequeath to you my faith. I cannot do God’s work. So I find myself completely, utterly dependent upon Jesus for the most important job I will ever do, but I am at peace with the impossibility of it all because I have learned that dependence is good.


More than anything I teach, I hope you really learn dependence. May you never be self-sufficient in your own eyes.  As you grow, the world will tell you that you are strong and powerful and need no one but yourself. Do not believe these lies.  May you always see yourself as the broken, needy creature that you are, for only then can you be made whole and well. 


Many parents pray their children will be beautiful, intelligent, talented, successful, comfortable, and popular. I pray that you will shine like a light in a dark world, be wise in the ways of God, be graced by the gifts of the Spirit, be humble though mighty in Kingdom work, learn to be content in all circumstances and be rejected by the world as your Savior is, for no servant is greater than his Master. Granted, these are crazy prayers. Big prayers. But they matter.


I am appalled that you are already so far on your journey to manhood, but I am thrilled to catch glimpses of the man you are becoming. Your mind is a sponge, taking in astounding amounts of information all the time. You are brilliant, gifted and very funny. Although I never asked for it, you are beautiful, inside and out. You are grateful. You say “thank you” for things adults often take for granted. You are tender in heart toward the Lord and the people around you. Never lose that. Never.


I believe you are destined for great things, Bubs, but not by the world’s limited standards. I believe you are destined for deeds and feats that will last forever. God has magnificent plans for you—plans for your prosperity, never for your harm. In the Lord, you have hope and an everlasting future. My deepest wish is that you will embrace it all. 


I love you, Little Man. I am so proud of you. I feel unspeakably privileged to be your mother, and I will be forever grateful that our Lord entrusted your soul to my care.


Grace and Peace to you,
Mom
2/19/13




Thanks to Jolly Tucker Photography for the stunning photos!

Turning a Profit

A few evenings ago, I was foraging through the refrigerator and pantry trying to figure out what I was going to cook for dinner. My monthly food order stock was running low, and we were due a grocery run. Nevertheless, I emerged with a package of ground meat and a few carrots and set to work making them into a meal. As I sliced carrots, I was struck with how my physical and spiritual journeys are so apparently parallel at the moment.

Some days, my pantry is full. The circumstances are good. No one is sick. We have nowhere to be. The laundry is under control. And I'm having a "good day" health-wise. It's easy to turn out a fabulous meal when the fridge is filled to bursting with fresh fruits, veggies and meats butchered three different ways, but what about the days when the storehouses are depleted? How do I serve God when I've suffered a terrible allergic reaction that puts me in bed for half of the day? How can I love on my family the day after being up all night with a sick baby? What does God expect of me when all I have to offer is a couple of carrots and a package of ground meat?

As the Lord has increased my health, He has required more of me at home. He has moved me into a blessed season of "doing" for my immediate people. The Lord has restored my ability to work with my hands and "rejoice in my toil" (Eccl. 5:19), and I have truly relished His gift. It's funny that I never thought I much liked work until I was unable to do it. Lately, I have been baking with Micah, chasing the kids (which they love in this long trailer), reading to Sara, doing a bit of cleaning and looking for ways to serve my husband in addition to the basics of running a household and caring for two young children. This is all only just manageable on my good days. These tasks stretch me even when everything is perfect, but I know it is what I should be doing. The Lord confirms their necessity by giving me the grace to fulfill them. This "spending and being spent" for the souls of my family is satisfying, purposeful work (2 Cor. 12:15), but some days, for various reasons, I find myself with little to spend. On those days, my body and my will fight an inevitable battle that always ends in frustration. I want my body to cooperate with my will to "do," but my body is different than a healthy body. My body does not "push through." It simply quits and shuts down, leaving my will with nothing but good intentions and malfunctioning equipment.

I experienced this very thing only a few days ago. I was lying in bed the morning after a chemical reaction to fragrances. I remember praying a prayer that my mentor, Mrs. Dixie, first encouraged me to pray habitually a couple of years ago--"Lord, what would you have me do today?" Sometimes when I pray this prayer, I get an image in my head or a strong compulsion in my soul. Sometimes, I don't get anything at all at first, but simply know what to do next, one task at a time, including details like what to cook. It's weird and awesome and always an adventure. But that day, I got words--

"Let Me carry you."

