Mayo Clinic Trip: Taxi Cab Edition

Aslan is on the move.

Shimmering ripples in the fabric of space and time dazzle our vision here in Minnesota. We stand in awe of the evidences of God's sovereignty. We arrived safely yesterday evening, and though I have been exposed to several triggers which have made me ill, I have not missed a breath or a step. Those Everlasting Arms are flexing (Deuteronomy 33:27). Mercy is holdng me up (Psalm 94:18).


Because this trip was not my idea but God's, I have felt since its inception I should leave the details up to Him. I bathed every decision in prayer. I felt His direction at every turn. But there was one question left unanswered until two weeks before the trip, and we needed to decide--taxi or car rental?

I immediately thought rental. Mom immediately thought taxi. We debated all the practical points. Which would be safest? Which would be the most economical? Which would save us the most stress? We did not know.

I was reading 1 Kings and the book of Acts at the time. In both books, there are examples of God's people casting lots to determine His will. In modern American culture, lot casting is considered to be a game of chance, but the book of Proverbs tells us differently--"The lot is cast into the lap, but its every decision is from the Lord" (Proverbs 16:33). Upon the belief God was leading me to determine His will in a new way, I asked Brandon to flip a coin. Tails. Taxi. Okay.

Our first taxi ride was uneventful. The driver was polite and friendly. He wore cologne, but left the windows rolled down. No big.

Today, we needed a ride to the grocery store in downtown Rochester. Once again, the driver was polite and friendly. And interesting. We small talked on the way to The People's Food Co-op without an inkling of how special this ride would be. We were mostly looking forward to the grocery store. Which. was. fabulous.



It was a mecca of organic, Melissa-friendly food and stuffs. Local farmers sell and trade their produce and meats at the store, which makes them available to the public. Most of the produce is organic. All of it is gorgeous. The meat is local and in some cases grassfed. There is also a large selection of specialty items and natural body care products. Mom and I were in grocery shopping heaven. Seriously, this store made the trip feel like a vacation. I could almost ignore the debilitating pain in my stomach, legs, and arms growing, growing, growing as we passed through the aisles. Almost. Until it began taking my breath away.


On the ride back to the hotel, I felt a nudge from the Holy Spirit as if to say, "Things are about to get interesting." It took a couple of minutes. We were almost at our destination when our driver began telling us about some of his experiences as a driver.

"I've laughed. I've cried. I've prayed with sick people," he said.

"Cool!" Mom replied. "Do you believe in Jesus?"

"Oh, yes. I used to be a pastor of an Assembly of God church."

He proceeded to tell us how after he had prayed for this one man with cancer, the cancer disappeared to the bewilderment of his doctors. He once led a girl to Christ in the front seat. And then he asked if he could pray for me.

"I would love that," I told him.

He took Mom and I by the hand, and began praying. The Holy Spirit fell in that vehicle. There was power in the prayer. I felt a warmth in my chest and torso I cannot explain. And suddenly, the pain all but vanished. I could breathe evenly again. No longer did I feel the need to hunch or clutch my rib cage. Never have I experienced immediate physical relief during or after prayer, but I did in that moment. I was stunned.

We asked his name. Arthur.

Arthur shared with us he was going through his own time of difficulty. No details. I asked if I could pray for him. He said yes. There were tears. I pulled out a handkerchief.

"This is for you," I said.

I told him my pain was better. He let me out of the car, and I couldn't help but embrace him. I loved him. He is my brother. Forever.


When we walked back upstairs, the cleaning chemicals and intense floral perfume did not overpower me. I have enjoyed pain relief all through the evening. Most of all, I have tremendous assurance we are right where we need to be. God has made trust incredibly easy.

He gave me three signs when I asked for one. He worked out every detail. He ordained we take a taxi. He put Arthur in my path as a result. God is here, and He is up to something good.

Thank you for praying for divine appointments! God has already begun answering your prayers! Glory to His name!

Update on Morgan: Surgery went incredibly well. It was not exploratory after all. Her doctor was able to assess and correct the problem immediately. She was discharged today with her pain under control. Praise God! Thank you for praying!


Mayo Clinic Trip: Prayer Request Edition

After six months of thinking about it, praying about it, and planning for it, it seems kind of surreal the Mayo trip is upon us. We leave Tuesday. As in less than two days from now. 38 hours. We are down to hours, people.

A few of you have asked me how I feel about the trip. Truth be told, I am not thinking about it much. I am focusing on the task directly in front of me. At the moment, that means this blog post. For the past week, I've kept a manageable to-do list each day. There is grace to complete what must be completed, wisdom to know what is unnecessary. My days have been full, rewarding, and exhausting--mostly because the kids and I have cooked something up in the kitchen every day this week. Jesus has walked with me step by step, strengthening my soul, making me brave, and multiplying my efforts. (Can you believe I have prepared and frozen enough meals to sustain my family the entire time I am gone? I didn't think it could be done!) The moment my mind wanders from the task at hand to the upcoming trip--so full of danger and unknowns--I abandon the realm of grace.

Venturing outside of grace is like tiptoeing to the edge of a bottomless chasm. I look down into the darkness, feeling all my smallness and fragility. I attempt to imagine what's hidden in the shadows. It could be good. It could be bad. I don't really know. My stomach somersaults uncomfortably. My legs lose their bones. And that is all I can take before I run back to where grace is applied. When it's time to go spelunking, there will be grace for that. Everything I will need--physically, emotionally, and spiritually--is already supplied. But it's not yet ap-plied so I don't look there often. Or for long. And my stomach and legs thank me for it.

SO--I'm taking everything as it comes. I'm neither excited nor anxious about the trip. I am looking forward to walking with Jesus through it all, and experiencing His faithfulness in new ways. I'm curious about His purposes. Will He give me a glimpse of a few? Only the next two weeks will tell.

In the meantime, this is what you can ask of the Lord on my behalf:

1) God's glory. Whatever happens--whether good or seemingly bad--I want Jesus to be honored. His glory is more important to me than answers, my safety, or anything. When you pray for me, ask for God to be glorified first.

2) Mercy/safety. I want this trip to go as safely and smoothly as possible. Transportation is a significant concern. I am so thankful for Wings of Hope. Who could have imagined such a provision? But the plane will be small. I anticipate a fair amount of anxiety on my part. But who knows? Maybe I will like it! Either way, God does not abandon us after providing for us. He will help me out of His goodness and through your prayers. Also, taxi and shuttle services are potentially dangerous even with my mask.

3) Dr. Miguel Parks. I am asking the Lord to give Dr. Parks wisdom and compassion concerning me. I want him to want to help me. I want him to know what he should look for. I don't want a ton of unnecessary tests. Ask God to grant him discernment.

4) Mom. My mother will be my travel companion. This is no easy job. It will be up to her to perform rescue work if I have a severe reaction. She has to help me decide which tests to undergo and which ones to refuse. She is my advocate, and the only person I can really trust on this trip. Please pray for sufficient grace, wisdom, strength, joy, and peace for her.

5) My Superman. I have never been so glad to be married to a superhero, but even superheroes need prayer! Ask the Lord to give my man peace, strength, and patience as he becomes a working single parent for 10 days. His mind will often be in Minnesota. Pray the peace of God will stand guard over his thoughts. Ask that he would keep his eyes on the cross. 

6) Micah and Sara. My main concern is they would feel secure while I am gone. They are sensitive kids, and are used to having their momma readily available. Ask the Lord to manifest Himself to them in ways they understand. The childcare schedule is pictured below. You can pray for their caretakers each day if you wish. Dad is Arden, Nona is Sue, and Honey is Sue.


7) Divine appointments. I see this trip as a mission trip before I see it as a medical one. Ask the Lord to give Mom and me seeing eyes and open hearts. Ask Him to work powerfully in and through us to accomplish whatever He has prepared beforehand (Ephesians 2:10).

8) Helpful answers. I would love to leave Minnesota with a little more clarity and a firm plan in place.

9) Finally, I will ask you to pray for my cousin Morgan. She is more than my cousin--she has been my friend for 15 years. I love her like a sister. She is undergoing a high-risk, exploratory brain surgery on Tuesday, the day we leave for Minnesota. Morgan's neurosurgeon has admitted she is nervous about the surgery. "Nervous" is not a word you want to hear from your surgeon, especially your brain surgeon!

Mom and her mom (Suzonne) are sisters. Our family is close. We find it extremely difficult to leave at such a time, and we just can't understand why God would ordain both events to happen at once. However, we know God is GOD to both of us. We know He is God whether we are together or apart. He is God in Louisiana and Minnesota. We know He is equally present and active in both situations. We have nothing to fear.

Rather than explain the particulars of Morgan's situation in my own words, I have copied her Facebook status below:

"I have now been completely down since the beginning of March and lying flat almost a month. But I have been declining far longer than that. On Friday after getting much worse my doctor called me before leaving town for the weekend and scheduled brain surgery for Tuesday. She will be replacing my shunt for sure but doesn't know yet if she will have to replace the catheter that leads into my brain. Please pray for her as she makes this big decision. This will be the risky part of the surgery for me because my ventricles are slit (small) which puts me at high risk for a brain bleed or for not being able to get the catheter back in or back in a good place which would lead to more surgeries. If at all possible we would like to not have to have this part replaced. Also pray for peace for me and my family. And a speedy recovery. I am by no means looking forward to this. It is my 5th brain surgery on top of 4 other shunt related surgeries in 10 years. I am no stranger to the hospital yet I still have my fears. But my God has brought me through many trials and many hard roads. I know he isn't through with me yet. I maybe very tired a weary of these battles I face but Gods word says that He isn't tired of giving me power and strength. "Hast thou not known? hast thou not heard, that the everlasting God, the Lord, the Creator of the ends of the earth, fainteth not, neither is weary? there is no searching of his understanding. He giveth power to the faint; and to them that have no might he increaseth strength" (Isaiah 40:28, 29) SO I WILL "hope continually, and will yet praise thee more and more." (Psalms 71:14)."

Note: Morgan is wife to Nathan and mother to Shelby, age 4. Shelby and Micah are best friends.


One final thought--If something goes wrong, know that it hasn't.

I wrote these words in my journal the other day. I spoke them to Brandon today on our date.

 Let's decide now we will abide in this mindset. My trip and Morgan's surgery were planned before the beginning of time--small events woven into a fabric of glorious, grand proportions. God is weaving our threads into beautiful purposes. He sees the big picture. He knows what He is doing. His heart is kind, and His purposes are good. We can trust Him. I speak this over me, my family, over Morgan, and over you, Dear Reader--"If something goes wrong, know that it hasn't." Not really and not forever.

Mom and I will post updates to Facebook. For those of you who are not on Facebook, we will also send out texts. We only need your cell number. You can email your number to melkeaster@gmail.com. If you are on Facebook, but would also like to receive texts, please let me know.

Thank you for taking an interest in my life and my family. Thank you for reading my thoughts and praying for me for the past two years. Thank you for praying now. God bless you.

A perfect way to wake up on Sunday morning. I'm gonna miss these monkeys while I'm gone. 
All three of them.

A Legacy of Grace

Mother's Day is almost here. I've been gratefully thinking of my mother and wondering what kind of mother my children will remember when they are grown. It won't be Supermom. She died long ago. I no longer measure my worth by perfect birthday parties, trips to the zoo, little league, and ballet classes. (Not that I think there is anything wrong with these things. I just can't do them due to my health. If I could, I would!) I don't beat myself up over dirty bathrooms or piled high laundry. I know I don't have to follow the latest Pinterest trends to be a good mother. But last night as I lay wide-eyed in the dark listening to swirling wind and pelting rain batter our little tin roof, I wondered what legacy I am creating for my kids. What impression are my words and actions leaving upon the little souls I care for?

Though I'm glad I have learned not to hold myself to an impossible standard, I know I sometimes allow my illness to excuse bad behavior. I'm ashamed to admit it, but deep down I justify my sharp tone, exasperated sigh, and angry body language with the pain turning my stomach inside out and the fatigue transforming me into a useless rag doll. Extenuating circumstances permit me to withhold empathy from the small boy who late at night cries real tears over real fears which seem ridiculous to me, right?

Wrong. 

My illness does not entitle me to any free passes. I have one shot to make the most of this parenting thing. Disease has stolen so much from me. I cannot play the victim, and allow it to thieve away my best opportunity to make the love of God tangible to my precious ones.

But there is this very real problem of being a sinner. Trial is a wine press--it squeezes and applies pressure until juice is extracted from the fruit. What is inside is what comes out. I exude sin because I am full of sin, full of self. Despite my best efforts, I am unable to live up to even my reduced standards of "good motherhood." I will inevitably fail to be the woman I want to be.

It was with these thoughts anxiety began to use my insides as percussion instruments, almost drowning out the sound of the rain. I remembered how I had endlessly chided Sara for picking the pretty purple flower out of the butterfly garden with a disgusted tremble. I shuddered as I recalled my impatience with the kids as they noisily dragged up chairs to our too-small counter in our too-small kitchen, crowding me out of my workspace, asking to "help," which may be the most exhausting request of all. I saw in my mind's eye two sets of sweet brown eyes filled with confusion and hurt, and had a wild thought--I'm failing! I am ruining my children!

I suddenly realized I was trying on that old cape I thought I had put away two years ago. Supermom may be dead, but the woman left behind is still trying to save herself. She still believes her performance will determine how her kids turn out. Gently, tenderly, Truth sidled up beside her, and whispered to her in the dark--

Micah and Sara don't need another savior. They already have One.
They don't need a perfect mother. They need a penitent one.
They don't need to witness unflinching strength. They need to behold God's glory in human weakness.
They don't need a hero. They need a damsel running again and again to the ultimate Hero with all her inadequacies, failures, and sin.
They need "I'm sorry," "Please forgive me," "Mommy was wrong," and "This is why Jesus had to die--for mommies like me."
Micah and Sara need grace.