I eventually peeled myself off of my bed, and spent the day writing long overdue thank you notes at the kitchen table and tending to the basic needs of the kids. I believe I managed to cook a simple dinner that night, too. My productivity wasn't very impressive. Micah and Sara were disappointed with my lethargy. I didn't have much to offer that day, but God gave me what I needed to complete the tasks He had in mind for me. He also allowed my bad day to take place on Brandon's day off which prevented me from having to call for emergency help.

What I've had to remember many times recently is that God doesn't expect the same thing from me every day. Oftentimes, I expect more of myself than He expects of me, which means that the battle isn't really between my body and my will but between my will and God's will. And when I'm working outside of His will--even if what I'm doing is a good thing--I exhaust myself prematurely and that work is going to burn up in the end. (Thank you for the reminder last week, Mrs. Dixie!) It's only when I'm submitting each step of my day to Him, offering Him each task before I begin it with my heart ready to let it go and allow Him to change my plans, that my energy lasts and my mundane, repetitious little life bears eternal significance.

That being said, no matter what I'm given, God expects me to turn a profit on it. Matthew 25 contains Jesus' parable of the talents. A master was preparing for a long journey. Before he left, he gave money to his servants. He entrusted different amounts to each servant "according to his own ability" (Matt. 25:15). One servant was given one talent, another was given two and another was given five. When the master returned home some time later, the servant given five talents had made a profit of five more. The servant given two talents made a profit of two more. But the servant given one talent was faithless. He buried his talent in a field and left it there. Basically, he hoarded the gift he was given, and had nothing to show for himself.

I don't know about you, but I don't want to be the servant who buried his talent in a field. It's true that I could save my energy on a good day, sit on my laurels and just enjoy feeling good, but I don't want to hear the Lord call me a "wicked and lazy servant" on judgement day (v. 26). I want to earn the commendation of "Well done, good and faithful servant," whether my profit for the day is two talents or five, even if it means risking my energy and health in the process.

God is not a hard task-master. He entrusts and requires only "according to my ability" (v. 15). If I'm given two talents, He doesn't expect a return of five. On the other hand, on days that I receive only one, I am expected to give Him an equivalent return. When Sara is up all night running fever, I am not expected to clean house the next day, but I am expected to hold my sick girl and help her get better. I am not expected to create a five course meal when I'm only given carrots and ground meat, but He does expect something. On days I am given more, I should joyfully give more in return. This is my spiritual act of worship, my reasonable service to a God who has given me everything (Rom. 12:1-2). While God loves the hymn on my lips, He treasures my cheerful service far more.

Allow me to clarify something--I don't work because I'm trying to ensure my spot in Heaven. My seat is already reserved by no merit of my own. My only security is the blood of Jesus, and I'm banking everything I have on His sacrifice. Rather, I work because I am saved. A heart overflowing with gratitude can't help but spill itself out. When our work comes out of being thankful for our salvation and not fear that we may not have it, the work is restful. It nourishes the soul. The yoke is easy and the burden is light because I never have to worry about whether or not the profit I was able to turn was enough. I never have to wonder--

"Did I say enough?"
"Did I do enough?"
"Did I do it perfectly?"

As long as I am walking in step with the Spirit of God, aligning my will and to-do list with His, I said enough, did enough and although I didn't do anything perfectly, I did it well enough. God redeems even my feeblest offerings made in His name.

Mrs. Dixie shared Jeremiah 31:16 with me last week--

"Refrain your voice from weeping
And your eyes from tears;
For your work shall be rewarded,
says the Lord."

God honors any service we render "as unto the Lord." When I have life in my bones, He honors the walk I take with my children as we point to the things God has made. When the stars align, allowing me to clean, He honors that clean bathtub even if that is all I accomplished. When I am unable to stand on my feet, He honors the thank you notes I write to His people. When I am bedridden, He honors my half-alert prayers and muddled whispers of love and adoration. When I only have ground meat and carrots in the fridge, He honors the meal of hamburger patties and carrot "fries" that I provide for my family. Don't forget--He is the same God who fed 5,000 people with a couple of fish and a few loaves of bread. He does much with our little.

So let us lay aside our frustrations that we are given two talents today instead of ten. Let us embrace our two. Let us prepare ourselves to turn a profit on what we are given with happy hearts. Let us rejoice in our toil! Let us live today for the smile of God! Let us each do according to our ability that we may one day hear the sweet, precious words which will warm us eternally to the core, "Well done, My good and faithful servant!"