Grace doesn't give me permission to be the biggest brat in the house (Romans 6). Rather, it gives me the grit to keep aiming for God's smile in the face of failure. It assures me that He is somehow working good in, through, and in spite of my brokenness. He does that, you know.

Grace holds the balance--I can neither parent so poorly I ensure the destruction of my children nor perform so well that I ensure their success. Grace both covers my failures, and puts me in my place. It supplies a welcoming smile on my tired face when baby birds chirp--"Help! Help! Wanna help!" It provides binding when sharp eyes and words wound tender souls. It silences the broken record-like reproach, and finds a glass jar in which to showcase a purple flower freshly-picked by tiny, well-meaning fists. It calms the fears of a sick mother in the night, inspiring her to rise, lean on fresh mercies, and try again. It fills her with the Sweet Spirit who enables her to love in the little things until the little things make well-worn trails through the little ones' hearts, leading them home to Grace Personified.

The mom who burns her cape is the bravest mom of all. This mom courageously admits her limits, and waits with expectation upon the Lord to perform what she cannot. She plants the seed and pleads for it to be given growth. She knows how weak she is, and trusts in the infinite power of her God. She is a mother on her knees because she knows without her Savior neither she nor her little ones can stand. She knows God is after her dependence, not her capabilities.

I am not the mother the holiday cards talk about. I am the mother who yells and fails and falls flat on her face. But from the ground I call out to my God. My kids hear it. They see it. They drink of the wine pressed out by trial--fermented, aged, entirely transformed by glorious, glorious grace.

Grace, grace, God's grace......

Feet quick to run to Jesus and an extravagant expenditure of grace. This is my legacy. And I'm okay with that.







Happy Mother's Day! 

I have a cape to burn.

The Second Anniversary: In Acknowledgment

The Lord has acknowledged the second anniversary of my health collapse by granting me a rare, good day this 2nd of May in 2014. I was well enough to take the kids outside for a few minutes after lunch. As I soaked in the heat and healing of the sun, I thought about the fact that one day there will be no need of a sun because we will have the Son with us for all eternity. He will be light, warmth and healing forever. The life humming in my cells in response to golden rays is a foreshadowing of the eternal state of my soul. Hallelujah!

The weather was perfect. I listened to songs of breeze and birds. I took the kids over to Dad's up and coming butterfly garden where flowers of every vibrant shade are blooming. We made our way to Daisy's grave where Dad planted the yellow rose bush in her memory. I miss that dog. Honeysuckle climbs the shady pine standing tall next to the little patch of still-bare red earth. I breathed deeply of its sweet, heady perfume. We made plans for the blackberries just beginning to emerge from the blooming brambles in our front yard. There will be pie! I found an autoimmune paleo approved recipe on Pinterest the other day. Lord willing, the kids and I will make it together. I wonder if the berries will be ripe before I leave for Mayo in a couple of weeks.

In the stillness of these moments, I have reflected on the scared, young mother I was two years ago. I quietly bless her heart with a sad, knowing smile. She thought she was dying while--in fact--she was coming alive for the first time.

The road has been admittedly difficult--full of heartache and disappointment. In many ways I am sicker today than I was two years ago. I had every intention of planning my "I'm healed"/30th birthday shindig at this time, but I still don't know the name of my disease--assuming there is a name--and my symptoms remain largely uncontrolled.

Nonetheless, I'm not sorry. I would not trade what I have seen and known of God for perfect health.
I have had the privilege of learning the meaning of the psalmist's words:

"Those who sow in tears
Shall reap in joy.
He who continually goes forth weeping,
Bearing seed for sowing,
Shall doubtless come again with rejoicing,
Bringing his sheaves with him."
-Psalm 126:5-6


I have given Jesus my tears and brokenness. In return, He has given joy and wholeness--by giving Himself again and again and again. He is joy. He is wellness. If I miss this, I miss everything.

For all He has brought me through, for all He will do-- 

"Bless the Lord, O my soul, and forget not all His benefits:
Who forgives all your iniquities,
Who heals all your diseases,
Who redeems your life from destruction,
Who crowns you with lovingkindness and tender mercies,
Who satisfies your mouth with good things,
So that your youth is renewed like the eagle's."
--Psalm 103:1-5

I would like to dedicate this beautiful song to my Superman, who has faced with me the difficulties of these past two years with courage and faithfulness. You have loved me as Jesus has loved me--knowing me fully and loving all you know. Thank you, B, for drinking this cup with me, enduring the miles, and not leaving me to face the dragons alone. Happy second anniversary.



If you are new to my blog, I recommend these posts:

The Journey and A Rough Landing: The first post I wrote after my health collapse

The Rough Landing and A Journey: The one year anniversary post

Love in the Little Things

Love is written in both sweeping gestures and humble details. We read it in atoning blood and flowering rose, in declarations of lifelong commitment and daily kisses. We need the weight of the former, and repetition of the latter to fill us up and make us strong. In love, the little things matter--

like "happy food,"


holding hands at the dinner table,


slow walks on hard days,

 


a freshly plowed field ready to grow nourishing food,

 


a pile of beloved comfort items offered to a sick mamma,


the sacrifice of a relaxed Easter morning to worship with the church-starved shut-in,



the simple gift of a handkerchief.


As with the steady drip drop of water onto solid rock, these little things leave a lasting impression where love collects into pools. Like the story of that handkerchief.

I remember the day I received it. On September 27, 2011, my Nona had just been diagnosed with breast cancer, which served me a double blow. The realization that the rock and matriarch of our family who never caught a cold had cancer was an impossible shock; the trauma of losing my Grandmommy to breast cancer eight years prior had awoken from slumber. I was six weeks away from giving birth to Sara, and mentally shaming myself for lamenting over Braxton Hicks contractions and sciatic pain when there was cancer in the world. And my dear friend, Ellie Blackburn, had just given birth to her fourth child.

That mild autumn night, I took advantage of Brandon's free evening. I left Micah in his capable hands, and drove the thirty something miles from Farmerville to Lincoln General Hospital in Ruston, Louisiana to meet my friend's tiny new addition. I meant to distract myself from my own troubles by entering into someone else's joy. But that is not what happened. Instead, my friend abandoned her joy to enter into my troubles--much like Someone Else I know.

When we found ourselves alone, she asked me how I was doing, and without meaning to I selfishly poured out my burdened heart at the side of her hospital bed. Weary though she was, she listened intently and passed me a soft, white handkerchief which I thoroughly saturated. A handkerchief is not typically a thing one borrows, but when she told me it had belonged to her grandmother, I offered to return it after a good washing. Ellie told me to keep it.


I used it once or twice after that, but it has mostly lain forgotten in my purse for two and a half years--until I needed it last month when I said goodbye to a dear friend who was stolen away by cancer. Crying into that handkerchief by Jenny's graveside, I was simultaneously far stronger and more broken than I ever could have imagined when I cried at Ellie's bedside--a recipe which yielded many more tears. I needed that little white cloth. It was such a comfort to me even in its smallness. The reminder of Ellie, who now lives hundreds of miles away, earned a smile from me that day. When it was time to set my face right after the service so I could embrace Jenny's family and say my goodbyes, I stuffed it into my coat pocket and forgot about it--

Until I had need of it again a few days later. I didn't need it for me. The kind of crying I was doing following Jenny's death required hand towels. A dainty handkerchief can only hold so much snot. I needed it for someone else--another dear friend who also lives hundreds of miles away. Madonna, a friend from college, was in town for a rare visit. We had a nice--if brief--time together at Jubilee Farm after not having seen one another for over a year. There was a private soul-baring, tear-inducing moment in the car as I drove her to where she was staying. Madonna apologized for getting emotional, which made me grin because it's something I would do--something I did that night in Ellie's hospital room. I told her not to apologize. I was honored that she would and could cry in my presence. I told her I wanted to be a safe place for her. I hope to be a safe place for all my friends. For strangers even. 

And then she asked for a tissue. Drat. I don't carry tissue because I'm allergic to it. I could only offer her fast food napkins my dad had stuffed into my glove compartment several months ago during one of our road trips to Baton Rouge. My handkerchief remained soiled in my coat pocket at home.

As Madonna wiped her eyes with the roughest, least durable paper in existence, I told her the story of my handkerchief--the friend who gave it to me and how it had brought comfort to my sore heart one night in a happy hospital room and one sad, sunny day by my Jenny's grave and how sorry I was I couldn't offer it to her. I made a promise--"The next time this happens, I'll be ready. I'm going to order some handkerchiefs for this very thing."

And I did. I "won" a set of ten pretty hankies on Ebay two days later.


It took some careful work getting the fragrance and stiffness out of them without having a reaction, but I managed. When I was done, I enclosed my favorite of the lot--the one with the embroidered pink flowers pictured here--in a package I mailed to Madonna. Late though it was in getting to her, I hope it brings her some comfort and reminds her that I'm thinking of her and praying for her. I carry the other nine hankies in a plastic bag in my purse, ready to give them away to anyone who has tears to dry and a heart to be heard. 

Opportunities for grand gestures are rare. You get married once, and then you prove your love every day in dying little deaths to give life to another. You birth a child, and then you spend the next umpteen years forgetting yourself as you intentionally observe, notice, and appreciate all the little things that make up the ever-growing human carrying around your DNA. Jesus Christ gave His life for us once, but never stops saving the soul who wants Him. He draws near. He enters in. He keeps count of every toss in our bed, every sigh of our soul, every tear that falls from our eyes--caused by everything from cancer to pregnancy discomforts--and stores them in a bottle (Psalm 56:8). He has accomplished the big things--covenants and coming and death and resurrection--but He never stops wooing us with the small. He is the most observant Lover. There isn't a detail He could miss.

I remember once marveling to my cousin and family photographer, Morgan Tucker, that God seemed to care about and provide for all the details of our family photography sessions. She laughed and sagely responded, "God cares about pictures because we care about pictures."  

It's true, you know. Jesus cares about the little things because we do. He created us to appreciate them, after all. It is in these little things that we learn to ground ourselves in the rich soil of His love so that when big storms come we stay firmly planted. 

This Man inspires me and sets my heart aflame. I want to love like He loves. I want to smell like Him and feel like Him. I want people to think of Him when they are with me. So I will prepare nourishing meals, fold and put away his underwear, read her favorite book for the hundredth time, look into his eyes when he asks his questions, pray for those I cannot otherwise serve, and keep hankies on hand to catch the unexpected tears of strangers and friends. I will ask God to give me joy in the doing so the love hits its mark.

There are no grand gestures here, and I will never love as perfectly as I would like. I will fail, repent, repeat, but I will never stop aiming. For His sake. And the "I love yous" I sing will be soft, humble songs. They won't earn me any applause, which is good. In this the hearers know it's all for them and not at all for me. The goal of real love isn't to impress, but to leave an impression. It is to help a soul feel its value and a spirit catch a foretaste of the infinite love of our Lord. 

The world is more beautiful when we love in the little things like chocolate pudding and handkerchiefs and open ears and hearts. May we love as we are so gloriously loved.  






The Upside to Being Laid Low

Things fell apart almost immediately after I posted my most recent health update. I am usually a fan of irony--this time not so much. After posting an encouraging report of my progress, I proceeded to have three back to back food-related reactions, which put me into crisis mode. The morning following the third reaction, I opened my eyes to see Brandon looking me over. "Morning, Sexy," he greeted me with a mischievous gleam in his eye, "you look like you've got the mumps!" And indeed, I felt like I had the mumps.

Everything was painfully swollen, especially the lymph nodes in my face and neck. I could not talk or move without wincing. I could tell my digestive tract was ready to revolt given the smallest opportunity. As post-reaction fasting has never served me well, I opted for a diet of white rice, freshly prepared veggie juice, vegetable purees and a tummy-soothing mixture of slippery elm and marshmallow root powder. I was the most fatigued I have been in a long time. My body could do little else but sleep.

Throughout the week, I improved little by little and was almost back to eating my regular diet when I was hit with another wave of reactions. I inhaled food particles in someone else's home, made skin contact with a preservative wax covering a vegetable I was preparing for dinner, and had a mystery reaction to what may or may not have been Sara's baby wipes. The reaction to the vegetable wax was particularly nasty. I had difficulty speaking, walking, or gathering my thoughts for almost 24 hours. I have not recovered my energy or mental clarity since. 

Over the last two and half weeks, I have spent a lot of time in bed. Rest is nice, but it is not my preferred lifestyle. I like full, productive days. It is a difficult thing to get a good taste of hope only to choke on it. It's hard to feel like things are finally going where I want them to go only to find the path has circled back on me. I dislike full-body pain, the choice between hunger and discomfort caused by eating, and the feeling of being so tired I can't hold my head upright on my neck. I despise the loneliness of a bed, the emptiness of not being able to take care of my children, husband and home. I hate giving up any more of my life to this disease--even quarter inches. Left alone in necessary solitude, I must face my frustrations, doubts, fears and grief. There is no escape.

But even there--

His grace is sufficient for me. (2 Corinthians 12:9)

I have a High Priest who sympathizes with my weaknesses. (Hebrews 4:15)

As the sufferings of Christ abound in me, so my consolation also abounds through Christ. The cosmic scales are always even. (2 Corinthians 1:5)

I am hard-pressed on every side, yet not crushed; perplexed, but not in despair; persecuted, but not forsaken; struck down, but not destroyed--always carrying about in my body the dying of the Lord Jesus, that the life of Jesus also may be manifested in my body. (2 Corinthians 4:8-10)

His mercies hold me up. His comforts delight my soul. (Psalm 94:18-19)

He considers my trouble. He knows my soul in adversities. (Psalm 31:7)

He is a shield around me, my glory and the One who lifts up my head. (Psalm 3:5)

Ultimately, it is in these moments of distress I know my Savior best. It is when I am laid low that I enter the veil of Christ's sufferings. If I know pain, He has known it far better. I may face loss, but never more than He. He has insight into grief I will never have for while I have lost a covenant friend, He lost His Friend and Father who had been with Him always, since before time was a concept. He has drunk dry the cup of disappointment, need, and all the wrath of God I deserve. It is when I am laid low enough to taste it with Him, I am invited in--into the inner sanctuary which the happy never see.