Growth: A Health Update

Growth is gradual.

Real, organic growth can only be measured over time. The mixed greens Dad planted in the Autumn were young, tender sprouts the first time I went out to the small patch. The next time they were a little taller, fuller, darker. The next time a little more so. If I had gone out every day, the changes may have escaped me entirely. Even when I am very observant, I cannot see my children grow. I only realize they have grown when Micah's pants are suddenly too short or when I fail to snap the buttons of Sara's onesie.

Invisible types of growth are even more difficult to spot.

A friend gave me a copy of a delightful little book entitled Loving the Little Years: Motherhood in the Trenches by Rachel Jankovic. Rachel is the mother of five children, and experience along with her love of the Lord have granted her much wisdom concerning little ones. In the chapter, "Fruit of the Spirit Speed Quiz," she discusses the importance of observing and commenting upon the personal growth in our children. She writes--

"It is very easy for us to forget about the progress they make and to ignore the problems that they no longer wrestle with. If you have been faithfully disciplining your children, I guarantee you that there are many, many problems that they no longer struggle with....As a parent it is very easy to demean their progress by demeaning the struggle. Instead of praising them and pointing to their progress to encourage them, we ignore it.....Try to notice these little mile markers on the path of sanctification."

Commence domino effect in the brain.

The first thing I realized is, "Wow. I seriously fail at this." I'm pretty good about telling Micah that I'm proud of him, but I'm very general in my praise. For example, I may say something like, "Micah, I am proud of you because you are kind" or "Micah, you are so smart! I am proud of you!" Rachel encourages her readers to be more specific. So during bath time the other night, I told my son, "Micah, I am so proud of you! You used to cry every time I washed your hair, but you hardly ever cry about that anymore. You are such a big boy!" I wish you could have seen the smile of pleasure on his sweet little freckle-nosed face. He was delighted that I had acknowledged his progress!

Our little moment gave birth to other productive thoughts such as "Wow. Look at how far Brandon and I have come! We used to fret over the smallest things. Now we live under a ton of pressure and are granted just enough resources for daily bread, and we are doing really well. Praise God!" and "Wow. Sara may still have fussy moments, but look at how far we've come in a year. We've come from 6 hours or more a day of weeping and wailing to an occasional temper tantrum. Praise God!"

Finally, I directed my course of thinking inward and pondered my own progress. "Just a couple of months ago, I was having daily meltdowns. I can't remember the last time I lost control of myself. WOW! Praise God!" With that thought, I stumbled upon a realization that may be obvious to onlookers, but it's one I have missed almost entirely until that moment because I am constantly caught up in day to day survival mode--"Oh my gosh, I'm better! I'm much better."

And there it is--growth.

My meltdowns were a symptom I never got around to blogging much about. Mostly because it was my most embarrassing one, which is saying something as many of my symptoms have to do with poop. I have a condition called "pyroluria" which is caused by a group of chemicals called "kryptopyrroles." Pyroluria causes "irritability, anger, poor memory, impaired intellectual function, poor immunity and inability to deal with stress" (Gut and Psychology Syndrome, p. 44). I didn't exactly want to broadcast to the entire world that I was yelling at the kids every night and literally pulling my hair out when Sara would cry (girlfriend is LOUD) and occasionally daydreaming about tossing the screaming infant, the rambunctious boy, and the annoying dog out the window all at once and letting them fend for themselves while I cooked dinner. But I am unable to remember the last time I felt this way.

 It's not that I've become more patient or that I'm suddenly a better mother. No. I still feel very stressed when I'm chopping vegetables with a sharp knife that has been known to fly out of my hands due to my clumsiness and trying to check the food in the oven without burning the crying baby clinging to my pants leg so tightly that the pants actually fall off and simultaneously trying to ignore the redheaded boy literally bouncing off the walls of the living room who for all the world looks like a bizarre pinball in a machine while the dog barks loudly and annoyingly at the wind or the birds or the grass or at her own shadow. I still feel the stress that pandemonium brings and I often feel anger. I just no longer lose myself in it. I am now well enough to stop, breathe, pray and move on.

Other little mile markers on the road to restored health:

--I am reading again. I have always loved to read, but for awhile, my brain was so cloudy that I could not read. It was too much work and the words wouldn't stick anyway. The only book worth putting that much effort into was the Bible. I am now reading five books in addition to the Bible. Wow! Praise God!