It is there I receive something better than happiness. I am able to "rejoice to the extent that [I] partake of Christ's sufferings" (1 Peter 4:13). I am made "exceedingly glad with [His] presence" (Psalm 21:6). Time and time again, my sick bed becomes a magical place where suffering is transformed into joy.

This season of Lent has been difficult. I did not feel God leading me to formally participate, so I didn't. Nonetheless, I have lost without meaning to. I lost my comfort foods when I began my new diet. I lost one of my closest friends. I lost my momentum in the pursuit of health. All of this loss has driven me to study the sufferings of Christ with greater attention to detail. And I have noticed something new.

In His final hours, He never spoke a word on His own behalf. In every gospel account it is written, "He answered nothing" in His own defense. But He speaks for those He loves. He serves them and prays for them until He is taken in the garden (John 13-17). When the soldiers ambush Him, He pleads for His beloved--"If you seek Me, let these go their way" (John 18:8). When from the cross He sees His mother weeping for Him, He provides for her another son to love (John 19:26). He prayed for His persecutors as they bruised and mocked Him (Luke 23:34). In His darkest hour, He looked out.

When I suffer, my instinct is to curl in on myself, but the example I found in my Savior inspired me. In my moment of trouble, there was such a sudden outpouring of need all around me that I could not help but be distracted from my own. My loneliness gave me time to pray. My discomfort made me instinctive about what to pray. My grief granted me empathy. I was not separate from my sufferings friends; I was one of them. I was able to pass along the strength God was lending me. God even gave me opportunities to serve others in a practical way, which is something I am rarely able to do. It was such a delight!

Before I knew it, I had forgotten myself. Forgetting oneself is absolute bliss. Really. I wish I never had to think of myself again. In prayer, God has altered my vision, and in doing so He has altered me. May I never forget that suffering is a privilege and an honor. I am ready for some relief, but I'm not sorry over what has transpired. 

Sick and struggling friends--I have not forgotten you this week. I'm still praying. It's just the fatigue is eating me for breakfast every morning, and all I can do is pray. I believe you need my prayers more than you need my words anyway. Know that when I feel my own exhaustion, pain, hardships, sickness, loneliness, anxieties and grief, I am thinking of yours as well and bringing them all before the Lord who loves us, who gave Himself for us, who is with us and for us through it all. Because of the cross. Because of the resurrection.

Hallelujah, what a Savior!

Happy Easter.




Cracks in the Castle Walls: An Evening Prayer

There are cracks in the castle walls tonight. I am weary of bone and soul, brick and mortar. Draw the bridge and lock the gate! Toss away the key! Grant entry to no one!

But I cannot keep You out--You who will not let me alone. Those wizened eyes pierce through the canopy of dusk-laden clouds into my darkened passages and mourning chambers.

Ah, You want more than to see my filth; You want me to put it on display. So be it. Light the candles! Here it is--festering and newly opened wounds, diseases of body and of mind, all my inadequacies and failures and sin piled in a jumbled heap. 'Tis a vile mess, I know. And it's all too heavy to carry about and hide away, so I leave it here.

You offer a trade--my wounds for binding and the balm of Gilead; my disease for health in all my being; my inadequacy for all sufficiency, my failures for your success, sin for glory. You clean it up and carry it off. In my brokenness and disrepair, You offer more than to patch me up.You invite me to become other--like You.


Thank you for my crumbly bits which send me looking for Real Strength. Thank you for must and mold that I might welcome Fresh Breath and Sunlight. Your offer is both frightening and thrilling, but I will accept, Great Giver. Not because of your open hands but because you are beautiful and perfect in your otherness. I will have You before merciful exchange.

For You I will open the gate though the enemy and his bloodhounds run at your heels. Come in, My King. Grace this citadel with your glorious face. May your fragrance waft through these halls. Both castle and key are yours forevermore.

4/4/14

Let Us Go to the Cherry Tree: A Spring Parable

 

Come away with me, Darling. Let us go to the cherry tree. She tells a story to anyone who will listen. A love story. Quiet now--she is soft-spoken, barely audible above the drone of delighted, winged insects adorning her head. Look how her nimbus of pink and white locks rustle and curl so elegantly in the spring breeze against a backdrop of azure sky. Admire her with me and listen.

"It was not always so," she says. Only a breath ago, her limbs stood stark and gnarled, as grey as the winter sky--the very picture of death. A blazing Indian summer withered her former glory. The autumn wind tore at her, stealing away what was left until she was a ruin--nothing to look at.

But he looked. More importantly, he saw. Through a haze of ashen mist and a flurry of harsh, winter storms he kept watch. He never forsook her. He was enraged by her loss and grieved by her sadness. He sang to her songs of consolation and bathed her bare shoulders in gentle, yellow kisses. Even in repose she was precious to him.

All the while, he knew what was to come. He knew what he would do. He waited. He made her wait. She knew not his reasons. Was not her mortification complete? She reached for him in desperation, and gathered him into herself.

Unexpectedly, something changed. Congealed blood turned viscous in her veins. Her heart gave a laborious thump. Snow and ice melted, penetrating the hard soil at her feet. The mist above dissolved, and she could see him as he was. Not in part, but his whole! The voice of her lover called out to her in a tone of white light and searing passion--"Come forth!" She leaped at him from her tomb bedecked in lovely hues, smiling rapturously into his glowing face.

She lives! She is his. He is hers. Nothing can touch her now. She does not fret over wind or rain, not even the fiercest tempest. She joyfully offers sustenance and shelter to the tiny ones who need her--the stunning male cardinals who proclaim their grand intentions from her fragrant boughs, the buzzing things which surreptitiously sip the robust wine of one bud and then another until they drift away sleepy and askew.

She tells them all a secret which falls upon my ear--"New! New! I once was dead, but now am living! He has made new!"

There, Beloved. Now count the wounds her story heals.


The Art of Tug of War

 
I am learning the art of tug of war. For two years, I have battled on both sides of the rope. On one side is acceptance of my lot. John Newton once wrote, "Everything is needful that He sends; nothing can be needful that He withholds." For reasons known only to Him, the Lord deems my trial needful. I do not understand, but I trust the heart that bled for me. On the other side of the rope is the full collection of my efforts to be well, which are many and varied. I never stop trying. I don't feel allowed. As much as God wants me to gratefully accept what He has justly and righteously given, He also wants me to want to be well. The only surrender I am permitted is to His plan for my life, not to this illness. It's an exhausting game, but I hold my grip for the grip of Sufficient Grace on me.

After numerous dead ends, setbacks, and advancements on one front as I lost ground on another, I am thrilled to report I am finally, undeniably better.
  • My reactions are not as severe as they once were. This time last year, I was going into anaphylactic shock 1-3 times per week caused by an assortment of triggers. As I write this, I cannot recall the last time I "shocked." I still experience chest tightness, a barking cough, mental confusion and an overwhelming drunken sensation during acute episodes, but these symptoms are not life threatening. We know how to deal with them. And thankfully, I am no longer terrifying my family on a regular basis. I continue to react to a frustrating number of things most people would never consider to be unsafe, but the receding strength of my reactions gives me hope that one day I may live a life with fewer walls.
  •  I have more energy. I continue to experience fatigue, but it feels more manageable now. I don't think it's easier just because I'm used to it. I don't think anyone ever gets used to feeling like standing is the healthy person's equivalent to a half marathon. I just understand it better and can anticipate it with more accuracy, which makes it livable.
  • For the most part, my pain remains manageable. I have good days and not so good days. I can't do everything I want to do, but I can do most of it without pain taking me over.
  • During my check up with Dr. Yakaboski this week, my thyroid, adrenal and liver function all showed improvement! Praise the Lord!
Truly, God has done this. He has heard and honored our prayers. His hand has been so evident, His direction perfectly clear. He has given my doctor wisdom concerning my needs. He has sent people into my life to offer me a helping hand. He has given me the strength and resolve to press on each step of the way. Thank you for "helping together in prayer for us, that thanks may be given by many persons on [my] behalf for the gift granted to [me] through many" (2 Corinthians 1:11). Please don't stop praying!

I want you to know where your prayers have led my family and me. So in the spirit of full disclosure, I will share a few key elements which have helped me to heal:

  • Let's get this one out of the way: Daily (and sometimes twice daily) coffee enemas. TMI, I know. Whatever. Let's get over it together, shall we? They have been a huge help in reducing my histamine burden and toxic load. My entire body feels instantly better afterward, especially during acute episodes. Coffee enemas are a key aspect of natural cancer treatment per recommendation of The Gerson Institute. You can read an article about it here. My friend Caroline (aka Gutsy) also has an informative post about coffee enemas if you are curious about the method to my madness. 
  • Stress management. We all know that stress is bad for us, a fact which is doubly true for people with chronic illness. Stress is an actual trigger for mast cell activation disease patients, and can cause anaphylaxsis all by its lonesome. I have been forced to learn to manage my stress. I realize that not everyone can live how I live. Some people work 9 to 5 jobs or are full-time students, some mothers have 8 children and some people have zero familial or community support. Nevertheless, I think everyone can afford to adopt at least one of the following principles:  

    •  Prioritize your life by what must be done today, what should be done today, and what can wait until tomorrow. Guard your "spoons" so you can do the things which matter most. 
    •  Have a plan, but hold it loosely. This helps you to balance rising above your disease and giving yourself permission to be sick. Frustration about your illness only adds to your stress load. Believe me. Holding your plans loosely also gives the Holy Spirit an opportunity to shape your day as He sees fit. His plans are always better than yours. Living life at the ready for Him to sweep through and involve you in something eternal is the most adventurous and fun way to live!
    • If you are able to get out of the home, limit yourself to one event for the day. No more. If you work or go to school, that is your one outside event for the day.
    • If you are running behind on dinner or kids are whining or you feel the pressure of a million things left undone, STOP, BREATHE DEEPLY, AND PRAY. God is eager and able to give you the grace you need to complete the tasks of the day. Running about all frantic and flustered helps no one, least of all you.
    • Smile, laugh, sing and dance as often as you can. Especially if you don't feel like it. Force feed yourself with happiness.
    • Spend time outdoors. Fresh air and sunshine are good for all the bits that make you you.
    • Reserve time every day to do something creative or enjoyable. I learned this one from my Jenny. She was good at knowing what was good for people.
    • Take mornings slowly as often as you can. Sleep in whenever possible.
    • Limit toxic and difficult relationships. Many people would advise you to nix these relationships altogether, which is great advice in very particular situations. But I often find it is neither practical nor biblical to completely sever all ties with the unlovables in our lives. Many of these relationships cannot be escaped for one reason or another, and Jesus calls us to love the difficult ones because He does. But create boundaries. Boundaries are a form of love. No one should be allowed to have a free go at you whenever they please. It's not good for you or for them.
    • Deep breathing and meditation. I recommend specific meditations such as memorized scripture and reflections upon God's character, His blessings, and His history of faithfulness with you. Read and ponder His promises in the Bible. These good, wholesome thoughts nourish and invigorate the soul, which is what stress management is all about.
    • Count your blessings. Keep a gratitude journal. Anger and bitterness (stressors) cannot find entry into a thankful heart.
  • Daily detox baths. I take a 30-45 minute bath every day using 2 small scoops of magnesium crystals and sometimes add either 2-3 cups of organic apple cider vinegar or 1 cup of bentonite clay.
  •  Regular exercise. I have experienced health slumps which have caused brief lapses in the discipline, but if I can at all, I do--usually 4 or 5 days per week. I like a mixture of low impact cardio and yoga. Usually, I use the Wii Fit board as a step, and walk up and down while I watch something on Netflix. Sometimes, I do a few minutes of light rebounding sitting on the side of my bed. I try to do at least a little yoga at the end of every workout. Yoga is my favorite. I like it because it's challenging without being harmful or dangerous for my joints, and it makes me feel oh so good.
  • Twice monthly lymphatic drainage treatments at Dr. Yakaboski's office. My frequent reactions cause my lymph nodes to swell painfully. These treatments give me welcome relief from discomfort and healing support for my body. During the treatment, Dr. Yakaboski also performs acupressure work to balance my emotions using a technique called B.E.S.T. A particular application of this technique, which takes the body out of "fight or flight" mode, has proven to be life saving for me during anaphylactic shock. I have purchased the instructional DVDs so my family can learn to perform it in case of fire ant or wasp stings this summer.
  • Twice monthly chiropractic treatments. I firmly believe chiropractic care is essential for overall health. If the spine is not properly aligned, the body is not operating optimally. My chiropractor specializes in a program called Total Body Modification (TBM). TBM is another form of acupressure work (dealing primarily with the acupressure points on the spine) which can treat specific symptoms as well as support the operation of full body systems. I use the most basic TBM techniques for every acute allergic reaction at home, and have Dr. Frieden do the more complex, fancy-schmansy stuff in her office during my visits. Last October, I told her of my anaphylactic reactions to every little thing. She performed a specific TBM sequence, and since then I have had significantly fewer and less severe episodes of anaphylaxsis.
  • Regular at-home BioSet and TBM treatments. These acupressure treatments slow or stop reactions very quickly. It's like pressing a "reset" button on my body. It's difficult to explain what it is or how it works, but I love my sister's take on it. After having a systemic reaction to Chinese food, she asked me to treat her even though she isn't much into my hippie ways. She came over to the house and after the treatment, she commented, "That is some weird crap, but I feel a lot better!"
  •  Nutritional therapy as directed by nutritional therapist, Jennifer Nervo of the blog 20 Something Allergies. I discovered her blog in September 2012, and have followed her ever since. Her Baby Steps to Better Health series helped me a ton in the early days of my illness. For 18 months, she has assisted me as I have fumbled and bumbled about in an effort to get food safely into by body. She is now directing that effort. We've only just begun the nutritional protocol, but I have been implementing a few new-to-me concepts for several weeks now to which I have responded quite well. Jennifer understands how food works for the body, how the sensitive body responds to food, four day food rotation cycles for allergies, low histamine diets, and how to target autoimmune and mitochondrial disease with a specific nutritional approach. She knows each patient comes to her with individual needs, and she tailors her knowledge to fit those needs. I plan to post about my experience after I make it through the second rotation cycle early next week.
  • Healthful miscellany: 
    • Rest and refusal to feel guilty about rest
    • Sunshine and fresh air as often as weather and health permit
    • Humbly and gratefully accepting help from others
    • Avoiding triggers (i.e. staying away from crowds and uncontrolled environments; avoiding foods which make me sick; letting others handle and wash new clothing; having Brandon screen all of my mail for scents and chemicals)
    • Wearing a double mask any time I leave my home. It's social suicide, of course. It earns me lots of stares--some curious, some dubious--and very few hellos. Children are afraid of me. But it keeps me alive and mostly well. 
I will not lie to you. None of these things have come easily. It's been a slow, laborious process. Each component was implemented during a different season of my illness, and some of them have required a great deal of courage and trust. The battle for my health is costly in every way something can be costly, but it is not waged out of angst, bitterness or desperation. Mysteriously, the God of Paradoxes has created a paradox within me--I gratefully accept my disease as a good gift given out of God's righteous wisdom while I fight the disease like the assault from the Enemy it is.

It's a tug of war. Gratitude and desire. Contentment and fury. Surrender to the Lord and defiance of the Enemy. The rope must remain taut or I fall. It's exhausting and impossible apart from Christ. But through Him, I can do all things. He is the strength of my resolve, the power behind my work, and the song in my heart.

"Unless the Lord had been my help
my soul would soon have settled in silence.
If I say, 'My foot slips,' 
Your mercy, O Lord, will hold me up.
In the multitude of my anxieties within me,
Your comforts delight my soul."
-Psalm 94:17-19

Drowning and Swimming at the Same Time

"I didn't know--" She tried to swallow the overwhelming sadness caught in her throat. "Jonathan dies in battle." 
The world fell still and cold around me. I am David. And who is David without Jonathan?
11/3/12

 taken November 2012 at the Toledo Bend lake house


When our friendship began in August 2012, Jenny was studying the book of 1 Samuel with her women's Bible study group in Houston. I had known her for about two weeks when she declared I was the David to her Jonathan. What an insightful foreshadowing that was.

"[T]he soul of Jonathan was knit to the soul of David....then Jonathan and David made a covenant because he loved him as his own soul."
1 Samuel 18:1,3

I am hesitant to use adequate language to describe our friendship because I know it may be interpreted incorrectly by some. It makes me tremble to think there are people who might misunderstand what I want to communicate. So I offer this disclaimer: don't fall into the cultural folly of thinking the only love of great strength is romantic love. It isn't. Today's cheap definition of romance could never stand up to what we had. Stated briefly--ours was a covenantal friendship. To borrow David's words in 2 Samuel 1, "[She was] very pleasant to me; [her] love to me was wonderful, surpassing the love of [men]."

Ours was a connection unlike anything I have ever experienced. My friendships are few, long-lasting and miles deep. Normally, I watch a person carefully before I choose them, and I give my heart by inches. But Jenny and I did not choose each other. We were given to each other. Our friendship began fast and furiously--yes, like falling in love--and our souls were irrevocably entwined before I knew what had happened. The kind of love God was calling us to was whole, true, painful, put-your-soul-on-the-line love. 

You cannot protect yourself in that kind of love. No wall you build or shield you bear can stand up to it. And you would not want it to. Not really. It is the kind of love that changes you forever, leaving behind invisible tattoos upon you both with each meeting and conversation. It is the kind of love in which you see the other person's most admirable strengths and gravest sins and love them still--maybe more. You battle her dragons and she battles yours--back to back and swords at the ready. You praise her successes without a hint of jealousy, angst or irony. Without a hint! Even when one of you is dying and the other is beginning to heal. You want to suffer and die in her stead, and would if you could. You can't, but you hurt with her. You pray for her. You offer what little strength you have and hope it helps. You become so connected you melt into her and she melts into you so that you no longer can tell where you begin and she ends. You can boldly tell the truth always because you never doubt how loved you are. You can challenge one another, disagree, say hard things and come out better and stronger on the other side. You don't worry about offending. Pure love cannot be offended. Ever. With the exception of Christ's love for the Church, ours was the purest I have known. I say that because self-service was never a thought, offense never took place and mutual understanding was a reflex--words optional. We were for one another more than we were for ourselves.

And I have lost her.

She passed on March 8, 2014 after two years of intense suffering. It is a great mystery to me that I am standing, walking and talking. Have you ever attempted to tear apart something knit together? It's almost impossible to do and once done, the only thing left behind is a frayed mess of something now unrecognizable. I feel less like myself without her in the world. I am drowning in an ocean of grief. That is what grief is--drowning. When a wave hits you, it takes the breath away. It literally aches and burns in the lungs. Though I have been actively grieving for her for almost a year--for her suffering and in knowing she was slipping away--I haven't gotten any better at the whole "grieving well" thing, whatever that looks like.

Yet I am surviving. (Surviving sucks, by the way.) I stand because the mercies of the Lord hold me up (Psalm 94:18). I am too wounded to walk, so the Lord is carrying me in His arms (Isaiah 40:11). Talking is hard. Writing is harder. But this is a chapter in need of writing, and we all do what we must. Somehow I smile. I smile at the nosegays the kids and I craft from the delicate wildflowers popping up in our yard because "nosegay" was Jenny's favorite word. I smile at my children, my husband and all things happy because she was happy, she is happy and she would want me to be happy. I smile because she is no longer suffering. She is free! She is no longer wearing those "sick rags," but is instead clothed in gleaming white robes of righteousness! I smile because she is in the best place with the best Companion. All the needs, longings and hopes of her soul are entirely fulfilled. That knowledge is precious to me. The loss is sharp and brutal, but I am swimming in a sea of hope because I know I will see her again. And I'm going to be okay--even here and now--because as much as I loved the girl, she wasn't my everything. I was careful about that. Jesus is my everything, and He's not going anywhere. He is actually nearer for the pain.

To my surprise, Jenny was buried about an hour from Jubilee Farm, so Brandon and I were able to attend the burial service. The drive was gorgeous. Life was bursting from the ground in fresh, vibrant blooms. New calves chewed bright green grass near their mothers' knees. Warm sunlight poured from the heavens--a smile of victory from my yellow-souled friend. Wind rushed through the trees, making music in honor of her free spirit. I had prayed for a perfect day. God delivered.

As I hugged her family--each embrace feeling like another difficult goodbye--and gazed at that horrid coffin and that awful hole in the ground, the voice which kept repeating, "It's over, it's over," was drowned out by the Voice of Truth--"It's only beginning. It's going to be more than okay. All this heartache and all this pain will heighten the ecstasy of the reunion to come! Believe Me and rest joyfully in hope!"