--I am able to enjoy my kids! A few months ago, I was in a place where I could barely put one foot in front of the other. Taking care of children felt impossible all the time. It feels like I've suddenly woken from an 8 month long coma, and I'm getting to know two amazing little strangers. It's absolutely blissful. Wow! Praise God!

--Getting the kids ready to go outside doesn't leave me breathless or exhausted anymore. Wow! Praise God!

--My kitchen is beginning to look like a science lab with all the weird concoctions I've been making in the name of health. A few months ago, I was doing well to provide enough food for everyone. There was no time for experiments! Wow! Praise God!

--I am now able to take walks. It may not seem like much to you, but it's a pretty big deal to me. And not only am I taking walks, I am carrying Sara in the ErgoBaby, walking uphill and through the woods, lasting for 20 minutes at a time. Walking used to deplete my stores of energy, but now it often replenishes them. Oh, how I have enjoyed these walks! They are always a good time for the kids and me, and I love being outside and feeling strength in my body, a strength I didn't have a couple of months ago. Wow! Praise God!

--While I continue to suffer from dyspraxia, I am having fewer accidents.  Wow! Praise God!

--Getting out of the house no longer feels impossible. It's still hard, but not impossible. And I want to get out! Wow! Praise God!

--My smallest blue jeans are finally beginning to fit again. My smallest pair of pants are snug! I'm absorbing nutrition! Wow! Praise God!

--I have as much trouble remembering my last life-threatening allergic reaction as I do remembering my last emotional blow-up. I continue to react to all kinds of things, but I haven't felt like I was dying in months. Wow! Praise God!

--I no longer feel like I'm suffering. There are still many foods that I cannot eat, but I can eat so many more than I could last summer. I enjoy eating again! I have favorite foods! I'm not hungry all the time anymore. I continue to have pain, but I usually don't notice it. From time to time, I still run into a wall of fatigue (exhaustion you just can't push through), but it's a rare occurrence these days. I have lots of little complaints, but compared to how I was feeling in September, I just can't say that I'm suffering anymore. Wow! Praise God!

 I have a long road to hoe yet.

But God (don't you love those two words when put together side by side?) began peeling away my sick rags last week, and He began with the ones that were covering my eyes. Suddenly, I can see the growth! I can measure the progress!

It would be easy to attribute my improvement to my diet and lifestyle changes, but God removed that possibility a couple of weeks ago when I read this sentence from The Imitation of Christ--

"Neither canst thou be delivered or eased by any remedy or comfort, but as long as it shall please God thou must bear it."

When I read that, I felt the Lord speaking to me as clearly as I hear the hundreds of questions Micah asks me on any given day--"It will not be your diet that heals you. Forget your two year timeline. I AM going to heal you, and I alone will determine the time frame."

Those words were humbling, encouraging, frightening and freeing all at the same time.

Humbling because I am always humbled when the Lord of the Universe speaks to my heart, revealing His watchcare over my tiny existence.
Encouraging because I know healing is coming! It is already happening!
Frightening because God may extend my illness longer than my estimated two years. It could go on indefinitely, and I don't particularly like being ill.
And freeing because I now know that my healing doesn't depend on me following the GAPS diet to the letter. It is simply a tool in the hand of God. I cannot mess this up! That's freedom!

I think I hear the echoes of a trumpet blast of liberty!

Thank you for your prayers! They are being answered! Thank you for continuing to bear witness to my adventure. It hasn't always been fun, but it has most definitely been good. And God's just getting warmed up!

 Up, up, up the hill. One of the hills we climb on our walks.
 Micah likes to say, "Momma, I beat you!"
 Me and my girl on one of our walks.
 Playing in the creek that flows through our farm.


 Sara likes to cook. She's made me a pumpkin soup in this picture.
She also likes to feed me. Good to know she has some nurturing characteristics.
 Her disinterest in baby dolls had me thinking she was all tomboy.
 Being silly!
 
Beet kvass, a blood and liver detox drink
My Master Tonic to fight flu, colds, viruses and bacterial infections.
 Here it is before "brewing" for two weeks.
Here is the Master Tonic post brewing and bottling. I got over half a gallon of medicine and several baggies of prepped veggies for soups, stews, etc.


A true word about growth: "So then neither he who plants is anything, nor he who waters, but God who gives the increase."--1 Corinthians 3:7