 On the way home, budding pear trees reminded me of the reality of the resurrection. When I see her again, my Jenny will not be some ethereal wisp of what she was. She will be a perfected version of herself in physical form. She will laugh, eat and dance. I will recognize not only her spirit, but her face. And she will recognize me. Our dreams will be fully, exponentially realized. We will
"join hands and grin conspiratorially at one another before taking an unbridled, running leap and plunging into the vast, deep waters of endless Jubilee!" (Quote taken from my post "Dreams of Jubilee")
taken 2/10/13 at Juliet's first birthday party
~~~~~~~~~~~~~~~~


On February 19, the day of our final communication on this side of heaven, I wrote the following tribute to my covenant friend:

The only show of light more precious than the first sun rays of the morning caressing the earth in happy greeting is the glow of late afternoon. With a mustering of effort, an aria bursts forth on golden breath before lapsing into lullaby. There is something glorious about the victory of the moment. It is a final act of  rebellion against the gathering darkness before she fades peacefully into her rest. And nothing in creation is more graceful than her farewell painted in fire and roses on the western horizon. Though we are saddened to see her go, we are filled with unspeakable gratitude she came at all, whispering secrets of her Creator only she could tell and leaving life in her wake. We will weep at the loss, but will take comfort in the assurance we will see her again, renewed and more glorious than we can now conceive.



photos taken November 2012 at the Toledo Bend lake house


Though she appears in many posts written between September 2012 and March 2014, the following are my "Jenny posts" in which she is featured:





Valentine from God


Last night as I prayed for "my people," God laid three ladies on my heart. One is in the midst of a painful separation. Another is a hard-working single mom. The third is operating as a single working mother while her husband is serving in the military. He finishes his one year of service in August.

Valentine's Day can be unpleasant. For every blissfully happy couple, there are three more trying to piece back together their shattered hopes and dreams.

If you have been hurt, this valentine is for you. If you have been broken beyond repair, this valentine is for you. It's for you whether you're blissfully happy, married 50 years, terribly lonely, or thriving in singleness. Whether you love this holiday or hate it, this valentine is for you. If you know Jesus, read it as a love letter. If you don't, allow me to introduce you to this amazing Man I love. I pray you'll love Him, too.

For ET, NB and JB. 
You ladies have my deepest respect and affection. 
xoxo


Dear Beloved, 

I have loved you with an everlasting love. (Jeremiah 31:3)

I am your Husband. (Isaiah 54:5)

I am yours and you are Mine. (Song of Solomon 2:16)

As the bridegroom rejoices over his bride, so I rejoice over you. (Isaiah 62:5)

See—I have inscribed you on the palms of My hands. (Isaiah 49:16)

You are the apple of my eye. (Psalm 17:8)

I know the number of hairs on your head. (Matthew 10:30)

I keep your tears in a bottle. (Psalm 56:8)

Behold--what manner of love I have bestowed on you that you should be called My child! (1 John 3:1)

I chose you before the foundation of the world. (Ephesians 1:4)

I have demonstrated My love toward you by dying in your place even when you hated Me. (Romans 5:8; 1 John 4:9-11)

Because you are in Me, you are not condemned. (Romans 8:1)

You are perfect in My sight—beautiful and glorious, without spot, wrinkle, or blemish. (Ephesians 5:27)

If you are Mine and your heart condemns you, do not listen. I am greater than your heart, and I know all things. (1 John 3:20)

I want you to comprehend the width and length and depth and height of My love so you will be filled with My fullness. (Ephesians 3:18-19)

Nothing—neither death nor life, nor angels nor demons nor powers, nor things present nor things to come, nor height nor depth, nor any other thing in all of creation can separate you from My love. (Romans 8:38-39)

When you pass through the waters, I will be with you. Raging rivers cannot overflow you. When you walk through the fire, you will not be burned. I am the Lord your God, your Savior. I am with you and always for you. (Isaiah 43:2-5)

I have set you as a seal upon My heart, as a seal upon My arm. My love is stronger than death. Many waters cannot quench it, nor can floods drown it. (Song of Solomon 8:6-7)

I am always near. I rejoice over you with gladness! I will quiet you with My love. You fill My heart with song! (Zephaniah 3:17)

With exquisite joy, I look to our wedding day! You will be resplendent dressed in My righteousness. Your heart will be filled with rapture! Your tears, pain, and sorrow will be but a distant memory, and we will be together forever! (Revelation 19-22)

Hold fast to Me for I am your life. (Deuteronomy 32:47)

I will never let you go. (John 10:28)

May you know how much you are treasured this Valentine’s Day and every day. (Deuteronomy 14:2)

Love,
God

Afraid to Hope: My Feelings About Mayo

From the moment I made the decision to go to Mayo Clinic, I doubted myself. Not for a moment have I truly believed I will receive help there. Not for a moment. The best outcome I can foresee is a possible diagnosis, and I am not certain I will even receive that. I have changed my mind a hundred times. The question I have asked again and again is, "Is a diagnosis worth risking my life and health, leaving my husband and children for a long period of time, placing this burden upon my entire family, lending myself to the mercy of doctors and a system I do not trust, subjecting myself to a myriad of dangerous and painful tests, and incurring an incredible medical debt?"

My mind answers with a resounding "no." I have done my research. I am aware of the recommended treatments for mast cell activation diseases, and I have tried them. They didn't help. Thus, I turned to natural medicine. I stand by my choice. I am aware of several people with mast cell disease who have improved using natural methods. Looking to Mayo feels like a betrayal of my beliefs. The idea of leaving my husband and children for an indeterminate amount of time grips my heart with steel and ice. When I imagine what it will be like up there, I cannot breathe. But when I stop mentally listing the meager pros and numerous cons and bring my struggle before the Lord, I am enveloped in an ubiquitous sense of peace I cannot argue away.


During the early pitch black hours of February 1, thought and spirit were battling once again when I recalled the story of Gideon. I had read Judges 6 the morning before. The story begins with Gideon threshing grain in secret for fear of the greedy, destructive Midianites who were oppressing Israel at the time. In his fear, the Lord declares to Gideon, "The Lord is with you, you mighty man of valor!" (v. 12) God tells Gideon he will save Israel from the Midianites, but he was slow to believe. Gideon was least in his father's house and of the weakest clan of his tribe (v. 15) and very like me--lily-livered. He felt the enormity of the calling, and it terrified him. He knew he would not be able to take the first step unless he was beyond certain the Lord was with him. So he asked for a sign. And another. And another--until he was forced to believe the word of Yaweh.

When I read the story, I certainly identified with Gideon, but what struck me is God's response. God could have passed him over or killed him for his lack of faith, but He patiently fulfilled all three signs--each one slightly more ridiculous than the one before. The reason for God's patience, I think, is that He saw in Gideon a heart willing to obey Him even to his death if only he could be sure it was God leading him there. I think this resolve is the reason God calls him "a man of valor." He doubted himself, not God. So the Lord did what was necessary to meet Gideon where he was in his mustard seed sized faith, proving to His man that He was with him. It was God's response to Gideon that gave me the courage to ask Him for a sign of my own.

Up until then, I was trusting the fulfilled sign my mother had been given, the wisdom of the three praying women I consider to be my spiritual mentors, and the deep seated feeling in the center of my stomach telling me to go in spite of my hesitation. For a person with a bit more faith, these things probably would have been sufficient. But I am like Thomas--disbelieving the evidence of my own eyes because my mind is so assured of the facts.

I told Him I couldn't go to Mayo unless I was absolutely certain He wanted it. I couldn't do it to myself or my family. I could only go if I knew. So I asked God to do something simultaneously difficult and easy. I asked for a good word about Mayo from an unbiased source if I was to go and a bad word about Mayo from an unbiased source if I was not to go. I told Him I wouldn't make an appointment until I had an answer. I was honestly hoping I wouldn't have to make an appointment at all.

The sign was difficult because I don't often speak with unbiased sources. I see or hear from about ten people on a weekly basis, and two of those are my kids. Everyone close to me has an agenda, and though those agendas differ, the aim of them all is my improvement. These people love me fiercely, and they all have different opinions about what is best for me. Not one of them was qualified to give the word. So that left phone calls and Facebook, and it's unusual to get an unbiased opinion on Facebook. The request was also easy because it was just a word and well--it's God. He can make a donkey speak if He wants.

On February 5, I was driving into town for an appointment and making conversation with Jesus. I told Him that I knew how He did things. I knew He was going to wait until the last possible minute to deliver the sign. He may even seem late to me, but I believed He would send the word. I was watching and waiting for it.

Later that evening, I had an impromptu Skype session with my friend, Madonna Gil. I don't remember which one of us brought up the topic--Madonna told me she had considered going to Mayo for her own disease, but she wasn't sure they could do anything for her. As she said this, I was preparing to tell her about the sign I had asked of the Lord. Before I could get it out of my mouth, she told me that her former roommate's parents had both gone to Mayo, had loved it and strongly encouraged her and anyone to go.

There it was: an entirely unbiased good word. Madonna even echoed my own feelings about the place. I told the Lord only a few hours prior that I was watching and waiting. The sign was on the tip of my tongue as she gave it. And still I tried to explain it away! I argued details like "It wasn't her experience" and "I may have been the one to bring up the subject, so it doesn't count." I didn't know how badly I didn't want to go until that moment. A corner of my mind fretted and prayed about the thing as my friend and I continued our conversation until a sharp, clear command rolled across my brain like one of those moving LED banner screens--"Stop! I have delivered the sign you asked for just as you asked for it."

I shared the entire story with my friend before we ended our conversation. "You were the mouthpiece of God for me today, and I hate you just a little bit for it," I told her with a smile. "I wanted the answer to be 'no.'"

I thought about what I was going to have to do as I laid upon my bed that night, which resulted in an acute panic attack. I thought about how I'm going to be in a nasty, toxic hotel room that will make me very sick, how I'm going to have to go into a hospital full of chemicals and people and doctors who are going to look at me like a commitable lunatic, how I'm going to have to subject myself to tests which could be extremely painful and even life threatening for me, how I'm going to be so very lonely even with my mother there, how I'm going to yearn for my husband and children, how I'm going to be the sickest I've ever been in my life, how hard it's going to be to source and prepare food I can eat while being that sick, how much it will cost, how I could get sicker or even die while there. And all for what? A diagnosis?

In my turmoil, I remembered that God is not the author of fear. I found some peace through prayer and scripture which came to mind. I acknowledged that God was within His rights to send me to my death if He wished, and if He was going to kill me, I was sure He had a perfectly good reason.

Real peace came the next morning. I was reading Judges 13 in which the Angel of the Lord came to Manoah and his wife to tell them they would have a son who would begin to deliver Israel from the Philistines. Manoah offered to prepare a meal for the Angel before He left them, but Manoah was instructed to offer a burnt offering instead. The Lord ascended to heaven on the flame of the offering, and the spectacle was so magnificent that Manoah and his wife fell on their faces. Manoah lamented that he would surely die because he had seen the glory of the Lord.

"But his wife said to him, 'If the Lord had desired to kill us, He would not have accepted a burnt offering and a grain offering from our hands, nor would He have shown us all these things, nor would He have told us such things as these at this time.'" (Judges 13:23)

Even now, tears spring to my eyes as I ponder God's goodness, faithfulness, kindness and patience.

The Fear immediately retaliated against my joy, attempting to quell the beacon of light shining into my heart. "It will be the darkest hour of your life thus far," he whispered.

A brighter light--"I AM nearest when the night is darkest."

I trembled at the thrilling thought. Oh! How near and precious He has been in the past! Do I dare to imagine greater joy and intimacy? For that I'll go! It will be worth it!

I would like to tell you doubt no longer plagues me, but I can't. I feel like I'm giving up on something I haven't given a fair chance to work. I feel like I'm betraying a part of myself. I really believe in natural, holistic medicine. Though it may not be evident to everyone, I am better because of it. My family is better because of it. When people come to me for advice, I share the gospel of natural medicine as freely as I share the gospel of Jesus Christ. I wouldn't do that if I didn't have faith in it.

But natural medicine cannot be my Savior. I already have One, and He demands all of my faith and trust. I do not serve an ideology. I serve a Living God who is wild, multifaceted, unpredictable and relentless. He will do what He wants, how He wants, using who He wants. He has reminded me that just because He is now leading me to Mayo Clinic doesn't mean He is leading me away from natural medicine. Though I am venturing to a new place, I am not to abandon what I have learned. Instead, I will use it as a shield and filter for the next leg of the journey. 

And who knows? I may be wrong. I'm often wrong, and God likes to point out my wrongness at every turn. Maybe they can help me. Whether they can or not, nothing can be allowed greater respect and reverence in my life than the Spirit of the Lord. I am first and foremost His. I am not my own. I must follow where He leads even when I don't understand. Even when I disagree. As Timothy Keller says, "Obedience is hard; disobedience is impossible."

Truly, this is a leap of faith for me. I am diving head first into the unknown. The mist is thick and the darkness deep. I haven't the smallest inkling of how far I will fall or what the terrain is like at the bottom of the abyss. I am afraid to hope. If I hope, I may find myself in a sea of disappointment, and those are treacherous waters indeed. But there is one thing I can count on--no matter how far I fall, "underneath are the everlasting arms" (Deut. 33:27).


Please pray:
  • for peace and courage
  • for needed arrangements (private flight, hotel with kitchen, local source of safe food, appointments, child care, family care, transportation while we are there)
  • for the doctors I will see
  • for all of God's purposes to be fulfilled
  • for safety
  • for my man and kids
I will call in a couple of weeks to set up my appointments. I will update here as things unfold. I am excited to experience and share what God has in store!

Update:

My body is still struggling with daily reactions, fatigue and insomnia. Recently, my pain has been especially bad, particularly in my joints and lower back. I am very excited to report that Jennifer Nervo, a nutritional therapist and author of the blog 20 Something Allergies has taken on my case. The idea is to thoughtfully nourish myself to better health! Once I begin dietary and supplemental protocol, I will post regular reports of my improvement on Facebook and/or here. 

Also, I have an opportunity to safely attend church now! My grandparents' congregation is small, and only a handful of regular attendees go to the Sunday night service. My grandparents have offered to ask everyone to omit their fragrances for my sake. When I am feeling strong and well, I will attend services there. I am thrilled! I have really missed church!

To Such a One

On Sunday, I spent time in prayer for several dear friends in various, serious situations. This poem formed out of those prayers.

Dedicated to Jenny Foster and the Gauley family.



“To Such a One”

You are a white fire blazing,
angry at the wicked ev’ry day.
You are a storm unyielding,
devastating all within your wake.
You are the cosmic architect
building galaxies with a breath.
You are the fount of wisdom
ordaining limits to the depths.
You are the prima artist—
the light your paint, the clouds your clay.
You are the chief musician
singing darkness into day.
You are a judge of fury;
before you none can stand.
You are power unending—
life and death in your hand.
You are, too, the lamb of sacrifice,
mild and meek, my soul to save.
You are the champion of legend
who has snatched me from the grave.
You are the tenderest lover
kissing me with mercy and with grace.
You are the keenest observer
numbering the freckles on my face.
You are a priceless treasure,
a wealth beyond belief.
You are the true inheritance
endowing all I need.
You are the ever faithful friend
I will meet upon the Shore.
You are my home, my groom, my God
for all days, forevermore.
To such a One I can entrust
all matters—flesh and soul;
and not just mine—for He is vast—
but all I love and know.
And not just those within my scope
for that would be too small,
but all mankind throughout all time,
creation—seen and unseen—all.

Melissa A. Keaster
1/12/14

A Year of Wait, A Year of Peace

 "When Heaven is going to give a great responsibility to someone, it first makes his mind endure suffering. It makes his sinews and bones experience toil, and his body suffer hunger. It inflicts him with poverty and knocks down everything he tries to build. In this way Heaven stimulates his mind, stabilizes his temper, and develops his weak points." 
 --The Book of Mencius (Chinese, 300 BC)
quoted in Timothy Keller's Walking with God through Pain and Suffering

January is always hard for me. I've tried to like this lackluster, step cousin of a month all my life, and just can't quite manage it. I think I shall give up the endeavor entirely, and attempt to peacefully coexist with the grey, cold, hard month of January, accepting her just as she is because she has much to teach me.

As the first month of the year, January offers an opportunity to reflect upon the year now gone and the new one to come. For the last three years, I have kept a regular journal which I like to review as a part of my new year contemplations. Upon the pages recorded in 2013, I find assurance of God's faithfulness, a reminder that January passes and clear evidence of quiet, mysterious growth over time. I rediscover surprises--both good and bad--and find how wrong my guesses concerning the future often are. The latter discovery has so humbled me, in fact, that I have resolved to make no resolutions this year, for a staggering amount of my good intentions and serious efforts crumble to dust. No worries though--dust has its place. And I do not have to dig deep to discover treasures hidden in the rubble.


1) Mom's jubilee birthday celebration. Though jubilee often manifested itself in perplexing ways, I don't think a one of us would fail to recognize its presence in 2013.


2) Brandon's personal and spiritual growth. A stronger marriage for the struggle. I so respect and admire this man.



3) God planted in my heart a desire to adopt. I expect a significant passage of time before this desire comes to fruition, but I am excited and expectant.

4) My Papaw, Jenny and myself looked death in the eye (almost simultaneously), and were granted more time.

5) Jubilee's first summer garden. I consider that first garden to be the miracle prayed for on my behalf on the 8th of June.
 

6) New friends. Meetings and reconnections with old friends.

7) The time spent in my parents' home this summer. A renewed closeness with each of my parents.

8) The inception of the novel I am writing.
 
 9) Jenny's wedding.


10) Richard Morrison becoming a part of our lives through his marriage to Hannah. This man is a blessing to us all. We are thrilled to have him in the family. P.S. The wedding was beautiful, and I was able to attend.








All wedding photos taken by Jolly Tucker Photography.

11) Growth in the children: Micah has overcome fear and awkwardness. Therapy has helped him become who he really is--outgoing, friendly, hilarious and unafraid. He is learning with every question he asks, and like any four year old, he asks a ton! Best of all, I see the seeds of the gospel taking root in his little soul, and it thrills this mama to no end.
 

Sara has responded well to changes in her diet. Her cognitive development and emotional control have improved tremendously. I thought she might be a slower learner than Micah, but it turns out that I was wrong. Now that the allergy-induced brain fog has cleared, she is incredibly observant, soaks in information like a sponge and makes impressive connections between concepts, events and persons.
 

It comforts my sore heart to know they are blossoming in spite of the limitations my illness creates. (Thanks to the family members who help me water my little flowers.)
 

12) My own growth. I don't say this with any pride in myself for I know the achievement belongs to the Lord alone, but I am a better person for living through 2013--January and all. I know and love my Jesus better, and that one fact makes me better in every way a person can be better. There are many "miles to go before I sleep," but growth is the thing.

The lesson of 2013 was "wait." I asked the Lord to show me what it means to wait upon Him years ago, and He answered. Not as gently as I had in mind, but He answered. Though I am still very much in a waiting period and still learning to wait well, God has revealed that 2014 has a new theme--"peace." Peace in knowing what is wrong with me and understanding my prognosis, peace in not knowing the future. Peace in fear, peace in loss, peace in heartbreak, peace in grief. Peace, peace, peace. Pure, perfect peace transcending all we comprehend of life and death.

While I have resolved not to make resolutions (as it seems I am powerless to make anything happen regardless of the strength of my will), I have in mind a collection of challenges for myself. Some matter more than others. God is my peace in success or failure.

2014 Challenges:

1) Know Christ more fully.
2) Seek diagnosis and greater understanding of my disease at Mayo Clinic in May.
3) Potty train my girl.
4) Send my boy to school. Those of you who know me know I wanted to homeschool my children before I had children. However, I believe that for homeschool to be successful, a mother must be able to get her children out of the home regularly for cooperative learning and socialization experiences. I am unable to do that, so I believe it is in Micah's best interests to attend school. Thankfully, we have found a school which matches our educational philosophy and goals.
5) Love my family and friends in creative and meaningful ways; freely accept the love they are able to give; forgive disbelief and misunderstanding.
6) Be "joyful in hope, patient under trial and faithful in prayer."
7) Work on the novel.
8) Read more; Facebook less.
9) Stop trying to predict or control the future.
10) Dance during hard moments. Literally--dance.
11) Laugh upon every opportunity.
12) Stop waiting to feel better to live. Weigh the risk and reward. Pray for wisdom. Live.

While January 2014 seems to be no different than the Januarys which have come before and though I have not had a truly "good day" yet this year, I am brimming with anticipation. My girl will be potty trained soon. No more diapers! My boy will turn 5 and go to kindergarten. I will go to Mayo and turn 30 soon after. Brandon and I will celebrate 10 years of marriage. And then there are many surprises which will come our way. Some surprises will be welcome, some will be unpleasant, but all will be for our good. I can rest in the face of the unknown because "the Dayspring from on high has visited us to give light to those who sit in darkness and the shadow of death, to guide our feet into the way of peace" (Luke 1:79).

Peace--a beautiful word.

May 2014 be a year of peace for you, too.

The Secret of the Cosmic Scales

I have been on quite the journey since Thanksgiving. My latest little crisis forced me to face some harsh realities--physically, emotionally and spiritually--and though I am a bit bruised with all the jolting around, I am in a better place for it. The Lord's leading isn't always gentle, but hallelujah!--He never lets go of the hand that reaches for Him.

As our burdens press us, weighing us down, He is present in equal measure, holding us up with His mercies (Psalm 94:18). In Morning by Morning, Charles Spurgeon writes about what I call "The Secret of the Cosmic Scales," based on 2 Corinthians 1:5--"Here is a blessed proportion. The Ruler of providence bears a pair of scales--in this side He puts His people's trials, and in that He puts their consolations. When the scale of trial is nearly empty, you will always find the scale of consolation in nearly the same condition. When the scale of trial is full, you will find the scale of consolation just as heavy. When the black clouds gather most, the light is more brightly revealed to us...." (from February 12).

Sometimes the light brings warmth and clarity. Sometimes it exposes the darkest corners of the heart. I have experienced both as you will see in my journal entries. (These entries have been edited for the sake of space, grammar, flow and a small measure of privacy.)

_________________________________________________________________________________

11/29/13

"I think it's time to look into a major research hospital like John Hopkins or Mayo," Mom said. Her thoughts were echoed by my prayerful grandmother later in the day.

Miserable and confused though I am in the wake of my latest reaction and resulting flare, I am not so sure. The words resonate in the deep places, but I am afraid. I fear the danger, the expense, the difficulty, the time away from my kids, the hardship on my family, but most of all I fear the possibility of being disappointed--again. I'm not sure I could take it. If I go, I must know beyond all question God wills it.

Brandon and I are against this, God. So if it is Your will, change our minds.

11/30/13

I talked to Mom on the phone this morning. She has been researching. She believes I have a type of "mast cell activation disease." If so, Mayo is the place to go.

After reading several medical articles about the disease, I am almost certain she is correct. While there is no way to be sure without proper testing, it is the only disease we know of which covers all of my symptoms, and indeed, I have almost all of them. It explains not only everything I am experiencing in this moment, but also what I have experienced throughout my life. I am both thrilled to have answers and saddened to discover there is no cure. Mast cell disease is usually managed by a mountain of medication (which I am unwilling to take) and avoidance of triggers (which I am already doing to the best of my ability).

So, what can they do for me at Mayo? I have already proven that I do not tolerate antihistamines or steroids. I see little point in the exercise. Why go if I cannot tolerate treatment? I can change my diet and continue my routine here.

From Jesus Calling: "Talk with Me about whatever is on your mind, seeking my perspective on the situation. Rather than trying to fix everything that comes to your attention, ask Me to show you what is truly important. Remember that you are en route to heaven, and let your problems fade in the Light of eternity."

"I will instruct you and teach you in the way you should go;
I will guide you with My eye." --Psalm 32:8

Lord, I give you my problems. Please show me what is important to You.

12/3/13

I suppose there is no harm in running a couple of preliminary tests locally. As clear as a whisper in my ear, God spoke the name, "Dr.__________," which is interesting because of all the doctors I have seen, he may be my least favorite. Sigh. I will call his office.

12/4/13

"Be humble and pretend to be unintelligent," I was advised prior to today's appointment with Dr. ________, but I had already ruined the appointment before I arrived at the office. I was unaware I was speaking with the nurse when I scheduled the appointment the day before. My words were pretty snarky and sarcastic, which alerted me to something rotten within myself. I said stupid things stupidly. From the moment the nurse attached my face to my name and voice, she was cold. As was Dr.___________. He was obviously warned of me. He probably remembered me, too, which couldn't help.

I took the advice I was given. I was soft spoken. I put my inner Hermione Granger aside, and pretended to be clueless. But he called me out when he grew tired of listening to my long list of symptoms for the second time. "So what would you like me to do? Why are you here?" he asked. Because I had told the nurse which tests I wanted run when I scheduled the appointment, he already knew the answer to the question and was waiting for me to ask. The entire exercise was awkward and unpleasant, and it's all my fault. He softened just a bit at the end of the appointment when I said, "I appreciate all your help," but irrevocable damage has been done by my lack of discretion. The fact that he thinks I'm a hypochondriac doesn't help matters.

However, I have learned something about myself from the experience: I have been deeply hurt, and I blame medical doctors for my pain. But that isn't fair. First of all, no doctor goes about trying to hurt his patients. They may not always know how to help, but they never intentionally do harm. Also, Dr. ____________ tried to run these tests 18 months ago. I apparently refused them though I have no recollection of the term "tryptase" prior to last week, and if I did, I certainly wouldn't have understood the significance then. Doctors are only human. They have all been blinded until now. The doctors did not cause my suffering; God did. God blinded them.

For years, I have blamed doctors for their poor and inadequate treatment when the truth is that God could have turned on a light bulb for any one of them had He wanted to. Therefore, the only logical conclusion is that He didn't want to. He has me on a journey, and the destination is not all about physical healing. It may not be about that at all. He has a purpose in mind, and His purposes are all good whether or not they include diagnosis, treatment and healing. I have to let go of my pain which comes from the anger, defensiveness, and blame I feel toward the medical community, which I now need. Doctors are not my enemy. 

Here I am, Lord. I blame You. I blame You, and I thank you for my pain; not because pain is good, but because You are good and you mean this pain for my good. My pain, my deep hurt, is a mercy because it sends me to You. I acknowledge that you have darkened minds and will shine a light when and where and upon whom You will.

12/7/13

As I was crying moments ago over the life and death of David Brainerd as told in Piper's The Hidden Smile of God, the thought came to me--"How carelessly Brainerd and Jonathan Edwards regarded health." In answer, God replied, "And you hold it altogether too precious." Out of the exchange flowed a liquid revelation. I could only float along--

I must be careful to view my health, whether good or poor, as a tool for God to wield as He desires for His glory. It is better to hold it in mean esteem than to hold it too dear. Souls are at stake. My soul, Brandon's soul, the souls of my children and whoever else God places in the wake of this illness. Eternal souls are far more precious than mortal lives, than my mortal life. I must be careful of idolatry.

12/9/13

I don't know the correct course. Every time I think I know the next several steps to take, I encounter something which holds me back. I am still "The Planner." I want to know what's next and prepare myself, but God is asking me to trust, to wait, to obey. I remind myself my burden is light in comparison to the weight of glory (2 Corinthians 4:17).

12/11/13

Struck with insomnia once again, I spent some dark, quiet moments in prayer tonight before rising out of bed to write. At least insomnia can be useful. I was praying for ____________ and ______________, telling the Lord how hopeless their situations seemed to me. He spoke the word "seemed" back to me with emphasis. Because of Jesus, no situation is truly hopeless. Their is hope in life and in death "because we do not look at the things which are seen but the things which are unseen because the things which are seen are temporary [not real] and the things which are unseen are eternal [true, real] (2 Corinthians 4:18)." So I prayed for them and others and myself that we would all have eternal eyes, that we would know "the hope of [our] calling, the glorious riches of [our] inheritance in the saints and the exceeding greatness of His power toward us who believe (Ephesians 1:18-19)."

12/13/13

My test results all came back negative. All this means is that I am unlikely to have systemic mastocytosis, and I will receive no further help from Dr. _________ unless it's a psychiatric referral. I don't know what to do. A big part of me just wants to drop it, and continue as I am. I feel no inclination to pursue diagnosis or avoid it. I feel totally at peace. I will put this aside until after Hannah's wedding. I must concentrate on being well enough to attend.

________________________________________________________________________________


I was able to attend the wedding with very few complications. Praise the Lord! On Sunday, I wrestled as I rested and recovered. It was not a struggle of fear. I was simply asking as Abraham did in Genesis 15, "Oh Lord God, how shall I know?" I was back and forth on whether to pursue things further, feeling like I should but questioning my motives and weighing the cost.

I found a couple of mast cell disease groups on Facebook, and read several posts. As I read the stories and questions of others, I began to understand the value of a diagnosis. We must understand things in our minds at some level before our hearts can believe them. I needed to know the practical points of having a diagnosis before being convicted of its worth.

1) Without a diagnosis, I can get very little accomplished in the medical community. Running tests and getting at-home care have proven to be a bit of a nightmare. With a diagnosis, the specialists I encounter are less likely to think of me as a nutter and actually work with me.

2) If I ever have an accident or need surgery, I need a diagnosis in my records so the doctors/surgeons will know to be careful with me and be prepared for life threatening situations during and after surgery.

3) If something happens to Brandon and I am unable to work, I need to be able to apply for disability. I must have a diagnosis to do that.

4) Many conditions are genetic. It is important I know what is wrong with me so I can better care for my children. They already share several of my symptoms though theirs are not as severe at this time.

And there are other reasons. Shallow and stupid though it is, I want a name to give people when they ask me what is wrong with me. I don't care they won't understand the name or what it means; I just want to be able to give an explanation in five words or less. Knowing what is wrong will give me better insight in caring for myself. I will likely continue with natural medicine exclusively because antihistamines and steroids have turned on me in the past and because I have found mast cell disease patients who are doing quite well only using natural protocol, but it is never a bad thing to know the treatment options. Also, I have a rabid curiosity that needs to be put down. And I can trust that whatever it is that is wrong with me, whether it's mast cell disease or something else, Mayo will dig until they find it.

It was Monday morning before I officially decided I would pursue diagnosis with Mayo Clinic in Rochester, MN. I also decided I will wait until May. I will have to be away for a minimum of two weeks, so we will need all hands on deck. My mom finishes school in early May. She may actually be my travel companion due to the length of the stay and her background in medical laboratory science. Six months also gives me time to arrange my affairs. If we fly, I will have to arrange a private flight. Driving will require lots of planning. I need to find a suitable place to stay. Hotel rooms do atrocious things to my health. The kids will need looking after. And six months gives God time to redirect us if He wishes.

I have been consistently asking God for clarity, and He gave it to me Monday night. My sweet friend, Caroline, who is much like me in health and beliefs about healing, is also in the middle of a health crisis. In rare form, she visited the ER the other night and was referred to none other than Mayo Clinic in Rochester. She spent the day there today (Tuesday). We often find ourselves on similar wavelengths concerning our health. I was astounded that the day I made my decision, she was referred to the very hospital we have chosen. How very kind of God to confirm my decision in such a clear, personal way!

So you see, on one side of my "cosmic scales" sat a health crisis and all the grief that accompanies it, a big decision, revelation and repentance of hidden sin, and a major family event. On the other was God's exquisite nearness, loving rebuke, clear direction and extravagant goodness. I am still amazed that I am happiest when life gets hard, but that is the reality of life lived with Jesus Christ.

You may be struggling as I am to "get into the Christmas spirit" this year. I haven't been in the mood for festivities. I haven't had much patience for Christmas pop tunes. Give me Christmas worship! Worship is what the heavy-laden spirit needs. I invite you to experience with me the greatest gift of Christmas--Emmanuel, God with us. No matter the brand or weight of your suffering, God sees. He knows. He cares. Little or big. Sickness or grief. Draw near to Him this Christmas season. Rest your head upon His breast. Allow Him to fill your loneliness, provide balm to your wounds and bring joy to your sorrow. Blessed are you if you mourn. You will be comforted. Blessed are you if you hunger. You will be satisfied. (Matthew 5)

"Troubled believer, do not fret over your heavy troubles, for they are the heralds of weighty mercies."
--Charles Spurgeon, Morning by Morning, February 12.

A Quick Update and Prayer Requests

On Friday morning, I had an allergic reaction after breakfast. Thinking I had developed an egg allergy, I was crushed. Thanks to the guidance and wisdom of the Lord, I discovered the problem--too many high histamine foods in my diet. A combination of kombucha, tomatoes and tomato products, cinnamon, curry, cumin, berries, dried fruit and eggs sent me into a hyperimmune state, and I am currently unable to eat. Again.

Mostly, I am relieved. No true egg allergy! Yay! And the fact that I was able to catch the problem before I worsened is a huge blessing. On the other hand, it's frustrating to be in the same old place again. I feel very unwell. I am working hard to chug the water through burning and discomfort, so I don't become dehydrated.

My doctor treated me today at her home with energy work, Zyto and RIFE. She is fabulous, isn't she? Another blessing! I feel better after the treatment, but need to continue my fast well into tomorrow. I will also be detoxing as I do after each treatment, so I will be uncomfortable to say the least. I hope to be ready to eat a little something at dinner tomorrow night, but will have to wait and see. I will know if I will be ready for food when I take my supplements tomorrow afternoon. If I tolerate them well, I will eat dinner.

I need to get well quickly. My sister's wedding is two weeks from yesterday, and I really want to be well enough to stand with her. We also have a family vacation planned immediately after Christmas. I don't want to ruin our plans....for the thousandth time.

Please pray for:

1) Strength of body and my "inner man"; renewed hope and sufficient grace.

2) Quick improvement.

3) Health to attend Hannah's wedding and family vacation.

4) Brandon. His load is overwhelming when I get like this.

5) The kids. They feel very off-kilter when Mama isn't well enough to care for them.

6) Wisdom and clarity. We are always seeking guidance from the Lord concerning my health. For better or worse, we have only gone where He has led. It is possible He is leading somewhere new and--frankly--quite risky and difficult.  We are not in a hurry to make a decision. I have no interest in rushing desperately into another dead end or turning away from a door the Lord has opened. We will wait for clear direction with eyes, minds and hearts wide open.

7) God's glory in our suffering. His glory is worth it all.

Thank you for praying for my family through another difficult time.


"It is said that in some countries trees will grow, 
but will bear no fruit, because there is no winter there."
 --John Bunyan


Jubilee Farm

Thanksgiving is my favorite holiday. I so enjoy gathering with family over a delicious, bountiful meal, looking into the faces of those I love. It causes me to ponder Heaven--an eternal feast with our Savior and the family of God. My heart flies with joy in the day and hope for the future. Christmas is great, but we have brought much "doing" into it. Thanksgiving still allows me to "just be" with beloved souls as I contemplate the goodness of God.

For as long as I can remember, my mother's family has gathered in my grandparents' living room on Thanksgiving night. Before the feast, we bless the meal and share one thing for which we are grateful. We have so many blessings from which to choose. The room which once seemed spacious is now quite snug due to the marriages and babies of my generation. There is food enough to fill us all. We have been redeemed by the blood of the Lamb. Our answers range from "toilet paper" to "Jesus Christ" with many things in between. There is always laughter. There is always at least one "amen."

Due to my extreme sensitivities, I will not be able to join them this year. The thought saddens me, but I don't see why I have to break from all tradition. If I could be with them tonight, upon my turn to give thanks, I would answer, "Jubilee Farm."

To truly appreciate my answer, a story must be told.

Early in 2012, my dad had a difficult decision to make. He could retire at the end of the school year, or continue a job he no longer enjoyed in order to secure a more comfortable retirement. Dad's health was deteriorating, but if he resigned my parents would no longer be able to afford their house. Mom encouraged him to retire anyway.

My parents brainstormed about possible jobs my dad could do. A bad back is a bigger obstacle than one might think when considering a career change at the age of 60. They asked the Lord to guide them, and waited with eyes wide open.

One day, Mom came upon Proverbs 27:27--"There will be enough goats' milk for your food, for the food of your household and maintenance for your girls." (ESV)

She shared the scripture with Dad. "Maybe you could farm," Mom suggested. "You can grow our food, and maybe even make a little money." Dad once wanted to farm for a living, but his grandparents discouraged him so he went to college instead. Mom has always dreamed of a Little House on the Prairie lifestyle. It was a crazy idea, but my parents are just the right kind of crazy for this brand of adventure. 

If my parents were to become farmers, they needed to sell their house and find some land. They discussed moving closer to Farmerville to be nearer to Mom's parents and my family. Mom asked her dad to look for property outside of Farmerville. In no time at all, he secured the twelve acres which would become Jubilee Farm.

But there was one small problem: to buy a farm you need money, and money was something my parents did not have. Mom's parents agreed to help. They covered the cost of the land with Mom's inheritance and a promissory note which Mom and Dad would pay within a year upon the sale of their house. It didn't quite work out that way. Eighteen months later, they still haven't sold their house. Instead, they paid the difference with Dad's inheritance, which came in only a few weeks ago. Talk about a leap of faith....

After Brandon took a walk on the new property and had a talk with my dad about the merits of reducing and eliminating debt, Brandon came home to me one May afternoon with the looney notion of selling our house, buying a trailer and forming a commune with my parents and sister on the farm-to-be. My health was tanking at the time. "It would be nice to have your parents close by," he said. I thought he had lost his mind. But eventually, I lost mine, too, and we became the first family to take up residence on Jubilee Farm. 

The land here--it isn't prime property. This place used to be a dump. Literally. There is a lifetime's worth of glass shards in our front yard. Three pipelines run through it, and there isn't a lot of marketable timber. It's rutted, weedy and wild. It isn't pretty. The soil is acidic and rock hard, which is the opposite of good farmland. However, it's lack of apparent potential made it affordable, which is what we needed. And we know that the Lord does not see as man sees. Man looks at the outward appearance, but the Lord sees deeper and farther (1 Samuel 16:7). He saw potential and beauty, and helped us see it, too. Even Jenny, who visited before many improvements were made, declared the property possessed "a blessed quality."

In January, I shared the story of how Jubilee Farm earned her name. What I didn't share is the passage the Lord used to speak a blessing over our little farm. I read it in January, just before Mom's Jubilee Birthday celebration, and inscribed it in her birthday journal.

"You visit the earth and water it,
You greatly enrich it;
The river of God is full of water; 
You provide their grain,
for so You have prepared it.
You water its ridges abundantly,
You settle its furrows;
You make it soft with showers, 
You bless its growth.
You crown the year with Your goodness,
and Your paths drip with abundance.
They drop on the pastures of the wilderness,
and the little hills rejoice on every side.
The pastures are clothed with flocks;
The valleys also are covered with grain;
They shout for joy, they also sing."
-Psalm 65:9-13

Brandon tilled the ground. Dad put his Master Gardener's knowledge to use, and balanced the pH of the soil. In March, we planted the gorgeous baby plants the Yakaboskis sold to us, and watched them grow. The work suited Dad, even with his bad back. It actually made him feel better.


 

Unfortunately, some mistakes were made. Overwhelmed by the bug population trying to eat our lovely little plants, Dad used a mild pesticide early in the season. In his defense, almost no one around here has much success at organic gardening. He simply gave in to what the Master Gardener class taught him, and what other gardeners do themselves. But it didn't kill the bugs, and I couldn't eat the first of the produce as a result. Later, he tried a more potent pesticide. I didn't know he was spraying again, and walked outside with the kids about 20 minutes after everything had been doused. The poison, which is a neurotoxin, almost killed me. I do not exaggerate.

The initial exposure is the worst reaction I have had to date, and there were long term effects. It put me in the bed for weeks, and set my health on a steep decline. I made some mistakes of my own, and found myself unable to eat or drink again during the first week of June. I was watching all of that gorgeous food come into my kitchen, and couldn't eat a bite of it. I struggled to believe God's promise to me that I would live because I felt like I was dying. I will not rewrite what has already been written, but it is important to note that a prayer meeting took place on my behalf and things drastically changed afterward. 

Yes, mistakes were made, but God trumped them all. Within a few days, I was eating again. Granted, it was only raw eggs and cream of rice cereal at first, but when I began to eat "real food," I could suddenly eat from the garden. Zucchini, squash, tomatoes, tomatillos, eggplant, peppers, onions, cabbage, all of it! I could even eat watermelon to which I have been allergic for years. I could eat foods then that I cannot eat today. And best of all--the food was healing my body. As I ate, I could feel a gentle tingle throughout, almost as if I was feeling the healing taking place at a cellular level. I will never forget the sensation.






When I finally climbed out of survival mode, I realized how well our garden was doing. Others gardeners would comment that their gardens weren't doing as well, and they had years of experience. Rains came regularly and at the right times, nourishing the plants and washing away the poison. Dad, determined to never use pesticides again, began to pick off the potato bugs and tomato eating worms by hand. The Louisiana summer was not overly hot. We grew enough safe, beautiful food to feed our families, to share with our friends and to sell at nearby markets well into the month of July.

The excitement we experienced in the summer is mostly over now. We have greens to look forward to, but a recent frost killed our squashes and only a few green tomatoes remain to be fried. But when I look back at what came to pass, I tear up a little. 

God used the garden to save my life. The thought leaves me speechless. 

It overwhelms me that as early as the spring of 2012, God was actively answering the prayers offered for me in June 2013. Think about this--as you make your requests before God today, His answer is already in the works. He resides in our past, present and future, and is not bound by time or money or our limitations or our mistakes. He reigns over all. And He is building with us a rapport of faithfulness so when the next trial comes, we can say with greater assurance, "God, You are faithful, and You are good. I trust you."


I am thankful for Jubilee Farm. I am thankful for what she says about my God. He is the ultimate Gardener, enriching the soil and the soul, bringing the rain and sunshine as needed for growth. He crowns the year with goodness. He makes our paths drip with abundance.

Happy Thanksgiving.





The Cup

During periods of trial, time plays odd games. The days are long though they trip along like merry children. You wonder where and how they went. A season is born and buried while you are living from one breath to the next. You emerge from the rubble of the last windstorm, certain a lifetime has passed since you last saw the sun. Nope. Just a month. You check the calendar to be sure.

The previous four weeks have gone like that. Kind of. The suffering hasn't been life threatening, but it's been real and very hard. I'm not fighting for survival anymore, just the will to survive. I've got breath in my lungs and food in my stomach, but I haven't been able to pin down joy or hope or faith for longer than a single moment at a time.

Difficult circumstances have exposed deeply seated, uncomfortable emotions, which had so long been hiding under the rug I had forgotten all about them. As I tried to cope with a physical setback and the suffering of those I care for, the unwelcome feelings bubbled to the surface, demanding to be dealt with. Emotion became thought, which in turn became need. After some graceless floundering about, need became prayer.

God was acting before I uttered the first plea. He gave me several cues to seek physical support for these powerful feelings. One lovely feature of natural medicine is that it treats the whole person, not just flesh and bone. I talked to Dr. Yakaboski last week about my concerns. At our appointment this week, she performed a Zyto scan. My top five stressors were "afraid," "fear," "pain," "intensity," and "disconnected." I'm not sure I could have better described myself. Using the Zyto machine, she made a water-based homeopathic to treat the specific stressors. After the scan, she performed B.E.S.T. during which she "cleared" what I felt to be the most troubling thoughts and feelings. Relief was immediate. I have felt better physically and emotionally since the treatment, and I continue to take the homeopathic.

In His usual perfect timing, God prompted a friend, who also happens to be my primary physician, to send a lovely care package. The letter, Bible verses and mixed CD of worship music speak far deeper and more poignantly than she knows. As I listen to the music and put the Scripture to memory, I am suddenly Moses so weary from holding up my arms. I cannot let them droop because if I do the battle will be lost, and even though the battle wages only in my own soul, the stakes are higher than I can imagine. My friend is Aaron, holding up my arms when I no longer can. With her help, I have caught my second wind. I remember I am not alone. Oh, how we need one another. Oh, how blessed we are to be part of a family.

The Lord provided me with tangible assistance through my doctors and friends. In His Word, He gave answer. And none too gently. He is not a tame lion, after all.

To my fear of being forgotten, He says, "Are not five sparrows sold for two copper coins? And not one of them is forgotten before God. But the very hairs of your head are all numbered. Do not fear therefore; you are of more value than many sparrows" (Luke 12:6-7). 

To my desire for love from certain people in my life who withhold it, He says, "abide in My love" (John 15:9).

To my loneliness, He says, "When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you. When you walk through the fire, you shall not be burned, nor shall the flame scorch you....Fear not, for I am with you" (Isaiah 43:2,5), and "Be content with such things as you have. For He Himself has said, 'I will never leave you nor forsake you'" (Hebrews 13:15).

To my desperation to be understood He says, "The heart knows its own bitterness, and a stranger does not share its joy" (Proverbs 14:10), and "For we do not have a High Priest who cannot sympathize with our weaknesses, but was in all points tempted as we are, yet without sin" (Hebrews 4:15).

God has shown me this truth--no one can enter into my suffering except for Christ Himself. Likewise, I cannot enter into the suffering of another. I can only be perfectly understood by One. There is a veil which prevents anyone from treading upon the holy ground between Christ and the individual believer. Not even my husband or mother can pass through.

Do you see it? Jesus Christ has audaciously set Himself up to be the answer to all my needs, to every longing of my heart. He never once mentioned the remembrance, affection, company or empathy of another human being, which I suppose is handy since I'm rarely around people above the age of four. But it wasn't the answer I was looking for. And somehow it was more.

Jesus isn't only ready and willing to enter into my suffering. Infinitely more importantly, He is inviting me to enter into His, "to know Him....and the fellowship of His suffering" (Philippians 3:10). He is offering to me His cup--the one He so wanted to pass Him by, the one He drank dry to rescue my soul from deadly self-sufficiency. Dude, I don't want the cup, either! I, too, have asked, begged God to take it away.

And yet I wonder--is there anything more intimate than sharing a cup? I have shared with my parents, my sister, my husband, my best friend, and only sparingly even then. You have to really know and love a person to swap backwash. The thought strikes me--Jesus is the ultimate Father, Brother, Husband, Friend. To know Him and all His names, we must taste the wine of His suffering, bitter though it is.

His love gives me courage. With Him, I say, "Not my will, but Yours." I will drink with the One who snatched me from the jaws of death.

Sharing the cup is not a one time decision; it's a daily one. In the early days of my suffering, I decided that knowing Christ was more important than health, but as time passed and the burden of this all-encompassing illness only grew heavier, I began to desire healing more than the glory of God. Essentially, I became an idolator.

Once upon a time, I may have volunteered to have a little "health scare" or something mildly earth-rending to bring me closer to God. I'm weird like that. But this thing--it has dragged me farther than I ever wanted to go. I never wanted to hurt this badly, lose this much. I never desired my death. And that's what this illness has wrought. I may be breathing, but the woman I once was is no longer with us. I have been absolutely ruined, torn apart. I will never recover.

 This is what the cup does. It kills you.

"Most assuredly, I say to you, unless a grain of wheat falls into the ground and dies, it remains alone; but if it dies, it produces much grain. He who loves his life will lose it, and he who hates his life in this world will keep it for eternal life." John 12:24-25

The One with whom you share the cup brings you back to life.

"Jesus said to her, 'I am the resurrection and the life. He who believes in Me, though he may die, he shall live. And whoever lives and believes in Me shall never die. Do you believe this?'" John 11:25

Below is one of the songs my friend included on the CD. Listen and be blessed:



A Portrait of the Gospel

My spirits tend to sink when weighted by a chain of hard days. I wish I was past this weakling business. I'm not. Here's the lovely thing--the bad days were proceeded by several good ones.

Brandon and I attended Brian and Jenny's wedding in Houston. I will try to give an adequate description of the day, but I am afraid words will fail. The highlights are as follows:

The way was prepared for me. I had prayed long and hard concerning the event. I held it loosely so the sting wouldn't be too great if plans fell through. A thousand things could have gone badly, any of which would have prevented me from attending. Not one came to pass. We were nervous. We remembered too well our last trip to Houston, specifically the drive back home through the rain as I struggled for breath and clung to my Epi pen. We were driving west and almost at the Texas state line when the Lord gave me a word--"redemption." I spoke it aloud. I told Brandon that this trip would be the opposite of our last. God was going to redeem the trauma of the year before.

 The hotel room made me sick, but my reactions were controlled with TBM and BioSet (energy/acupressure work). Jenny had asked my groomsman escort not to wear cologne. The bridesmaids--strangers almost--elected not to wear any fragrance on my behalf without being asked by anyone. There are only a handful of people in my life who make this kind of accommodation for me. I was stunned by their thoughtfulness. My mask was still needed, and it provided sufficient protection until I passed a particularly fragrant wedding guest in the reception area. My reaction was not life threatening, but I was made unwell enough to require treatment.

God smiled on the day. The air was cool and crisp. Sun rays glowed golden, slipping through morning shadows to dry the dew and warm our shoulders. God's seal of approval was apparent in every detail. His Spirit hung quietly about us all, manifesting in joy, calm, intentional moments and physical strength for Jenny. And she looked absolutely beautiful.

I generally don't cry at weddings, but I cried at this one. It was simple and impossibly sweet. Every expression, word, musical choice and ceremonial symbol bore significance. The congregation was called to sing, "Ode to Joy"--a fitting song for the event. When the chorus began, voices like angels rang from the loft above. The church had granted Brian and Jenny an unexpected gift of a women's choir to bless them. They blessed us all.








Unfortunately, I kind of derailed after the trip. Now ask me if I regret going. (Hint: See facial expressions in photos above.)

Pain, brain fog and heightened sensitivity set in the evening we returned home, growing worse each day. These symptoms are often accompanied by depression. Depression is a nasty foe, particularly so because it consumes a person with self. Self is never a good focus. Self fails in every way. It blinds you to what is real and vital. It takes from you without ever giving anything back.

It is a shame that after freshly experiencing something so beautiful and divine, I returned home to wallow. Like a pig in filth.

I allowed unholy thoughts to pour in and puddle--This is too hard. I've been sick so long. I may never be well. I am forgotten. No one understands what my life is like.

At Jenny's wedding, I was asked, "What is your illness?" This question is always hard for me. It reminds me there is no name for what I have. People understand names like "cancer" and "diabetes," but they cannot understand the craziness I've got going on. If I say I have allergies, people think I'm being extremely dramatic about a runny nose. If I talk about immunity or methylation, their eyes glaze over with information overload. My disease is a mystery to me. How do I answer the question? I try. It always comes out in too many confused words.

When there is no name for the disease, there is no established protocol. My doctor and I really have no idea what we are doing. Muscle testing keeps us from making major, life-threatening mistakes, but really all we have to go on is trial and error. Two prospective treatments have recently come to my attention. I did not realize how desperately I was hoping to be a candidate for either or both until Dr. Yakaboski tested that I was a candidate for neither. I wasn't prepared for the disappointment.

More unholy thoughts--You are a freak. No one knows what is wrong with you. You are too sick to tolerate the treatments that can make you better.

There are people who need me--my time, my "spoons," my prayers, and all I have been thinking about is myself. Last night, I had enough. I'm sure God had enough before it began. I wielded my secret weapon--the self sermon.

I preach a mini sermon almost every day either for me or the kids. I have gotten pretty good at it. I began preaching to myself out loud over my stove as I cooked. Micah and Sara were unphased. Eight kinds of crazy are accepted here. I began by quoting scripture to myself:

"Why are you cast down, O my soul? And why are you disquieted within me? Hope in God, for I shall yet praise Him for the help of His countenance." --Psalm 42:5

"If I say, 'My foot slips,' Your mercy, O Lord, will hold me up. In the multitude of my anxieties within me, Your comforts delight my soul."--Psalm 94:18-19

"'My grace is sufficient for you, for My strength is made perfect in weakness.'"--2 Corinthians 12:9

"Let us run with endurance the race that is set before, looking unto Jesus, the author and finisher of our faith, who for the joy that was set before Him [US] endured the cross...." Hebrews 12:1-2

"When my heart is overwhelmed, lead me to the rock that is higher than I."--Psalm 61:2

I did not realize how bad I was feeling physically until this inexplicable weight on my body and haze in my brain lifted. Last night Scripture literally brought a manner of healing to my body. Not just to my soul. To my body.

Enjoying the new clarity, I began pouring my heart out to Jesus. My feelings were utterly selfish, but He listened. And He not only listened--He responded.

Me: I feel so misunderstood.

GOD: Is not my understanding enough for you?

Me: Ouch. Yes, it is. I feel forgotten.

GOD: The eyes of God of the Universe are upon you. You cannot comprehend what this means.

Me: Wow. Yeah, I guess I don't. Well, how am I going to get better if I cannot tolerate treatment?

GOD: You will continue to patiently walk in my wisdom until my purposes are accomplished and you are healed. The treatments of man are irrelevant to you.

Me: And there ya go. I feel unimportant.

GOD: When Jesus was born into the world, He was God made into flesh yet only his parents and a few animals were present. During His world changing ministry, He only had a handful of friends. Jesus made Himself unimportant. This is your model. Do not forget the cross. Your importance to Me was made clear there.

Me: I am ridiculous.

Later, Brandon ministered to me as well. He listened. He validated my feelings. And he preached to me from Scripture, the gist of which was Paul had it way worse than you and was joyful in all things so suck it up! Perfect! I was taken aback by this sweet manifestation of the Spirit in my husband. Generally, men like to play Mr. Fix It. You offer a problem; they offer a solution. Brandon knew he couldn't offer me a real solution, so he offered me something better. He gave me an ear and a godly kick in the pants.

Even the sum of these things fell a mite short of what I really needed. I needed a flag to follow--something greater than myself as a rally point. The Billy Graham special reminded me of what that is tonight.

Billy Graham is gifted. He preaches a simple message simply. The gospel of Christ is incredibly elementary. A preschooler can grasp it. It is also devastating, earth rending, life changing. Tonight I recalled my purpose. I have been bought with a price. I am owned. My purpose is to enjoy Jesus regardless of my circumstances, to make Him look beautiful to the world, and to spread His fame. I cannot do this if I am looking at myself. I am entitled to my feelings. God gave us the capacity to feel. But I must not allow my feelings to consume me. I must be consumed by the truth and permanence of the cross.

Looking at the cross requires looking away from ourselves to gaze at something glorious--something worth living, worth suffering and worth dying for. The cross demands everything we are; the resurrection supplies the power to give what is demanded. We are not victims, brothers and sisters. We are warriors, overcomers, victors!

I thought about Jenny's wedding again after the special. It was a true to life portrait of the gospel. We are a broken bride. We are sick with physical, spiritual and emotional maladies of all kinds, the names of which do not matter, for it is all disease in need of healing. We are frail and imperfect. We need to be saved, restored and healed. Though we have done nothing to deserve it, God has clothed us in a lovely, white gown. He has made us radiant with His love. This is our reality right now, and we are still only our shadow selves. We are not yet who we really are. We still carry our brokenness with us. But if we will just keep looking to the Groom and bask in the love shining from His eyes, we will make it down the aisle just fine.

 "God has been too good to me to play the victim anymore."--Jenny








But YES The Hippopotamus

Much has changed for the hippopotamus over the course of a month. It is my utmost pleasure to report all changes have been good, encouraging and praiseworthy! Like the heat and humidity of this long, Louisiana summer, the intensity of my crucible has receded, and a new season has come.

Light breezes sometimes carry the scent of burning leaf piles to Jubilee Farm. Fall squashes and bitter greens grace our table almost daily. Blackeyed susans line our red clay road. A lone scarlet leaf skipped and tumbled past my feet on our last walk. Autumn has come quietly, but soon she will burst into robust song. As the season goes, so--I believe--will I.

All change requires a catalyst--even natural change and especially personal change. We people are resistant to the seam ripping and pinpricks that go into being tailored to fit our individually designed purposes. Autumn rides in on the breath of God, which tilts the planet just so. The new developments in my story were heralded by a similar wind. God has spoken. Through his Living Word, through dreams, in provisions and circumstances, He has delivered the same message over and over: "Come out of that cocoon, Little Coward, and trust me."

Two days before my last post, Jenny asked me to stand in her wedding. (She and her husband never had a wedding.) The evening after the post was published, my sister called to ask me to stand in hers. In a period of three days, I was asked to be present at two major life events belonging to two of the most important people in my life. I could not bear to miss either celebration--one of God's power, the other of His grace--and yet I was at a loss as to how I would manage. I barely ventured outdoors due to danger. How could I knowingly stand before a room full of people doused in all manner of harmful chemicals without upstaging the bride with a horrible reaction? My sardonic sense of humor replied with, "You could always be her something blue."

Fortunately, the Lord rescued me from unhelpful, dark humor, and offered me real, practical solutions. While on Facebook one day, I saw a post from a lady who had recommended a particular brand of mask which was effective at filtering fragrances. I searched for the old message, found the link and ordered one rather impulsively, knowing there was a high probability I would not be able to tolerate the mask. Sure enough, I muscle tested the mask when I received it in the mail, and no dice.

For weeks, Dr. Yakaboski had been urging me to call her chiropractor friend, Dr. Lynette Frieden. I put it off  because there was no money. With well over $2,000 in unpaid medical bills, it seemed irresponsible to seek the help of another doctor who may or may not be able to help me. The idea would not leave me alone, however. When I asked Brandon if we could possibly afford it, he said we would make it work somehow.

I am thrilled I went. Dr. Frieden does more than bone manipulation, which was surprisingly helpful in itself. She also performs a particular form of energy medicine called Total Body Modification (TBM). Dr. Frieden actually came to Dr. Yakaboski's office to perform TBM on me in May after my near deadly encounter with a pesticide. I respond so well to TBM that Dr. Yakaboski created a treatment program for me which includes basic TBM and BioSet. I receive this treatment weekly in her office, and we use it at home as a rescue remedy in lieu of Benadryl and epinephrine since I no longer tolerate either drug. It totally looks like voodoo, but it works. And it's not voodoo. It's science.

Anyway, I have seen Dr. Frieden three times. I now have more energy and less pain. I can tolerate the smells of essential oils, which I have wanted to use for medicinal purposes. My neuropathy has calmed way down so I no longer feel stinging sensations all over my body several times a day. My monthly discomfort is greatly reduced. I now tolerate the new "super mask." And in what may be the most exciting development of all, I am sleeping better.

To further support better sleeping habits, I stopped napping, opting for light exercise and a bath instead. Yoga has proven especially beneficial. Certain poses grant me pain relief and an energy boost. After only two weeks, I am stronger and less depressed.

Feeling better has made me braver. I have been intentionally doing (reasonable) things that scare me. I began small. For my first attempt, I set up a picnic for the kids on the back porch. The next step was a short walk down the road. Walks turned into swinging little red heads and looking on while they play in the sandbox. The fear fueled vigilance I kept on my first few outings ebbed little by little. I can now relax, notice smiling flowers and enjoy my children. Yesterday, I only startled once when something flew buzzing into my face.



In spite of my improvements, unless God had moved hearts other than my own, I would yet be a self-imposed prisoner in my home. My Nona has been inviting me over for Saturday afternoon coffee for weeks. Finally, my mother acted as chauffeur to ensure I actually went. That was almost two weeks ago. I did not return home perfectly well nor extremely sick, and I very much enjoyed the fresh faces, stimulating conversation and my herbal tea.

To build upon my motivation to get out and get going, a college friend and a family friend who attends the church in which I grew up both shared they had dreams about me last week. In the dream of my college friend, I was in the midst of a group of people smelling a wildflower. In the dream of the family friend, I was in my home mingling with a crowd. Lots of children were running around. I learned of both of these dreams within 36 hours. I think it is interesting to note that I have not seen either of these women in years. It seems random, but if you gaze at the situation in the right slant of light, you will see design. God has spoken to me several times through my own dreams. Now He is speaking to me through the dreams of others. How cool is that?

I was given a dream this summer which foreshadowed public humiliation, danger and survival. All three aspects were highly likely if I was to do the thing I was considering after learning of the dreams of my friends.

I attempted church on Sunday.

Yes, it was humiliating. Masks draw attention--more so than protective gloves, might I add. I would have preferred being invisible over the stares I received. Yes, it was dangerous. Even through my "super mask," the smells were too many and too strong. I reacted, and spent the remainder of the day in bed. And yes. I survived.


I am happy I went. But the best moment of worship on Sunday morning was not in a sanctuary. It was in my car on the way to the service.

You see, I am never aware of the depth of my suffering while I am in the middle of it. Contrary to all reason, I have never been abidingly unhappy in my pain. God has been too good to me in the dark moments. I have hurt. I have bled. I have wept. Yet I have never despaired because I know that Jesus knows and has been there Himself and is there when life becomes unbearable. It is only when God gives something back that I truly taste the bitterness of my cup. The feeling is something akin to a desperate breath searing my lungs after being underwater for too long. In those moments, I have learned to let myself grieve over what I lost. I loose hot tears and sloppy sobs from a deep, hidden vault in my soul. And then I let it go. When I do, tears of mourning become tears of unspeakable joy. My eyes open to what God has done, to the new paragraph He has written. I am struck with wonder. I sense my smallness, my unworthiness, God's enormity and His attention to detail. I am pulled into the cosmic riptide of God's infinite love. Gall transforms into the sweetest wine, and I become intoxicated with His goodness. The suffering is transformed into something glorious, something I can never regret or mourn again!

I think it is important to understand that my little trip to church is not about me. It is about God. To me, to my family, to all of you who have prayed so faithfully, He is saying, "Behold what I have done." He has all but slayed me, but He has brought me back to life. He has taken it all away, and now He is giving it back. He has heard you. He has heard us. And we have only begun to see what He will do.





Lord willing, this hippo will be at Jenny's wedding next weekend. Please pray for my safety and Brandon's peace.